scholarly journals Lived Experience of Psychosocial Disability and Social Inclusion: A Participatory Photovoice Study in Rural India and Nepal

2018 ◽  
Vol 1 (2) ◽  
pp. 5-23
Author(s):  
Helen Lea Fernandes ◽  
Stephanie Cantrill ◽  
Ram Lal Shrestha ◽  
Rachel Belda Raj ◽  
Becca Allchin ◽  
...  
Keyword(s):  
Lived Experience ◽  
Social Inclusion ◽  
Rural India ◽  
Structured Interviews ◽  
Participatory Action ◽  
Community Based ◽  
Psychosocial Disability ◽  
Meaningful Engagement ◽  
Study Participants ◽  
Photovoice Methodology

Purpose: This study aimed to investigate the experiences of people living with a psychosocial disability in rural India and Nepal, and to highlight key barriers and enablers for inclusion.Method: Participatory action research approaches and Photovoice methodology were employed to investigate the lived experience of 32 participants in rural India and Nepal. There were 12 participants and 4 caregivers of people with psychosocial disability from each of the two countries. Semi-structured interviews with study participants were transcribed and analysed thematically to answer the study question.Results: The findings revealed themes related to various supports, meaningful engagement in activity, and community awareness. Among these categories were both enabling and impeding factors to inclusion, the presence or absence of which was typically associated with improvements or worsening of symptoms respectively.Conclusions and Implications: This study underscores the need for integrated community-based approaches that are multisectoral, inclusive of family, and strengthen community responses. Photovoice was also shown to be a feasible research methodology for providing insights into the lived experience of people with psychosocial disability and for fostering their empowerment.

scholarly journals Lived Experience of Psychosocial Disability and Social Inclusion: A Participatory Photovoice Study in Rural India and Nepal

2018 ◽  
Vol 29 (2) ◽  
pp. 5 ◽  
Author(s):  
Helen Lea Fernandes ◽  
Stephanie Cantrill ◽  
Ram Lal Shrestha ◽  
Rachel Belda Raj ◽  
Becca Allchin ◽  
...  
Keyword(s):  
Lived Experience ◽  
Social Inclusion ◽  
Rural India ◽  
Psychosocial Disability

scholarly journals Precarious Work Experiences of Racialized Immigrant Woman in Toronto: A Community- Based Study

Just Labour ◽  
1969 ◽  
Author(s):  
Stephanie Premji ◽  
Yogendra Shakya ◽  
Megan Spasevski ◽  
Jessica Merolli ◽  
Sehr Athar
Keyword(s):  
Labour Market ◽  
Immigrant Women ◽  
Immigrant Woman ◽  
Work Experiences ◽  
Structural Barriers ◽  
Decent Work ◽  
Structured Interviews ◽  
Participatory Action ◽  
Community Based ◽  
Precarious Work

Despite their high levels of education, racializedimmigrant women inCanada are over-represented in low-paid, low-skilljobs characterized by highrisk and precarity. Our project documents the experiences with precariousemployment of racialized immigrant women in Toronto. We conducted 30 semi-structured interviews with racialized immigrant women. Participants wererecruited through posted flyers, partner agencies,peer researcher networks andsnowball sampling. Interviews were transcribed andanalyzed using NVivosoftware. The project followed a community-based participatory action researchmodel.Participants faced powerful structural barriers todecent employment andadditionally faced barriers associated with household gender relations. Theirlabour market experiences negatively impacted theirphysical and mental healthas well as that of their families. These problems further constrained women’sability to secure decent employment. Our study makes important contributionsin filling the gap on the gendered barriers racialized immigrant women face inthe labour market and the gendered impacts of deskilling and precarity onwomen and their families. We propose labour marketreforms and changes inimmigration and social policies to enable racialized immigrant women toovercome barriers to decent work.

scholarly journals Wearing the Label of Mental Illness: Community-Based Participatory Action Research of Mental Illness Stigma

2015 ◽  
Author(s):  
Jean Theurer ◽  
Nicole Jean-Paul ◽  
Kristi Cheyney ◽  
Mirka Koro-Ljungberg ◽  
Bruce Stevens
Keyword(s):  
Mental Illness ◽  
Action Research ◽  
Participatory Action Research ◽  
Local Community ◽  
Research Question ◽  
Mental Illness Stigma ◽  
Structured Interviews ◽  
Participatory Action ◽  
Community Members ◽  
Community Based

Stigma remains an impediment to seeking and receiving the requisite care for mental illness. To enhance a local National Alliance for Mental Illness (NAMI) affiliate’s understanding of community members’ perceptions of mental illness and its associated stigma, a community-based participatory action research study was conducted. The study addressed the following research question: how do community members understand and experience the stigma associated with mental illness? Twenty-two participant-researchers wore mental illness labeled T-shirts around the local community, recorded their observations and reflections of this experience and recruited twenty-two community members for semi-structured interviews about mental illness stigma. Domain analysis of the interviews revealed community members’ understandings of (1) sources of stigma, (2) impacts of stigma, (3) conceptualizations of stigma and (4) pathways to change stigma. Findings were presented to members of the local NAMI affiliate as well as other community members. Practical implications, specific to the community of interest, are discussed.

scholarly journals “Taming the Beast”: Exploring the Lived Experience of Relapsing Remitting Multiple Sclerosis Using a Life History Approach

2019 ◽  
Vol 33 (3) ◽  
pp. 229-245
Author(s):  
Therese Burke ◽  
Steve Vucic ◽  
Joanna Patching
Keyword(s):  
Multiple Sclerosis ◽  
Life History ◽  
Lived Experience ◽  
Structured Interviews ◽  
Relapsing Remitting ◽  
History Of ◽  
Remitting Multiple Sclerosis ◽  
History Approach ◽  
Study Participants ◽  
Relapsing Remitting Multiple Sclerosis

Background and PurposeThe aim of this study was to gain insights and understanding into the lived experience of relapsing remitting multiple sclerosis (RRMS) in order to better inform patient-centerd nursing and healthcare.MethodsThis qualitative study used life history methodology, a form of focused ethnography, to explore the life history of 13 study participants living with RRMS. Semi-structured interviews were transcribed and analysed using thematic analysis.FindingsA total of eight key themes emerged, explaining the journey of living with RRMS. Commencing with “Piecing Together the Puzzle” of symptoms at the beginning of the RRMS journey, followed by “(Re)defining ME now that I have RRMS,” “Battling the Demons,” the experiences of “Surplus Suffering,” negotiating “High Invisibility,” gaining control by “Taming the Beast,” learning “The DMT Dance,” and ultimately “Holding Hands with Hope,” expressing hope and practising purposeful positivity.Implications for PracticeThe eight key themes of living with RRMS were reflective of the ebbs and flows of life. By gaining these insights into the world of people living with RRMS, it is anticipated that clinical nursing care and quality of life for people living with this chronic neurological disease may be improved.

Uncovering Social Issues Through Photovoice: A Comprehensive Methodology

2021 ◽  
pp. 193758672110551
Author(s):  
Mia Kile
Keyword(s):  
Social Sciences ◽  
Social Issues ◽  
Group Discussion ◽  
Personal Narratives ◽  
Community Based Participatory Research ◽  
Research Process ◽  
Participatory Action ◽  
Shared Experience ◽  
Community Based ◽  
Photovoice Methodology

Photovoice is a form of participatory action research and community-based participatory research and often used in social sciences to understand the needs of others and uncover the challenges and assets that may exist. Photovoice engages participants in the research process by inviting them to share their experiences through photographs and personal narratives. This act of storytelling and group discussion provides emotional connections among the participant cohort. Through the discussion of shared experience, common themes may arise. This column provides and overview of the photovoice methodology and highlights some of the benefits and limitations one might experience when leading photovoice based projects. Photovoice is a powerful tool that can prove useful for design researchers and practitioners alike as they seek to understand the challenges facing others. It is through this understanding that transformation to improve situations can occur.

Engaging youth in rural Uganda in articulating health priorities through Photovoice

2016 ◽  
Vol 24 (3) ◽  
pp. 59-67 ◽  
Author(s):  
Daniel Esau ◽  
Pak To Ho ◽  
Geoffrey K. Blair ◽  
Damian Duffy ◽  
Nathan N. O’Hara ◽  
...  
Keyword(s):  
Health Promotion ◽  
Health Status ◽  
Secondary Analysis ◽  
Structured Interview ◽  
Health Priorities ◽  
Participatory Action ◽  
Community Based ◽  
Eligibility Criteria ◽  
Health Concerns ◽  
Study Participants

Youth living in rural Uganda represent over 20% of the country’s population. Despite the size of this demographic segment of the population, there is a paucity of data on their health priorities. Engaging people in understanding their own health status has proven to be an effective mechanism for health promotion. The objective of this study was to use Photovoice, a community-based, participatory action research methodology, to understand the current health priorities of youth living in rural Uganda. Thirty-two students between the ages of 13 and 17 were recruited from four schools within the region of Soroti, Uganda. Participants were given a disposable camera and were asked to photograph situations that contributed or detracted from their health status. The cameras were then returned to the investigators and each photo taken by the participant was reviewed with the investigators during a semi-structured interview. Codes were applied to the photographs and organized into overarching themes. Each participant chose one to two photos that were most representative of their health priorities for a secondary analysis. Participants provided 499 photos that met the eligibility criteria. The most common themes presented in the photographs were ‘hygiene’ ( n = 73, 12.4%), ‘nutrition’ ( n = 69, 11.7%), and ‘cleanliness’ ( n = 48, 8%). ‘Hygiene’ ( n = 6, 14.6%) and ‘exercise’ ( n = 6, 14.6%) were the most common priorities articulated in the representative photographs. Photovoice proved to be an effective method to assess and express the health concerns of youth in rural Uganda. Study participants were able to articulate their health concerns and priorities through photographs and reflect on opportunities for health promotion through subsequent interviews.

scholarly journals INVOLVING COMMUNITY GOVERNMENTAL ORGANIZATIONS IN THE ESTABLISHMENT OF DEMENTIA-FRIENDLY COMMUNITIES IN BEIJING

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S444-S444
Author(s):  
Yu Liu ◽  
Hexin Zhao ◽  
Hong Guo
Keyword(s):  
Social Inclusion ◽  
Public Awareness ◽  
Participatory Action ◽  
Community Based ◽  
Community Initiatives ◽  
Governmental Organization ◽  
Governmental Organizations ◽  
Support Resources ◽  
Community Residents ◽  
Teaching Modules

Abstract China has about 20% of the world’s total dementia population. Since most elders with dementia are living at home with care by family members, communities are fundamental support resources for families as well as patients. Dementia-friendly community initiatives aim to empower families with dementia and increase their social inclusion. Within the Chinese political context, the community level governmental organization called Ju-wei-hui has played a key role in community engagement. Within this context, a Community Based Participatory Action Research (CBPAR) process is utilized to increase public awareness on dementia and caring strategies. Our team collaborated with 15 Ju-wei-hui offices across Beijing to design a series of courses and teaching modules together. Five hundred community residents participated and positively evaluated the project. A major finding is that CBPAR could be an effective strategy to develop dementia-friendly communities across China.

scholarly journals Exploring the Perceptions of and Experiences with Traditional Foods among First Nations Female Youth: A Participatory Photovoice Study

2020 ◽  
Vol 17 (7) ◽  
pp. 2214
Author(s):  
Rebecca Hanemaayer ◽  
Kimberley Anderson ◽  
Jess Haines ◽  
Kitty RLynn Lickers ◽  
Adrianne Lickers Xavier ◽  
...  
Keyword(s):  
Urban Communities ◽  
First Nations ◽  
Indigenous Peoples ◽  
Well Being ◽  
Food Choices ◽  
Traditional Food ◽  
Structured Interviews ◽  
Traditional Foods ◽  
Community Based ◽  
Photovoice Methodology

Traditional foods contribute to the health and well-being of Indigenous Peoples. Many Indigenous Peoples within Canada have expressed a desire to consume more traditional foods; however, there are a number of barriers to doing so. Southern and urban communities face unique challenges associated with traditional food consumption. To address these concerns and build on community interests in a Haudenosaunee community in Southern Ontario, a participatory research project was initiated. This community-based study utilized Photovoice methodology to explore the perceptions of and experiences with traditional foods among local youth. Participants ranging in age from 15–22 (n = 5) took photos of their local food environments, including locations where foods were acquired, consumed, prepared, or shared during two seasons of the year. Semi-structured interviews were conducted to collect participants’ stories behind 8–10 self-selected images. A thematic analysis was subsequently utilized to identify patterns and themes illustrated by the photos and interview content. The youth conveyed contextual understandings of traditional foods and a preference for these items, despite their limited consumption, preparation or harvesting of these foods. The youth also identified the important influence of families and communities on their individual perceptions and experiences with traditional foods. Recommendations to reduce barriers to traditional food choices among youth are made.

scholarly journals Digging beneath the Surface: When Disability Meets Gender Identity

2020 ◽  
Vol 9 (4) ◽  
pp. 1-23
Author(s):  
Alexandre Baril ◽  
Annie Pullen Sansfaçon ◽  
Morgane A. Gelly
Keyword(s):  
Grounded Theory ◽  
Gender Identity ◽  
Lived Experience ◽  
Participatory Action ◽  
Community Based ◽  
Core Concepts ◽  
Research Findings ◽  
Two Phases ◽  
The One ◽  
Trans Youth

This article presents the results of a community-based participatory action-research conducted in the province of Quebec with 54 trans youth (15-25 years old). It describes the difficult reality faced by youth who are both trans and disabled and who live at the intersection of cisgenderism (or transphobia) and ableism. The research project, which uses the grounded theory methodology, was conducted in two phases of data collection between 2016 and 2019. In total, 39 of the 54 youth interviewed in person (72.2%) self-identified as disabled. This article therefore focuses on the experience of these young people. We begin this paper with a review of the literature on the theme of “transness and disability.” Then we present the core concepts in our research, including intersectionality, as well as the methodological framework that guided the project, grounded theory. In the following section, we present and discuss the research findings. After showing that, for trans youth, disability has implications at all levels in their lived experience and cannot be separated from their trans identity, we explore the intersections between transness and disability in the lives of trans youth through two main axes. We demonstrate how, on the one hand, impairments and ableism sometimes become obstacles to the realization of gender identity, and how, on the other hand, gender identity and cisgenderism can sometimes become disabling.

Maternal and child health nurses’ experiences of implementing two community-based breastfeeding interventions in Victoria, Australia: A mixed methods process evaluation

2019 ◽  
Vol 16 (1) ◽  
pp. 4-14 ◽  
Author(s):  
Rhian L Cramer ◽  
Helen L McLachlan ◽  
Touran Shafiei ◽  
Lisa H Amir ◽  
Meabh Cullinane ◽  
...  
Keyword(s):  
Child Health ◽  
Maternal And Child Health ◽  
Randomised Trial ◽  
Cluster Randomised Trial ◽  
Breastfeeding Initiation ◽  
Structured Interviews ◽  
Breastfeeding Support ◽  
Community Based ◽  
Significant Drop ◽  
And Child Health

Despite high rates of breastfeeding initiation in Australia, there is a significant drop in breastfeeding rates in the early postpartum period, and Australian government breastfeeding targets are not being met. The Supporting breastfeeding In Local Communities (SILC) trial was a three-arm cluster randomised trial implemented in 10 Victorian local government areas (LGAs). It aimed to determine whether early home-based breastfeeding support by a maternal and child health nurse (MCH nurse) with or without access to a community-based breastfeeding drop-in centre increased the proportion of infants receiving ‘any’ breast milk at four months. Focus groups, a written questionnaire and semi-structured interviews were undertaken to explore the interventions from the perspective of the SILC-MCH nurses (n=13) and coordinators (n=6), who established and implemented the interventions. Inductive thematic analysis was used to identify themes, then findings further examined using Diffusion of Innovations Theory as a framework. SILC-MCH nurses and coordinators reported high levels of satisfaction, valuing the opportunity to improve breastfeeding in our community; and having focused breastfeeding time with women in their own homes. They felt the SILC interventions offered benefits to women, nurses and the MCH service. Implementing new interventions into existing, complex community health services presented unforeseen challenges, which were different in each LGA and were in part due to the complexity of the individual LGAs and not the interventions themselves. These findings will help inform the planning and development of future programs aimed at improving breastfeeding and other interventions in MCH.

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