Developmental Status of Children Operated for Esophageal Atresia with or without Tracheoesophageal Fistula Along with Maternal Stress, Their Quality of life, and Coping Abilities at AIIMS, New Delhi

2018 ◽  
Vol 29 (01) ◽  
pp. 125-131 ◽  
Author(s):  
Vanita Kumari ◽  
Anjan Dhua ◽  
Savita Sapra ◽  
Maddur Srinivas ◽  
Sandeep Agarwala ◽  
...  

Introduction Esophageal atresia with or without tracheoesophageal fistula (EA with or without TEF) is one of the neonatal surgical emergencies requiring surgical intervention in the early neonatal period, influencing the developmental outcome in the operated children. This study was aimed to assess the developmental status of children operated for EA with or without TEF along with maternal stress, their quality of life (QOL), and coping abilities. Materials and Methods A descriptive cross-sectional survey was conducted on 51 children aged up to 5 years after EA with or without TEF repair and their mothers' in a tertiary care facility. The tools used were, namely, demographic datasheet of child and mother, anthropometry assessment, Developmental Assessment Scale for Indian Infants, and modified Vineland Social Maturity Scale for the developmental evaluation, Child Behavior Checklist (1.5–5 years) caregiver report form, Parental Stress Scale, WHOQOL BREF, and Coping Strategies Checklist. Results The majority of children had low weight (47.1%) and height (31.4%), for reference age. The overall and social developmental delay was observed in 40.7 and 37.5% of children, respectively, and few children (7.4%) had behavioral problems in the borderline range. Among the mothers, 47% had moderate stress and relatively poor QOL in environmental (60.1 ± 18.9) and psychological (60.8 ± 18.8) domains. The most commonly used coping strategy by the mothers was an emotional outlet (29.4%). Conclusion Developmental delay was present in children operated for EA with or without TEF caused significant stress among mothers, affecting their QOL for which the emotional outlet was the most commonly used coping strategy.

2017 ◽  
Vol 266 (2) ◽  
pp. 305-310 ◽  
Author(s):  
Waleed Gibreel ◽  
Benjamin Zendejas ◽  
Ryan M. Antiel ◽  
Geoffrey Fasen ◽  
Christopher R. Moir ◽  
...  

2016 ◽  
Vol 29 (3) ◽  
pp. 294-295 ◽  
Author(s):  
U.K. Krishnan ◽  
L.M. McLennan ◽  
J.C. Li Chan ◽  
C.C. Clarkson ◽  
J.M. Menzies ◽  
...  

Author(s):  
Shivam Kamthan ◽  
Bhawna Pant ◽  
Deepak Kumar ◽  
Monika Gupta ◽  
Kaynat Nasser

Background: Nowadays, HIV and AIDS has become an important public health issue across the world. Quality of life (QOL) is an important tool to assess general wellbeing of HIV patients. Coping skills are the psychological skills to face the difficult situations like HIV or AIDS. The workplace plays an important role in determining general wellbeing and the psychological problems in HIV patients. Therefore, it is very important to assess the quality of life and coping skills of HIV patients among different occupations.Methods: A cross-sectional study consisting of conveniently selected 200 HIV patients was conducted at ART center LLRM Medical College, Meerut. The study subjects were interviewed by using questionnaire consisting of WHOQOL HIV BREF (WHO quality of life questionnaire) and Brief-COPE scale questionnaires. Descriptive statistics and ANOVA test were used for analysis of the data.Results: 36% of HIV patients were housewives and 26.5 % of HIV patients were drivers. The quality of life score was higher in HIV patients who were in unemployed (14.98) and farmers (14.49) whereas was lowest in all others category (10.73). The housewives, farmers, government jobs or service, drivers and other had maximum adaptive coping in religion and minimum adaptive coping in humour. There was no uniform pattern of maladaptive coping skills of HIV patients among different occupations.Conclusions: Quality of life score was better in HIV patients who were unemployed and farmers as compared to HIV patients who were drivers, housewives, government jobs or service. Religion was most effective adaptive coping strategy and humour was least effective adaptive coping strategy in HIV patients.


2019 ◽  
Vol 17 (1) ◽  
Author(s):  
Sarah Dewilde ◽  
Lieven Annemans ◽  
Andrew Lloyd ◽  
Andre Peeters ◽  
Dimitri Hemelsoet ◽  
...  

2016 ◽  
Vol 3 (3) ◽  
Author(s):  
Kunzes ◽  
Singh. R.

Quality of life includes the physical, functional, social and emotional well being of an individual. Coping strategy is one’s flexibility in using different strategies according to the multiple situational demands is sown in empirical research to have an overall reduction in observable stress (Sideridus, 2006). The poor quality of life is associated with depression and obsessive compulsive disorder. Thus, the present study aims to see the quality of life and copying strategies in depression and obsessive compulsive disorder. It consists of 30 participants purposively selected from government hospitals across Gandhinagar and Ahmedabad. The participants were assigned in two groups’ i.e Depression (15) and OCD (15). The respondents were assessed using quality of life questionnaire, Y-BOCS severity scale, Beck depression inventory and coping strategy inventory which was administered individually. There is no significant difference between the two groups on Coping Strategies and Quality of Life. It is found that Cognitive Restructuring and Social Support are negatively correlated with Depression. There is significant negative correlation between Problem Focused Engagement, Emotion Focused Engagement, cognitive strategy, Engagement, Quality of Life with depression. Whereas it shows no significant correlation between OCD and coping strategy and OCD and Quality of Life.


2012 ◽  
Vol 02 (04) ◽  
pp. 08-11
Author(s):  
Rekha Raju ◽  
Latha S.

AbstractA descriptive study was conducted on the Quality of life and coping strategy of dialysis patients from 01.08.2011 to 01.10.2011. The purpose of this study was to describe the Quality of life and Coping strategy among dialysis patients in selected hospital. Rating scales were used to measure the Quality of life & Coping strategy of 60 dialysis patients selected by Purposive sampling technique. The findings of the study showed that majority of the dialysis patients 68.3% (41) had average quality of life. Highest percentage 81.7%(49) had satisfactory coping. 31.7%(19) of dialysis patients were in the age group of 61-70 yrs, majority of the dialysis patients were males 68.3%(41), 85% of the subjects were married, 46.7%(28) of them had completed secondary & higher secondary education, 55%(33) of them were unemployed, 60%(36) of them had an income less than 5000 Rupees/month, 83.3%(50) of the subjects were Hindus,57%(37) were undergoing dialysis for a duration of 0-12 months. The correlation coefficient value of Quality of life and Coping strategy was 0.431 (p<.05) & hence there is positive correlation between Quality of life and Coping strategy. Study findings also revealed that there is significant association between the Quality of life and religion.


2021 ◽  
Author(s):  
Hassan Okati-Aliabad ◽  
Alireza Ansari-Moghadam ◽  
Mahdi Mohammadi ◽  
Fariba Shahraki-Sanavi ◽  
Shiva Kargar

Abstract Background: This study aimed to assess the quality of life (QOL), social support and coping strategies, and illness adjustment among breast cancer patients in general and on type of breast surgery.Methods: We conducted a cross-sectional study at the Ali-Ebne-Abitaleb and Khatam-Al-Anbia hospitals in Zahedan, Iran, 2020. We recruited patients with breast cancer who underwent lumpectomy(n=44), mastectomy(n=64), and not any surgery (n=15) by census method. Data collection tools were the breast cancer-specific module (QLQ-BR 23), The adjustment to illness measurement inventory for Iranian women with breast cancer (AIMI- IBC), and the multidimensional scale of perceived social support (MSPSS) questionnaires. We performed statistical analysis by ANOVA, independent sample t-test, Kruskal-Wallis, Mann-Whitney U-test, and multiple linear regression analysis to adjust for covariates.Results: We recruited a total of 120 patients with breast cancer in this survey. 53.3% of patients underwent a mastectomy, 34.2% lumpectomy, and 12.5% of patients had not been surgery. Patients in the functioning scale reported high scores for body image (mean=78.61, SD=26.69) and future perspective (mean=55.27, SD=26.71). Patients on the symptom scale had a high score upset by hair loss (mean= 49.16, SD=38.88). Generally, patients received a high social support level, especially from family members, and used a positive coping strategy to have high illness adjustment more than a negative coping strategy. Also, patients who underwent lumpectomy had a better sexual life and body image and more illness adjustment than the other two groups of patients.Conclusion: Early detection of the disease, support for patients, and educational programs to use appropriate coping strategies can improve breast cancer women's quality of life and disease adaptation.


2017 ◽  
Vol 27 (05) ◽  
pp. 443-448 ◽  
Author(s):  
Michael Laschat ◽  
Vera Choinitzki ◽  
Nadine Zwink ◽  
Ekkehart Jenetzky ◽  
Oliver Münsterer ◽  
...  

Background The short- and long-term surgical results in patients with esophageal atresia (EA) with or without tracheoesophageal fistula (TEF) have been described in depth from a physician's perspective. Contrarily, the perception and coping strategies of affected patients and their parents have rarely been reported. The aim of this study was to generate data on this matter. Patients and Methods A total of 154 patients who had operative reconstruction for EA between 1971 and 2012 were evaluated for demographic data, surgical technique, affection of daily life, and coping strategies. Results Gastroesophageal reflux (GER) symptoms were reported in 59% of cases with 33% requiring fundoplication. Regular bougienages of anastomotic strictures were necessary in 68% with 36% requiring repeated dilatations in the first postoperative year. Enteral nutrition via a nasogastric tube was performed in 66% after surgery. In 40%, the tube was needed until their sixth week of life. In 25%, nutritional support was necessary more than 1 year out of surgery. Quality of life in general was felt to be impaired according to the patients' parents in 50%. Regarding medical advice about long-term morbidities, more than 50% of the parents felt insufficiently advised. There were no statistical differences between the EA/TEF subtypes regarding GER symptoms, frequency of esophageal dilatations, eating behaviors, or support of the parents in feeding management. Conclusion Our observations indicate that a high percentage of EA/TEF patients and families require more intensive aftercare and support during the first year following primary reconstruction than previously thought. We observed a higher need for adequate parental information on long-term complications of their children compared with current practice.


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