“Assessment of Burden and Coping Strategies among Caregivers of Stroke Survivors in a Teaching Hospital in Ernakulam, Kerala”

2019 ◽  
Vol 5 (1) ◽  
pp. 83
Author(s):  
Sona Anto ◽  
Susan Mathai ◽  
NA Sheela Shenai
Keyword(s):  
Coping Strategies ◽  
Teaching Hospital ◽  
Stroke Survivors ◽  
And Coping

scholarly journals Family Caregivers’ Experiences and Coping Strategies in Managing Stroke Patients during the COVID-19 Pandemic: A Qualitative Exploration Study

2022 ◽  
Vol 19 (2) ◽  
pp. 942
Author(s):  
Muhammad Iqbal Haji Mukhti ◽  
Mohd Ismail Ibrahim ◽  
Tengku Alina Tengku Ismail ◽  
Iliatha Papachristou Nadal ◽  
Sureshkumar Kamalakannan ◽  
...  
Keyword(s):  
Coping Strategies ◽  
Family Caregivers ◽  
Virus Disease ◽  
Stroke Survivors ◽  
Rehabilitation Centers ◽  
And Coping ◽  
Qualitative Exploration ◽  
Public Rehabilitation ◽  
Depth Interviews

Background: Stroke is a chronic disease that requires stroke survivors to be supported long-term by their families. This is especially because of the inaccessibility to post-stroke rehabilitation outside hospitals. The Corona Virus Disease 2019 (COVID-19) crisis and the pandemic restrictions in Malaysia are expected to exponentially increase the demand from family caregivers in supporting stroke survivors. Thus, this study aims to explore the burden, experience, and coping mechanism of the family caregivers supporting stroke survivors during the COVID-19 pandemic. Methodology: A phenomenological qualitative study was conducted from November 2020 to June 2021 in Malaysia. A total of 13 respondents were recruited from two public rehabilitation centers in Kota Bharu, Kelantan. In-depth interviews were conducted with the participants. Comprehensive representation of perspectives from the respondents was achieved through purposive sampling. The interviews were conducted in the Kelantanese dialect, recorded, transcribed, and analyzed using thematic analysis. Results: Three themes on burdens and experiences were identified. They were worsening pre-existing issues, emerging new issues, and fewer burdens and challenges. Two themes on coping strategies were also identified. They were problem-focused engagement and emotion-focused engagement. Conclusions: The COVID-19 pandemic has changed the entire system of stroke management. While family caregivers mostly faced the extra burden through different experiences, they also encountered some positive impacts from the pandemic. The integrated healthcare system, especially in the era of digitalization, is an important element to establish the collaborative commitment of multiple stakeholders to compensate burden and sustain the healthcare of stroke survivors during the pandemic.

The Self-Efficacy in Multiple Sclerosis (SEMS) Scale

2018 ◽  
Vol 34 (5) ◽  
pp. 352-360 ◽  
Author(s):  
Silvia Bonino ◽  
Federica Graziano ◽  
Martina Borghi ◽  
Davide Marengo ◽  
Giorgia Molinengo ◽  
...  
Keyword(s):  
Multiple Sclerosis ◽  
Coping Strategies ◽  
Measurement Invariance ◽  
Sense Of Coherence ◽  
Self Efficacy ◽  
Concurrent Validity ◽  
Rasch Analysis ◽  
Well Being ◽  
Psychological Well Being ◽  
And Coping

Abstract. This research developed a new scale to evaluate Self-Efficacy in Multiple Sclerosis (SEMS). The aim of this study was to investigate dimensionality, item functioning, measurement invariance, and concurrent validity of the SEMS scale. Data were collected from 203 multiple sclerosis (MS) patients (mean age, 39.5 years; 66% women; 95% having a relapsing remitting form of MS). Fifteen items of the SEMS scale were submitted to patients along with measures of psychological well-being, sense of coherence, depression, and coping strategies. Data underwent Rasch analysis and correlation analysis. Rasch analysis indicates the SEMS as a multidimensional construct characterized by two correlated dimensions: goal setting and symptom management, with satisfactory reliability coefficients. Overall, the 15 items reported acceptable fit statistics; the scale demonstrated measurement invariance (with respect to gender and disease duration) and good concurrent validity (positive correlations with psychological well-being, sense of coherence, and coping strategies and negative correlations with depression). Preliminary evidence suggests that SEMS is a psychometrically sound measure to evaluate perceived self-efficacy of MS patients with moderate disability, and it would be a valuable instrument for both research and clinical applications.

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