Geographic distance and social isolation among family care-givers providing care to older adults in Canada

2021 ◽  
pp. 1-26
Author(s):  
Lun Li ◽  
Andrew Wister

Abstract Family care-giving is associated with social isolation, which can lead to adverse health and wellbeing outcomes among family care-givers. The role of geographic distance in care-giver social isolation (CSI) is unclear and has received mixed research findings. Framed by the Ecological Model of Caregiver Isolation, this study examined the relationship between geographic distance and CSI, including the interaction between geographic distance and care-giving intensity for CSI. Linear regression and analysis of covariance were used to test these hypotheses using a sub-set of family care-givers from the 2012 Canadian General Social Survey (N = 2,881). Care-givers living a short distance from receivers reported lower levels of social isolation than co-resident, moderate-distance and long-distance care-givers. Being involved in higher-intensity care-giving as the primary care-giver, undertaking more care-giving tasks and providing care more frequently resulted in higher CSI scores. Long- and moderate-distance care-givers reported greater CSI than co-resident and short-distance care-givers only when providing higher-intensity care-giving. Employing a granulated measure of geographic distance positioned within an ecological framework facilitates an understanding of the nuanced association between geographic proximity and CSI. Furthermore, the identified interaction effects between geographic distance and care-giving intensity on CSI further explicate the complexity of care-giving experiences. The findings are relevant for programmes supporting care-givers in different contexts, especially distance care-givers.

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 24-24
Author(s):  
Lun Li ◽  
Andrew Wister

Abstract Family caregiving is associated with social isolation, but the role of geographic distance between caregiver and receiver in caregiving experience is unclear with mixed research findings. This study examined the relationship between geographic distance and caregiver social isolation (CSI), and explored the interaction between geographic distance and caregiving intensity in association with CSI. Based on the Ecological Model of Caregiver Isolation, hierarchical linear regression and ANCOVA analyses were applied to conduct data analysis with the 2012 Canadian General Social Survey (N=2,881). Caregivers living a short distance from receivers reported the lowest CSI than coresident, moderate and long distance caregivers. Being involved in higher intensity caregiving as the primary caregiver, undertaking more caregiving tasks, and providing care more frequently resulted in higher CSI scores. Additionally, long and moderate distance caregivers reported greater CSI than coresident and short distance caregivers only when providing higher intensity caregiving. Geographic distance is a salient contextual factor affecting CSI, and longer distance creates environmental barriers for caregiving provision. Employing a granulated measure of geographic distance positioned within an ecological framework facilitates an understanding of the nuanced association between geographic proximity and CSI. Furthermore, the identified interactive effects between geographic distance and caregiving intensity on CSI further reveal the complexity of caregiving experience. The findings are relevant for programs supporting caregivers in different contexts, especially physical distance.


2014 ◽  
Vol 35 (4) ◽  
pp. 675-703 ◽  
Author(s):  
WILCO KRUIJSWIJK ◽  
BARBARA DA ROIT ◽  
MARCEL HOOGENBOOM

ABSTRACTThe gender gap in family care-giving is an established research finding: men dedicate less time to care-giving and provide specific gendered types of help. This article argues that in order to grasp men's contribution to care arrangements one should recognise the multifaceted nature of care and examine care networks beyond the ‘care receiver–primary care-giver’ dyad with a dynamic perspective. A qualitative analysis of the care networks of three large Dutch families with an older parent in need of care confirms the greater involvement of women in care-giving and men's tendency to provide specific types of care. However, men also contribute to the elasticity and stability of the care arrangement by filling temporary gaps and supporting the female care-givers. This article puts forward the idea that men's contribution is in turn a factor in the perpetuation of the gendered structure of care-giving.


2021 ◽  
pp. 030802262110181
Author(s):  
Megan L Howes ◽  
Diane Ellison

Introduction There is recognition within the literature that the role of care-giving can have a negative impact on care-givers’ general well-being. Less is understood about the role of care-giving on an individual’s occupational participation and in turn occupational identity. Occupational therapists have a unique understanding of the interplay between occupational participation and health, though this is an area that has been under researched in relation to mental health care-givers. Therefore, the current research aims to understand how the role of care-giving for an individual with a mental illness impacts on occupational participation and identity. Method A qualitative semi-structured interview the Occupational Performance and History Interview–Version 2 was utilised to understand life experiences. Six mental health care-givers were interviewed, and these interviews were transcribed for thematic analysis. Findings Three main themes were identified: being me, roles and responsibilities associated with care-giving and services. Conclusion The findings suggest being a mental health care-giver does have a detrimental impact on occupational participation and therefore occupational identity. As care-givers gained more experience in their role, they used occupational adaption as a positive coping mechanism that helped them achieve occupational balance. Using their unique understanding of occupational participation and occupational identity, occupational therapists are well placed to utilise their knowledge and skills to work in a systemic way supporting both the person with mental illness and their care-giver.


2019 ◽  
Vol 2 (2) ◽  
pp. 146
Author(s):  
Mohd. Suhaimi Mohamad

<div class="WordSection1"><p><em>In many traditional societies, women play an important role  as informal caregiver. They take care of small children, family members who are disabled, old and frail.  They perform their role within the private family sphere without much complaints. However when many women enter labour force outside their family many of them can no longer become family care giver. The  seperation between nuclear familes and extended families due to rural urban migration makes older women like mothers and mothers in-law can no longer available to provide help. As an alternative, many urban families opt for domestic help to look after their young children, disabled family members and the elderly.  Domestic helpers continue their domestic chores as instructed by the lady of the house an at the same time perform caregiving role. The important issue  related to having domestic maid to perform care giving role especially in Muslim family is regarding physical contact.  Most of the activities in caregiving roles involves physical contact especially during cleaning patients body, changing their clothes, prepare their bed, feeding them, holding their hands and body for therapy. However Islamic paractice do not allow physical contact like touching between two people who are not close family relations or mahram.  Since most of domestic maid who also perform the role as caregiver are women, therefore the issue of empowering men to become caregiver is very important  because the needs of male caregivers to care for male patients is increasing. Based onwhat is stated in the Quran and hadith and related documents, this paper will outline the need for informal care in families and communities that need to be addressed, particularly those who are Syariah-compliant. Cases from research in the relevant field will be presented to highlight the issues why men should be encourage to consider role as informal caregivers.</em><em></em></p><p>Dalam banyak masyarakat tradisional, perempuan memainkan peran penting sebagai pengasuh informal. Mereka merawat anak-anak kecil, anggota keluarga yang cacat, tua dan lemah. Mereka melakukan peran mereka dalam ruang keluarga pribadi tanpa banyak keluhan. Namun ketika banyak perempuan memasuki angkatan kerja di luar keluarga mereka, banyak dari mereka tidak bisa lagi menjadi pemberi perawatan keluarga. Pemisahan antara keluarga inti nuklir dan keluarga besar karena migrasi perkotaan pedesaan membuat perempuan yang lebih tua seperti ibu dan ibu mertua tidak lagi dapat menyediakan bantuan. Sebagai alternatif, banyak keluarga perkotaan memilih bantuan rumah tangga untuk menjaga anak-anak mereka, anggota keluarga yang cacat dan orang tua. Pembantu rumah tangga melanjutkan pekerjaan rumah tangga mereka seperti yang diperintahkan oleh nyonya rumah dan pada saat yang sama melakukan peran pengasuhan. Masalah penting terkait dengan memiliki pembantu rumah tangga untuk melakukan peran memberi perawatan terutama dalam keluarga Muslim adalah tentang kontak fisik. Sebagian besar kegiatan dalam peran pengasuhan melibatkan kontak fisik terutama selama membersihkan tubuh pasien, mengganti pakaian, menyiapkan tempat tidur, memberi makan, memegang tangan dan tubuh untuk terapi. Namun paraktek Islam tidak mengizinkan kontak fisik seperti menyentuh antara dua orang yang tidak memiliki hubungan keluarga atau mahram. Karena sebagian besar pembantu rumah tangga yang juga berperan sebagai pengasuh adalah perempuan, maka masalah pemberdayaan laki-laki untuk menjadi pengasuh sangat penting karena kebutuhan pengasuh laki-laki untuk merawat pasien laki-laki semakin meningkat. Berdasarkan apa yang dinyatakan dalam Al-Quran dan hadits dan dokumen terkait, makalah ini akan menguraikan kebutuhan untuk perawatan informal dalam keluarga dan masyarakat yang perlu ditangani, terutama mereka yang mematuhi Syariah. Kasus-kasus dari penelitian di bidang yang relevan akan disajikan untuk menyoroti masalah mengapa laki-laki harus didorong untuk mempertimbangkan peran sebagai pengasuh informal.</p></div><p align="left"> <strong><em>Keywords:</em></strong><em> gender, informal care giver, care giving, family.</em></p>


2020 ◽  
pp. 1-25
Author(s):  
Jill-Marit Moholt ◽  
Oddgeir Friborg ◽  
Nils Henriksen ◽  
Torunn Hamran ◽  
Bodil H. Blix

Abstract Community health-care services for older, home-dwelling persons with dementia tend to be underutilised. Family care-givers provide substantial care, and they often arrange for and co-ordinate health-care services on behalf of persons with dementia. The aim of this study was to examine family care-givers’ knowledge of unused services and their self-reported reasons for non-use of such services. We gathered cross-sectional survey data from 430 family care-givers of older persons with dementia in Northern Norway. Multinomial logistic regression analysis was used to identify predictors of family care-givers’ knowledge of unused services. An open-ended question regarding reasons for non-use of services was analysed by thematic text analysis. Characteristics of family care-givers (e.g. education level) and factors related to the care-giving circumstances (e.g. negative impact of care-giving) predicted family care-givers’ knowledge of unused services. Reasons for non-use of services were multifaceted and complex, and were related to attributes of the person with dementia and/or the family care-giver (e.g. reluctance to use services) and/or the health-care services (e.g. low quality). Although services were unused, several family care-givers indicated substantial needs for the services. Strategies aimed at addressing the non-use of services should emphasise individuals’ and families’ needs and the adaptation of information about available services and their benefits for both care recipients and family care-givers. A relationship-centred care approach is thus recommended in dementia care.


2015 ◽  
Vol 40 (2) ◽  
pp. 139-146 ◽  
Author(s):  
Pat Ogden

Traumatised children can be easily dysregulated by relational dynamics. These children often experience the sequential or simultaneous stimulation of attachment and defence characteristic of disorganised/disoriented attachment patterns. Expressing their relational needs for proximity and distance can be fraught with conflict, confusion, frustration and fear. Parents/care-givers are often baffled about how to balance boundaries and limit setting with closeness and proximity in a way that is effective for themselves and their children. Additionally, parents/care-givers themselves may have histories of trauma and attachment failure that impair their own ability to balance closeness and distance. Both proximity seeking or closeness and defense or boundary setting actions are organized by innate, psychobiological systems of attachment and defense, and for parents/caregivers, the caregiving system as well. Each action system has to meet particular goals to achieve proximity to and security with a trusted other (attachment system); to defend and protect when needed (defence systems) and to protect and care for offspring (care-giving system). The legacy of trauma and attachment failure, with their consequential neuropsychological deficits, can constrain and disrupt adaptive responses to the arousal of these three systems. This paper clarifies the inborn systems that drive actions of proximity and distance. A case study will explore the interactions of these systems in child/care-giver therapy. Sensorimotor Psychotherapy will be described and somatic relational techniques will be illustrated to address proximity and defence/boundaries in the context of child therapy and care-giver/child therapy.


1999 ◽  
Vol 175 (1) ◽  
pp. 56-62 ◽  
Author(s):  
Deborah Perlick ◽  
Robert R. Rosenheck ◽  
John F. Clarkin ◽  
Jo Anne Sirey ◽  
Patrick Raue ◽  
...  

BackgroundFamily members of patients with schizophrenia frequently report burdens associated with caring for their relatives.AimsWe evaluate the impact of illness beliefs on the burden reported by family care-givers of people with bipolar illness.MethodThe multivariate relationships between patient symptomatology and family illness beliefs and report of burden were examined at baseline among care-givers of 266 patients with Research Diagnostic Criteria-diagnosed bipolar illness who were subsequently followed for 15 months.ResultsAt baseline, 93% of care-givers reported moderate or greater distress in at least one burden domain. As a group, care-giver illness beliefs (illness awareness, perception of patient and family control) explained an additional 18–28% of variance in burden experienced beyond the effects of the patients clinical state and history.ConclusionsCare-givers of patients with bipolar illness report widespread burden that is influenced by beliefs about the illness.


2012 ◽  
Vol 33 (4) ◽  
pp. 667-697 ◽  
Author(s):  
MAXIMILIANE E. SZINOVACZ ◽  
ADAM DAVEY

ABSTRACTCare-giving research has focused on primary care-givers and relied on cross-sectional data. This approach neglects the dynamic and systemic character of care-giver networks. Our analyses address changes in care-givers and care networks over a two-year period using pooled data from the US Health and Retirement Study, 1992–2000. Based on a matrix of specific adult-child care-givers across two consecutive time-points, we assess changes in any adult-child care-giver and examine the predictors of change. A change in care-giver occurred in about two-fifths of care-giving networks. Ability to provide care based on geographical proximity, availability of alternative care-givers, and gender play primary roles in the stability of care networks. Results underline the need to shift care-giving research toward a dynamic and systemic perspective.


2004 ◽  
Vol 2 (3) ◽  
pp. 53-66 ◽  
Author(s):  
Chiung-Yu Huang

Family care givers providing a major portion of care giving often experience stress related to the negative consequences for their health. Female care givers often more heavily involved care giving activities than males. Care givers’ gender studies have seldom conducted in Taiwan. The purpose of this study was to explore the relationship of demographic factors and coping on health of female care givers of older adults with dementia in Taiwan. In addition, whether coping mediated or moderated the relationship between stress and care giver’s health was also examined. Lazarus and Folkman’s Stress model guided this study. Using a secondary data analysis method, this study examined data collected from the family care givers of older adults with dementia (2002). One hundred and three female care givers were analyzed by applying Pearson correlation, simple and multiple regression analysis. The findings showed care givers who are younger, more income, and with helpers had better health. Care givers who had less income, without helpers, and caring for care recipients with more behavioral problems had more depressive symptoms. In addition, mediating effect of avoidance coping was supported in this study. The data analysis from this study will provide a basis for nurses to develop interventions that minimize the negative impacts on female care givers.


2020 ◽  
pp. 1-27 ◽  
Author(s):  
Allen Prabhaker Ugargol ◽  
Ajay Bailey

Abstract The felt obligation to return a benefit, termed reciprocity, has been identified as motivating care exchanges between older adults and their younger family members. Within the context of large-scale emigration of young adults from the Indian state of Kerala, this study examines how left-behind older adults and their family care-givers recognise, interpret and give meaning to reciprocal exchanges, expectations and obligations in their care relationship. Employing a social exchange perspective, we qualitatively explore the norm of reciprocity through in-depth interviews of 48 participants (older adults and their care-givers) from emigrant households. Older adults and their care-givers identified reciprocal notions in their care exchange relationship that provided an interpretive framework for describing expectations, motivations, obligations and experiences across care-giving relationships. Spousal care-givers derived reciprocal motives and mutual care obligations through the institution of marriage. Adult children recognised filial duties and responsibilities and were in principle prepared to provide care to their parents. Reciprocating the support received and the likelihood of intergenerational transfers motivated care exchanges from adult children to their older parents. Daughters-in-law executed transferred filial roles from their emigrant husbands and bore a larger burden of care. Primary adult care-givers relied on the ‘demonstration effect’, hoping that children observe the care-giving process and emulate it later. Imbalances and non-reciprocity in the care exchange led to frustrations and threatened the care relationships.


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