W1173 A Single-Item Numeric Rating Scale Shows Excellent Correlation with Measures of Crohn's Disease Activity and Health-Related Quality of Life

2009 ◽  
Vol 136 (5) ◽  
pp. A-670
Author(s):  
Gil Y. Melmed ◽  
Andrew Ippoliti ◽  
Eric A. Vasiliauskas ◽  
Dermot P. McGovern ◽  
Marla Dubinsky ◽  
...  
2021 ◽  
Vol 4 (1) ◽  
pp. 17-21
Author(s):  
Saad Ali Nasir ◽  
Fareeha Amjad ◽  
Sana Rafaqat

Abstract:Restless Legs Syndrome (RLS) is a sensorymotor sleep disorder which his very common in hemodialysis (HD) patients. It is called also as uremic RLS and it is affecting almost 30%of the HD population. Objective: To find out impact of Restless Leg Syndrome on fatigue and quality of life in patients of hemodialysis.Methadology: 131 hemodialysis patients (male, female) were approached from different hospitals in Lahore. Demographic data of the patients were collected. Questionnaires were included Fatigue Severity Scale, Restless Legs Syndrome Questionnaire (Rating Scale) and health quality questionnaire SF-12®. All responses entered in SPSS version 21.Results: In this survey SF12 was used to nd about health related quality of life in patients with RLS and undergoing hemodialysis and fatigue was observed in (n-75%) patients with exercise, (n34%) reported fatigue interference with work and (n-22%) reported fatigue was constant problem. Quality of life was overall poor as (n-72 %) patient's complaint that they cannot do any kind of work with full focus and 34 % reported their moderate activity level was limited.Conclusion: RLS was frequent in patients with hemodialysis. it had an association with fatigue and poor quality of life. As hemodialysis patients spend most of their time on bed RLS has negative impact on the sleep. Health Related Quality Of Life affects both physical and mental health.Keywords: Restless Leg Syndrome, Fatigue, low quality oflife, Hemodialysis patients


2015 ◽  
Vol 33 (15_suppl) ◽  
pp. 9533-9533
Author(s):  
Mackenzi Pergolotti ◽  
Allison Mary Deal ◽  
Grant Richard Williams ◽  
Jeannette T Bensen ◽  
Ashley Leak Bryant ◽  
...  

2021 ◽  
pp. 2100917
Author(s):  
Ciaran Scallan ◽  
Lauren Strand ◽  
Jennifer Hayes ◽  
Suha Kadura ◽  
Bridget Collins ◽  
...  

RationalePatients with Idiopathic Pulmonary Fibrosis (IPF) experience impaired health related quality of life (HRQoL). Several tools have been developed to objectively assess HRQoL in this patient population, but none are in use in routine clinical practice.ObjectivesTo develop a rapid, specific tool that can be used for patients with IPF during routine clinic visits.MethodsA novel and simple 5-item numerical rating scale (NRS) was developed and compared with two other previously validated tools. 100 consecutive patients with IPF managed at the center for ILD, were recruited to complete the R-Scale-PF, the Kings Brief Interstitial Lung Disease Questionnaire (K-BILD), and the EuroQol 5-Dimensional 5-Level Questionnaire (EQ-5D-5 L) in addition to pulmonary function and 6-min walk tests.Measurements and Main ResultsAll 100 patients successfully completed the three HRQoL tools with 53 completing them again at follow up visits. Internal consistency was high (Cronbach's α 0.825) with minimal floor/ceiling effect. Concurrent validity of the R-Scale-PF was moderate to high compared with the K-BILD (r=−0.713) and the EQ-5D-5 L (r=−0.665). Concurrent validity was moderate with physiologic measures (forced vital capacity, r=−0.307, 6-min walk distance, r=−0.383). The R-Scale-PF demonstrated good known-groups validity when comparing scores across stages of disease severity.ConclusionsThe R-Scale-PF correlates well with the K-BILD and EQ-5D-5 L. It is hoped that this novel simple NRS tool subject to validation in patients from other centers will provide the opportunity to objectively measure HRQoL in routine clinical practice for patients with IPF.


1992 ◽  
Vol 70 (2) ◽  
pp. 608-610 ◽  
Author(s):  
G. I. J. M. Kempen

Researchers concluded that Item 2 of the Short-form General Health Survey of the Medical Outcomes Study can be used as a single-item measure of health-related quality of life. This conclusion is tested again on a random sample of elderly people in the Netherlands. Although it can be concluded that the psychometric properties of the short form are satisfactory, the use of the single item as a measure of health-related quality of life is discussed.


2021 ◽  
Vol 11 (1) ◽  
Author(s):  
Jiayu Liu ◽  
Hu Ding ◽  
Ke Xu ◽  
Ruen Liu ◽  
Dongliang Wang ◽  
...  

AbstractDeep-brain stimulation (DBS) is an effective treatment for patients with Meige syndrome. The globus pallidus interna (GPi) and the subthalamic nucleus (STN) are accepted targets for this treatment. We compared 12-month outcomes for patients who had undergone bilateral stimulation of the GPi or STN. Forty-two Asian patients with primary Meige syndrome who underwent GPi or STN neurostimulation were recruited between September 2017 and September 2019 at the Department of Neurosurgery, Peking University People’s Hospital. The primary outcome was the change in motor function, including the Burke–Fahn–Marsden Dystonia Rating Scale movement (BFMDRS-M) and disability subscale (BFMDRS-D) at 3 days before DBS (baseline) surgery and 1, 3, 6, and 12 months after surgery. Secondary outcomes included health-related quality of life, sleep quality status, depression severity, and anxiety severity at 3 days before and 12 months after DBS surgery. Adverse events during the 12 months were also recorded. Changes in BFMDRS-M and BFMDRS-D scores at 1, 3, 6, and 12 months with DBS and without medication did not significantly differ based on the stimulation target. There were also no significant differences in the changes in health-related quality of life (36-Item Short-Form General Health Survey) and sleep quality status (Pittsburgh Sleep Quality Index) at 12 months. However, there were larger improvements in the STN than the GPi group in mean score changes on the 17-item Hamilton depression rating scale (− 3.38 vs. − 0.33 points; P = 0.014) and 14-item Hamilton anxiety rating scale (− 3.43 vs. − 0.19 points; P < 0.001). There were no significant between-group differences in the frequency or type of serious adverse events. Patients with Meige syndrome had similar improvements in motor function, quality of life and sleep after either pallidal or subthalamic stimulation. Depression and anxiety factors may reasonably be included during the selection of DBS targets for Meige syndrome.


Author(s):  
F. Klevebro ◽  
P. R. Boshier ◽  
K. V. Savva ◽  
A. Waller ◽  
L. Hage ◽  
...  

Abstract Background High-quality documentation of dumping symptoms after esophagectomy is currently limited. The aim of the study was to describe the incidence of symptoms associated with dumping syndrome and their relationship with health-related quality of life after esophagectomy. Methods The study cohort was identified from prospective IRB-approved databases from two high-volume esophagectomy centers. Patients that were alive and without evidence of recurrence in April 2018 completed the validated Dumping Symptom Rating Scale and health-related quality of life questionnaires. Compound dumping symptom score was created by combining the individual scores for severity and frequency for each symptom. Results In total, 171 patients who underwent esophagectomy 1995–2017 responded to the questionnaires, corresponding to a response rate of 77.0%. Median age was 66 years and median time from operation to survey was 5.5 years. Absent or mild problems in all nine dumping symptoms were reported by 94 (59.5%) patients; 19 (12.0%) patients reported moderate or severe problems in at least three symptoms, the most common being postprandial “need to lie down,” “diarrhea,” and “stomach cramps.” Increasing compound dumping symptom score was associated with significantly decreased function scores in all aspects of health-related quality of life except physical functioning (P < 0.005). Conclusions Esophagectomy has the potential to change long-term eating patterns; however, the majority of patients in the study did not have severe postoperative dumping symptoms. On the other hand, moderate-to-severe dumping symptoms, which were reported by 12% of patients in this study, were strongly associated with decreased health-related quality of life.


2018 ◽  
Vol 23 (13) ◽  
pp. 1610-1623 ◽  
Author(s):  
Alain Joseph ◽  
Charlotte E. Kosmas ◽  
Chloe Patel ◽  
Helen Doll ◽  
Philip Asherson

Objective: The objective of this study was to assess health-related quality of life (HRQoL) in adult ADHD. Method: U.K. residents aged 18 to 55 years with ADHD and no major mental health comorbidities completed an online survey of disorder history, the EuroQoL 5-Dimensions 5-Level (EQ-5D-5L), and the Work Productivity and Activity Impairment Questionnaire: General Health (WPAI:GH). ADHD Rating Scale-IV (ADHD-RS-IV) score was assessed by telephone. Results: In total, 233 participants completed the study (mean age 32.6 years; 65.2% women). Mean ( SD) ADHD-RS-IV total score, EQ-5D utility, and visual analog scale (VAS) scores were 43.5 (7.88), 0.74 (.21), and 69.8 (17.76), respectively. Mean ( SD) WPAI:GH scores indicated that health problems caused 45.7% (29.9) overall work impairment and 45.8% (28.9) impairment in regular daily activities. Greater work and activity impairment were both significantly independently associated with lower utility after adjusting for age, gender, and somatic comorbidities. Conclusion: Adult ADHD impairs HRQoL, work productivity, and regular daily activities.


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