scholarly journals Addressing the information needs of patients with prostate cancer: A literature review

2009 ◽  
Vol 8 (1) ◽  
pp. 23-33 ◽  
Author(s):  
Neil A. Mc Parland

AbstractPsychosocial support is a cornerstone in the holistic care of cancer patients. The provision of information is a key tool in the psychosocial management of the cancer patient, and it is important that the therapy radiographer is cognizant of the patient's need for information.This article reviews the importance of information to the psychosocial well-being of cancer patients in general, with specific emphasis on patients with prostate cancer. The information services at a large Canadian cancer facility are also reviewed to gain some insight into how the needs of patients with prostate cancer are addressed at the author's workplace.Most patients with prostate cancer have an expressed need for considerable amounts of information at various stages of their cancer journey. The provision of information has a range of benefits to the prostate patient such as helping the patient deal with their diagnosis, assisting with the decision-making process and reducing anxiety.Interpersonal sources of information such as face-to-face communication with the oncologist or radiation therapist are preferred by many patients, including patients with prostate cancer. Other sources that include the internet and written hospital material are also used with varying degrees of effectiveness to deliver information.The provision of quality information in a timely and effective manner cannot be taken for granted. Access to appropriate information resources can be impeded because of poorly designed information material, inadequate communication, ineffective signposting, resource constraints and lack of knowledge/comprehension on the part of frontline health-care workers dealing with the patient. Radiation therapists are encouraged to be advocates for their patients’ information needs and to be involved in initiatives that will improve the quality, dissemination and efficacy of information.

2011 ◽  
Vol 5 (2) ◽  
pp. 182-190 ◽  
Author(s):  
Sumedha Chhatre ◽  
Alan J. Wein ◽  
S. Bruce Malkowicz ◽  
Ravishankar Jayadevappa

2021 ◽  
Vol 6 (4) ◽  

Aim: The psychosocial support for cancer patients in the mental health care is often limited because of difficulties in access and the expense to patients. In response, informal regional support centers have been developed in the Netherlands called “Community-based Psychosocial Support Centres (hereinafter: CBPSCs) for cancer patients and relatives. They offer supporting complementary activities and professional psychological help which are easily accessible and free of charge. We studied the use (frequency, duration and future use) and the determinants of the visits to CBSPCs. Method: Visitors covering 701 cases from 25 CBPSCs filled-out a web-based questionnaire, answering questions about how often they contacted CBPSCs (frequency, duration and future use) and which personal factors, mainly based of the ASE model, influenced the use of CBPSCs. Also, the well-being of the patient, the evaluation of the visits and the significance of the support received were studied as dependent variables, in addition to the role of the ASE factors, applying multivariate analyses. All sum scores showed a strong internal consistency. Results: Most patients did not know what CBPSCs are or where to find them. About one-fifth was alerted by family, friends and acquaintances. Another 20% was informed about CBPSCs by hospital oncology nurses and through leaflets. Patients rarely reported being referred by their GPs and medical specialists. Health care providers in hospitals were much better informed about CBPSCs, referring approximately half of their patients to CBPSCs. Around two thirds of the patients visited the CBSPC once a week for 2 to 3 hours and intended to continue these visits in years to come. Present use generally showed that the most important determinants are the attitude towards the visits, whether the patient is a recent visitor, the patient’s perceived significance of the visits and having a socially-inactive lifestyle. Conclusions: The study confirms the high value that this type of organisation provides in informal support in cancer care. The CBPSCs need to improve their visibility in the healthcare system through more public campaigns and better information to patients. More countries should introduce and stimulate this type of easily-accessible, cheap, effective and highly-valued supportive care centres, and explore the needs of patient and family members.


2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 968-968
Author(s):  
Esther Okang ◽  
Siobhan Aaron ◽  
Katherine Supiano ◽  
Abdul Osman

Abstract The pandemic necessitated immediate shutdown of senior centers, requiring a rapid pivot in the delivery of services to older adults by direct care workers. We provided psychosocial support to older adult service personnel-including Aging and Adult Services case workers and Senior Center Staff, and conducted focus groups with staff at intervals to capture the mid-point of the pandemic (peak of older adult deaths), onset of vaccine availability and the re-entry phase as programs re-opened. We evaluated coping and self-efficacy of workers and discerned sustained high levels of coping and perceived job performance. Using a phenomenological lens, we analyzed transcribed recordings, generated codes, and created categories of experiences. Several themes emerged: personal and professional resilience, passion for serving older adults, motivation to perform their job well, stress of not having face-to-face contact with clients, insufficient resources-especially in rural areas, lack of essential training, feeling disjointed as a team, and work-life balance. Over the course of the pandemic, workers expressed increasing resiliency and skills to navigate the pandemic, oscillations in their fears for their clients’ well-being, and gratitude that they kept their jobs and gained additional State resources. As the vaccine was available and utilized, and as senior centers were reopening, senior center staff were enthusiastic, yet case workers remained apprehensive about long-term consequences of the pandemic. This study affirms the role of direct care workers as essential and valuable. Yet, their expressed need for more education, psychosocial support, and community awareness of their service remains to be addressed.


2020 ◽  
Vol 14 (3) ◽  
pp. 115-123
Author(s):  
Kim Donachie ◽  
Erik Cornel ◽  
Marian Adriaansen ◽  
Rosa Mennes ◽  
Inge Oort ◽  
...  

2013 ◽  
Vol 22 (4) ◽  
pp. 999-1007 ◽  
Author(s):  
Peter Rüesch ◽  
René Schaffert ◽  
Susanne Fischer ◽  
Deb Feldman-Stewart ◽  
Robin Ruszat ◽  
...  

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