Unmet supportive care needs of Australian Aboriginal and Torres Strait Islanders with cancer: a prospective, longitudinal study

2016 ◽  
Vol 25 (3) ◽  
pp. 869-877 ◽  
Author(s):  
Patricia C Valery ◽  
Christina M Bernardes ◽  
Vanessa Beesley ◽  
Anna L Hawkes ◽  
Peter Baade ◽  
...  
Keyword(s):  
Longitudinal Study ◽  
Supportive Care ◽  
Supportive Care Needs ◽  
Care Needs ◽  
Prospective Longitudinal Study ◽  
Australian Aboriginal ◽  
Torres Strait ◽  
Prospective Longitudinal

Patients' Supportive Care Needs Beyond the End of Cancer Treatment: A Prospective, Longitudinal Survey

2009 ◽  
Vol 27 (36) ◽  
pp. 6172-6179 ◽  
Author(s):  
Jo Armes ◽  
Maggie Crowe ◽  
Lynne Colbourne ◽  
Helen Morgan ◽  
Trevor Murrells ◽  
...  
Keyword(s):  
Negative Affect ◽  
Supportive Care ◽  
Unmet Needs ◽  
Unmet Need ◽  
Hormone Treatment ◽  
Longitudinal Survey ◽  
Supportive Care Needs ◽  
Fear Of Recurrence ◽  
Care Needs ◽  
Prospective Longitudinal

Purpose To estimate prevalence and severity of patients' self-perceived supportive care needs in the immediate post-treatment phase and identify predictors of unmet need. Patients and Methods A multicenter, prospective, longitudinal survey was conducted. Sixty-six centers recruited patients for 12 weeks. Patients receiving treatment for the following cancers were recruited: breast, prostate, colorectal, and gynecologic cancer and non-Hodgkin's lymphoma. Measures of supportive care needs, anxiety and depression, fear of recurrence, and positive and negative affect were completed at the end of treatment (T0) and 6 months later (T1). Results Of 1,850 patients given questionnaire packs, 1,425 (79%) returned questionnaires at T0, and 1,152 (62%) returned questionnaires at T1. Mean age was 61 years; and most respondents were female (69%) and had breast cancer (57%). Most patients had no or few moderate or severe unmet supportive care needs. However, 30% reported more than five unmet needs at baseline, and for 60% of these patients, the situation did not improve. At both assessments, the most frequently endorsed unmet needs were psychological needs and fear of recurrence. Logistic regression revealed several statistically significant predictors of unmet need, including receipt of hormone treatment, negative affect, and experiencing an unrelated significant event between assessments. Conclusion Most patients do not express unmet needs for supportive care after treatment. Thirty percent reported more than five moderate or severe unmet needs at both assessments. Unmet needs were predicted by hormone treatment, negative mood, and experiencing a significant event. Our results suggest that there is a proportion of survivors with unmet needs who might benefit from the targeted application of psychosocial resources.

scholarly journals Course and predictors of supportive care needs among Mexican breast cancer patients: A longitudinal study

2018 ◽  
Vol 27 (9) ◽  
pp. 2132-2140 ◽  
Author(s):  
Adriana Pérez-Fortis ◽  
Joke Fleer ◽  
Maya J. Schroevers ◽  
Patricia Alanís López ◽  
Juan José Sánchez Sosa ◽  
...  
Keyword(s):  
Breast Cancer ◽  
Longitudinal Study ◽  
Supportive Care ◽  
Cancer Patients ◽  
Supportive Care Needs ◽  
Breast Cancer Patients ◽  
Care Needs

The influence of unmet supportive care needs on anxiety and depression during cancer treatment and beyond: a longitudinal study of survivors of haematological cancers

2017 ◽  
Vol 25 (11) ◽  
pp. 3447-3456 ◽  
Author(s):  
Devesh Oberoi ◽  
Victoria M. White ◽  
John F. Seymour ◽  
H. Miles Prince ◽  
Simon Harrison ◽  
...  
Keyword(s):  
Longitudinal Study ◽  
Supportive Care ◽  
Cancer Treatment ◽  
Supportive Care Needs ◽  
Anxiety And Depression ◽  
Care Needs

Supportive care needs and utilization of bladder cancer patients undergoing radical cystectomy: A longitudinal study

2021 ◽  
Author(s):  
Elke Rammant ◽  
Ann Van Hecke ◽  
Karel Decaestecker ◽  
Maarten Albersen ◽  
Steven Joniau ◽  
...  
Keyword(s):  
Bladder Cancer ◽  
Longitudinal Study ◽  
Supportive Care ◽  
Cancer Patients ◽  
Radical Cystectomy ◽  
Supportive Care Needs ◽  
Care Needs

scholarly journals Carers of patients with high-grade glioma report high levels of distress, unmet needs, and psychological morbidity during patient chemoradiotherapy

2015 ◽  
Vol 3 (2) ◽  
pp. 105-112 ◽  
Author(s):  
Anne Long ◽  
Georgia K.B. Halkett ◽  
Elizabeth A. Lobb ◽  
Thérèse Shaw ◽  
Elizabeth Hovey ◽  
...  
Keyword(s):  
Supportive Care ◽  
Unmet Needs ◽  
General Health Questionnaire ◽  
High Grade Glioma ◽  
Supportive Care Needs ◽  
Future Research ◽  
Full Time ◽  
High Grade ◽  
Care Needs ◽  
Prospective Longitudinal

AbstractBackgroundFew studies have explored the unmet needs of carers of people with high-grade glioma. We aimed to determine carers' levels of distress during treatment, understand their support needs and explore predictors of distress.MethodsCarers of people with high-grade glioma undergoing chemoradiotherapy were recruited to this prospective, longitudinal cohort study. Carers completed the validated Supportive Care Needs Survey, Brain Tumour Specific Supportive Care Needs Scale, Distress Thermometer (DT), and General Health Questionnaire (GHQ-12). Questionnaires were administered during patients' chemoradiotherapy and 3 and 6 months later.ResultsWe recruited 118 carers who were mainly female (72%) and caring for spouse (82%). The mean age was 53 years (SD = 13.6; range, 21-89). Thirty-one percent of carers reported moderate distress (DT score 5-6/10) and 31% reported extreme distress (score 7-10/10) during combined chemoradiotherapy. Carer distress was associated with adverse GHQ scores (r = 0.61, P < .001). Seventy-two percent reported a negative financial impact of caring and 51% of those previously working full-time had taken leave or reduced working hours. The top 5 moderate/high unmet needs were: accessing prognostic information; accessing financial support and government benefits; accessible hospital parking; impact of caring on usual life; reducing stress in the patients' life.ConclusionCarers reported substantial distress, and high distress levels were correlated with greater psychological impact and increased self-reporting of unmet needs. Future research should focus on interventions that aid in reducing carer distress.

scholarly journals Risk factors for current and future unmet supportive care needs of people with pancreatic cancer. A longitudinal study

2016 ◽  
Vol 24 (8) ◽  
pp. 3589-3599 ◽  
Author(s):  
Vanessa L Beesley ◽  
Leesa F Wockner ◽  
Peter O’Rourke ◽  
Monika Janda ◽  
David Goldstein ◽  
...  
Keyword(s):  
Risk Factors ◽  
Pancreatic Cancer ◽  
Longitudinal Study ◽  
Supportive Care ◽  
Supportive Care Needs ◽  
Care Needs

scholarly journals Erratum to: Risk factors for current and future unmet supportive care needs of people with pancreatic cancer. A longitudinal study

2016 ◽  
Vol 24 (8) ◽  
pp. 3601-3602 ◽  
Author(s):  
Vanessa L Beesley ◽  
Leesa F Wockner ◽  
Peter O’Rourke ◽  
Monika Janda ◽  
David Goldstein ◽  
...  
Keyword(s):  
Risk Factors ◽  
Pancreatic Cancer ◽  
Longitudinal Study ◽  
Supportive Care ◽  
Supportive Care Needs ◽  
Care Needs
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