scholarly journals The efficacy of self-determination skills training on the psychological well-being and resilience of mothers of children with down syndrome

2021 ◽  
Vol 20 (105) ◽  
pp. 1553-1568
Author(s):  
Ghasem Norouzi ◽  
Hamzeh Mirzaei ◽  
Mohammad Mahdi Shirzadi ◽  
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2021 ◽  
Vol 19 (5) ◽  
pp. 49-60
Author(s):  
Amgad Said Mohammed ◽  
Sahar Mahmoud Mohamed ◽  
Rania Abdel-Hamid Zaki

Background: Training family caregivers of children with Down Syndrome on how to promote their own psychological well-being and to cope effectively is essential as they are frequently unstable and forego their psychological well-being. Aim: This study aimed to assess the effect of psycho-educational nursing intervention on coping strategies and psychological well-being among family caregivers of children with Down Syndrome. Design: A quasi-experimental design was utilized in this study. Setting: This study was carried out in the Genes Clinics of Down Syndrome in the specialized clinics of the university pediatric hospital affiliated to Ain Shams University Hospitals. Subjects: A sample of 60 family caregivers of children with Down Syndrome. The study tools were: 1) Interviewing Questionnaire, 2) Brief-COPE inventory (Carver, 1997), 3) Ryff’s Psychological well-being scale (1989) and 4) Psycho-educational program. The results: There were highly statistically significant differences between pre & post intervention regarding to emotion-focused coping strategies except for humor, acceptance, religion, venting and substance use and there were highly statistically significant differences between pre & post intervention regarding to problem-focused coping strategies except for use of instrumental support. Conclusions: There were highly statistically significant differences between pre & post intervention regarding the level of psychological well-being. There was a negative statistically significant correlation between psychological well-being pre & post intervention and all types of emotion-focused coping strategies except for humor, acceptance and religion. Meanwhile, there was a highly positive statistically significant correlation between psychological well-being pre & post intervention and problem-focused coping strategies regarding active coping and positive reframing and a positive statistically significant correlation regarding use of instrumental support and planning. Recommendations: Future research to assess challenges encountered by siblings of Down Syndrome children and to apply supportive intervention that promotes positive relationships and attitudes.


Author(s):  
Anna Lee ◽  
Kathleen Knafl ◽  
Marcia Van Riper

The purpose of this scoping review was to identify the family and child quality of life variables that have been studied in relation to one another in children with Down syndrome, the frequency with which different relationships have been studied, and the extent to which family variables were the focus of the research aims. A literature search was conducted to find studies published between January 2007 and June 2018. The initial search yielded 2314 studies; of these, 43 were selected for a final review. Researchers most often addressed family resources and family problem-solving and coping concerning child personal development and physical well-being. Little attention to child emotional well-being was observed, with none considering family appraisal of child emotional well-being. The relationship between family variables and child QoL rarely was the primary focus of the study. Methodologically, most reviewed studies used cross-sectional designs, were conducted in North America and based on maternal report. From future research considering the issues found in this review, healthcare providers can obtain an in-depth understanding of relationships between children and family variables.


2014 ◽  
Vol 3 (05) ◽  
pp. 19-45
Author(s):  
María Camila Cabargas Fernández

En este estudio se pretende describir el bienestar psicológico y la motivación de hockystas amateurs que estudian/trabajan y deben cumplir con una rutina de alto rendimiento para representar a Chile en el hockey césped. Para ello se indagó en el bienestar psicológico desde la perspectiva de Ryff, y en la motivación desde la Teoría de la Autodeterminación (TAD) de Deci y Ryan. Tras la compleja realidad a la que se enfrentan diariamente los deportistas de la muestra, es que surge el interés por conocer las variables psicológicas mencionadas anteriormente. Teniendo en cuenta que pudieran estar relacionadas a través de las diferentes dimensiones que las componen. Por lo tanto, al potenciar algunas de estas dimensiones se estaría influyendo tanto en el bienestar psicológico como en la motivación de los deportistas, lo que nos ayudaría a describir como es el bienestar psicológico y la motivación de estos. This study aims to describe psychological wellbeing and motivation in amateur hockey players who study/work and must obey to a high performance routine to represent Chile in field hockey. Wellbeing approaches made by Ryff were considered for this research, as well as self-determination theory (Deci & Ryan) to investigate motivation. After the complex reality this amateur hockey players face every day, it becomes interesting to study the psychological variables mentioned above. Believing that they could be related through different dimensions that compose them. Therefore, when you maximize the dimensions of both theories, it would be directly influencing the psychological well-being and motivation of athletes, this could help us to describe psychological well-being and motivation of them.


2021 ◽  
pp. 003329412110484
Author(s):  
Chang C Xiang ◽  
Xu Wang ◽  
Ting T Xie ◽  
Cheng L Fu

Surface acting—the management of emotional displays as part of a nurse’s work role—is increasingly getting scholars’ attention in organizational behavior. Previous research focused on the relationship between surface acting and outcomes (such as psychological well-being) on the basis of resource-centric theories, ignoring the subjective stance of surface acting provider. According to self-determination theory, surface acting affects an individual’s well-being through stimulating autonomous or controlled work motivation. Taking nurses as the subjects, the current study proposed that surface acting would affect job satisfaction and further psychological well-being through nurses’ controlled work motivation, and work and family support would moderate the above relationships in diverse directions. An online survey of n = 342 nurses working at a hospital in central China was conducted, evaluating surface acting, job satisfaction, psychological well-being, workplace support, and family support. Results indicated that surface acting negatively influenced nurses’ psychological well-being through job satisfaction. In addition, the results highlighted the two-faced aspect of social support, in which work support positively moderated the relationships between surface acting, job satisfaction, and psychological well-being, while family support intensified the abovementioned relationships negatively. These findings have important implications for surface acting, social support research, and managerial practices.


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