Psychological distress and psychosocial needs endorsed by an underserved, ethnically diverse oncology population

Author(s):  
Talia Weiss ◽  
Evelyn Kolidas ◽  
Emma Stein ◽  
Alyson Moadel
2017 ◽  
Vol 6 (5) ◽  
pp. 323-330 ◽  
Author(s):  
Michelle Hadjiconstantinou ◽  
Hamidreza Mani ◽  
Naina Patel ◽  
Miles Levy ◽  
Melanie Davies ◽  
...  

Objective Polycystic ovary syndrome (PCOS) is a lifelong condition. Its symptoms have been linked with psychological consequences, but less attention has been given to the daily implications of living with PCOS. We aimed to explore women’s experiences living with PCOS, and the potential acceptability of group education sessions for this target group. Methods Women with PCOS were recruited from an ethnically diverse UK community. Twelve semi-structured interviews were conducted. Analysis was underpinned by the constant comparative approach and involved the identification and exploration of key themes. Results Participants reported a range of symptoms linked with PCOS, including problems relating to menstruation and weight difficulties. Hirsutism was reported as the most distressing symptom. Emergent themes included perceptions about symptoms and delays in receiving a diagnosis; psychological distress; practical implications of living with the condition; coping with PCOS and perceived support needs. Some findings were specific to cultural backgrounds. Participants were supportive of the idea of group education for women with PCOS and suggested a need to provide education within the community and health care providers. Discussion Women with PCOS experience high psychological distress and difficulties with coping with their condition. Suggested strategies to reduce the negative psychological impact include education at various levels.


Author(s):  
Nida Shahid ◽  
Tamkeen Ashraf Malik ◽  
Akmal Hussain ◽  
Shaf Ahmed

Abstract Objective: To explore the unmet psychosocial needs, coping styles and psychological distress among people ith cancer in Pakistan. Methods: A cross-sectional correlational study design was used for data collection. The research was conducted in Shifa International Hospital, Islamabad and Hayatabad Medical Complex, Peshawar with a sample of 182 participants diagnosed with cancer. Only those who consented to participate were approached from May to July, 2017. Supportive Care Needs Survey-Short Form 34 (SCNS-SF34), Mini-Mental Adjustment to Cancer Scale (Mini-Macs) and Hospital Anxiety Depression Scale (HADS) were used for data collection. Results: It was found that all psychosocial needs were unmet among all the participants (100%) who were suffering from cancer illness. Among five sub-domains of psychosocial needs, health information needs (35.61%) and psychological needs (30.7%) emerged to be strikingly unmet. Moreover, anxious preoccupation and hopeless/helplessness were highly endorsed maladaptive coping styles. A statistically significant relationship existed among unmet psycho-social needs, maladaptive coping and psychological distress. Conclusion: This Study outcome pointed towards gaps in delivering quality care services in Pakistani healthcare settings, inadequate attention of health professionals and serious psychological health care neglect of patients fighting with life threatening disease. This negligence may jeopardize patient’s overall health, can raise health care costs and consequently can contribute to elevated psychological distress. Hence, there is a dire need for proper psychological interventions for effective and holistic treatment planning which can improve the whole process of illness and recovery. Keywords: Cancer, Psychosocial support system, Continuous...


2021 ◽  
Author(s):  
Richard Tindle ◽  
Paola Castillo ◽  
Natalie Doring ◽  
Leigh Grant ◽  
Royce Lyle Willis

Background: University students are four times more likely to experience elevated levels of psychological distress compared to their peers. Psychosocial needs of university students are associated with high psychological distress, stressful life events, and academic performance. Our study focusses on developing a measure to help universities identify these psychosocial needs. Aims: The study aimed to develop and validate the factor structure of the University Needs Instrument and identify the relationship between psychosocial needs, psychological distress, and academic performance within university students.Sample: Undergraduate university students (N = 433) currently studying at university. Method: Participants completed demographic questions, the University Needs Instrument, the Kessler-10 Psychological Distress scale, and the Stressful Life Events scale. The University Needs Instrument comprises 30 items within six psychosocial factors (academic support, financial support, support from family, support from friends, practical support, and emotional support), each consisting of five items. Results: Confirmatory factor analysis showed that all items significantly loaded on the six hypothesised factors. The hypothesised model was supported by the data displaying excellent model fit and psychometric properties. Our analysis determined that the UNI has strong internal consistency. The results also confirmed that university students’ high levels of psychological distress and their academic performance may be affected by their psychosocial needs.Conclusions: Our findings emphasise that psychosocial needs are an important underlying contributor to psychological distress and a reduction in academic performance in university students. Our findings provide an initial validation of the University Needs Instrument to measure the psychosocial needs of university students.


Cancer ◽  
2007 ◽  
Vol 109 (S2) ◽  
pp. 446-454 ◽  
Author(s):  
Alyson B. Moadel ◽  
Carole Morgan ◽  
Janice Dutcher

Author(s):  
Akihiko Masuda ◽  
Erin C. Tully

The current study investigated whether mindfulness and psychological flexibility uniquely and separately accounted for variability in psychological distress (somatization, depression, anxiety, and general psychological distress). An ethnically diverse, nonclinical sample of college undergraduates (N = 494, 76% female) completed a Web-based survey that included the self-report measures of interest. Consistent with prior research, psychological flexibility and mindfulness were positively associated with each other, and tested separately, both variables were negatively associated with somatization, depression, anxiety, and general psychological distress. Results also revealed that psychological flexibility and mindfulness accounted for unique variance in all 4 measures of distress. These findings suggest that mindfulness and psychological flexibility are interrelated but not redundant constructs and that both constructs are important for understanding the onset and maintenance of somatization, depression, anxiety, and general distress.


2021 ◽  
pp. sextrans-2020-054788
Author(s):  
Danielle Solomon ◽  
Shema Tariq ◽  
Jon Alldis ◽  
Fiona Burns ◽  
Richard Gilson ◽  
...  

ObjectivesWomen living with HIV in the UK are an ethnically diverse group with significant psychosocial challenges. Increasing numbers are reaching older age. We describe psychological and socioeconomic factors among women with HIV in England aged 45–60 and explore associations with ethnicity.MethodsAnalysis of cross-sectional data on 724 women recruited to the PRIME Study. Psychological symptoms were measured using the Patient Health Questionnaire 4 and social isolation with a modified Duke-UNC Functional Social Support Scale.ResultsBlack African (BA) women were more likely than Black Caribbean or White British (WB) women to have a university education (48.3%, 27.0%, 25.7%, respectively, p<0.001), but were not more likely to be employed (68.4%, 61.4%, 65.2%, p=0.56) and were less likely to have enough money to meet their basic needs (56.4%, 63.0%, 82.9%, p<0.001). BA women were less likely to report being diagnosed with depression than WB women (adjusted odds ratio (aOR) 0.40, p<0.001) but more likely to report current psychological distress (aOR 3.34, p<0.05).ConclusionsWe report high levels of poverty, psychological distress and social isolation in this ethnically diverse group of midlife women with HIV, especially among those who were BA. Despite being more likely to experience psychological distress, BA women were less likely to have been diagnosed with depression suggesting a possible inequity in access to mental health services. Holistic HIV care requires awareness of the psychosocial needs of older women living with HIV, which may be more pronounced in racially minoritised communities, and prompt referral for support including psychology, peer support and advice about benefits.


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