An invisible cause of disability: stigma in migraine and epilepsy

Author(s):  
Fulya Basoglu Koseahmet ◽  
Burcu Polat ◽  
R. Gokcen Gozubatik-Celik ◽  
Isil Baytekin ◽  
Muazzez Gokcen Soylu ◽  
...  
Keyword(s):  
2021 ◽  
Vol 115 ◽  
pp. 103997
Author(s):  
Monica M. Abdul-Chani ◽  
Christopher P. Moreno ◽  
Julie A. Reeder ◽  
Katharine E. Zuckerman ◽  
Olivia J. Lindly

2019 ◽  
Vol 8 (4) ◽  
pp. 3590-3592

“Disability is a matter of perception. If you can do one thing well, you are needed by someone” – Martina Navratilova. Though Disability Studies focused on the distinction between „impairment‟ and „disability‟ defining Disability as a social construct, we still perceive Disability as something abnormal, drifting from the normality, an impairment to human mind or body. This paper reflects on how Quasimodo, attains an Identity in the society with his disability of hunchback and deafness in Victor Hugo‟s The Hunchback of Notre - Dame. He was crowned as the “Pope of Fools” for being the ugliest person in Paris. Though the identity he gained had a negative connotation, it was his disability that made him known among the people. The deflection from normality – his hunchback made people recognize him. This paper reveals how a disabled person is perceived by the society and the struggles he faces for his survival living among the people who are ready to use him and exploit him for their personal gains and finally leaving him in the crisis with a preoccupied notion that the disabled deserve only such kind of treatment. The character Quasimodo is a living example that a disabled person also possesses the same feelings like love, care, happiness, lust etc. just like a normal human being do and how these feelings are restricted for him. This paper also evaluates the Disability Stigma working on the character Quasimodo making him stereotyped, discriminated, blamed, internalized and made victim of physical, mental and sexual violence


2022 ◽  
pp. 1651-1670
Author(s):  
Elizabeth Mazur

Although research indicates that almost all emerging adults in the U.S. use the internet, little is known about the online dating experiences of persons with disabilities. Particularly in developed countries, online dating currently accounts for a substantial proportion of the initiation of romantic relationships and promises numerous advantages for persons with disabilities. Online dating includes a way to escape disability stigma, at least initially, access to a wide network of potential partners, and a convenient, private, and efficient method of meeting them. Online daters can be strategic in how they present both themselves and their disabilities, the manner in which they communicate with potential partners, and whether they join a large, popular dating site or a specialized disability-oriented one. The chapter discusses how the nine-step process of online dating might differ for or challenge emerging adults with various types of disabilities, sharing relevant research and media examples when available. The implications of popular mobile dating apps are also considered.


2016 ◽  
Vol 4 (5) ◽  
pp. e294-e295 ◽  
Author(s):  
Katrina Scior ◽  
Aseel Hamid ◽  
Richard Hastings ◽  
Shirli Werner ◽  
Catherine Belton ◽  
...  

2017 ◽  
Vol 37 (1) ◽  
Author(s):  
Heather Dawn Evans

This article examines one aspect of disability identity among people with non-apparent or "invisible" disabilities: the decision to emphasize, remind others about, or openly acknowledge impairment in social settings. I call this process "un/covering," and situate this concept in the sociological and Disability Studies literature on disability stigma, passing, and covering. Drawing on interviews with people who have acquired a non-apparent impairment through chronic illness or injury, I argue that decisions to un/cover (after a disability disclosure has already been made) play a pivotal role for this group in developing a strong, positive disability identity and making that identity legible to others. Decisions to pass, cover, or un/cover are ongoing decisions that stitch together the fabric of each person's daily life experiences, thus serving as primary mechanisms for identity negotiation and management.


2019 ◽  
Vol 3 (1) ◽  
Author(s):  
Hadi Santoso ◽  
Nurdina Nurdina ◽  
Nurwijayanti Nurwijayanti

Leprosy is a disease that can lead to physical disability and psychological disorders in leprosy patients who can be significantly reduced by self care. Several factors that can affect self care in leprosy patients include the degree of disability, stigma, family support and self-acceptance. This study aims to analyze the factors that influence self care in leprosy patients at Daha Husada Kediri Hospital. The research design used in this study is analytic with a cross sectional approach. The number of samples in this study is 116 respondents who meet the inclusion criteria and are taken by the rendom sampling technique. The independent variable in this study is the degree of disability, stigma, family support and self-acceptance while the dependent variable is self care. Data analysis using Pearson Correlation and Beta Coefficient statistical tests The results showed that the majority of leprosy patients had a disability level of 1 (62.9%), moderate stigma (58.6%), high family support (52.6%) and acceptance moderate self (53.4%), The results of the Pearson correlation statistical test showed that family support p 0,000 Pearson correlation 0,483 and self-acceptance p 0,000 Pearson correlation 0,584 were meaningful and from the results of the regression coefficients the Beta Coefficient showed that self-acceptance was the most powerful factor with self care in leprosy patients at Daha Husada Kediri Hospital. Daha Husada Kediri Hospital is expected to be able to further improve health service efforts to change the negative stigma in the community by socializing leprosy


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