Tic-related activity restriction as a predictor of emotional functioning and quality of life

Background and objective: Falls in elderly cause injury, mortality, and loss of independence, making Fear of Falling (FoF) a common health problem. FoF relates to activity restriction and increased fall risk. A voluntary intervention including fall risk assessment and prevention strategies was implemented to reduce falls in elderly patients with low energy fractures (LEF). The primary purpose of this study was to evaluate FoF and the number of subsequent falls in trauma patients one year after a LEF. The secondary aim was to examine how FoF affects patients’ lives in terms of Quality of Life (QoL), mobility, and activity levels. Finally, participation in the voluntary fall prevention program (FPP) was evaluated. Materials and Methods: Observational cohort study in one Swiss trauma center. LEF patients, treated between 2012 and 2015, were analyzed one year after injury. Primary outcomes were Falls-Efficacy Score-International (FES-I) and number of subsequent falls. Secondary outcomes were EuroQoL-5-Dimensions-3-Levels (EQ5D-3L), mobility, activity levels, and participation in the FPP. Subgroup analysis was performed for different age categories. Results: 411 patients were included for analysis. Mean age was 72 ± 9.3, mean FES-I was 21.1 ± 7.7. Forty percent experienced FoF. A significant negative correlation between FoF and QoL (R = 0.64; p < 0.001) was found. High FoF correlated with lower activity levels (R= −0.288; p < 0.001). Six percent visited the FPP. Conclusions: At follow-up, 40% suffered from FoF which seems to negatively affect patients’ QoL. Nevertheless, participation in the FPP was low. Simply informing patients about their susceptibility to falls and recommending participation in FPPs seems insufficient to motivate and recruit patients into FPPs. We suggest implementing repeated fall risk- and FoF screenings as standard procedures in the follow-up of LEF, especially in patients aged over 75 years.

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United States Utility Algorithm for the EORTC QLU-C10D, a Multiattribute Utility Instrument Based on a Cancer-Specific Quality-of-Life Instrument

Medical Decision Making ◽

10.1177/0272989x211003569 ◽

2021 ◽

pp. 0272989X2110035

Author(s):

Dennis A. Revicki ◽

Madeleine T. King ◽

Rosalie Viney ◽

A. Simon Pickard ◽

Rebecca Mercieca-Bebber ◽

...

Keyword(s):

Quality Of Life ◽

United States ◽

Emotional Functioning ◽

Health State ◽

Life Questionnaire ◽

Multiattribute Utility ◽

Value Set ◽

Eortc Qlq C30 ◽

Eortc Qlq

Background The EORTC QLU-C10D is a multiattribute utility measure derived from the cancer-specific quality-of-life questionnaire, the EORTC QLQ-C30. The QLU-C10D contains 10 dimensions (physical, role, social and emotional functioning, pain, fatigue, sleep, appetite, nausea, bowel problems). The objective of this study was to develop a United States value set for the QLU-C10D. Methods A US online panel was quota recruited to achieve a representative sample for sex, age (≥18 y), race, and ethnicity. Respondents undertook a discrete choice experiment, each completing 16 choice-pairs, randomly assigned from a total of 960 choice-pairs. Each pair included 2 QLU-C10D health states and duration. Data were analyzed using conditional logistic regression, parameterized to fit the quality-adjusted life-year framework. Utility weights were calculated as the ratio of each dimension-level coefficient to the coefficient for life expectancy. Results A total of 2480 panel members opted in, 2333 (94%) completed at least 1 choice-pair, and 2273 (92%) completed all choice-pairs. Within dimensions, weights were generally monotonic. Physical functioning, role functioning, and pain were associated with the largest utility weights. Cancer-specific dimensions, such as nausea and bowel problems, were associated with moderate utility decrements, as were general issues such as problems with emotional functioning and social functioning. Sleep problems and fatigue were associated with smaller utility decrements. The value of the worst health state was 0.032, which was slightly greater than 0 (equivalent to being dead). Conclusions This study provides the US-specific value set for the QLU-C10D. These estimated health state scores, based on responses to the EORTC QLQ-C30 questionnaire, can be used to evaluate the cost-utility of oncology treatments.

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Psychometric Validation of the German Translation of the Quality of Life Questionnaire-Bronchiectasis (QOL-B)—Data from the German Bronchiectasis Registry PROGNOSIS

Journal of Clinical Medicine ◽

10.3390/jcm11020441 ◽

2022 ◽

Vol 11 (2) ◽

pp. 441

Author(s):

Laura Quellhorst ◽

Grit Barten-Neiner ◽

Andrés de Roux ◽

Roland Diel ◽

Pontus Mertsch ◽

...

Keyword(s):

Quality Of Life ◽

Social Functioning ◽

Emotional Functioning ◽

Psychometric Validation ◽

Life Questionnaire ◽

Retest Reliability ◽

German Translation ◽

Quality Of Life Questionnaire ◽

Test Retest Reliability

Patients with bronchiectasis feature considerable symptom burden and reduced health-related quality of life (QOL). We provide the psychometric validation of the German translation of the disease-specific Quality of Life Questionnaire-Bronchiectasis (QOL-B), version 3.1, using baseline data of adults consecutively enrolled into the prospective German bronchiectasis registry PROGNOSIS. Overall, 904 patients with evaluable QOL-B scores were included. We observed no relevant floor or ceiling effects. Internal consistency was good to excellent (Cronbach’s α ≥0.73 for each scale). QOL-B scales discriminated between patients based on prior pulmonary exacerbations and hospitalizations, breathlessness, bronchiectasis severity index, lung function, sputum volume, Pseudomonas aeruginosa status and the need for regular pharmacotherapy, except for Social Functioning, Vitality and Emotional Functioning scales. We observed moderate to strong convergence between several measures of disease severity and QOL-B scales, except for Social and Emotional Functioning. Two-week test-retest reliability was good, with intraclass correlation coefficients ≥0.84 for each scale. Minimal clinical important difference ranged between 8.5 for the Respiratory Symptoms and 14.1 points for the Social Functioning scale. Overall, the German translation of the QOL-B, version 3.1, has good validity and test-retest reliability among a nationally representative adult bronchiectasis cohort. However, responsiveness of QOL-B scales require further investigation during registry follow-up.

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The level of quality of life of schoolchildren with disorders of the autic spectrum in comparison with typically developed peers

Scientific Journal of National Pedagogical Dragomanov University. Series 15. Scientific and pedagogical problems of physical culture (physical culture and sports) ◽

10.31392/npu-nc.series15.2021.11(143).23 ◽

2021 ◽

pp. 107-115

Author(s):

O. Petrusenko ◽

I. Bodnar

Keyword(s):

Quality Of Life ◽

Autism Spectrum Disorders ◽

Physical Education ◽

Emotional Functioning ◽

Well Being ◽

Autism Spectrum ◽

Typical Development ◽

Social And Emotional ◽

Spectrum Disorders

In connection with the increasing the number of children with autism spectrum disorders (ASD) who enrolls in educational institutions of Ukraine, the issue of individualization of physical education (PE) of children with ASD in the school process becomes important. There is little data on the quality of life of schoolchildren with autism spectrum disorders. It does not allow to draw individual trajectories of physical education of such children, to help them to improve their adaptability. Most of studies have been performed on males. Objective: to analyze the level of cognitive, physical, emotional, social functioning and functioning in school of girls of primary school age with autism spectrum disorders and compare them with typically developed peers. It was found that there were no differences between the rates of girls with ASD and girls with typical development in walking and running, feeling of pain and low energy levels, the frequency of school absences due to doctor visits and the frequency of forgetting things. However, the level of development of cognitive, social and emotional functioning of girls with ASD is significantly lower than the indicators with typical development by all criteria. To overcome the problems with cognitive, social and emotional functioning of girls with ASD, it is recommended to select appropriate means of PE. In oder to improve the cognitive processes (attention, memory) of girls with ASD, we recommend to increase the amount of means that promote the development of coordination in PE classes; to improve physical functioning - exercises for developing muscle strength and endurance. The game activity with normal girls will help to improve the social well-being of girls with ASD. We should use oriental martial arts and oriental gymnastics to improve the psycho-emotional state of girls with ASD.

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STRUCTURAL RELATIONSHIP BETWEEN PSYCHOLOGICAL DISORDERS, QUALITY OF LIFE AND COPING STYLES AMONG BRAIN DISORDER PATIENTS

Asia Proceedings of Social Sciences ◽

10.31580/apss.v1i1.299 ◽

2018 ◽

Vol 1 (1) ◽

pp. 15-19

Author(s):

Priscilla Das

Keyword(s):

Quality Of Life ◽

Health Status ◽

Panic Disorder ◽

Positive Relationship ◽

Emotional Functioning ◽

Coping Styles ◽

Negative Relationship ◽

Brain Disorder ◽

And Coping

Objective: Brain and nervous system cancer incidence was one of the ten most common cancers in Malaysia. The study intends to model the structural relationship of MDD, anxiety disorders, other psychiatric disorders, quality of life, coping styles and their associated factors among neurological disorder (brain tumour / brain disorder) patients. Methods: The EORTC-Quality of Life, Brief COPE, Single Item Social Support, MINI International Neuropsychiatric Interview and Patient Health Questionnaires were utilised in the study. Results: The multivariate normality kurtosis was 6.174 with c.r = 2.440 obtained in this SEM model. Chi-square normalized by degrees of freedom, (Ï‡Ì°2 /df) =1.086, p= 0.353. The RMSEA was 0.03, TLI = 0.988 and CFI =0.999 were obtained in the study. All 8 paths out of 10 paths were significant with p-values less than 0.05 (two-tailed) with R2 values ranging from 0.48 to 0.55 which indicates that the variance explained ranged from 48% for emotional functioning to 55% for severity of depression. The severity of MDD has positive relationship with insomnia and panic disorder lifetime and negative relationship with self distraction coping styles. Meanwhile emotional functioning had negative relationship with fatigue, venting and panic disorder lifetime and positive relationship with global health status. The emotional functioning also was correlated negatively with the severity of MDD (p < 0.005). Conclusion: Therefore based on the path analysis, the main contributing factors of MDD severity were emotional functioning, insomnia, self distraction coping and panic disorder lifetime. The emotional functioning of the patients were influenced by the fatigue, global health status, venting coping styles and panic disorder lifetime and this increased the severity of MDD among the patients. Therefore the role of quality of life and coping styles on depression and anxiety should not be neglected. The clinician, health psychologist, psychiatrist, and counselor in this country need to implement better treatments for the effected patients.

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Health related quality of life in Turkish polio survivors: impact of post-polio on the health related quality of life in terms of functional status, severity of pain, fatigue, and social, and emotional functioning

Revista Brasileira de Reumatologia (English Edition) ◽

10.1016/j.rbre.2014.12.006 ◽

2017 ◽

Vol 57 (1) ◽

pp. 1-7

Author(s):

Yesim Garip ◽

Filiz Eser ◽

Hatice Bodur ◽

Bedriye Baskan ◽

Filiz Sivas ◽

...

Keyword(s):

Quality Of Life ◽

Functional Status ◽

Emotional Functioning ◽

Health Related Quality ◽

Social And Emotional ◽

Related Quality ◽

Health Related ◽

Polio Survivors

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The Quality of Life of Patients with Hereditary Nonpolyposis Colorectal Cancer Undergoing Preoperative Chemoradiation

Applied Sciences ◽

10.3390/app10186585 ◽

2020 ◽

Vol 10 (18) ◽

pp. 6585

Author(s):

Valeriu Aurelian Chirica ◽

Mioara Matei ◽

Roxana Postolica ◽

Liliana Chelaru ◽

Irina Mihaela Esanu ◽

...

Keyword(s):

Quality Of Life ◽

Colorectal Cancer ◽

Genetic Risk ◽

Emotional Functioning ◽

Preoperative Chemoradiation ◽

Symptom Scale ◽

Cross Sectional ◽

Questionnaire Version ◽

Colorectal Cancer Patients

Of all the neoplastic sites, colorectal cancer (CRC) is one of the most common cancers in the family. Studies estimate that approximately 30% of all the CRC cases are a hereditary form of the disease with a potentially high impact on the quality of life (QoL), with a high risk of recurrence, and with bio–psycho–social functioning. The aim of the study was to assess the QoL of colorectal cancer patients with genetic risk by using the European Organisation for Research and Treatment of Cancer (EORTC) questionnaire version QLQ-CR29. Materials and methods: The cross-sectional, single-center study was performed on a group of 32 patients with genetic risk of colorectal cancer, who underwent preoperative chemoradiation and surgery. Results: The series of values for the scores on the symptom scale varied between 15 and 30, and the average level of symptom scores did not differ significantly between gender (22.0 vs. 22.75; p = 0.636), highlighting a moderate impairment of QoL. Scores for the emotional functioning scale were significantly lower in men (10.33 vs. 13.25; p = 0.049), as were the scores for the physical functions (15.67 vs. 19.15; p = 0.039), showing a decrease in QoL. Conclusions: The overall score showed an average QoL in patients with colorectal cancer with genetic risk, highlighting significant differences in psycho-emotional functioning between women and men.

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Relationships between Exercise Modality and Activity Restriction, Quality of Life, and Hematopoietic Profile in Korean Breast Cancer Survivors

International Journal of Environmental Research and Public Health ◽

10.3390/ijerph17186899 ◽

2020 ◽

Vol 17 (18) ◽

pp. 6899

Author(s):

MunHee Kim ◽

Wi-Young So ◽

Jiyoun Kim

Keyword(s):

Breast Cancer ◽

Quality Of Life ◽

Resistance Exercise ◽

Cancer Survivors ◽

Aerobic Exercise ◽

Breast Cancer Survivors ◽

Activity Restriction ◽

Exercise Modality ◽

Walking Exercise

This study aimed to examine the relationships between activity restriction, quality of life (QoL), and hematopoietic profile in breast cancer survivors according to exercise modality. The subjects in this study were 187 female breast cancer survivors among a total of 32,631 participants in the Korea National Health and Nutrition Examination Survey, which was conducted from 2016 to 2018. The selected subjects participated in a questionnaire survey and blood analysis. A cross-analysis was conducted to determine the relationship between participation in various modality of exercise (e.g., aerobic exercise, resistance exercise, walking exercise). The phi coefficients or Cramer’s V value for activity restriction and QoL were calculated; an independent t-test was conducted to evaluate the differences between hematopoietic profiles based on the modality of exercise. Statistically significant correlations were seen between obesity and aerobic exercise and walking frequency, as well as between diabetes and aerobic exercise and activity restriction. With respect to QoL, there was a statistically significant correlation between participation in aerobic exercise and exercise ability, participation in aerobic exercise and anxiety/depression, participation in resistance exercise and subjective health status, participation in resistance exercise and exercise ability, and participation in weekly walking exercise and self-care ability. Regarding hemodynamic changes, red blood cells increased significantly in breast cancer survivors who participated in weekly resistance exercise compared to in those who did not. In conclusion, exercise participation had a positive effect on activity restriction, QoL, and hematopoietic profile in breast cancer survivors; in particular, some modalities of aerobic exercise were more effective.

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