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Author(s):  
Alexander McClelland ◽  
Chris Bruckert

Abstract In May 2012, a former research assistant contacted the Montréal police about an interview he had conducted with Luka Magnotta for the SSHRC-funded research project Sex Work and Intimacy: Escorts and their Clients four years previously. That call ultimately resulted in the Parent and Bruckert v R and Magnotta case. Now, a decade later, we are positioned to reflect on the collective lessons learned (and lost) from the case. In this paper, we provide a lay of the Canadian confidentiality landscape before teasing out ten lessons from Parent c R. To do so, we draw on personal archives, survey results from sixty researchers, twelve key informant interviews with qualitative sociolegal and criminology researchers, and documentary analysis of university research policies. The lessons, which range from the clichéd, to the practical, to the frustrating, have implications for the individual work of Canadian researchers and for the collective work of academic institutions.


2021 ◽  
Author(s):  
Michelle Lobchuk ◽  
Prachotan Reddy Bathi ◽  
Adedotun Ademeyo ◽  
Aislinn Livingston

BACKGROUND COVID 2019 restrictions severely curtailed empirical endeavors that involved in-person human interaction. The pandemic also stimulated our team to embrace technology in a two-fold manner. First, we created novel technology to help us to overcome pandemic restrictions in teaching empathic communication in the traditional classroom. A web-based training portal was created for users to learn empathy in an accessible, compelling, self-directed, and interactive online environment. Second, we harnessed technology to engage in remote usability testing and data collection with prospective users of our training portal. In developing our protocol, we discovered gaps in the literature on moderator and silent observer roles and experiences in conducting remote usability testing. OBJECTIVE The aim of this paper is to share our remote moderator and silent observer experiences and their use of certain tools to capture user feedback and experiences with the app. METHODS The larger-scale project employed a quantitative and think-aloud qualitative problem-discovery usability study design. Three trained research assistants collected and utilized user feedback from eight users who were asked to complete tasks in three sessions. Each research assistant had assigned roles and were asked to qualitatively describe their roles, experiences and reactions to the usability testing protocol, and suggestions for improved techniques and strategies for conducting remote usability testing. RESULTS Major results are described in relation to the research assistant experiences with the study protocol followed by recommendations for the design of future remote testing activities as well as evidence-informed training materials for usability project personnel. CONCLUSIONS Our findings highlighted that as we move towards greater remote usability testing, we also need more comprehensive understanding of human-computer interaction and its impact on usability testing outcomes. Our team realized that accessible comprehensive web-conferencing platform to conduct remote sessions is not sufficient. Lead moderator and silent observers offered their insights and recommendations for the ongoing creation and testing of training materials for their respective roles with a focus on: online interpersonal communication skills, conducting user testing protocols, troubleshooting technology and test user issues, proficiency in web-conferencing plus behavior analysis and feedback technologies, and time management. CLINICALTRIAL None.


Author(s):  
Asoka Karunananda ◽  
Thushari Silva ◽  
Dewmal Handapangoda ◽  
Sadika Sumanapala

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 211-211
Author(s):  
Justine Sefcik ◽  
Zachary Hathaway ◽  
Rose Ann DiMaria-Ghalili ◽  
Martha Coates

Abstract The COVID-19 pandemic has limited in-person interactions and reduced access to research participants. To recruit older adults for a study on the impact of COVID-19 on physical, mental, and social wellbeing we utilized two recruitment techniques: 1) ResearchMatch, a free recruitment database, and 2) a convenience sample of residents in a retirement community. Messages were sent via ResearchMatch to 1,491 adults age 65 and over. In total, 228 individuals responded over 2 weeks; 194 responded in the first 24 hours. Eighty-four completed the online survey. For the retirement community, recruitment information was shared during a Zoom townhall meeting; 44 expressed interest and 30 completed the study (half over the phone with a research assistant). We will discuss differences between the older adults recruited by each strategy (e.g., the ResearchMatch group was highly educated; more staff needed to interview retirement community participants). Overall, these were effective recruitment techniques during challenging times.


2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 947-947
Author(s):  
Rajean Moone ◽  
Kamal Suleiman ◽  
Elizabeth Lightfoot

Abstract This poster describes a study of Somali American family caregiving during the COVID-19 pandemic, specifically investing the unique caregiving challenges faced by Somali caregivers. The findings from this study, which was part of a larger study related to family caregiving, were drawn from in-depth interviews of ten Somali family caregivers in Minnesota. All interviews were conducted in Somali during the summer of 2020 and translated and transcribed by a certified translator and research assistant. The major themes that emerged from this study related to Visitation, Hospital Accompaniment, and Self Sacrifice. As Somali culture is centered around extended family connections, isolation places particular strain. Second, family members typically serve as advocates, translators and guides during hospital visits. The restrictions on hospital accompaniment due to COVID-19 caused increased stress and poorer care of family caregivers and their loved ones. Third, in the Somali community, family placement is a last resort. Caregivers reported great sacrifices in time, comfort and opportunities to care for family members during COVID-19. Most of the caregivers described their coping with these sacrifices in terms of radical acceptance and God consciousness. These findings have important implications for providing supports for Somali family caregivers.


Kuntoutus ◽  
2021 ◽  
Vol 40 (2) ◽  
pp. 5-18
Author(s):  
Anna-Marie Paavonen ◽  
Jenna Mäkinen ◽  
Anna-Liisa Salminen

Asiakkaan valinnanvapauden lisääminen on osa suomalaisen sosiaali- ja terveyspalvelujärjestelmän uudistamista. Valinnanvapauden toteutumisen edellytyksenä on, että asiakkailla on tietoa valittavina olevista palveluista ja että he kykenevät käyttämään tietoa valintojen tekemiseen. Nuoret tuntevat kuntoutuspalvelut huonosti, vaikka heillä olisi tarvetta niille. Tässä tutkimuksessa tarkastellaan Kelan vuosina 2015–2016 toteuttamaa nuorten kuntoutuspalveluiden viestintäkampanjaa (Mikä Kunto?), jonka tarkoituksena oli lisätä nuorten ja nuorten kanssa työskentelevien tietämystä Kelan järjestämistä kuntoutuspalveluista. Tulosten avulla pohditaan, millainen on tiedon merkitys valinnanvapauden edellytyksenä nuorten kuntoutuspalveluissa. Tutkimuksen aineisto kerättiin keväällä 2016 puhelinhaastatteluna ja internetkyselyin. Tutkimuksen informantteina ovat viestintäkampanjan kohderyhmänä olleet 16–30-vuotiaat nuoret (n = 584), kuntoutuksen palveluntuottajat (n = 19), etsivät nuorisotyöntekijät (n = 102) ja Kelan palveluneuvojat, jotka vastaavat kuntoutuksen palvelunumeroon (n = 49). Informanteilta kysyttiin, ovatko he huomanneet kampanjan ja onko kampanja vaikuttanut nuorten yhteydenottojen määrään ammattilaisiin kuntoutusasioissa. Lisäksi tarkasteltiin kampanjasivuston kävijämääriä. Enemmistö kuntoutuksen palveluntuottajista ja Kelan palveluneuvojista oli huomannut kampanjan. Sen sijaan puolet etsivistä nuorisotyöntekijöistä ja kolme prosenttia nuorista muisti kampanjan. Ammattilaisten mukaan nuoret olivat olleet vain vähän yhteydessä heihin kampanjan vaikutuksesta. Kampanjasivuston markkinointi näkyi sivuston kävijämäärissä. Viestintäkampanjan sijaan nuorten ohjautumista kuntoutuspalveluihin saattaisi olla parempi edistää tarjoamalla henkilökohtaista neuvontaa kuntoutuksesta mahdollisesti hyötyville nuorille. Jos tarjolla ei ole tukea palveluista saatavilla olevan tiedon hyödyntämiseen, nuoret saattavat jäädä palveluiden ulkopuolelle, jolloin palveluntuottajan valinnasta tulee toissijainen kysymys. AbstractInformation as a precondition for patient choice. How a marketing campaign succeeded to add knowledge on youth rehabilitation services?Authors:Anna-Marie Paavonen, M.Soc.Sci, Research assistant, Research at KelaJenna Mäkinen, M.Soc.Sci, Research assistant, Research at KelaAnna-Liisa Salminen, PhD, Docent, Head of Research Team, Research at Kela One precondition for patient choice in the public health care system is that comparative information on service providers is available. If patient choice is to improve the quality of health care patients should be able to use the available information appropriately. Finnish studies have shown that the youth is poorly informed about the vocational and mental health rehabilitation services. This study examines the effects of a marketing campaign (Mikä Kunto?) which aimed to raise youth awareness of rehabilitation services. The campaign was carried out by the Social Insurance Institution of Finland (Kela) in 2015–2016. The results are utilized to discuss the role of information as a precondition for patient choice in the youth rehabilitation services. The data was collected using a telephone interview and online questionnaires. The informants were young people aged 16–30 years (n = 584), rehabilitation providers (n = 19), youth workers in outreach youth work (n = 102) and Kela employees responsible for the rehabilitation phone services (n = 49). Informants’ awareness of the campaign was measured and the number of contacts by the youth with the latter informants in matters of rehabilitation. The analysis is complemented with the information on the number of visitors to the campaign website. A majority of the rehabilitation providers and Kela employees had noticed the campaign. In contrast, three percent of the youth and half of the youth workers in outreach youth work had noted it. The campaign affected only little the number of contacts by youth in matters of rehabilitation. Marketing of the campaign was shown in the number of visitors to the campaign website.Instead of a marketing campaign it could be more efficient to increase rehabilitation take-up by providing personal counselling to the youth in detecting rehabilitation need and in case management. If support for the use of available information is not offered the youth may not get the services they need and the possibility to choose the service provider becomes an irrelevant question. Key words: patient choice, information, rehabilitation, youth services


2021 ◽  
Author(s):  
Kelsey Ufholz ◽  
Amy Sheon ◽  
Daksh Bhargava ◽  
Goutham Rao

BACKGROUND Since the COVID-19 pandemic, telemedicine appointments have replaced many in-person healthcare visits [1 2]. However, older people are less likely to participate in telemedicine, preferring either in-person care or foregoing care altogether [3-6]. With a high prevalence of chronic conditions and vulnerability to COVID-19 morbidity and mortality through exposure to others in health care environments, (1-4), promoting telemedicine use should be a high priority for seniors. Seniors face significant barriers to participation in telemedicine, including lower internet and device access and skills, and visual, auditory, and tactile difficulties with telemedicine. OBJECTIVE Hoping to offer training to increase telemedicine use, we undertook a quality improvement survey to identify barriers to, and facilitators of telemedicine among seniors presenting to an outpatient family medicine teaching clinic which serves predominantly African American, economically disadvantaged adults with chronic illness in Cleveland, Ohio. METHODS Our survey, designated by the IRB as quality improvement, was designed based on a review of the literature, and input from our primary care providers and a digital equity expert (Figure 1). To minimize patient burden, the survey was limited to 10 questions. Because we were interested in technology barriers, data were collected on paper rather than a tablet or computer, with a research assistant available to read the survey questions. Patients presenting with needs that could be accomplished remotely were approached by a research assistant to complete the survey starting February 2021 until we reached the pre-determined sample size (N=30) in June 2021. Patients with known dementia, those who normally resident in a long-term care facility, and those presenting with an acute condition (e.g. fall or COPD exacerbation) were ineligible. Because of the small number of respondents, only univariate and bivariate tabulations were performed, in Excel. RESULTS 83% of respondents said they had devices that could be used for a telemedicine visit and that they went on the internet, but just 23% had had telemedicine visits. Few patients had advanced devices (iPhones, desktops, laptops or tablets); 46% had only a single device that was not IOS based mobile (Table 1). All participants with devices said they used them for “messaging on the internet,” but this was the only function used by 40%. No one used the internet for banking, shopping, and few used internet functions commonly needed for telemedicine (23.3% had email; 30% did video calling) (Table 1). 23.3% of respondents had had a telemedicine appointment. Many reported a loss of connection to their doctor as a concern. Participants who owned a computer or iPhone used their devices for a broader range of tasks, (Table 2 and 3), were aged 65-70 (Table 4), and were more likely to have had a telemedicine visit and to have more favorable views of telemedicine (Table 2). Respondents who had not had a telemedicine appointment endorsed a greater number of telemedicine disadvantages and endorsed less interest in future appointments (Table 2). Respondents who did not own an internet-capable device did not report using any internet functions and none had had a telemedicine appointment (Table 2). CONCLUSIONS This small survey revealed significant gaps in telemedicine readiness among seniors who said they had devices that could be used for telemedicine and that they went online themselves. No patients used key internet functions needed for staying safe during COVID, and few used internet applications that required skills needed for telemedicine. Few patients had devices that are optimal for seniors using telemedicine. Patients with more advanced devices used more internet functions and had more telemedicine experience and more favorable attitudes than others. Our results confirm previous studies [7-9] showing generally lower technological proficiency among older adults and some concerns about participating in telemedicine. However, our study is novel in pointing to subtle dimensions of telemedicine readiness that warrant further study—device capacity and use of internet in ways that build skills needed for telemedicine such as email and video calling. Before training seniors to use telemedicine, it’s important to ensure that they have the devices, basic digital skills and connectivity needed for telemedicine. Larger studies are needed to confirm our results and apply multivariate analysis to understand the relationships among age, device quality, internet skills and telemedicine attitudes. Development of validated scales of telemedicine readiness and telemedicine training to complement in-person care can help health systems offer precision-matched interventions to address barriers, facilitate increased adoption, and generally improve patients’ overall access to primary care and engagement with their primary care provider.


2021 ◽  
Vol 13 (2) ◽  
pp. 271
Author(s):  
Wan Muhammad Luqman bin Wan Rosdi ◽  
Abdul Wahab Abdullah ◽  
Mohd Nazir Taib ◽  
Noor Hanis Abu Halim ◽  
Nur Habibah Abu Talib ◽  
...  

Highlight ResearchThe Set Net was identified and recorded.Length and weight of the catch of set net was analyzed. AbstractSet net fisheries are made according to traditional fishing gears method in the coastal waters of Sungai Sembilang, Selangor, Peninsular Malaysia. These fisheries system are the passive structure of gear used to catch fish that swim in shallow water with muddy substrate. This study focused on determining the species variety and the possible future of set net fisheries in Sungai Sembilang. Catch composition of set net was investigated based on the catch data during July to December 2020 and continued from January to February 2021. The catch data was recorded by a research assistant on site during fishing season. The data consist of species, length and weight of all catches recorded. Total catch of 60 fish species belonging to 23 families were captured during this study period. Ariidae (31.73%), Clupeidae (11.56%), and Scatophagidae (7.96%) were determined as dominant families caught this set net. The total dominant catch amount of species Plicofollis argyropleuron (18.71%), Nemapteryx caelata (9.96%), and Anodontostoma chacunda (8.92%) compromised 37.6% of the total catch. This type of fishing gear can be used by local fisherman to catch fishes and can prevent trawl net from come closer to the shore. This study would provide some general useful information about the status of set net fisheries as well as the species abundance caught from the set net. 


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