scholarly journals A phenomenological study of new doctors’ transition to practice, utilising participant-voiced poetry

2021 ◽  
Author(s):  
Megan E. L. Brown ◽  
Amy Proudfoot ◽  
Nabilah Y. Mayat ◽  
Gabrielle M. Finn
Keyword(s):  
Lived Experience ◽  
Phenomenological Study ◽  
Moral Injury ◽  
Transition To Practice ◽  
Personal Beliefs ◽  
Beliefs And Values ◽  
Ethic Of Caring ◽  
Undergraduate Experience ◽  
Systemic Health ◽  
The Impact

AbstractTransition to practice can be a turbulent time for new doctors. It has been proposed transition is experienced non-linearly in physical, psychological, cultural and social domains. What is less well known, however, is whether transition within these domains can contribute to the experience of moral injury in new doctors. Further, the lived experience of doctors as they transition to practice is underexplored. Given this, we asked; how do newly qualified doctors experience transition from medical school to practice? One-to-one phenomenological interviews with 7 recently qualified UK doctors were undertaken. Findings were analysed using Ajjawi and Higgs’ framework of hermeneutic analysis. Following identification of secondary concepts, participant-voiced research poems were crafted by the research team, re-displaying participant words chronologically to convey meaning and deepen analysis. 4 themes were identified: (1) The nature of transition to practice; (2) The influence of community; (3) The influence of personal beliefs and values; and (4) The impact of unrealistic undergraduate experience. Transition to practice was viewed mostly negatively, with interpersonal support difficult to access given the 4-month nature of rotations. Participants describe relying on strong personal beliefs and values, often rooted in an ‘ethic of caring’ to cope. Yet, in the fraught landscape of the NHS, an ethic of caring can also prove troublesome and predispose to moral injury as trainees work within a fragmented system misaligned with personal values. The disjointed nature of postgraduate training requires review, with focus on individual resilience redirected to tackle systemic health-service issues.

Having a Sibling With Schizophrenia: A Phenomenological Study

2006 ◽  
Vol 20 (3) ◽  
pp. 247-264 ◽  
Author(s):  
Alexia Barnable ◽  
Alice Gaudine ◽  
Lorna Bennett ◽  
Robert Meadus
Keyword(s):  
Health Care ◽  
Lived Experience ◽  
Health Care Providers ◽  
Phenomenological Study ◽  
Hermeneutic Phenomenology ◽  
Limited Attention ◽  
Care Providers ◽  
The Impact

Limited attention has been paid to experiences of individuals with siblings diagnosed with schizophrenia. The purpose of this article is to address this gap by exploring the impact of having a brother or sister with schizophrenia. The lived experience of 6 individuals with a sibling with schizophrenia was explored using van Manen’s (1997) Hermeneutic Phenomenology. Four themes were identified: struggling to understand, struggling with the system, caring for the sibling, and seeing beyond the illness. Health care providers need to re-evaluate current approaches for assisting individuals to cope with having a sibling with schizophrenia. Inclusion in the plan of care and recognition of their struggle is essential for individuals having a sibling with schizophrenia.

The Lived Experience of Sisters With an Incarcerated Brother: A Phenomenological Study

2019 ◽  
Vol 64 (4) ◽  
pp. 335-354 ◽  
Author(s):  
Eman Tadros ◽  
Janelle Fye ◽  
Amber Ray
Keyword(s):  
Lived Experience ◽  
Phenomenological Study ◽  
Family System ◽  
Clinical Work ◽  
The United States ◽  
Sibling Relationship ◽  
Emotional Impact ◽  
Family Impact ◽  
Entire Family ◽  
The Impact

The major increase of incarcerated individuals in the United States has led to a variety of issues. The experience of incarceration has an impact on not only the individual but the entire family system. However, the impact on the sibling relationship has yet to be explored in the literature. The current study examined the lived experience of sisters with an incarcerated brother. In this qualitative study, semi-structured interviews with five sisters with an incarcerated brother were conducted. The results displayed five themes that emerged from the interviews: emotional impact, adjustment, prison experience, family impact, and stigma. The results informed clinical implications for marriage and family therapists working within the incarcerated population. In addition, specific suggestions are provided in how to best advocate for this population through research and clinical work. Moreover, the current study punctuates the specific and dire need for therapeutic intervention and broader policy change among many other efforts.

scholarly journals Breast Cancer–Related Lymphedema in Hispanic Women: A Phenomenological Study

2019 ◽  
Vol 32 (1) ◽  
pp. 41-49
Author(s):  
Juanita C. Acebedo ◽  
Barbara K. Haas ◽  
Melinda Hermanns
Keyword(s):  
Breast Cancer ◽  
Lived Experience ◽  
Cultural Awareness ◽  
Phenomenological Study ◽  
Hispanic Women ◽  
Interpretive Phenomenology ◽  
Field Notes ◽  
Effect Of Treatment ◽  
Breast Cancer Related Lymphedema ◽  
The Impact

Introduction: Breast cancer–related lymphedema (BCRL), a long-term side effect of treatment, can occur at any point in time. With the extensive physical and psychological effects of BCRL, few studies have focused on the lived experience. The purpose of this study was to examine the lived experience of Hispanic women dealing with BCRL, particularly women of Mexican descent or origin. Method: Using interpretive phenomenology, 13 Hispanic women with BCRL, 42 to 80 years, were individually interviewed. Data analysis was conducted using interpretive reading of field notes, journal entries, and transcribed interviews. Results: Three central themes emerged from the findings, “sense of loss,” “resignation to the new self,” and “not knowing.” Further subthemes highlight the physical, psychological, and spiritual aspects of living with BCRL. Discussion: Cultural awareness of the impact BCRL has on activities of daily living of Hispanic women should be part of a holistic plan of nursing care when caring for this population.

The experiences and needs of primary family caregivers of patients with multiple myeloma: A qualitative analysis

2019 ◽  
Vol 33 (5) ◽  
pp. 500-509 ◽  
Author(s):  
Carmen Quiñoa-Salanova ◽  
Josep Porta-Sales ◽  
Cristina Monforte-Royo ◽  
Montserrat Edo-Gual
Keyword(s):  
Multiple Myeloma ◽  
Lived Experience ◽  
Family Caregivers ◽  
Phenomenological Study ◽  
Care And Support ◽  
Data Saturation ◽  
Health Related ◽  
The Impact ◽  
Primary Family ◽  
Main Family

Background: Family caregivers play a key role in the lives of patients with multiple myeloma. However, very little is known about the impact that the disease (its diagnosis, course and prognosis) has on the main family caregiver. Aim: To achieve a deeper understanding of the lived experience of individuals who are the primary caregiver of a relative with multiple myeloma and to shed light on their needs. Design: Interpretative phenomenological study. Setting and participants: A total of 12 individuals who were the main family caregivers of a relative with multiple myeloma who was under outpatient follow-up at a cancer unit in Barcelona were recruited via purposive sampling until data saturation was reached. In semi-structured in-depth interviews, participants described their experiences of caring for their relative with multiple myeloma. Interviews were recorded, transcribed and analysed using ATLAS.ti v7.2. The seven steps proposed by Colaizzi were used for data analysis, and the relationships among emerging themes were examined. Findings: Four main themes emerged: (a) a new life, adapting to the disease, (b) commitment to the patient, (c) the emotional sphere and (d) experiences in relation to the care and support received. The analysis also revealed a core overarching theme: uncertainty. Conclusion: Primary family caregivers experienced intense uncertainty, and they described a strong need to air their feelings. Specific practical initiatives, targeting both health-related and logistical aspects of care, need to be developed in order to support family caregivers of myeloma patients.

scholarly journals The Lived Experience of Work and Career Among Individuals with Bipolar Disorder: A Phenomenological Study of Discussion Forum Narratives

2019 ◽  
Vol 3 (4) ◽  
Author(s):  
Susan Rathbun-Grubb
Keyword(s):  
Bipolar Disorder ◽  
Lived Experience ◽  
Phenomenological Study ◽  
Negative Impact ◽  
Chronic Illnesses ◽  
Discussion Forums ◽  
Negative Consequences ◽  
Healthy Life ◽  
Occupational Success ◽  
The Impact

Individuals with invisible chronic illnesses are often at a disadvantage in the workplace in terms of job security, promotion, and occupational success. Because little is known about the use of public online support forums to help patients with mental health disorders cope with the impact their illness has on their work and career, this research identifies and examines online forum posts related to employment by contributors with bipolar disorder. Seven percent of the total eligible posts from four discussion forums (n = 7,712) contained mentions of work and career (n = 572). A thematic analysis of the 572 posts is reported, organized by characteristics of contributors related to work and career histories, symptoms of bipolar disorder at work, needs for coping at work, the importance of work as part of a healthy life, disclosure of the illness, and recommendations by other contributors. The symptoms associated with the illness can have a negative impact in the work environment. Fear of stigma and other negative consequences inhibit workers from disclosing their condition and negotiating ways to get the fundamental accommodations they need. The posts reveal a climate of fear and uncertainty surrounding mental illness in the workplace, as well as individuals’ desire to conquer their health challenges to achieve meaning and fulfillment in their work life.

“Scrap-Heap Storiesˮ: Oral Narratives of Labour and Loss in Scottish Mining and Manufacturing

2020 ◽  
Vol 31 (2-2018) ◽  
pp. 8-21
Author(s):  
Arthur McIvor
Keyword(s):  
Working Class ◽  
Lived Experience ◽  
Oral History ◽  
Job Loss ◽  
Sense Of Self ◽  
Oral Narratives ◽  
Industrial Work ◽  
Working Lives ◽  
Plant Closures ◽  
The Impact

This article is an attempt to comprehend deindustrialisation and the impact of plant downsizing and closures in Scotland since the 1970s through listening to the voices of workers and reflecting on their ways of telling, whilst making some observations on how an oral history methodology can add to our understanding. It draws upon a rich bounty of oral history projects and collections undertaken in Scotland over recent decades. The lush description and often intense articulated emotion help us as academic “outsidersˮ to better understand how lives were profoundly affected by plant closures, getting us beyond statistical body counts and overly sentimentalised and nostalgic representations of industrial work to more nuanced understandings of the meanings and impacts of job loss. In recalling their lived experience of plant run-downs and closures, narrators are informing and interpreting; projecting a sense of self in the process and drawing meaning from their working lives. My argument here is that we need to listen attentively and learn from those who bore witness and try to make sense of these diverse, different and sometimes contradictory stories. We should take cognisance of silences and transgressing voices as well as dominant, hegemonic narratives if we are to deepen the conversation and understand the complex but profound impacts that deindustrialisation had on traditional working-class communities in Scotland, as well as elsewhere.

Normative tensions in filial caring for a mother with dementia: A narrative perspective

Dementia ◽  
2021 ◽  
pp. 147130122110140
Author(s):  
Ina Luichies ◽  
Anne Goossensen ◽  
Hanneke van der Meide
Keyword(s):  
Adult Children ◽  
The Other ◽  
Personal Beliefs ◽  
Narrative Design ◽  
Narrative Perspective ◽  
Beliefs And Values

This article aims to gain insight in the normative struggles of adult children caring for their ageing mother living with dementia. Two Dutch autobiographical books written by siblings recording their own caregiving experience were analysed using a narrative design. Children appear to understand their normative concerns through six fields of tension. Our analysis shows that filial caregivers describe two distinct approaches to deal with these normative tensions. One approach aims to preserve the child’s pre-existing personal beliefs and values, but also causes the child to demonstrate rigid and uncompromising behaviour at odds with the needs of their parent. The other approach is more reflective and flexible, prioritizing the needs of the vulnerable person over previously held values, providing an opportunity for better care. We conclude that caregiving children have to find their way between being faithful to their principles and showing moral flexibility.

Does a comprehensive service user-led education programme effect more positive attitudes towards recovery and less stigmatising attitudes towards people with lived experience of mental distress in medical students? A comparative cohort study

2021 ◽  
pp. 000486742098788
Author(s):  
Giles Newton-Howes ◽  
Jessica Senior ◽  
Ben Beaglehole ◽  
Gordon L Purdie ◽  
Sarah E Gordon
Keyword(s):  
Cohort Study ◽  
Medical Students ◽  
Lived Experience ◽  
Service User ◽  
Mental Distress ◽  
Healthcare Providers ◽  
Education Programme ◽  
Positive Attitudes ◽  
Comprehensive Service ◽  
The Impact

Objective: This study sought to investigate the impact of a service user-led anti-stigma and discrimination education programme, encompassing numerous interventions focused on facilitating multiple forms of social contact, the promotion of recovery, and respect for human rights, on medical student attitudes. Method: A comparison cohort study was used to compare the attitudes of two cohorts of medical students who received this programme as part of their fifth (the fifth-year cohort) or sixth (the sixth-year cohort) year psychological medical education attachment (programme cohorts) with two cohorts of equivalent students who received a standard psychological medical attachment (control cohorts). Attitudes to recovery (using the Recovery Attitudes Questionnaire) and stigma (using the Opening Minds Scale for Healthcare Providers) were measured at the beginning and end of the attachments for each year and compared both within and between the cohorts using Wilcoxon signed-rank or Wilcoxon rank-sum tests. Results: With sample sizes ranging from 46 to 70 across all cohorts, after their psychological medicine attachment both the programme and control cohorts showed more positive attitudes towards recovery and less stigmatising attitudes towards people with lived experience of mental distress. Significant differences between the programme cohorts and the control cohorts were found for recovery attitudes (median difference of 2, p < 0.05 in both fifth and sixth year), with particularly large differences being found for the ‘recovery is possible and needs faith’ subdomain of the Recovery Attitudes Questionnaire. There were no significant between cohort differences in terms of stigmatising attitudes as measured by the Opening Minds Scale for Healthcare Providers. Conclusion: The introduction of a comprehensive service user-led anti-stigma and education programme resulted in significant improvements in recovery attitudes compared to a control cohort. However, it was not found to be similarly superior in facilitating less stigmatising attitudes. Various possible reasons for this are discussed.

scholarly journals Engaging patients: how to speak so patients want to listen

2020 ◽  
Vol 30 (Supplement_5) ◽  
Author(s):  
S Rubinelli
Keyword(s):  
Health Professional ◽  
Lived Experience ◽  
Health Information ◽  
Health Professionals ◽  
Health Condition ◽  
Public Health Institutions ◽  
Health Institutions ◽  
Basic Approaches ◽  
The Impact

Abstract The paternalistic approach to health professional-patient communication is often no longer successful. The main reasons for this include the fact that trust in medicine and health professionals is no longer taken for granted. In many domains, the concepts of 'expert' and 'science' are in shadow. Moreover, patients can access all sorts of health information, including information that is or seems inconsistent with the advice given by their health professionals. This talk aims to illustrate some basic approaches to communication that can enhance health professional-patient interaction. First, health professionals should consider their communication with patients as a form of persuasion. Persuasion, that does not equal manipulation, is a way to communicate that takes into consideration the knowledge, beliefs, and attitudes of interlocutors. By adopting a person-centered style, health professionals should present their advice by contextualizing it into the emotional and cognitive setting of the patients. Second, communication should consider the lived experience of patients, that is the impact that a health condition or a preventive behavior has on their quality of life and their experience of pleasure. Indeed, managing health conditions is not just applying health advice: it often demands a change in lifestyles that can negatively impact how patients live their lives. Third, health professionals should develop clear strategies to engage with information that patients find from other sources. Health professionals must ask patients if they disagree with them, and to clarify any eventual difference of opinion. The information age has positively favored a democratization of health information. Yet, it imposes that health systems care for their communication. This talk concludes by presenting main evidence from on how to reinforce hospitals, public health institutions, and health services in communication so that patients want to listen.

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