The Prevalence of CKD in Rural Canadian Indigenous Peoples: Results From the First Nations Community Based Screening to Improve Kidney Health and Prevent Dialysis (FINISHED) Screen, Triage, and Treat Program

In Canada, the water crisis increasingly felt around the world is being experienced primarily in small, usually Indigenous, communities. At the heart of this issue lies an ongoing struggle to have Indigenous voices heard in the decision-making processes that affect their lives, lands, and waters. As part of ancient systems of Traditional Knowledge (TK), Indigenous people bear the knowledge and the responsibility to care for the waters upon which they depend for survival. A series of internationally developed documents has supported Indigenous peoples’ calls for increased recognition of the importance of TK in resolving environmental crises, including those involving water. Ontario provincial and Canadian federal governments have been developing legislative and regulatory documents to help fend off further water-related catastrophes within their jurisdictions. Despite such efforts, a number of barriers to the successful and appropriate involvement of TK in water management remain. Based on years of community-based and policy-related research with First Nations people involved in water-related undertakings, this article highlights progress made to date, and provides Indigenous viewpoints on what further steps need to be taken. Key among these steps are the need to restore and maintain Indigenous access to traditional territories and ways of life, and the requirement for mutually respectful collaboration between TK and Western science.

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Catalyzing Action on First Nations Respiratory Health Using Community-based Participatory Research: Integrated Knowledge Translation through Strategic Symposia

Engaged Scholar Journal Community-Engaged Research Teaching and Learning ◽

10.15402/esj.v2i1.198 ◽

2017 ◽

Vol 2 (1) ◽

pp. 57-70

Author(s):

Tarun Reddy Katapally ◽

Sylvia Abonyi ◽

Jo-Ann Episkenew ◽

Vivian Ramsden ◽

Chandima Karunanayake ◽

...

Keyword(s):

Knowledge Translation ◽

First Nations ◽

Participatory Research ◽

Respiratory Health ◽

Community Based Participatory Research ◽

Integrated Knowledge Translation ◽

Community Members ◽

Community Based ◽

Nations Community ◽

Integrated Knowledge

Assess, Redress, Re-assess: Addressing Disparities in Respiratory Health Among First Nations is an ongoing community-based participatory research initiative involving two First Nations communities in Saskatchewan. The initiative’s rationale is grounded in the ethos of transformative community-based participatory research and facilitated through integrated knowledge translation with the aim of building community capacity. The initiative’s goal was to engage community members to actively participate in all research phases, from the development of the research questions to dissemination of results and evaluation of community-chosen interventions that evolved from the results. After baseline assessment of predictors and indicators of respiratory health, a program of integrated knowledge translation was adopted. As part of this program, a community-researcher collaboration was put in place that produced two knowledge translation symposia. The two symposia have brought together First Nations community members, interdisciplinary researchers, federal and provincial policy makers, and multiple Aboriginal organizational stakeholders. The symposia provided a pathway for knowledge synthesis and sharing to ultimately integrate knowledge into practice and enable First Nations’ community capacity building in addressing and redressing critical respiratory health issues. This article delineates the processes involved in developing this model of integrated knowledge translation and highlights the continuing engagement with the participating communities supported by Knowledge Translation (KT) Symposia.

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Sandy Lake Health and Diabetes Project: A Community-Based Intervention Targeting Type 2 Diabetes and Its Risk Factors in a First Nations Community

Frontiers in Endocrinology ◽

10.3389/fendo.2013.00170 ◽

2013 ◽

Vol 4 ◽

Cited By ~ 16

Author(s):

Kara E. Kakekagumick ◽

Mariam Naqshbandi Hayward ◽

Stewart B. Harris ◽

Brit Saksvig ◽

Joel Gittelsohn ◽

...

Keyword(s):

Risk Factors ◽

Type 2 Diabetes ◽

First Nations ◽

Community Based ◽

Nations Community

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The development of a community-based public health response to an outbreak of post-streptococcal glomerulonephritis in a First Nations community

Canada Communicable Disease Report ◽

10.14745/ccdr.v47i78a07 ◽

2021 ◽

Vol 47 (7/8) ◽

pp. 339-346

Author(s):

Jeffrey Jacob ◽

Natalie Bocking ◽

Ruben Hummelen ◽

Jenna Poirier ◽

Len Kelly ◽

...

Keyword(s):

Public Health ◽

First Nations ◽

Mandatory Reporting ◽

Indigenous Populations ◽

Public Health Response ◽

Community Based ◽

Household Contacts ◽

Health Response ◽

Post Streptococcal Glomerulonephritis ◽

Nations Community

Background: Post-streptococcal glomerulonephritis (PSGN) is a rare immune-mediated condition that typically occurs in children as a result of group A streptococcus (GAS) infection. PSGN is not considered a disease of public health significance, or reportable, in Canada. Higher incidence of PSGN has been described among Indigenous people in Canada. No national or provincial guidance exists to define or manage PSGN outbreaks. Objective: To describe an outbreak of seven paediatric cases of PSGN in a remote First Nations community in northwestern Ontario and the development of a community-wide public health response. Methods: Following a literature review, an intervention was developed involving screening of all children in the community for facial or peripheral edema or skin sores, and treatment with antibiotics if noted. Case, contact and outbreak definitions were also developed. The purpose of the response was to break the chain of transmission of a possible nephritogenic strain of streptococcus circulating in the community. Relevant demographic, clinical and laboratory data were collected on all cases. Outcome: Seven paediatric cases of PSGN presented to the community nursing station between September 25 and November 29, 2017. Community-wide screening for skin sores was completed for 95% of the community’s children, including 17 household contacts, and as a result, the last of the cases was identified. Nineteen adult household contacts were also screened. Ten paediatric contacts and two adult contacts with skin sores were treated with one dose of intramuscular penicillin, and six paediatric contacts received oral cephalexin. No further cases were identified following the screening. Conclusion: PSGN continues to occur in Indigenous populations worldwide at rates higher than in the overall population. In the absence of mandatory reporting in Canada, the burden of PSGN remains underappreciated and could undermine upstream and downstream public health interventions. Evidence-based public health guidance is required to manage outbreaks in the Canadian context. The community-based response protocol developed to contain the PSGN outbreak in this First Nations community can serve as a model for the management of future PSGN outbreaks.

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“Spirit, Safety, and a Stand-off ”: The Research-Creation Process and Its Roles in Relationality and Reconciliation among Researcher and Indigenous Co-Learners in Saskatchewan, Canada

Engaged Scholar Journal Community-Engaged Research Teaching and Learning ◽

10.15402/esj.v5i2.68334 ◽

2019 ◽

Vol 5 (2) ◽

pp. 37-60

Author(s):

Myron Neapetung ◽

Lori Bradford ◽

Lalita Bharadwaj

Keyword(s):

First Nations ◽

Research Process ◽

Lessons Learned ◽

Research Information ◽

Community Members ◽

Translation Process ◽

Community Based ◽

Community Ownership ◽

Research Findings ◽

Nations Community

Provision of safe water on reserves is an ongoing problem in Canada that can be addressed by mobilizing water knowledge across diverse platforms to a variety of audiences. A participatory artistic animation video on the lived experiences of Elderswith water in Yellow Quill First Nation, Treaty Four territory, was created to mobilize knowledge beyond conventional peer-review channels. Research findings from interviews with 22 Elders were translated through a collaborative process into a video with a storytelling format that harmonized narratives, visual arts, music, and meaningful symbols. Three themes emerged which centered on the spirituality of water, the survival need for water, and standoffs in water management. The translation process, engagement and video output were evaluated using an autoethnographic approach with two members of the research team. We demonstrate how the collaborative research process and co-created video enhance community-based participatory knowledge translation and sharing. We also express how the video augments First Nations community ownership, control, access and possession (OCAP) of research information that aligns with their storytelling traditions and does so in a youth-friendly, e-compatible form. Through the evaluative process we share lessons learned about the value and effectiveness of the video as a tool for fostering partnerships, and reconciliation. The benefits and positive impacts of the video for the Yellow Quill community and for community members are discussed.

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Critique of a Community-Based Population Health Intervention in First Nations Community: Public Health and Cultural Anthropology Perspectives

Revue interdisciplinaire des sciences de la santé - Interdisciplinary Journal of Health Sciences ◽

10.18192/riss-ijhs.v6i1.1724 ◽

2016 ◽

Vol 6 (1) ◽

pp. 52-61

Author(s):

Selim M. Khan

Keyword(s):

Public Health ◽

First Nations ◽

Population Health ◽

Cultural Anthropology ◽

Health Intervention ◽

Health Determinants ◽

Community Based ◽

Community Stakeholders ◽

Population Health Intervention ◽

Nations Community

Launched as a community-based partnership endeavour, the Sandy Lake Health and Diabetes Project (SLHDP) aimed to prevent diabetes in a First Nations community (FNC) in Toronto. With active engagement of the key stakeholders, SLHDP conducted a series of studies that explored public health needs, priorities, and the contexts. These led to the adoption of a variety of culturally appropriate health interventions, addressing several health determinants such as health education, physical environments, nutrition, personal health practices, health services, and FNC culture. SLHDP built reciprocal capacity for both the community stakeholders and academic partners, thus evolved as a model of population health intervention. The school components are being scaled-up in other parts of FNCs in Canada. This paper presents a critique from public health and medical anthropology perspectives and draws evidence-based recommendations on how such programs can do better.

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Community University Research Agreement

The Australian Journal of Indigenous Education ◽

10.1017/s1326011100004683 ◽

2007 ◽

Vol 36 (S1) ◽

pp. 38-44

Author(s):

Priscilla Settee ◽

Shelley Thomas-Prokop

Keyword(s):

Indigenous Knowledge ◽

First Nations ◽

Indigenous Peoples ◽

Policy Development ◽

Indigenous Communities ◽

Urban Housing ◽

Research Projects ◽

Community Based ◽

Community Based Research ◽

The University

AbstractThis paper describes the process of engaging the extended Indigenous community within Saskatoon and the surrounding First Nations communities in what would be a first major research project between Indigenous communities and the University of Saskatchewan. A management committee was established comprised of all the major Saskatoon/Saskatchewan Indigenous organisations, such as the Federation of Saskatchewan Indians, Saskatoon Tribal Council, First Nations University of Canada and other community-based groups to ensure that research reflected First Nations and Metis needs. The project called “Bridges and Foundations” awarded some 35 projects close to two million dollars in research funds. The money was awarded through graduate student research bursaries, and community-based projects which highlighted the needs of Indigenous women, youth, students, elders and urban populations. The three research themes included respectful protocol, knowledge creation, and policy development. The research projects, which were largely Indigenous designed and driven, created one of the most extensive research collections over a period of four years and included major data collection on community-based research, Indigenous peoples and Indigenous knowledge systems and protocols. The paper relates the development of the project and speaks about the need for Indigenous peoples to lead their own research as well as the benefits of collaboration. It also highlights several of the research projects including a conference on Indigenous knowledge (2004), a video project describing the community mobilisation process behind Quint Urban Housing Co-operatives,

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Exploring the Perceptions of and Experiences with Traditional Foods among First Nations Female Youth: A Participatory Photovoice Study

International Journal of Environmental Research and Public Health ◽

10.3390/ijerph17072214 ◽

2020 ◽

Vol 17 (7) ◽

pp. 2214

Author(s):

Rebecca Hanemaayer ◽

Kimberley Anderson ◽

Jess Haines ◽

Kitty RLynn Lickers ◽

Adrianne Lickers Xavier ◽

...

Keyword(s):

Urban Communities ◽

First Nations ◽

Indigenous Peoples ◽

Well Being ◽

Food Choices ◽

Traditional Food ◽

Structured Interviews ◽

Traditional Foods ◽

Community Based ◽

Photovoice Methodology

Traditional foods contribute to the health and well-being of Indigenous Peoples. Many Indigenous Peoples within Canada have expressed a desire to consume more traditional foods; however, there are a number of barriers to doing so. Southern and urban communities face unique challenges associated with traditional food consumption. To address these concerns and build on community interests in a Haudenosaunee community in Southern Ontario, a participatory research project was initiated. This community-based study utilized Photovoice methodology to explore the perceptions of and experiences with traditional foods among local youth. Participants ranging in age from 15–22 (n = 5) took photos of their local food environments, including locations where foods were acquired, consumed, prepared, or shared during two seasons of the year. Semi-structured interviews were conducted to collect participants’ stories behind 8–10 self-selected images. A thematic analysis was subsequently utilized to identify patterns and themes illustrated by the photos and interview content. The youth conveyed contextual understandings of traditional foods and a preference for these items, despite their limited consumption, preparation or harvesting of these foods. The youth also identified the important influence of families and communities on their individual perceptions and experiences with traditional foods. Recommendations to reduce barriers to traditional food choices among youth are made.

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