scholarly journals Stories of Life Transition: Subjective Well-Being and Ego Development in Parents of Children with Down Syndrome

2000 ◽  
Vol 34 (4) ◽  
pp. 509-536 ◽  
Author(s):  
Laura A. King ◽  
Christie K. Scollon ◽  
Christine Ramsey ◽  
Teresa Williams
Keyword(s):  
Down Syndrome ◽  
Ego Development ◽  
Well Being ◽  
Life Transition ◽  
Subjective Well Being ◽  
Children With Down Syndrome

The Down Syndrome Advantage: Fact or Fiction?

2009 ◽  
Vol 114 (4) ◽  
pp. 254-268 ◽  
Author(s):  
April M. Corrice ◽  
Laraine Masters Glidden
Keyword(s):  
Down Syndrome ◽  
Developmental Disabilities ◽  
Adaptive Behavior ◽  
Maternal Age ◽  
Well Being ◽  
Diagnostic Group ◽  
Group Differences ◽  
Subjective Well Being ◽  
Maternal Functioning ◽  
Children With Down Syndrome

Abstract The “Down syndrome advantage” is the popular conception that children with Down syndrome are easier to rear than children with other developmental disabilities. We assessed whether mothers of children with developmental disabilities would demonstrate a consistent Down syndrome advantage as their children aged from 12 to 18 years. Results did not reveal significant differences between mothers of children with Down syndrome and mothers of children with other developmental disabilities on most maternal functioning variables. Although the prior group reported a consistent advantage in terms of personal reward and subjective well-being, these diagnostic group differences disappeared when maternal age and child adaptive behavior were controlled. We concluded that these variables may help to explain the Down syndrome advantage.

scholarly journals Family Variables and Quality of Life in Children with Down Syndrome: A Scoping Review

2021 ◽  
Vol 18 (2) ◽  
pp. 419
Author(s):  
Anna Lee ◽  
Kathleen Knafl ◽  
Marcia Van Riper
Keyword(s):  
Quality Of Life ◽  
Down Syndrome ◽  
Scoping Review ◽  
Personal Development ◽  
Well Being ◽  
Future Research ◽  
Cross Sectional ◽  
Children With Down Syndrome ◽  
Family Variables

The purpose of this scoping review was to identify the family and child quality of life variables that have been studied in relation to one another in children with Down syndrome, the frequency with which different relationships have been studied, and the extent to which family variables were the focus of the research aims. A literature search was conducted to find studies published between January 2007 and June 2018. The initial search yielded 2314 studies; of these, 43 were selected for a final review. Researchers most often addressed family resources and family problem-solving and coping concerning child personal development and physical well-being. Little attention to child emotional well-being was observed, with none considering family appraisal of child emotional well-being. The relationship between family variables and child QoL rarely was the primary focus of the study. Methodologically, most reviewed studies used cross-sectional designs, were conducted in North America and based on maternal report. From future research considering the issues found in this review, healthcare providers can obtain an in-depth understanding of relationships between children and family variables.

The perspective of emerging adults with Down syndrome – On quality of life and well-being

2021 ◽  
pp. 174462952110300
Author(s):  
Kjersti Wessel Jevne ◽  
Marit Kollstad ◽  
Anne-Stine Dolva
Keyword(s):  
Quality Of Life ◽  
Down Syndrome ◽  
Emerging Adults ◽  
Communication Technology ◽  
Well Being ◽  
Subjective Well Being ◽  
Safe Place ◽  
Social Leisure ◽  
Information And Communication

This study explored the thoughts of emerging adults with Down syndrome on quality of life and subjective well-being. Eight 22-year-olds participated in interviews. Data was analysed with content analysis. Four themes were revealed: Work based on interest and capability, having an active and social leisure life, a safe place to live and the use of information and communication technology. Two context related patterns were identified showing that quality of life and subjective well-being were related to individualised support to enhance independency in work, social leisure and place of living. Knowledge of their perception of independency and their awareness of needing customised help and support is valuable. This study supports the proposed emerging Quality of Life Supports Paradigm in the field of intellectual disabilities, which integrates key concepts of quality of life and supports.

Psycho-educational Nursing Intervention for Improving Coping Strategies and Psychological Well-Being among Family Caregivers of Children with Down Syndrome

2021 ◽  
Vol 19 (5) ◽  
pp. 49-60
Author(s):  
Amgad Said Mohammed ◽  
Sahar Mahmoud Mohamed ◽  
Rania Abdel-Hamid Zaki
Keyword(s):  
Down Syndrome ◽  
Coping Strategies ◽  
Family Caregivers ◽  
Well Being ◽  
Nursing Intervention ◽  
Instrumental Support ◽  
Post Intervention ◽  
Psychological Well Being ◽  
Children With Down Syndrome ◽  
Brief Cope

Background: Training family caregivers of children with Down Syndrome on how to promote their own psychological well-being and to cope effectively is essential as they are frequently unstable and forego their psychological well-being. Aim: This study aimed to assess the effect of psycho-educational nursing intervention on coping strategies and psychological well-being among family caregivers of children with Down Syndrome. Design: A quasi-experimental design was utilized in this study. Setting: This study was carried out in the Genes Clinics of Down Syndrome in the specialized clinics of the university pediatric hospital affiliated to Ain Shams University Hospitals. Subjects: A sample of 60 family caregivers of children with Down Syndrome. The study tools were: 1) Interviewing Questionnaire, 2) Brief-COPE inventory (Carver, 1997), 3) Ryff’s Psychological well-being scale (1989) and 4) Psycho-educational program. The results: There were highly statistically significant differences between pre & post intervention regarding to emotion-focused coping strategies except for humor, acceptance, religion, venting and substance use and there were highly statistically significant differences between pre & post intervention regarding to problem-focused coping strategies except for use of instrumental support. Conclusions: There were highly statistically significant differences between pre & post intervention regarding the level of psychological well-being. There was a negative statistically significant correlation between psychological well-being pre & post intervention and all types of emotion-focused coping strategies except for humor, acceptance and religion. Meanwhile, there was a highly positive statistically significant correlation between psychological well-being pre & post intervention and problem-focused coping strategies regarding active coping and positive reframing and a positive statistically significant correlation regarding use of instrumental support and planning. Recommendations: Future research to assess challenges encountered by siblings of Down Syndrome children and to apply supportive intervention that promotes positive relationships and attitudes.

Parental and family well-being in families of children with down syndrome: A comparative study

1992 ◽  
Vol 15 (3) ◽  
pp. 227-235 ◽  
Author(s):  
Marcia Van Riper ◽  
Carol Ryff ◽  
Karen Pridham
Keyword(s):  
Down Syndrome ◽  
Comparative Study ◽  
Well Being ◽  
Children With Down Syndrome
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