How Research Will Adapt to HIPAA: A View from Within the Healthcare Delivery System

2002 ◽  
Vol 28 (4) ◽  
pp. 491-502
Author(s):  
Mary L. Durham
Keyword(s):  
Health Information ◽  
Healthcare Delivery ◽  
Healthcare Providers ◽  
The United States ◽  
Personal Health Information ◽  
Personal Health ◽  
Business Associations ◽  
Electronic Information ◽  
Healthcare Delivery System ◽  
Institutional Review

While the new Health Insurance Privacy and Accountability Act (HIPAA) research rules governing privacy, confidentiality and personal health information will challenge the research and medical communities, history teaches us that the difficulty of this challenge pales in comparison to the potential harms that such regulations are designed to avoid. Although revised following broad commentary from researchers and healthcare providers around the country, the HIPAA privacy requirements will dramatically change the way healthcare researchers do their jobs in the United States. Given our reluctance to change, we risk overlooking potentially valid reasons why access to personal health information is restricted and regulated. In an environment of electronic information, public concern, genetic information and decline of public trust, regulations are ever-changing. Six categories of HIPAA requirements stand out as transformative: disclosure accounting/tracking, business associations, institutional review board (IRB) changes, minimum necessary requirements, data de-identification, and criminal and civil penalties.

The future state of patient engagement? Personal health information use, attitudes towards health, and health behavior

2019 ◽  
Vol 32 (4) ◽  
pp. 199-208
Author(s):  
Kristine R Hearld ◽  
Larry R Hearld ◽  
Henna Budhwani ◽  
Deirdre McCaughey ◽  
Leandra Y Celaya ◽  
...  
Keyword(s):  
Health Status ◽  
Health Behaviors ◽  
Health Information ◽  
Perceived Health ◽  
The United States ◽  
Personal Health Information ◽  
Personal Health ◽  
Perceived Health Status ◽  
Preventative Health ◽  
Patient Confidence

The past decade has given rise to interest in the effects of health care information on personal well-being. However, investigations to-date typically centered on mass communication programs in health rather than on individuals’ psychosocial characteristics, agency, and behaviors associated with their engagement with this information. Considering this gap, we examined whether the availability of personal health information is associated with health prevention behaviors in the United States. Using multivariable path analysis and data from the 2017 Health Information National Trends Survey, we investigate whether the use of personal health information is associated with positive, preventative health behaviors (healthy eating, tobacco smoking, and exercise), and if this relationship is mediated by patient confidence in their ability to care for themselves and by their self-perceived health status. Findings indicate that the use of health information, at low levels, is important for improving patient attitudes regarding their health status and confidence in caring for themselves. Perceived health-status and patient confidence, in turn, are associated with preventative health behaviors. Notably, too much information does not necessarily result in positive health behaviors among patients. Organizations may wish to critically assess how much information they make readily available to the populations they serve.

Personal Derived Health Information: A Foundation to Preparing the United States for Disasters and Public Health Emergencies

2012 ◽  
Vol 6 (3) ◽  
pp. 303-310 ◽  
Author(s):  
Cheryl Irmiter ◽  
Italo Subbarao ◽  
Jessica Nitin Shah ◽  
Patricia Sokol ◽  
James J. James
Keyword(s):  
Public Health ◽  
Health Information ◽  
Expert Panel ◽  
First Responders ◽  
The United States ◽  
Public Health Emergency ◽  
Personal Health Information ◽  
Personal Health ◽  
Great Effort ◽  
Public Health Response

ABSTRACTBackground: In the days following a disaster/public health emergency, there is great effort to ensure that everyone receives appropriate care and lives are saved. However, evacuees following a disaster/public health emergency often lack access to personal health information that is vital to receive or maintain quality care. Delayed treatment and interruptions of medication regimens often contribute to excess morbidity and mortality following a disaster/public health emergency. This study sought to define a set of minimum health information elements that can be maintained in a personal health record (PHR) and given to first responders/receivers within the first 96 hours of a disaster/public health response to improve clinical health outcomes.Methods: A mixed methods approach of qualitative and quantitative data gathering and analyses was completed. Expert panel members (n = 116) and existing health information elements were sampled for this study; 55% (n = 64) of expert panel members had clinical credentials and determined the health information. From an initial set of six sources, a step-wise process using a Likert scale survey and thematic data analyses, including interrater reliability and validity checks, produced a set of minimum health information elements.Results: The results identified 30 essential elements from 676 existing health information elements, a reduction of approximately 95%. The elements were grouped into seven domains: identification, emergency contact, health care contact, health profile –past medical history, medication, major allergies/diet restrictions, and family information.Conclusions: Leading experts in clinical disaster preparedness identified a set of minimum health information elements that first responders/receivers must have to ensure appropriate and timely care. If this set of elements is used as the fundamental information for a PHR, and automatically updated and validated during clinical encounters and medication changes, it is conceivable that following large-scale disasters clinical outcomes may be improved and more lives may be saved.(Disaster Med Public Health Preparedness. 2012;6:303-310)

scholarly journals Differences in Access to and Use of Electronic Personal Health Information Between Rural and Urban Residents in the United States

2017 ◽  
Vol 34 ◽  
pp. s30-s38 ◽  
Author(s):  
Alexandra J. Greenberg ◽  
Danielle Haney ◽  
Kelly D. Blake ◽  
Richard P. Moser ◽  
Bradford W. Hesse
Keyword(s):  
United States ◽  
Health Information ◽  
The United States ◽  
Personal Health Information ◽  
Personal Health ◽  
Urban Residents ◽  
Rural And Urban

scholarly journals 2019 Novel Coronavirus Vaccination among Post-graduate Residents and Fellows

2021 ◽  
Vol 12 ◽  
pp. 215013272110229
Author(s):  
Mostafa Abohelwa ◽  
Mohamed Elmassry ◽  
John Abdelmalek ◽  
Drew Payne ◽  
Kenneth Nugent
Keyword(s):  
Side Effects ◽  
Healthcare Workers ◽  
Healthcare Providers ◽  
The United States ◽  
Health Sciences ◽  
Institutional Review Board ◽  
Institutional Review ◽  
Texas Tech University ◽  
Novel Coronavirus ◽  
United States Healthcare

Background Coronavirus-2 (COVID-19) has caused a worldwide pandemic since December 2019. Since then, clinical trials with vaccines have been started and completed, and at present, 3 COVID-19 vaccines have been approved for use in the United States. Healthcare providers were among the first to get vaccinated, but the precise attitudes of healthcare workers toward vaccination are uncertain. Objective To understand residents and fellows’ attitudes toward vaccination and record any side effects after vaccination. Methods We conducted an anonymous survey that was open from 3-1-2021 to 3-12-2021 using distribution lists from the Graduate Medical Education office on the Lubbock campus of the Texas Tech University Health Sciences Center after getting approval from the Institutional Review Board (L21-088). Results Eighty-one residents and fellows (26.6% out of 304) responded to our survey. Among those who responded, 63 (77.8 %) were between 25 and 35 years old, and 41 (50.6%) were males. Seventy-seven (95.1%) received the vaccine (Pfizer-BioNTech), 78 (96.3%) reported that they supported vaccination, and 3 (3.7%) reported that they did not want vaccination. Eight members (9.8%) had tested positive for COVID-19 infection before vaccination, but only 1 (1.23%) had tested positive for COVID-19 antibodies. All residents and fellows reported side effects after the vaccination, including pain at the injection site (77; 100%), local redness (9; 11.6%), local swelling (13; 16.8%), fever (25; 32.5%), fatigue (25; 32.5%), chills (34; 44.1 %), headache (38; 49.4%). Conclusions Most medical trainees have a high interest in COVID-19 vaccination; however, a few reported that they did not want vaccination.

Sign in / Sign up

Export Citation Format

Share Document