scholarly journals Assessing the burden on primary caregivers of children with cerebral palsy and its relation to quality of life and socioeconomic aspects

2015 ◽  
Vol 22 (1) ◽  
Author(s):  
Mariana Ceravolo Ferreira ◽  
Brunna Loureiro Di Naccio ◽  
Myssao Yumi Costa Otsuka ◽  
Aurélio de Melo Barbosa ◽  
Paulo Fernando Lôbo Corrêa ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Cerebral Palsy ◽  
Primary Caregivers ◽  
Socioeconomic Aspects ◽  
Children With Cerebral Palsy

scholarly journals Quality of Life among Primary Caregivers of Children with Cerebral Palsy Living in Sarlahi and Rautahat Districts of Nepal

2021 ◽  
Vol 18 (4) ◽  
pp. 619-625
Author(s):  
Bina Pandit ◽  
Jitendra Kumar Singh ◽  
Ananda Kumar Karn ◽  
Rina Pandit
Keyword(s):  
Quality Of Life ◽  
Cerebral Palsy ◽  
Primary Caregivers ◽  
Poor Quality ◽  
System Level ◽  
Cross Sectional ◽  
Factors Associated ◽  
Significant Difference ◽  
Children With Cerebral Palsy

Background: The objective of this study was to determine the quality of life and factors associated with quality of life among primary caregivers of children with Cerebral palsy.Methods: A cross-sectional study was carried between primary caregivers of children with cerebral palsy in rehabilitation group and non-rehabilitation group. Purposive sampling technique was used to collect dataResults: Median age of caregivers was 34 years (age 20-70 years), and there was significant difference between age in two groups (p=0.028). 83 (86.5%) caregivers were female with significant difference between gender in rehabilitation and non-rehabilitation group (p=0.03). Majority of primary caregivers were mother 71 (74%) in both groups. Among all 96 caregivers, 78.1% of caregivers had poor quality of life (Score in questionnaire below 75% taken as poor quality of life).There was no significant difference between quality of life in rehabilitation and non-rehabilitation group (p=0.42). Factors associated with quality of life in rehabilitation groups was illiteracy (p=0.005), aggressive nature of child (p=0.050), uncooperative nature of child (p=0.025), poor knowledge about child condition (p<0.001), and low financial support (p=0.051). Similarly, factor associated with quality of life in non-rehabilitation group was gross motor function classification system level of child (p< 0.001) and more perceived stress (p=0.048). Conclusions: Majority of primary caregivers was mother and had poor quality of life and there was no significant difference between overall quality of life of caregivers in rehabilitation and non-rehabilitation group.Keywords: Cerebral palsy; quality of life; primary caregivers

scholarly journals Health-Related Quality of Life and Family Functioning of Primary Caregivers of Children with Cerebral Palsy in Malaysia

2021 ◽  
Vol 18 (5) ◽  
pp. 2351
Author(s):  
Kelvin Ying ◽  
Hans Van Rostenberghe ◽  
Garry Kuan ◽  
Mohammad Haris Amirul Mohd Yusoff ◽  
Siti Hawa Ali ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Cerebral Palsy ◽  
Family Functioning ◽  
Primary Caregivers ◽  
Health Related Quality ◽  
Sleeping Problems ◽  
Children With Cerebral Palsy ◽  
Related Quality ◽  
Health Related

Caregiving for children with cerebral palsy (CP) has proved to negatively impact on the physical and psychological well-being of their primary caregivers. The aim of the current study was to examine the overall impact of caregiving for children with CP on the primary caregivers’ health-related quality of life (HRQOL) and family functioning, and to identify potential factors associated with primary caregivers’ HRQOL and family functioning. The cross-sectional study involved a total of 159 primary caregivers of children with CP with a mean age of 42.8 ± 8.4 years. Demographic data and information on the physical and leisure activities of the primary caregivers were collected, and their quality of life (QOL) was measured based on the self-reported Pediatric Quality of Life Inventory Family Impact Module (PedsQL FIM). Primary caregivers in the current study have shown good HRQOL and family functioning, with scores of 82.4 and 85.3 out of 100, respectively. Through multiple linear regression analyses, the mother’s level of education, family monthly income, sleeping problems in children with CP, and the existence of children with other types of disability have been identified as factors contributing to HRQOL and family functioning. The findings help set out the course for stakeholders to establish action to enhance the QOL of primary caregivers.

A Cross-Sectional Study to Evaluate the Quality of Life of Caregivers for Children with Cerebral Palsy in Saudi Arabia, Jeddah

2021 ◽  
Author(s):  
Alanoud Akram Aman ◽  
Bashaer Baharoon ◽  
Haifa Jamal Idrees ◽  
Ahad Mohammedyusuf Taj ◽  
Bassmah Ali Alzahrani ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Saudi Arabia ◽  
Cerebral Palsy ◽  
Cross Sectional Study ◽  
Sectional Study ◽  
Cross Sectional ◽  
Children With Cerebral Palsy
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