scholarly journals Global palliative nursing partnerships in the face of COVID-19

2021 ◽  
Vol 27 (8) ◽  
pp. 410-416
Author(s):  
William E Rosa ◽  
Julia Downing ◽  
Betty R Ferrell ◽  
Liz Grant ◽  
Samuel T Matula ◽  
...  
Keyword(s):  
Palliative Care ◽  
Health Coverage ◽  
Middle Income ◽  
Care Access ◽  
Global Partnerships ◽  
Health Related ◽  
The Face ◽  
Role Of Nursing ◽  
Hospice And Palliative Care

Background: Mutually respectful and long-term global partnerships are critical to increasing hospice and palliative care access as a key component of universal health coverage. The importance of sustained, transnational palliative care collaboration has become more urgent since the COVID-19 pandemic. Aim: To provide an overview of characteristics for successful global palliative nursing partnerships. Method: The authors highlight the need to adapt approaches to meet the challenges and demands of COVID-19 in both clinical and academic spaces. Exemplars of thriving global partnerships are provided, alongside palliative nursing considerations and strategies to advance and sustain them. Conclusion: The role of nursing to drive and enhance palliative care partnerships, especially with equitable input from low- and middle-income country stakeholders, must be leveraged to advance shared goals and reduce serious health-related suffering around the world.

scholarly journals Quantity over Quality? Perception of Designating Long-Term Care Hospitals as Providers of Hospice and Palliative Care

2019 ◽  
Vol 22 (4) ◽  
pp. 145-155
Author(s):  
Yaeji Kim-Knauss ◽  
Eunseok Jeong ◽  
Jin-ah Sim ◽  
Jihye Lee ◽  
Jiyeon Choo ◽  
...  
Keyword(s):  
Palliative Care ◽  
Long Term Care ◽  
Term Care ◽  
Quality Perception ◽  
Hospice And Palliative Care

scholarly journals How to Integrate Palliative Care Within Primary Healthcare- Perspectives of People Living With Serious Illnesses, Their Family Caregivers and Primary Healthcare Professionals in Nigeria

2021 ◽  
Author(s):  
Oladayo A Afolabi ◽  
Kennedy Nkhoma ◽  
Olaitan Soyannwo ◽  
Akinyemi Aje ◽  
Adesola Ogunniyi ◽  
...  
Keyword(s):  
Palliative Care ◽  
Family Caregivers ◽  
Primary Healthcare ◽  
Healthcare Providers ◽  
Health Coverage ◽  
Middle Income ◽  
Healthcare Facilities ◽  
Care Integration ◽  
Qualitative Interview Study ◽  
Building Information

Abstract Background Palliative care should be integrated into primary healthcare systems within low- and middle-income countries to achieve Universal Health Coverage goals. We aimed to identify preferences and expectations for primary healthcare support among people living with serious illness and their families in Nigeria, and to determine feasible steps palliative care integration within the health system. Methods Qualitative interview study with 48 participants including people living with serious illnesses (n=21) and their family caregivers (n=15) recruited from specialist clinics at a Teaching hospital in Nigeria; and healthcare providers (n=12) recruited from three primary healthcare facilities in Nigeria. Data were analysed using thematic analysis. Results Three major themes were identified. 1) Balancing patients and families’ expectations and preferences for easily accessible service and opportunities for social interaction and adequate communication with available human resource. 2) Engaging patients requires existing trust and bonds from their current use of primary healthcare and support to develop patients’ agency. 3) Development of healthcare providers is needed to ensure an appropriate clinical response, manage interprofessional trust and ensure clear role delineation. Conclusions Palliative care integration within primary healthcare in Nigeria can be achieved through building information and communication skills of healthcare providers, engaging and empowering patients to exercise their agency in care decisions, and adequately delineating healthcare providers’ roles to ensure staff work within their competencies and training.

scholarly journals The burden of serious health-related suffering among cancer decedents: Global projections study to 2060

2020 ◽  
pp. 026921632095756
Author(s):  
Katherine E Sleeman ◽  
Barbara Gomes ◽  
Maja de Brito ◽  
Omar Shamieh ◽  
Richard Harding
Keyword(s):  
Palliative Care ◽  
Low Income ◽  
Population Based ◽  
World Health ◽  
Low Income Countries ◽  
Cancer Type ◽  
Middle Income ◽  
Middle Income Countries ◽  
Health Related ◽  
Health Organization

Background: Palliative care improves outcomes for people with cancer, but in many countries access remains poor. Understanding future needs is essential for effective health system planning in response to global policy. Aim: To project the burden of serious health-related suffering associated with death from cancer to 2060 by age, gender, cancer type and World Bank income region. Design: Population-based projections study. Global projections of palliative care need were derived by combining World Health Organization cancer mortality projections (2016–2060) with estimates of serious health-related suffering among cancer decedents. Results: By 2060, serious health-related suffering will be experienced by 16.3 million people dying with cancer each year (compared to 7.8 million in 2016). Serious health-related suffering among cancer decedents will increase more quickly in low income countries (407% increase 2016–2060) compared to lower-middle, upper-middle and high income countries (168%, 96% and 39% increase 2016-2060, respectively). By 2060, 67% of people who die with cancer and experience serious health-related suffering will be over 70 years old, compared to 47% in 2016. In high and upper-middle income countries, lung cancer will be the single greatest contributor to the burden of serious health-related suffering among cancer decedents. In low and lower-middle income countries, breast cancer will be the single greatest contributor. Conclusions: Many people with cancer will die with unnecessary suffering unless there is expansion of palliative care integration into cancer programmes. Failure to do this will be damaging for the individuals affected and the health systems within which they are treated.

Cicely Saunders

2018 ◽  
Author(s):  
David Clark
Keyword(s):  
Twentieth Century ◽  
Palliative Care ◽  
End Of Life ◽  
Advanced Disease ◽  
Professional Life ◽  
The World ◽  
The Face ◽  
The Individual ◽  
Hospice And Palliative Care ◽  
First Time

Cicely Saunders founded St Christopher’s Hospice in London in 1967 as a centre for teaching, research, and care. Its influence quickly spread around the world. Cicely Saunders — A Life and Legacy shows how she played a crucial role in shaping a new discourse of care at the end of life. From the nihilism of ‘there is nothing more we can do’, medicine and healthcare gradually adopted a more purposeful approach to care in the face of advanced disease and at the end of life. This came to be known as palliative care. This biography links for the first time the ideas and practice of Cicely Saunders to the spreading global interest in hospice and palliative care. It explores her deep reflection on the nature of suffering at the end of life, the possibilities of a more informed approach to the medical management of pain and other symptoms, and above all the importance of remaining focussed on the personal and spiritual concerns of the individual patient as death approaches. It is a story of a remarkable personal and professional life and of a seismic shift in twentieth-century medical history.

scholarly journals Optimizing the Global Nursing Workforce to Ensure Universal Palliative Care Access and Alleviate Serious Health-Related Suffering Worldwide

2021 ◽  
Author(s):  
William E. Rosa ◽  
Amisha Parekh de Campos ◽  
Nauzley C. Abedini ◽  
Tamryn F. Gray ◽  
Huda Abu-Saad Huijer ◽  
...  
Keyword(s):  
Palliative Care ◽  
Nursing Workforce ◽  
Care Access ◽  
Health Related

Exploring the experience of returning to work after personal bereavement

2019 ◽  
Vol 25 (11) ◽  
pp. 525-530
Author(s):  
Elizabeth Reed ◽  
Melanie Waghorn ◽  
Amanda Gregory ◽  
Jo Vriens ◽  
Emily Sills ◽  
...  
Keyword(s):  
Palliative Care ◽  
Qualitative Study ◽  
Professional Life ◽  
Significant Part ◽  
The Face ◽  
Returning To Work ◽  
Ongoing Support

Background: The ability of nurses with experience of personal bereavement to work with patients can have immediate and/or long-term repercussions on their personal and professional life. Aims: To explore the experience of a personal bereavement, through the death of a significant relative or friend, for nurses working in palliative care. Methods: A multicentre qualitative study interviewed nurses working in palliative care who experienced a significant bereavement within the last 24 months. Findings: Key themes: circumstances surrounding bereavement; conflict between the personal and professional; returning to work; grief as a continuum. Advice to bereaved nurses was for them to be open and honest and that work can be grounding; that they should take time off; that grief does not stop on returning to work; and that they should do what feels right for them. Conclusions: Bereaved palliative care nurses strive to maintain their roles in the face of bereavement. Hospices have a significant part to play in offering ongoing support and flexibility.

scholarly journals Long-term nurse–parent relationships in paediatric palliative care: a narrative literature review

2019 ◽  
Vol 25 (11) ◽  
pp. 542-550 ◽  
Author(s):  
Mandy J Brimble ◽  
Sally Anstey ◽  
Jane Davies
Keyword(s):  
Palliative Care ◽  
Literature Review ◽  
Emotional Support ◽  
Healthcare Professionals ◽  
Grey Literature ◽  
Paediatric Palliative Care ◽  
The Face ◽  
Narrative Literature ◽  
Narrative Literature Review

Background: Paediatric palliative care (PPC) is an active, total approach to the holistic care of the child and family. Close, long-lasting relationships between healthcare professionals and parents in paediatric palliative care enhance quality, provide emotional support and can influence how parents manage their role in the face of uncertainty. Aim: To present a narrative literature review of long-term relationships between children's nurses and parents in PPC settings. Methods: Six databases (CINAHL, PsycINFO, ASSIA, Scopus, Medline and BNI) were searched, identifying 35 articles. A grey literature search produced seven additional relevant items. Findings: Four themes were identified: bonds; attachments and trust; sharing the journey; going the extra mile; and boundaries and integrity. All themes revealed an element of tension between closeness and professionalism. Conclusion: Gaining a greater understanding of how closeness and professionalism are successfully managed by children's palliative care nurses could positively influence pre- and post-registration nurse education.

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