Occupational Therapy Intervention in Cerebral Palsy Children with Oral Motor Dysfunction (OMD) and its Impact on Occupational Goals and Quality of Life of their Mothers

2016 ◽  
Vol 10 (4) ◽  
pp. 159
Author(s):  
V Siddharth ◽  
Anita Gupta
Keyword(s):  
Quality Of Life ◽  
Cerebral Palsy ◽  
Occupational Therapy ◽  
Motor Dysfunction ◽  
Oral Motor ◽  
Occupational Goals ◽  
Occupational Therapy Intervention ◽  
Therapy Intervention

scholarly journals Occupational therapy interventions in pulmonary rehabilitation – an update in the COVID-19 ERA

2021 ◽  
pp. 439-444
Author(s):  
Alina Deniza CIUBEAN ◽  
Viorela Mihaela CIORTEA ◽  
Rodica Ana UNGUR ◽  
Ileana Monica BORDA ◽  
Bombonica Gabriela DOGARU ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Occupational Therapy ◽  
Activities Of Daily Living ◽  
Pulmonary Rehabilitation ◽  
Daily Living ◽  
Therapy Interventions ◽  
Occupational Therapy Interventions ◽  
Occupational Therapy Intervention ◽  
Therapy Intervention

Background. As symptoms of COVID-19 infection are varying in severity and type, the long-term disability is yet to be established due to a short time-window since the pandemic started. Most survivors will have persistent pulmonary symptoms even after the infection, which raises the awareness of the importance of pulmonary rehabilitation in these patients, as they are mostly young, with severely diminished quality of life as they are unable to perform their basic activities of daily living as before. Occupational therapy is a form of rehabilitation treatment aimed at maximizing functionality and independence in performing activities of daily living, improvement of the patient’s autonomy and prevention of further functional decline. Objective. The purpose of the current work is to review the most important occupational therapy interventions applicable during a pulmonary rehabilitation program for chronic pulmonary pathologies, that can also be applied in COVID-19 survivors with persistent respiratory symptoms. Discussion. The main objectives of occupational therapy in pulmonary rehabilitation are training using breathing techniques at rest and during task performance, upper limbs training to increase exercise tolerance, programming and simplifying daily activities, informing patients of the importance of asking for help, planning the day/week, organizing the environment, educating the patient. All these objectives can be achieved in a simple way and at low-cost. Conclusions. Occupational therapy intervention during comprehensive pulmonary rehabilitation must be promoted to specifically evaluate and solve problems related to respiratory disability. Occupational tasks should be related to symptoms occurring during specific activities. Standardized protocols and definition of outcomes during occupational therapy intervention are lacking. Keywords: occupational therapy, pulmonary rehabilitation, COVID-19, activities of daily living, quality of life,

scholarly journals Cohort profile: the Swiss Cerebral Palsy Registry (Swiss-CP-Reg) cohort study

2021 ◽  
Author(s):  
Fabiën N. Belle ◽  
Sandra Hunziker ◽  
Joel Fluss ◽  
Sebastian Grunt ◽  
Stephanie Juenemann ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Cerebral Palsy ◽  
Data Collection ◽  
Personal Information ◽  
Knowledge Exchange ◽  
Motor Impairment ◽  
Motor Dysfunction ◽  
Level I ◽  
Gmfcs Level

BACKGROUND: Cerebral Palsy (CP) is a group of permanent disorders of movement and posture that follows injuries to the developing brain. It results in motor dysfunction and a wide variety of comorbidities like epilepsy, pain, speech, hearing and vision disorders, cognitive dysfunction, and eating and digestive difficulties. Central data collection is essential to study the epidemiology, clinical presentations, care, and quality of life of patients affected by CP. CP specialists founded the Swiss Cerebral Palsy Registry (Swiss-CP-Reg) in 2017. This paper describes the design, structure, aims and achievements of the Swiss-CP-Reg and presents first results. METHODS: Swiss-CP-Reg records patients of any age suffering from CP who are born, treated, or live in Switzerland. It collects data from medical records and reports, from questionnaires answered by patients and their families, and from data linkage with routine statistics and other registries. The registry contains information on diagnosis, clinical presentation, comorbidities, therapies, personal information, family history, and quality of life. RESULTS: From August 2017 to August 2021, 546 participants (55% males, mean age at registration 8 years (interquartile range [IQR]: 5-12) were enrolled in Swiss-CP-Reg. Most had been born at term (56%), were less than 2 years old at diagnosis (73%, median 9 months, IQR: 18-25), and were diagnosed with spastic CP (76%). Most (59%) live with a mild motor impairment (Gross Motor Function Classification System [GMFCS] level I or II), 12% with a moderate motor impairment (GMFCS level III), and 29% with a severe motor impairment (GMFCS level IV or V). In a subset of 170 participants, we measured intelligence quotient (IQ) and saw a reduced IQ by GMFCS scale increase. The Swiss-CP-Reg has a strong interest in research with currently 5 nested projects running, and many more planned. CONCLUSIONS: Swiss-CP-Reg collects and exchanges national data on people living with CP to answer clinically relevant questions. Its structure enables retrospective and prospective data collection and knowledge exchange between experts to optimise and standardise treatment and improve the health and quality of life of those diagnosed with CP in Switzerland.

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