Clinical-epidemiological characterization of children and adolescents with congenital heart disease / Caracterização clínico-epidemiológica de crianças e adolescentes portadores de cardiopatia congênita

Objetivo: analisar características clínico-epidemiológicas de crianças portadoras de cardiopatia congênita residentes do município de Rio das Ostras referenciadas para unidades especializadas no estado do Rio de Janeiro. Método: pesquisa descritiva, transversal realizada em duas unidades hospitalares no município do Rio de Janeiro, através da técnica documental retrospectiva por meio de dados nos prontuários. A coleta ocorreu entre setembro de 2018 a fevereiro de 2019. Resultados: foram analisados 48 prontuários, com maior proporção entre os escolares (33,3%); do sexo masculino (58,3%); Em relação as cardiopatias, verificou-se com maior proporção as acianóticas (62,5%); destacando a comunicação interatrial com (14,6%); seguida da comunicação interventricular (12,5%) e coarctação da aorta (12,5%). Conclusão: a identificação dessas crianças no município de Rio das Ostras e a distribuição destas pelo território nacional são informações imprescindíveis para o planejamento e implementação de programas e políticas públicas que atendam as reais demandas deste segmento populacional.

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Epidemiological Characterization of Congenital Heart Disease in São Miguel Island, Azores, Portugal

Public Health Genomics ◽

10.1159/000091488 ◽

2006 ◽

Vol 9 (2) ◽

pp. 107-112 ◽

Cited By ~ 4

Author(s):

Teresa Cymbron ◽

Rui Anjos ◽

Rita Cabral ◽

Clara Macedo ◽

Carlos Pereira Duarte ◽

...

Keyword(s):

Congenital Heart Disease ◽

Heart Disease ◽

Congenital Heart ◽

Epidemiological Characterization

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Pubertal status of children with congenital heart disease

Cardiology in the Young ◽

10.1017/s1047951121002651 ◽

2021 ◽

pp. 1-5

Author(s):

Zahra Ghaemmaghami ◽

Zahra Khajali ◽

Mohammad Dalili ◽

Zahra Fotovati ◽

Maryam Moradian ◽

...

Keyword(s):

Congenital Heart Disease ◽

Heart Disease ◽

Children And Adolescents ◽

Congenital Heart ◽

Normal Population ◽

Large Sample Size ◽

Pubertal Status ◽

Major Aspect ◽

Pubertal Onset ◽

Pubertal Stages

Abstract Background: CHD influences many aspects of life in affected individuals. Puberty, a major aspect of development, is a concern for patients and families. Objectives: We investigated pubertal status in children and adolescents with CHD. Methods: Patients with CHD aged 6–18 were enrolled. Cardiac diagnoses were confirmed using history, examination, and paraclinical tools including echocardiography. An endocrinologist determined pubertal stages, and the second Tanner stages for pubarche (P2), thelarche (B2), and gonadarche (G2) were considered as the pubertal onset. A study with a large sample size on pubertal onset in a normal population was used for comparison. Results: Totally, 451 patients (228 girls and 223 boys) at a median (10th–90th percentile) age of 10.79 (8.02–14.28) years for the girls and 10.72 (8.05–14.03) years for the boys were enrolled. The median (10th–90th percentile) ages at B2 and P2 in the girls with CHD were 10.77 (9.55–12.68) and 10.53 (9.39–12.28) years, respectively, which were higher than the median ages of 9.74 (8.23–11.94) and 10.49 (8.86–12.17) years in the normal girls. The median (10th–90th percentile) ages at G2 and P2 in the boys with CHD were 11.04 (8.85–13.23) and 11.88 (9.78–13.46) years, correspondingly, which were higher than the median ages of 9.01 (6.00–11.84) and 10.34 (6.84–13.10) years in the normal boys. Conclusions: Pubertal onset could be delayed in children with CHD when compared with the normal population.

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Exploring the Differences in Macrocognition Between Experts and Non-CHD Experts Managing Congenital Heart Disease (CHD)

Proceedings of the International Symposium on Human Factors and Ergonomics in Health Care ◽

10.1177/2327857921101238 ◽

2021 ◽

Vol 10 (1) ◽

pp. 335-339

Author(s):

Azadeh Assadi ◽

Peter C. Laussen ◽

Patricia Trbovich

Keyword(s):

Decision Making ◽

Emergency Medicine ◽

Congenital Heart Disease ◽

Heart Disease ◽

Congenital Heart ◽

Pediatric Emergency ◽

Acute Management ◽

Naturalistic Decision Making ◽

The Face

Background and aims: Children with congenital heart disease (CHD) are at risk of deterioration in the face of common childhood illnesses, and their resuscitation and acute management is often best achieved with the guidance of CHD experts. Access to such expertise may be limited outside specialty heart centers and the fragility of these patients is cause for discomfort among many emergency medicine physicians. An understanding of the differences in macrocognition of these clinicians could shed light on some of the causes of discomfort and facilitate the development of a sociotechnological solution to this problem. Methods: Cardiac intensivists (CHD experts) and pediatric emergency medicine physicians (non-CHD experts) in a major academic cardiac center were interviewed using the critical decision method. Interview transcripts were coded deductively based on Klein’s macrocognitive framework and inductively to allow for new or modified characterization of dimensions. Results: While both CHD-experts and non-CHD experts relied on the macrocognitive functions of sensemaking, naturalistic decision making and detecting problems, the specific data and mental models used to understand the patients and course of therapy differed between CHD-experts and non-CHD experts. Conclusion: Characterization of differences between the macrocognitive processes of CHD experts and non-CHD experts can inform development of sociotechnological solutions to augment decision making pertaining to the acute management of pediatric CHD patients.

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