Abstract
Context
Little is known about provider specialties involved in thyroid cancer diagnosis and management.
Objective
Characterize providers involved in diagnosing and treating thyroid cancer.
Design/Setting/Participants
We surveyed patients with differentiated thyroid cancer from the Georgia and Los Angeles County SEER registries (N=2632, 63% response rate). Patients identified their primary care physicians (PCP), who were also surveyed (N=162, 56% response rate).
Main outcome measures
1) patient-reported provider involvement (endocrinologist, surgeon, PCP) at diagnosis and treatment; 2) PCP-reported involvement (more vs. less) and comfort (more vs. less) with discussing diagnosis and treatment.
Results
Among thyroid cancer patients, 40.6% reported being informed of their diagnosis by their surgeon, 37.9% by their endocrinologist, and 13.5% by their PCP. Patients reported discussing their treatment with their surgeon (71.7%), endocrinologist (69.6%), and PCP (33.3%). Physician specialty involvement in diagnosis and treatment varied by patient race/ethnicity and age. For example, Hispanic patients (vs. non-Hispanic White) were more likely to report their PCP informed them of their diagnosis (OR: 1.68, 95%CI: 1.24-2.27). Patients ≥65years (vs. <45years) were more likely to discuss treatment with their PCP (OR: 1.59; 95%CI 1.22-2.08). Although 74% of PCPs reported discussing their patients’ diagnosis and 62% their treatment, only 66% and 48% respectively were comfortable doing so.
Conclusions
PCPs were involved in thyroid cancer diagnosis and treatment and their involvement was greater among older patients and patients of minority race/ethnicity . This suggests an opportunity to leverage PCP involvement in thyroid cancer management to improve health and quality of care outcomes for vulnerable patients.