scholarly journals Optimizing the Global Nursing Workforce to Ensure Universal Palliative Care Access and Alleviate Serious Health-Related Suffering Worldwide

2021 ◽  
Author(s):  
William E. Rosa ◽  
Amisha Parekh de Campos ◽  
Nauzley C. Abedini ◽  
Tamryn F. Gray ◽  
Huda Abu-Saad Huijer ◽  
...  
Keyword(s):  
Palliative Care ◽  
Nursing Workforce ◽  
Care Access ◽  
Health Related

scholarly journals Global palliative nursing partnerships in the face of COVID-19

2021 ◽  
Vol 27 (8) ◽  
pp. 410-416
Author(s):  
William E Rosa ◽  
Julia Downing ◽  
Betty R Ferrell ◽  
Liz Grant ◽  
Samuel T Matula ◽  
...  
Keyword(s):  
Palliative Care ◽  
Health Coverage ◽  
Middle Income ◽  
Care Access ◽  
Global Partnerships ◽  
Health Related ◽  
The Face ◽  
Role Of Nursing ◽  
Hospice And Palliative Care

Background: Mutually respectful and long-term global partnerships are critical to increasing hospice and palliative care access as a key component of universal health coverage. The importance of sustained, transnational palliative care collaboration has become more urgent since the COVID-19 pandemic. Aim: To provide an overview of characteristics for successful global palliative nursing partnerships. Method: The authors highlight the need to adapt approaches to meet the challenges and demands of COVID-19 in both clinical and academic spaces. Exemplars of thriving global partnerships are provided, alongside palliative nursing considerations and strategies to advance and sustain them. Conclusion: The role of nursing to drive and enhance palliative care partnerships, especially with equitable input from low- and middle-income country stakeholders, must be leveraged to advance shared goals and reduce serious health-related suffering around the world.

Human rights-based conceptions of deservingness: health and precarity

2020 ◽  
Vol 16 (3) ◽  
pp. 279-292
Author(s):  
Sarah Marshall
Keyword(s):  
Health Care ◽  
Human Rights ◽  
Health Care Providers ◽  
Health Care Access ◽  
Migrant Health ◽  
Dominant Negative ◽  
Care Providers ◽  
Content Type ◽  
Care Access ◽  
Health Related

Purpose Ideas of health-related deservingness in theory and practise have largely been attached to humanitarian notions of compassion and care for vulnerable persons, in contrast to rights-based approaches involving a moral-legal obligation to care based on universal citizenship principles. This paper aims to provide an alternative to these frames, seeking to explore ideas of a human rights-based deservingness framework to understand health care access and entitlement amongst precarious status persons in Canada. Design/methodology/approach Drawing from theoretical conceptualizations of deservingness, this paper aims to bring deservingness frameworks into the language of human rights discourses as these ideas relate to inequalities based on noncitizenship. Findings Deservingness frameworks have been used in public discourses to both perpetuate and diminish health-related inequalities around access and entitlement. Although, movements based on human rights have the potential to be co-opted and used to re-frame precarious status migrants as “undeserving”, movements driven by frames of human rights-based deservingness can subvert these dominant, negative discourses. Originality/value To date, deservingness theory has primarily been used to speak to issues relating to deservingness to welfare services. In relation to deservingness and precarious status migrants, much of the literature focuses on humanitarian notions of the “deserving” migrant. Health-related deservingness based on human rights has been under-theorized in the literature and the authors can learn from activist movements, precarious status migrants and health care providers that have taken on this approach to mobilize for rights based on being “human”.

scholarly journals Tuberculosis stigma and perceptions in the US-Mexico border

2013 ◽  
Vol 55 (Supl.4) ◽  
pp. 498 ◽  
Author(s):  
Eva M Moya ◽  
Mark W Lusk
Keyword(s):  
Health Care Access ◽  
El Paso ◽  
Structured Interviews ◽  
Care Access ◽  
Tb Treatment ◽  
Related Stigma ◽  
Health Related ◽  
Mexico Border ◽  
Fear Of Rejection ◽  
The Impact

Objective. To examine the experiences and perspectives on the disease and stigma from the vantage point of the persons affected by TB in El Paso, Texas, and Juárez, México to inform research on health-related stigma and interventions. Materials and methods. Semi-structured interviews to study TB-related stigma and the impact on access and healthseeking behaviors with 30 Mexican-origin adults (18 years and older) undergoing TB treatment. Results. Barriers to accessing health services for TB; emotional distress due to their deteriorated physical and emotional condition; reactions ranging from depression, sadness; doubt, anger, and fear of rejection; distancing, fear of contagion, stigma, and feeling of discriminated against, and isolation from loved ones were reported. Conclusion. Stigma associated with TB is a barrier to health care access and to quality of life in tuberculosis management. Stigma adversely shapes the experience of treatment and recovery. Stigma is not a naturally occurring phenomenon, but something created by people and as such it can be “un-done” by those people as part of a collective which comprises society.

Impact of specialist palliative care on coping with Parkinson’s disease: patients and carers

2018 ◽  
Vol 8 (2) ◽  
pp. 180-183 ◽  
Author(s):  
Nathan J Badger ◽  
Dorothy Frizelle ◽  
Debi Adams ◽  
Miriam J Johnson
Keyword(s):  
Parkinson’S Disease ◽  
Palliative Care ◽  
Parkinson's Disease ◽  
Interpretative Phenomenological Analysis ◽  
Specialist Palliative Care ◽  
Advanced Parkinson’S Disease ◽  
Care Access ◽  
North East ◽  
Palliative Care Services ◽  
Positive Outlook

ObjectivesUK guidelines recommend palliative care access for people with Parkinson’s disease; however, this remains sporadic, and it is unknown whether specialist palliative care helps patients and carers cope with this distressing condition. This study aimed to explore whether, and how, access to specialist palliative care services affected patients’ and carers’ coping with Parkinson’s disease.MethodsSemistructured interviews were conducted, audio-recorded and verbatim transcribed. Data were analysed using interpretative phenomenological analysis. Participants were patients with advanced idiopathic Parkinson’s disease (n=3), and carers of people with Parkinson’s disease (n=5, however, one diagnosis was reviewed) receiving care from an integrated specialist palliative care and Parkinson’s disease service in North East England.ResultsAccess to specialist palliative care helped participants cope with some aspects of advanced Parkinson’s disease. Three superordinate themes were developed:‘ managing uncertainty’, ‘impacts on the self’ and ‘specialist palliative care maintaining a positive outlook’.ConclusionsSpecialist palliative care helped patients and carers cope with advanced Parkinson’s disease. Specialist palliative care is a complex intervention that acknowledges the complex and holistic nature of Parkinson’s disease, enabling health in some domains despite continued presence of pathology. These exploratory findings support the utility of this approach for people living with Parkinson’s disease.

Improving palliative care access

2021 ◽  
Vol 26 (8) ◽  
pp. 410-410
Author(s):  
Brian Nyatanga
Keyword(s):  
Palliative Care ◽  
Care Access

Physiotherapy in palliative medicine: patient and caregiver wellness

2021 ◽  
pp. bmjspcare-2020-002826
Author(s):  
Máximo Bernabeu-Wittel ◽  
Lourdes Moreno-Gaviño ◽  
Dolores Nieto-Martín ◽  
Julia Lanseros-Tenllado ◽  
Ana Sáenz-Santamaría ◽  
...  
Keyword(s):  
Palliative Care ◽  
Chronic Diseases ◽  
Real Life ◽  
Global Satisfaction ◽  
Psychological Wellness ◽  
Life Impact ◽  
Related Quality ◽  
Health Related ◽  
Respiratory Physiotherapy ◽  
Physiotherapy Programme

ObjectivesDespite the demonstrated efficacy of physiotherapy in palliative care programmes, there are scarce data of its real-life impact on patients’ and caregivers’ wellness and stress. Our aim was to assess effectiveness of a 30-day physiotherapy programme in psychological wellness and health-related quality of life (HRQoL) of patients with advanced chronic diseases or cancer and in their caregivers’ stress.MethodsQuasiexperimental before–after study applying personalised kinesitherapy, exercise with curative effects, respiratory physiotherapy, therapeutic massages and ergotherapy. Psychological wellness, HRQoL and caregiver’s strain outcomes were measured.Results207 patients (60% men, with a mean age of 73.6±12 years) were included; 129 (62.3%) with advanced cancer, and the remaining 78 with advanced chronic diseases. Psychological wellness (Emotional Stress Detection Tool decreased from 12.4±3 to 11±3; p<0.0001), caregiver’s strain (Caregiver Strain Index decreased from 8.5±3.2 to 7.9±3.5; p<0.0001) and HRQoL (WHO-BREF physical health domain increased from 8.3±2.6 to 9.4±2.9; p<0.0001) showed a significant improvement after the physiotherapy programme. Global satisfaction with the physiotherapy intervention was also high (Client Satisfaction Questionnaire-8 of 28.3±3.3 points).ConclusionsA personalised physiotherapy programme incorporated to integral palliative care improved psychological wellness, HRQoL and caregivers’ strain of patients with advanced chronic diseases and cancer.

Palliative care for children with communicable illnesses

2021 ◽  
pp. 304-322
Author(s):  
Michelle Meiring ◽  
Tonya Arscott-Mills
Keyword(s):  
Palliative Care ◽  
Ebola Virus ◽  
Virus Disease ◽  
Communicable Disease ◽  
Disease Outbreaks ◽  
Communicable Diseases ◽  
Humanitarian Response ◽  
Care Approach ◽  
Health Related ◽  
Communicable Illness

Whilst non-communicable diseases provided the impetus for the development of children’s palliative care (CPC) in the developed world, it was a single communicable illness human immunodeficiency virus/acquired immunodeficiency syndrome (HIV/AIDS) that was the catalyst for the development of many CPC programmes in the developing world. Whilst considerable gains have been made in preventing and controlling paediatric AIDS globally, there is still benefit to an integrated palliative care approach to the care of these children and especially for those living in countries without access to anti-retrovirals. Furthermore, there are many other communicable diseases associated with significant health-related suffering in children that could benefit from palliative care. This chapter proposes grouping these diseases using the well-known Association for Children with Terminal Conditions (ACT) categorization and discusses examples of important communicable diseases in each category. The need for improved CPC as part of the humanitarian response to acute communicable disease outbreaks such as Ebola virus disease is also explored.

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