child with a disability
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Author(s):  
Mohamed Reda Khomsi ◽  
Karl Delorme ◽  
Cyril Martin-Colonna

AbstractWhereas the search for information when starting to plan a trip is generally perceived as enjoyable, families with a disabled child may associate this step with anxiety and stress. This is due to a lack of information and poor consideration of disabled children’s needs in most tourist websites, making it difficult for such families to find answers to their questions. In this context, the present research attempts to understand the online travel planning process of families with a child with a disability in order to propose solutions adapted to these families’ needs.


2021 ◽  
Vol 57 (2) ◽  
pp. 1-19
Author(s):  
Monika Parchomiuk

This study examined the contribution of parental beliefs, the scope of involvement in family responsibilities, and the sense of being burdened with these responsibilities in shaping the results of conflict and enrichment in the roles of parents of children with disabilities, while keeping the child’s functional status in mind. We analysed data from 168 respondents, including 99 mothers and 69 fathers of children with disabilities. Beliefs, sense of burden with household and family responsibilities, and the child’s functional status had an influence on family-work conflict. The parent’s gender, beliefs, the child’s functional status, sense of burden with responsibilities towards the child with a disability, and the scope of involvement in household and family responsibilities were important for enrichment.


2021 ◽  
pp. 105345122110018
Author(s):  
Regina R. Brandon ◽  
Kyle Higgins ◽  
Vita L. Jones ◽  
Nicole Dobbins

African American families are multidimensional entities that change over time. This is particularly true when there is a child with a disability in the family. The communication and interaction of the family and parents with the teachers and school in which their child receives special education services are of crucial importance. The goal for all is a relationship based on equity and parity, but research indicates that often this is not the case for African American parents who have a child with a disability. Based on a review of the literature focused on African American parents with a child with a disability and their sense of alienation from their child’s school, a questionnaire is presented in which parents reflect on the barriers in five categories identified in the literature (e.g., personal concerns, work concerns, lack of interest, logistical concerns, teacher/parent relationships) that may impede the development of a professional partnership with those who provide special education services to their child. The questionnaire is presented and suggestions for its usage are provided.


2021 ◽  
pp. 79-102
Author(s):  
Alison Piepmeier ◽  
George Estreich ◽  
Rachel Adams

This chapter examines a complicated genre: the memoir written by a parent of a child with a disability. Despite the formulaic presentation of these narratives as a triumph over adversity, Alison Piepmeier describes many of them as sites of dehumanization. Parental memoirs often overly focus on grief or a medicalized picture of disability. They can reinforce familiar, deeply troubling attitudes about people with disabilities as tragic, burdensome, and unworthy. At the same time, Alison shows that parental memoirs can serve an activist function, acting as sites of resistance, challenging misinformation, and reworking prevailing perceptions of disability.


2021 ◽  
Vol 13 (1) ◽  
pp. 31-35
Author(s):  
Tores Theorell

Hugo Theorell born 1903 was awarded the Nobel Prize in Medicine in 1955. His life with music illustrates how a child who became handicapped by poliomyelitis at the age of three used violin playing as an important stimulus throughout life and how that helped him become a world-famous scientist


Author(s):  
Renee A. Hepperlen ◽  
Paula Rabaey ◽  
Amanda Ament‐Lemke ◽  
Hayley Manley

2020 ◽  
Vol 48 (8) ◽  
pp. 1-9
Author(s):  
Hao Wu ◽  
Jiaxu Zhao ◽  
Xiaomei Chao

We investigated how the type of trauma and attributions contribute to and affect negative emotions in individuals who have experienced parenting-related trauma. We assessed 6 negative emotions and 4 attributions of 294 participants who had experienced 3 types of parenting-related trauma: infertility, death of a child, or a child with a disability; and 124 participants who had not experienced parentingrelated trauma (control group). Results show that the attributions had different effects on the negative emotions of participants in each of the 3 trauma groups and the control group. Our findings suggest that attribution is an important factor in inhibiting the influence of parenting-related trauma on negative emotions.


2020 ◽  
Vol 11 (2) ◽  
pp. 264-266
Author(s):  
Dimitrina Kaloyanova ◽  

Raising a child with a disability is a challenge for most parents. Often a range of emotions such as rejection, guilt, accusation, dissatisfaction, anger, despair pass through the parents. The article examines families raising a child with a developmental disability. Birth of a child with a disability, reactions and experiences of the parents. Groups of families with children with developmental disabilities are differentiated. Parental interventionst to improve the psycho-emotional climate in the family.


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