scholarly journals Validation of the Polish version of the Quality of the Carer-Patient Relationship (QCPR) in the population of seniors with dementia and their caregivers

2021 ◽  
Vol 24 (2) ◽  
Author(s):  
Edyta Janus ◽  
Agnieszka Smrokowska-Reichmann ◽  
Anna A. Bukowska
Keyword(s):  
Care Recipient ◽  
Patient Relationship ◽  
Language Version ◽  
Paper Version ◽  
People With Dementia ◽  
Polish Version ◽  
Polish Language ◽  
Quality Of Relationships ◽  
High Level

Introduction: Quality of the Carer-Patient Relationship (QCPR) is a specific scale for testing the quality of relationships between the caregiver and the care recipient. Aims: The aim of the study was to translate, culturally adapt and validate the Polish language version of the QCPR questionnaire. Material and methods: The study was conducted in a group of 102 people who agreed to participate in this study. The group included 43 seniors with early and intermediate dementia and 59 carers of people with dementia. The snowball method was used in the selection of the sample. All respondents lived in the following provinces: Małopolskie and Śląskie. Respondents completed the paper version of the QCPR questionnaire once. The research was carried out in January 2020. Results: Cronbach's alpha reliability coefficients (α) for the Polish language version was α = 0.93α, which means that a very high level of internal compliance was noted. Conclusions: The proposed Polish language version of the Quality of the Carer-Patient Relationship (QCPR) questionnaire allow to assess the quality of relationships between people creates dyads. It should be noted that the analysis concerns a single-factor variant. The level of reliability of the top-down scales is admittedly high (warmth: α = 0.93; criticism: α = 0.75), nevertheless the analyzes show that it is a purely arbitrary, content division, and the responses of the respondents do not combine in the scales highlighted in the original version of the questionnaire.

scholarly journals Quality of Care Provided by Family Caregivers of Older People With Dementia: Measurement and Interpretations

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 152-152
Author(s):  
Afeez Hazzan
Keyword(s):  
Quality Of Care ◽  
Older People ◽  
Family Caregivers ◽  
Family Caregiver ◽  
Primary Reason ◽  
People With Dementia ◽  
High Level ◽  
The Impact ◽  
The Relationship

Abstract Family caregivers of older people living with dementia are relatives, friends, or neighbors who provide assistance related to this condition, but who are unpaid for the services they provide. Although caregiving could be personally rewarding, many caregivers report a high level of strain. Compared to caregivers of older adults who do not have dementia, family caregivers of older people living with dementia report lower quality-of-life (QoL). In a published systematic review examining the relationship between family caregiver QoL and the quality of care provided, only one study was found to be somewhat relevant. The study suggested that the primary reason for an absence of research into the link between family caregiver QoL and quality of care was the absence of a questionnaire for measuring quality of care in dementia. Therefore, any attempt to investigate the impact of caregiver QoL on the care provided to older people with dementia must first address the lack of an instrument to measure quality of care. To address this issue, we interviewed approximately 20 family caregivers in order to elicit feedback on measurements and interpretation of the quality of care provided by family caregivers of older people living with dementia. Content analysis of the interview transcripts revealed that the quality of relationships with family, caregiver availability to provide or supervise care, and availability of paid or volunteer help are important for the quality of care provided. These results have important implications, particularly for the development of an instrument to measure quality of care in dementia.

scholarly journals Hidradenitis Suppurativa Quality of Life (HiSQOL): creation and validation of the Polish language version

2020 ◽  
Author(s):  
Piotr Krajewski ◽  
Łukasz Matusiak ◽  
Marta Szepietowska ◽  
Julia Rymaszewska ◽  
Gregor Jemec ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Hidradenitis Suppurativa ◽  
Language Version ◽  
Polish Language

Perceived Residential Environment Quality and Neighborhood Attachment (PREQ & NA) Indicators by Marino Bonaiuto, Ferdinando Fornara, and Mirilia Bonnes – Polish adaptation

2015 ◽  
Vol 13 (2) ◽  
pp. 111-162
Author(s):  
Michał Dębek ◽  
Bożena Janda-Dębek
Keyword(s):  
Residential Environment ◽  
Subjective Perception ◽  
Language Version ◽  
Environment Quality ◽  
Polish Version ◽  
Adaptation Procedure ◽  
Polish Language ◽  
Neighborhood Attachment ◽  
Polish Adaptation ◽  
Made In

Abstract There have been increasing calls in environmental psychology for the standardized instruments measuring people’s subjective perception of urban environment quality. One such tool is a commonly accepted and oft-cited questionnaire for measuring perceived urban environmental quality, the Perceived Residential Environment Quality & Neighborhood Attachment (PREQ & NA) Indicators, developed by a team of Italian researchers: Ferdinando Fornara, Marino Bonaiuto, and Mirilia Bonnes. This article presents the results of the PREQ & NA’s adaptation study that we conducted in Poland. The adaptation project was divided into several qualitative and quantitative stages spanning April 2013 to December 2014. A total of 200 participants were examined, 99 women and 101 men aged between 18 and 89. We cooperated with six English and Italian translators. The results of our study demonstrated a factorial validity of the tool’s Polish language version relative to both the Italian original and its recent Iranian adaptation, which we used for comparisons with the data obtained in a non-European cultural area. In addition to describing the entire adaptation procedure and presenting its results, we propose that a number of minor but necessary modifications be made in the Polish version, as indicated by our analyses. Following a positive verification and discussion of the Polish adaptation’s convergent, discriminant, and criterion validity, we propose the final Polish version of the adapted questionnaire.

scholarly journals Degree of personalisation in tailored activities and its effect on behavioural and psychological symptoms and quality of life among people with dementia: a systematic review and meta-analysis

BMJ Open ◽  
2021 ◽  
Vol 11 (11) ◽  
pp. e048917
Author(s):  
Shiyu Lu ◽  
Anna Y Zhang ◽  
Tianyin Liu ◽  
Jacky C P Choy ◽  
Maggie S L Ma ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Systematic Review ◽  
Psychological Symptoms ◽  
Meta Analysis ◽  
People With Dementia ◽  
Behavioural And Psychological Symptoms ◽  
Moderate Effect ◽  
Mean Differences ◽  
High Level

ObjectivesTo understand and assess the degree of personalisation of tailored activities for people with dementia (PWD); and to estimate the magnitude of the effects of levels of personalisation on reducing behavioural and psychological symptoms of dementia (BPSD), improving quality of life (QoL) and level of engagement.DesignSystematic review with meta-analysis.Data sourcesProQuest, PubMed, Ovid, Cochrane Library, Web of Science and CINAHL were searched from the start of indexing to May 2020.Eligibility criteriaWe included randomised controlled trials and quasi-experimental studies assessing the effects of tailored activities for people aged 60 years or older with dementia or cognitive impairment on the outcomes of BPSD, QoL, depression and level of engagement with control groups.Data extraction and synthesisTwo researchers screened studies, extracted data and assessed risks of bias. A rating scheme to assess the degree of personalisation of tailored activities was developed to classify tailored activities into high/medium/low groups. Effect sizes were expressed using standardised mean differences at 95% Confidence Interval (CI). Subgroup analyses were conducted to assess whether the degree of personalisation of tailored activities affected outcomes of interest.ResultsThirty-five studies covering 2390 participants from 16 countries/regions were identified. Studies with a high-level of personalisation interventions (n=8) had a significant and moderate effect on reducing BPSD (standardised mean differences, SMD=−0.52, p<0.05), followed by medium (n=6; SMD=−0.38, p=0.071) and low-level personalisation interventions (n=6; SMD=−0.15, p=0.076). Tailored activities with a high-level of personalisation had a moderate effect size on improving QoL (n=5; SMD=0.52, p<0.05), followed by a medium level (n=3; SMD=0.41, p<0.05) of personalisation.ConclusionsTo develop high-level tailored activities to reduce BPSD and improve QoL among PWD, we recommend applying comprehensive assessments to identify and address two or more PWD characteristics in designed tailored activities and allow modification of interventions to respond to changing PWD needs/circumstances.PROSPERO registration numberCRD42020168556.

scholarly journals THE CARE RECIPIENT’S PERSPECTIVE ON QUALITY OF CARE: DIFFERENT APPROACHES IN NURSING HOMES

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S73-S73
Author(s):  
Hilde Verbeek ◽  
Kimberly Van Haitsma
Keyword(s):  
Quality Of Care ◽  
Nursing Homes ◽  
The United States ◽  
Care Recipient ◽  
Term Care ◽  
People With Dementia ◽  
Centered Care ◽  
Specialist Health Care ◽  
Assess Quality

Abstract In long-term care, there has been an ongoing shift focused on person-centered care, positioning the care recipient at the core of good quality of care. This has resulted in more emphasis on care recipients’ preferences and experiences with the care they receive. In the Netherlands, Germany and the United States the need to focus on and assess quality from the care recipient’s perspective has emerged. This symposium presents four different approaches to quality of care from the care recipient’s perspective. The first speaker will focus on a narrative approach to assess experienced quality of care in nursing homes. The second speaker will present an observational method to assess the level of autonomy provided to people with dementia in nursing homes. The third speaker will present findings about the use of specialist health care in nursing homes as an indicator for quality of care. The last presentation will address the importance of preferences in quality of care. Defining, assessing and improving experienced quality of care from the care recipient’s perspective is an ongoing challenge, as each care recipient’s preferences and needs differ. It is important to assess in order to monitor that care is being tailored to the care recipient and to identify possible interventions that can enhance experienced quality of care.

scholarly journals Quality of relationships as predictors of outcomes in people with dementia: a systematic review protocol

BMJ Open ◽  
2016 ◽  
Vol 6 (4) ◽  
pp. e010835
Author(s):  
Hannah B Edwards ◽  
Jelena Savović ◽  
Penny Whiting ◽  
Verity Leach ◽  
Alison Richards ◽  
...  
Keyword(s):  
Systematic Review ◽  
Systematic Review Protocol ◽  
People With Dementia ◽  
Review Protocol ◽  
Predictors Of Outcomes ◽  
Quality Of Relationships

scholarly journals Psychosocial Adjustment of In-Home Caregivers of Family Members with Dementia and Parkinson’s Disease: A Comparative Study

2020 ◽  
Vol 2020 ◽  
pp. 1-10
Author(s):  
María Cristina Lopes Dos Santos ◽  
María Victoria Navarta-Sánchez ◽  
José Antonio Moler ◽  
Ignacio García-Lautre ◽  
Sagrario Anaut-Bravo ◽  
...  
Keyword(s):  
Parkinson’S Disease ◽  
Parkinson's Disease ◽  
Family Caregivers ◽  
Psychosocial Adjustment ◽  
Family Members ◽  
Care Recipient ◽  
People With Dementia ◽  
Influential Variable ◽  
Adjustment To Illness

Neurodegenerative diseases such as Parkinson’s and dementia are highly prevalent worldwide. People who suffer from these disorders often receive in-home care and assistance from family members, who must dedicate a considerable amount of time to the care recipient. The study of family caregivers’ psychosocial adjustment to the degenerative processes of both conditions is of interest due to the implications for the quality of life of both the care receiver and the caregiver, as well as other family members. This study compares the psychosocial adjustment of family members who care for people with dementia and Parkinson’s disease and identifies the main sociodemographic variables that affect the processes of adjustment to both conditions. To this end, the Psychosocial Adjustment to Illness Scale (PAIS-SR) and a sociodemographic form were administered to 157 family caregivers in Navarre, Spain. The results show that adjustment to the disease in family caregivers of people with Parkinson’s disease and dementia is, in general, satisfactory and related to variables such as place of residence, income, and employment status. The illness itself (Parkinson’s or dementia), however, is found to be the most influential variable in the level of psychosocial adjustment.

scholarly journals Siksa, drob, źlamdok, pędrok, węzowica – znajomość i rozumienie gwarowych ekspresywizmów nazywających dzieci przez najmłodszych mieszkańców wybranych małopolskich wsi

2021 ◽  
pp. 282-291
Author(s):  
Anna Piechnik ◽  
Keyword(s):  
Test Group ◽  
Young Generation ◽  
Standard Language ◽  
Language Version ◽  
Standard Version ◽  
Polish Version ◽  
Polish Language

Siksa, drob, źlamdok, pędrok, węzowica – knowledge and understanding of dialect expressions for children among the youngest inhabitants of villages in Lesser Poland region Summary The article presents the results of a questionnaire carried out among the young generation, concerning their knowledge of differential dialect expressions known to the oldest inhabitants of the same area. The study was carried out in 2014 and comprised four eastern and four western local dialects of Lesser Poland region. The analyzed test group was asked about the following five expressive lexemes: drob, pędrok, siksa, węzowica, źlamdok. The youth claim to be familiar with the lexemes that are present both in dialectal and standard Polish language (although particular meanings may vary). What is more, the meanings attributed to standard Polish version are more widely known than their dialect equivalents. Among the participants of the questionnaire, it is foreign words that are the least known, or completely unknown elements of Polish standard version. By means of adideation process, these words are identified as already familiar lexemes that are part of the standard language version.

scholarly journals THE POLISH ADAPTATION AND FURTHER VALIDATION OF THE COVID STRESS SCALES (CSS)

2021 ◽  
Author(s):  
Monika Frydrychowicz ◽  
◽  
Julia Pradelok ◽  
Kinga Zawada ◽  
Dominika Zyśk ◽  
...  
Keyword(s):  
Psychosocial Functioning ◽  
Sensation Seeking ◽  
Health Anxiety ◽  
Impulsive Behavior ◽  
Obsessive Compulsive ◽  
Language Version ◽  
Polish Version ◽  
Polish Language ◽  
Polish Adaptation ◽  
The Impact

"The scientific need to recognize the impact of the COVID-19 pandemic on human psychosocial functioning requires reliable and valid research tools to assess this impact. Therefore, we designed a study to create and further validate a Polish version of a research instrument assessing stress, anxiety, and fear related to the pandemic – the COVID Stress Scales (CSS; Taylor et al., 2020). This paper presents the specific research steps designed to develop and validate the Polish-language version of CSS (Taylor et al., 2020). These steps are as follows: 1) the translation of the original CSS into the Polish language by three independent translators and the back-translation by three other independent translators; 2) the assessment of the equivalence of the Polish translation of CSS in a study involving a sample of 30-60 bilingual people, fluent both in English and Polish languages; 3) the pilot study employing the pre-final Polish version of CSS; 4) the validation study involving a sample 600-900 participants in which the following instruments will be used: the Fear of COVID-19 Scale, the Patient Health Questionnaire-9 Scale, the Short Health Anxiety Inventory, the Social Desirability Scale, the Obsessive-Compulsive Inventory-Revised Scale, the Xenophobia subscale of the Questionnaire of Political Beliefs and the subscale Sensation seeking from the Impulsive Behavior Scale. We expect that the Polish version of CSS will be widely used by Polish researchers in their studies concerning the impact of the COVID-19 pandemic and other epidemiological threats on mental health. At the same time, we hope that our study will provide results that will help foreign researchers understand the COVID-19 pandemic in other countries."

scholarly journals ПОКАЗНИКИ ЯКОСТІ ЖИТТЯ ОСІБ, ЩО ДОГЛЯДАЮТЬ ЗА ПАЦІЄНТАМИ З ДЕМЕНЦІЄЮ

2021 ◽  
Vol 25 (5-6) ◽  
pp. 16-19
Author(s):  
О.В. Орлова ◽  
Л.В. Животовська ◽  
Д.І. Бойко ◽  
Л.А. Боднар
Keyword(s):  
Quality Of Life ◽  
Mental Health ◽  
Psychological Stress ◽  
Population Aging ◽  
The Elderly ◽  
Role Functioning ◽  
People With Dementia ◽  
Number Of Patients ◽  
High Level

Dementia is associated with decreased memory, impaired thinking, behavior and ability to perform daily functions. This condition mainly affects the elderly and is one of the main causes of disability. Dementia affects not only patients, their families and caregivers, but society as a whole. The number of people with dementia is on the rise worldwide, and prognosis generally indicates a significant increase in overall prevalence associated with population aging. A large number of patients with dementia are at home, where their family members perform the function of caring for them. With the progression of the disease, patients lose the ability to care for themselves on their own, so the question of outside care arises for their relatives. The aim of this study is to analyze the quality of life indicators in persons performing the function of caring for patients with dementia. It has been found that almost 80% of patients with dementia are cared for by their relatives. Caregivers are at risk of depression, anxiety and psychological stress. In this study, the authors identified factors influencing the mental health of caregivers, among which the degree of dementia and the patient's ability to perform daily activities were significant. In caregivers with a low level of mental tension, manifestations of social maladaptation were less common. Depending on the level of psychological stress, individuals with a high level of tension had lower indicators of quality of life on the scales "physical functioning" (p=0.003), "role functioning due to physical condition" (p<0.001), "social functioning" (p=0.04), "role functioning due to emotional state" (p=0.003), "mental health" (p=0,004). For this category of people, it is recommended to use counseling, psycho-educational activities aimed at understanding the improvement of quality of life.

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