Elasticity of care networks and the gendered division of care

2014 ◽  
Vol 35 (4) ◽  
pp. 675-703 ◽  
Author(s):  
WILCO KRUIJSWIJK ◽  
BARBARA DA ROIT ◽  
MARCEL HOOGENBOOM

ABSTRACTThe gender gap in family care-giving is an established research finding: men dedicate less time to care-giving and provide specific gendered types of help. This article argues that in order to grasp men's contribution to care arrangements one should recognise the multifaceted nature of care and examine care networks beyond the ‘care receiver–primary care-giver’ dyad with a dynamic perspective. A qualitative analysis of the care networks of three large Dutch families with an older parent in need of care confirms the greater involvement of women in care-giving and men's tendency to provide specific types of care. However, men also contribute to the elasticity and stability of the care arrangement by filling temporary gaps and supporting the female care-givers. This article puts forward the idea that men's contribution is in turn a factor in the perpetuation of the gendered structure of care-giving.

2010 ◽  
Vol 31 (2) ◽  
pp. 308-327 ◽  
Author(s):  
ANU M. LEINONEN

ABSTRACTThe aim of this article is to analyse 20 Finnish working carers' perceptions of their sibling relations and the sharing of the responsibility for parental care. The main focus is on the interviewees' rationales for the participation or non-participation of their siblings in the parents' care. Almost all the interviewed carers stated that the division of care responsibilities is unequal and that they are the primary carers, but the majority did not convey any clear intention to try to persuade their siblings to increase their participation in parental care. In many cases, the siblings were described either as entirely absent or as providing occasional backup, but some interviewees reported that caring for the parent(s) was shared with their other siblings. Consequently, three participation patterns were identified: ‘absence’, ‘backup’ and ‘togetherness’. All the interviewees offered rationales for the unequal division of care tasks and responsibilities among the siblings. The discussion focuses on these rationales and their variations by participation patterns, and considers the similarity of the findings to those from previous American and British studies. The study concludes that social-care services should take the primary carer's siblings into consideration, although not always as a ‘resource’. It should not be taken for granted or assumed that the primary care-giver receives help from her or his siblings, even if their relationship is otherwise close and unproblematic.


2021 ◽  
pp. 1-26
Author(s):  
Lun Li ◽  
Andrew Wister

Abstract Family care-giving is associated with social isolation, which can lead to adverse health and wellbeing outcomes among family care-givers. The role of geographic distance in care-giver social isolation (CSI) is unclear and has received mixed research findings. Framed by the Ecological Model of Caregiver Isolation, this study examined the relationship between geographic distance and CSI, including the interaction between geographic distance and care-giving intensity for CSI. Linear regression and analysis of covariance were used to test these hypotheses using a sub-set of family care-givers from the 2012 Canadian General Social Survey (N = 2,881). Care-givers living a short distance from receivers reported lower levels of social isolation than co-resident, moderate-distance and long-distance care-givers. Being involved in higher-intensity care-giving as the primary care-giver, undertaking more care-giving tasks and providing care more frequently resulted in higher CSI scores. Long- and moderate-distance care-givers reported greater CSI than co-resident and short-distance care-givers only when providing higher-intensity care-giving. Employing a granulated measure of geographic distance positioned within an ecological framework facilitates an understanding of the nuanced association between geographic proximity and CSI. Furthermore, the identified interaction effects between geographic distance and care-giving intensity on CSI further explicate the complexity of care-giving experiences. The findings are relevant for programmes supporting care-givers in different contexts, especially distance care-givers.


2021 ◽  
pp. 030802262110181
Author(s):  
Megan L Howes ◽  
Diane Ellison

Introduction There is recognition within the literature that the role of care-giving can have a negative impact on care-givers’ general well-being. Less is understood about the role of care-giving on an individual’s occupational participation and in turn occupational identity. Occupational therapists have a unique understanding of the interplay between occupational participation and health, though this is an area that has been under researched in relation to mental health care-givers. Therefore, the current research aims to understand how the role of care-giving for an individual with a mental illness impacts on occupational participation and identity. Method A qualitative semi-structured interview the Occupational Performance and History Interview–Version 2 was utilised to understand life experiences. Six mental health care-givers were interviewed, and these interviews were transcribed for thematic analysis. Findings Three main themes were identified: being me, roles and responsibilities associated with care-giving and services. Conclusion The findings suggest being a mental health care-giver does have a detrimental impact on occupational participation and therefore occupational identity. As care-givers gained more experience in their role, they used occupational adaption as a positive coping mechanism that helped them achieve occupational balance. Using their unique understanding of occupational participation and occupational identity, occupational therapists are well placed to utilise their knowledge and skills to work in a systemic way supporting both the person with mental illness and their care-giver.


2019 ◽  
Vol 2 (2) ◽  
pp. 146
Author(s):  
Mohd. Suhaimi Mohamad

<div class="WordSection1"><p><em>In many traditional societies, women play an important role  as informal caregiver. They take care of small children, family members who are disabled, old and frail.  They perform their role within the private family sphere without much complaints. However when many women enter labour force outside their family many of them can no longer become family care giver. The  seperation between nuclear familes and extended families due to rural urban migration makes older women like mothers and mothers in-law can no longer available to provide help. As an alternative, many urban families opt for domestic help to look after their young children, disabled family members and the elderly.  Domestic helpers continue their domestic chores as instructed by the lady of the house an at the same time perform caregiving role. The important issue  related to having domestic maid to perform care giving role especially in Muslim family is regarding physical contact.  Most of the activities in caregiving roles involves physical contact especially during cleaning patients body, changing their clothes, prepare their bed, feeding them, holding their hands and body for therapy. However Islamic paractice do not allow physical contact like touching between two people who are not close family relations or mahram.  Since most of domestic maid who also perform the role as caregiver are women, therefore the issue of empowering men to become caregiver is very important  because the needs of male caregivers to care for male patients is increasing. Based onwhat is stated in the Quran and hadith and related documents, this paper will outline the need for informal care in families and communities that need to be addressed, particularly those who are Syariah-compliant. Cases from research in the relevant field will be presented to highlight the issues why men should be encourage to consider role as informal caregivers.</em><em></em></p><p>Dalam banyak masyarakat tradisional, perempuan memainkan peran penting sebagai pengasuh informal. Mereka merawat anak-anak kecil, anggota keluarga yang cacat, tua dan lemah. Mereka melakukan peran mereka dalam ruang keluarga pribadi tanpa banyak keluhan. Namun ketika banyak perempuan memasuki angkatan kerja di luar keluarga mereka, banyak dari mereka tidak bisa lagi menjadi pemberi perawatan keluarga. Pemisahan antara keluarga inti nuklir dan keluarga besar karena migrasi perkotaan pedesaan membuat perempuan yang lebih tua seperti ibu dan ibu mertua tidak lagi dapat menyediakan bantuan. Sebagai alternatif, banyak keluarga perkotaan memilih bantuan rumah tangga untuk menjaga anak-anak mereka, anggota keluarga yang cacat dan orang tua. Pembantu rumah tangga melanjutkan pekerjaan rumah tangga mereka seperti yang diperintahkan oleh nyonya rumah dan pada saat yang sama melakukan peran pengasuhan. Masalah penting terkait dengan memiliki pembantu rumah tangga untuk melakukan peran memberi perawatan terutama dalam keluarga Muslim adalah tentang kontak fisik. Sebagian besar kegiatan dalam peran pengasuhan melibatkan kontak fisik terutama selama membersihkan tubuh pasien, mengganti pakaian, menyiapkan tempat tidur, memberi makan, memegang tangan dan tubuh untuk terapi. Namun paraktek Islam tidak mengizinkan kontak fisik seperti menyentuh antara dua orang yang tidak memiliki hubungan keluarga atau mahram. Karena sebagian besar pembantu rumah tangga yang juga berperan sebagai pengasuh adalah perempuan, maka masalah pemberdayaan laki-laki untuk menjadi pengasuh sangat penting karena kebutuhan pengasuh laki-laki untuk merawat pasien laki-laki semakin meningkat. Berdasarkan apa yang dinyatakan dalam Al-Quran dan hadits dan dokumen terkait, makalah ini akan menguraikan kebutuhan untuk perawatan informal dalam keluarga dan masyarakat yang perlu ditangani, terutama mereka yang mematuhi Syariah. Kasus-kasus dari penelitian di bidang yang relevan akan disajikan untuk menyoroti masalah mengapa laki-laki harus didorong untuk mempertimbangkan peran sebagai pengasuh informal.</p></div><p align="left"> <strong><em>Keywords:</em></strong><em> gender, informal care giver, care giving, family.</em></p>


2003 ◽  
Vol 23 (4) ◽  
pp. 471-485 ◽  
Author(s):  
TOR INGE ROMOREN

The purpose of this article is to analyse with longitudinal data from Norway the caring activities of sons and daughters who were the primary care-giver to a parent aged 80 or more years. The study sample consists of the 227 offspring care-givers in the Larvik study, which examined the illnesses and disabilities and the informal and formal care received until their deaths of all those aged 80 or more years in the town's population in 1981. Prospective and retrospective data were collected from that year about the health, functional losses and formal service utilisation of the older people. After the death of an older person in the study, the next-of-kin was interviewed about the informal care provided by relatives and friends during the same time span. The sequences and content of the care-giving activities differed little for son or daughter care-givers, except during a short escalation phase. The average duration of informal home care was shorter for sons than for daughters, primarily because a minority of the daughters had very long care-giving careers. The duration of the care recipients' stays in acute or long-term care institutions before death did not differ by the gender of the carer. Compared with many earlier studies, few gender differences in offspring care-giving activities were found. The findings suggest that the potential of sons to provide informal care to frail older parents is underestimated in modern societies.


2020 ◽  
pp. 1-25
Author(s):  
Jill-Marit Moholt ◽  
Oddgeir Friborg ◽  
Nils Henriksen ◽  
Torunn Hamran ◽  
Bodil H. Blix

Abstract Community health-care services for older, home-dwelling persons with dementia tend to be underutilised. Family care-givers provide substantial care, and they often arrange for and co-ordinate health-care services on behalf of persons with dementia. The aim of this study was to examine family care-givers’ knowledge of unused services and their self-reported reasons for non-use of such services. We gathered cross-sectional survey data from 430 family care-givers of older persons with dementia in Northern Norway. Multinomial logistic regression analysis was used to identify predictors of family care-givers’ knowledge of unused services. An open-ended question regarding reasons for non-use of services was analysed by thematic text analysis. Characteristics of family care-givers (e.g. education level) and factors related to the care-giving circumstances (e.g. negative impact of care-giving) predicted family care-givers’ knowledge of unused services. Reasons for non-use of services were multifaceted and complex, and were related to attributes of the person with dementia and/or the family care-giver (e.g. reluctance to use services) and/or the health-care services (e.g. low quality). Although services were unused, several family care-givers indicated substantial needs for the services. Strategies aimed at addressing the non-use of services should emphasise individuals’ and families’ needs and the adaptation of information about available services and their benefits for both care recipients and family care-givers. A relationship-centred care approach is thus recommended in dementia care.


2015 ◽  
Vol 40 (2) ◽  
pp. 139-146 ◽  
Author(s):  
Pat Ogden

Traumatised children can be easily dysregulated by relational dynamics. These children often experience the sequential or simultaneous stimulation of attachment and defence characteristic of disorganised/disoriented attachment patterns. Expressing their relational needs for proximity and distance can be fraught with conflict, confusion, frustration and fear. Parents/care-givers are often baffled about how to balance boundaries and limit setting with closeness and proximity in a way that is effective for themselves and their children. Additionally, parents/care-givers themselves may have histories of trauma and attachment failure that impair their own ability to balance closeness and distance. Both proximity seeking or closeness and defense or boundary setting actions are organized by innate, psychobiological systems of attachment and defense, and for parents/caregivers, the caregiving system as well. Each action system has to meet particular goals to achieve proximity to and security with a trusted other (attachment system); to defend and protect when needed (defence systems) and to protect and care for offspring (care-giving system). The legacy of trauma and attachment failure, with their consequential neuropsychological deficits, can constrain and disrupt adaptive responses to the arousal of these three systems. This paper clarifies the inborn systems that drive actions of proximity and distance. A case study will explore the interactions of these systems in child/care-giver therapy. Sensorimotor Psychotherapy will be described and somatic relational techniques will be illustrated to address proximity and defence/boundaries in the context of child therapy and care-giver/child therapy.


1999 ◽  
Vol 175 (1) ◽  
pp. 56-62 ◽  
Author(s):  
Deborah Perlick ◽  
Robert R. Rosenheck ◽  
John F. Clarkin ◽  
Jo Anne Sirey ◽  
Patrick Raue ◽  
...  

BackgroundFamily members of patients with schizophrenia frequently report burdens associated with caring for their relatives.AimsWe evaluate the impact of illness beliefs on the burden reported by family care-givers of people with bipolar illness.MethodThe multivariate relationships between patient symptomatology and family illness beliefs and report of burden were examined at baseline among care-givers of 266 patients with Research Diagnostic Criteria-diagnosed bipolar illness who were subsequently followed for 15 months.ResultsAt baseline, 93% of care-givers reported moderate or greater distress in at least one burden domain. As a group, care-giver illness beliefs (illness awareness, perception of patient and family control) explained an additional 18–28% of variance in burden experienced beyond the effects of the patients clinical state and history.ConclusionsCare-givers of patients with bipolar illness report widespread burden that is influenced by beliefs about the illness.


2003 ◽  
Vol 100 (2) ◽  
pp. 207-218
Author(s):  
Fred D. McGehee

Pastoral care—caregiving—is probably the most important of all the ministries of a pastor. Every pastor knows the vital importance of care provided in times of crisis, serious illness or injury, and death. Such care, according to McGehee, is even more crucial in the interim situation. In addition to crisis ministry, the interim pastor is the primary care giver in the ordinary situations of ministry. He or she is to be the encourager, the enabler, the empowerer for the congregation.


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