scholarly journals Social Media, Research, and Ethics: Does Participant Willingness Matter?

2020 ◽  
Vol 29 (01) ◽  
pp. 176-183
Author(s):  
Annie Y. S. Lau ◽  
Pascal Staccini ◽  
Keyword(s):  
Social Media ◽  
Clinical Research ◽  
Social Networking Sites ◽  
Health Informatics ◽  
Ethical Issues ◽  
Online Data ◽  
Ethical Concerns ◽  
Participant Engagement ◽  
Social Media Platforms ◽  
The Impact

Objective: To summarise the state of the art published in 2019 in consumer health informatics and education, with a special emphasis on “Ethics and Health Informatics”. Methods: We conducted a systematic search of articles published in PubMed using a predefined set of queries, which identified 368 potential articles for review. These articles were screened according to topic relevance and 15 were selected for consideration of best paper candidates, which were then presented to a panel of international experts for full paper review and scoring. The top five papers according to the external reviewers’ ranking were discussed in a consensus meeting. Finally, the paper that received the highest score from four of the five experts was selected as the best paper on social media and ethics for patients and consumers of the year 2019. Results: Despite using the terms “ethics” and “ethical” in the search query, we retrieved very few articles. The bibliometric analysis identified three major clusters centred on “social”, “health”, and “study”. Among the top five papers, one was a review where the authors identified ethical issues across four areas at the intersection of social media and health: 1) the impact of social networking sites on the doctor-patient relationship; 2) the development of e-health platforms to deliver care; 3) the use of online data and algorithms to inform health research; and 4) the broader public health consequences of widespread social media use. The other papers highlighted ethical concerns in using social media to interact with patients at different phases of a clinical research protocol, such as recruitment phase, participant engagement, data linkage, and detection and monitoring of adverse events. Conclusions: Findings suggest that most users do not think that using social media for patient monitoring in clinical research, for example using Twitter for clinical trial recruitment, constitutes inappropriate surveillance or a violation of privacy. However, further research is needed to identify whether and how views on ethical concerns differed between social media platforms and across populations.

A Systematic Review of the Use of Social Media as a Recruitment Tool on the Social Ethical and Privacy Context

2020 ◽  
pp. 226-255
Author(s):  
Ghadah Althawwad
Keyword(s):  
Systematic Review ◽  
Social Media ◽  
Ethical Issues ◽  
Daily Lives ◽  
Ethical Concerns ◽  
The Social ◽  
Use Of Social Media ◽  
Impact Of Technology ◽  
Recruitment Tool ◽  
The Impact

The influence of social media such as Facebook, LinkedIn, and Twitter plays an increasingly influential role in the daily lives of people. Despite the rise of interest in this topic, the research discussing the ethical concerns of using social media for recruitment purposes remains in exploratory stages. This chapter provides a systematic review of recent research that was published from 2012 to 2018 and focused on ethical issues related to the use of social media for recruitment purposes. The techno-ethical lens, which studies the impact of technology on ethics, was used to explore the social and ethical aspects of how recruiters use social media for recruitment purposes.

Perceived Personalization, Privacy Concern, e-WOM and Consumers' Click Through Intention in Social Advertising

2019 ◽  
Vol 11 (4) ◽  
pp. 39-55
Author(s):  
Debora Dhanya A ◽  
Uma Pricilda Jaidev
Keyword(s):  
Social Media ◽  
Social Networking Sites ◽  
Psychological Reactance ◽  
Privacy Concern ◽  
The Social ◽  
Social Media Platforms ◽  
Social Advertising ◽  
Target Consumer ◽  
Personalized Advertising ◽  
The Impact

Social advertising, ads in social media platforms, have become popular in recent years because of the evolution of internet technologies such as web analytics and big data mining. The content of the social advertisement is tailored in order to personalize the message to the target consumer groups. In an effort to reach the prospects, marketers should focus on the social leads on social networking sites (SNS) to promote and to sell their brands/products. Drawing on, online personalized advertising literature, e-WOM recommendations and increasing privacy concerns and perceived ad personalization (conceptualized as functions of psychological reactance) on SNS leads to avoid such advertisements. The goal of the study is to investigate the impact of perceived personalization, privacy concern, and e-WOM to consumers' behavioral click through intentions towards social ads. This study contributed to the theory of psychological reactance by indicating that the individuals with less privacy concern and personalized recommendations from their contacts on SNS have a smaller amount of reactance towards social advertisements than commercial advertisements by marketers. Suggestions for advertisers, social media marketing practitioners conclude the paper.

Social Media to Social Media Analytics

2019 ◽  
Vol 10 (2) ◽  
pp. 57-70 ◽  
Author(s):  
Vikas Kumar ◽  
Pooja Nanda
Keyword(s):  
Social Media ◽  
Social Media Analytics ◽  
Social Media Data ◽  
Ethical Concerns ◽  
Ethical Implications ◽  
The Social ◽  
Social Media Platforms ◽  
The Individual ◽  
The Impact ◽  
Media Data

With the amplification of social media platforms, the importance of social media analytics has exponentially increased for many brands and organizations across the world. Tracking and analyzing the social media data has been contributing as a success parameter for such organizations, however, the data is being poorly harnessed. Therefore, the ethical implications of social media analytics need to be identified and explored for both the organizations and targeted users of social media data. The present work is an exploratory study to identify the various techno-ethical concerns of social media engagement, as well as social media analytics. The impact of these concerns on the individuals, organizations, and society as a whole are discussed. Ethical engagement for the most common social media platforms has been outlined with a number of specific examples to understand the prominent techno-ethical concerns. Both the individual and organizational perspectives have been taken into account to identify the implications of social media analytics.

scholarly journals The Impact Of Social Media On Fraternal Organizations: Ethical Concerns

2019 ◽  
Vol 15 (2) ◽  
pp. 45-54
Author(s):  
Craig A. Escamilla ◽  
Katharine A. Fraccastoro ◽  
Emily Ehrlich
Keyword(s):  
Social Media ◽  
Ethical Issues ◽  
Governing Body ◽  
Ethical Concerns ◽  
Ethical Implications ◽  
Fraternal Organizations ◽  
Personal Behavior ◽  
The Impact

This case study concerns how the personal behavior of students involved in fraternal organizations is depicted in social media, and how that behavior impacts the organization and its image. The legal and ethical implications of individuals’ behaviors in social media has become a major issue for many organizations. This case follows an example of a fraternal organization and how the governing body must handle the information members post on social media. The mission of many fraternal organizations is to champion or contribute to specific causes. Members’ social media postings may reflect poorly on the organization and may not always align with the principles of the organization. This case examines how those postings impact the organization, and what it can do to mitigate the effects. The ethical issues that can affect the actions of both the governing body and the members are probed throughout the case.

scholarly journals Perceptions of Alerts Issued by Social Media Platforms in Response to Self-injury Posts Among Latinx Adolescents: Qualitative Analysis

10.2196/28931 ◽  
2021 ◽  
Vol 23 (8) ◽  
pp. e28931
Author(s):  
Linnea I Laestadius ◽  
Katherine A Craig ◽  
Celeste Campos-Castillo
Keyword(s):  
Social Media ◽  
Health Informatics ◽  
Emergency Services ◽  
Personal Information ◽  
Qualitative Interviews ◽  
Framework Analysis ◽  
Ethical Concerns ◽  
Self Injury ◽  
Social Media Platforms ◽  
Latinx Adolescents

Background There is growing interest in using social media data to detect and address nonsuicidal self-injury (NSSI) among adolescents. Adolescents often do not seek clinical help for NSSI and may adopt strategies to obscure detection; therefore, social media platforms may be able to facilitate early detection and treatment by using machine learning models to screen posts for harmful content and subsequently alert adults. However, such efforts have raised privacy and ethical concerns among health researchers. Little is currently known about how adolescents perceive these efforts. Objective The aim of this study is to examine perceptions of automated alerts for NSSI posts on social media among Latinx adolescents, who are at risk for NSSI yet are underrepresented in both NSSI and health informatics research. In addition, we considered their perspectives on preferred recipients of automated alerts. Methods We conducted semistructured, qualitative interviews with 42 Latinx adolescents between the ages of 13 and 17 years who were recruited from a nonprofit organization serving the Latinx community in Milwaukee, Wisconsin. The Latinx population in Milwaukee is largely of Mexican descent. All interviews were conducted between June and July 2019. Transcripts were analyzed using framework analysis to discern their perceptions of automated alerts sent by social media platforms and potential alert recipients. Results Participants felt that automated alerts would make adolescents safer and expedite aid before the situation escalated. However, some worried that hyperbolic statements would generate false alerts and instigate conflicts. Interviews revealed strong opinions about ideal alert recipients. Parents were most commonly endorsed, but support was conditional on perceptions that the parent would respond appropriately. Emergency services were judged as safer but inappropriate for situations considered lower risk. Alerts sent to school staff generated the strongest privacy concerns. Altogether, the preferred alert recipients varied by individual adolescents and perceived risks in the situation. None raised ethical concerns about the collection, analysis, or storage of personal information regarding their mental health status. Conclusions Overall, Latinx adolescents expressed broad support for automated alerts for NSSI on social media, which indicates opportunities to address NSSI. However, these efforts should be co-constructed with adolescents to ensure that preferences and needs are met, as well as embedded within broader approaches for addressing structural and cultural barriers to care.

scholarly journals Perceptions of Alerts Issued by Social Media Platforms in Response to Self-injury Posts Among Latinx Adolescents: Qualitative Analysis (Preprint)

2021 ◽  
Author(s):  
Linnea I Laestadius ◽  
Katherine A Craig ◽  
Celeste Campos-Castillo
Keyword(s):  
Social Media ◽  
Health Informatics ◽  
Emergency Services ◽  
Personal Information ◽  
Qualitative Interviews ◽  
Framework Analysis ◽  
Ethical Concerns ◽  
Self Injury ◽  
Social Media Platforms ◽  
Latinx Adolescents

BACKGROUND There is growing interest in using social media data to detect and address nonsuicidal self-injury (NSSI) among adolescents. Adolescents often do not seek clinical help for NSSI and may adopt strategies to obscure detection; therefore, social media platforms may be able to facilitate early detection and treatment by using machine learning models to screen posts for harmful content and subsequently alert adults. However, such efforts have raised privacy and ethical concerns among health researchers. Little is currently known about how adolescents perceive these efforts. OBJECTIVE The aim of this study is to examine perceptions of automated alerts for NSSI posts on social media among Latinx adolescents, who are at risk for NSSI yet are underrepresented in both NSSI and health informatics research. In addition, we considered their perspectives on preferred recipients of automated alerts. METHODS We conducted semistructured, qualitative interviews with 42 Latinx adolescents between the ages of 13 and 17 years who were recruited from a nonprofit organization serving the Latinx community in Milwaukee, Wisconsin. The Latinx population in Milwaukee is largely of Mexican descent. All interviews were conducted between June and July 2019. Transcripts were analyzed using framework analysis to discern their perceptions of automated alerts sent by social media platforms and potential alert recipients. RESULTS Participants felt that automated alerts would make adolescents safer and expedite aid before the situation escalated. However, some worried that hyperbolic statements would generate false alerts and instigate conflicts. Interviews revealed strong opinions about ideal alert recipients. Parents were most commonly endorsed, but support was conditional on perceptions that the parent would respond appropriately. Emergency services were judged as safer but inappropriate for situations considered lower risk. Alerts sent to school staff generated the strongest privacy concerns. Altogether, the preferred alert recipients varied by individual adolescents and perceived risks in the situation. None raised ethical concerns about the collection, analysis, or storage of personal information regarding their mental health status. CONCLUSIONS Overall, Latinx adolescents expressed broad support for automated alerts for NSSI on social media, which indicates opportunities to address NSSI. However, these efforts should be co-constructed with adolescents to ensure that preferences and needs are met, as well as embedded within broader approaches for addressing structural and cultural barriers to care. CLINICALTRIAL

The Impact of Social Media on Knowledge Culture

2021 ◽  
pp. 112-124
Author(s):  
Samantha Engel ◽  
Linda Lee-Davies
Keyword(s):  
Social Media ◽  
Cultural Change ◽  
Ethical Issues ◽  
Cultural Practice ◽  
Modern Culture ◽  
Knowledge Culture ◽  
Social Media Platforms ◽  
Filter Bubbles ◽  
Media Applications ◽  
The Impact

Culture is not static and technological innovations have greatly changed culture throughout history, no more so than in recent years. Modern culture is very much influenced and defined by recent technology and media use, primarily through social media applications such as Facebook, Instagram, LinkedIn, Snapchat and Twitter. Although use and impact vary around the world, globalization brings this cultural change into wider and faster channels. Social media has transformed the way people interact and learn in local, national and international terms as well as evolving new social practices. Echo chambers, filter bubbles, and fake news dominate the internet and people's lives, determining and even limiting the content of learning that people are exposed to on social media platforms. This, in itself, channels cultural practice into homogenized tranches creating a cyclical influence which feeds back into evolving technology. This article sets out to discuss the current cultural impact of social media, its limitation on learning and surface the ethical issues surrounding its use.

Social Media Marketing in Creating Brand Awareness and Brand Trust

2019 ◽  
Author(s):  
Iesha Khajuria ◽  
Rachna .
Keyword(s):  
Social Media ◽  
Social Networking Sites ◽  
Social Media Marketing ◽  
Brand Awareness ◽  
Brand Trust ◽  
Social Media Platforms ◽  
Use Of Social Media ◽  
The University ◽  
The Impact ◽  
Structured Questionnaire

Small as well as big businesses these days are largely making use of social media platforms to enhance their visibility and to promote their brands/products/services. By interacting more with people, the marketers can easily create brand awareness and establish brand identity, which gradually can help gain trust in the brand. Two hypotheses were formulated to examine the impact of social media marketing on brand awareness and brand trust. One of the most popular social networking sites, Facebook, and two most popular e-commerce brands Amazon and Flipkart were considered to study the effect. Data was gathered from 394 students/research scholars from the University of Jammu, using a well-structured questionnaire, employing convenience sampling. Data analysis was done using statistical tools like percentages, correlation, regression etc. Results signify that though social media platforms serve as a major tool in creating awareness and building trust, these cannot solitarily help develop and grow a business.

scholarly journals Using social media for health research: Methodological and ethical considerations for recruitment and intervention delivery

2018 ◽  
Vol 4 ◽  
pp. 205520761877175 ◽  
Author(s):  
Danielle Arigo ◽  
Sherry Pagoto ◽  
Lisa Carter-Harris ◽  
Sarah E Lillie ◽  
Camille Nebeker
Keyword(s):  
Social Media ◽  
Health Research ◽  
Ethical Issues ◽  
Intervention Development ◽  
Responsible Conduct Of Research ◽  
Research Recruitment ◽  
Intervention Delivery ◽  
Participant Engagement ◽  
Health Behavior Interventions ◽  
Social Media Platforms

As the popularity and diversity of social media platforms increases so does their utility for health research. Using social media for recruitment into clinical studies and/or delivering health behavior interventions may increase reach to a broader audience. However, evidence supporting the efficacy of these approaches is limited, and key questions remain with respect to optimal benchmarks, intervention development and methodology, participant engagement, informed consent, privacy, and data management. Little methodological guidance is available to researchers interested in using social media for health research. In this Tutorial, we summarize the content of the 2017 Society for Behavioral Medicine Pre-Conference Course entitled ‘Using Social Media for Research,’ at which the authors presented their experiences with methodological and ethical issues relating to social media-enabled research recruitment and intervention delivery. We identify common pitfalls and provide recommendations for recruitment and intervention via social media. We also discuss the ethical and responsible conduct of research using social media for each of these purposes.

scholarly journals Towards adopting AI techniques for monitoring social media activities

2021 ◽  
Vol 3 (1) ◽  
pp. 15-22
Author(s):  
Lina Muhammad Al-Ghamdi
Keyword(s):  
Artificial Intelligence ◽  
Social Media ◽  
Social Networking Sites ◽  
Scientific Paper ◽  
User Privacy ◽  
Artificial Intelligence Techniques ◽  
Media Companies ◽  
Social Media Platforms ◽  
Media Creation ◽  
The Impact

Social media provide opportunities for organizations to reach the largest amount of people by measuring the general perception of the consumer and knowing his/her feelings and some of his reactions towards brands and products. On the other hand, these organizations as well as people are keen to preserve the privacy of their data, which will only be achieved by using applications and techniques of artificial intelligence. This scientific paper aims to analyze and discuss the impact of using artificial intelligence applications with their various technologies on social media through the method of critical analysis and evaluation that was applied to previous recent studies that dealt with the impact of artificial intelligence on social media. Then, this paper conducted a critical review of these studies coming up with findings, conclusions and special recommendations on the subject. This resulted in the fact that studies agree on the great role that artificial intelligence plays in social media platforms in terms of preserving the privacy of the user and organizations and in terms of marketing and increasing the profits of organizations. Moreover, companies that do marketing through social media using artificial intelligence has benefited three times more than other companies that do not. In addition, artificial intelligence contributes to the preservation and security of privacy and data of users and digital owners in social networking sites, and contributes to increasing the profits of companies that use marketing through social media platforms based on artificial intelligence techniques, as their revenues increased by 10%, costs decreased, and productivity and logistic networks improved. This study recommended working to develop the mechanism of artificial intelligence in social media platforms, conducting more studies on the contribution of artificial intelligence in increasing the revenues earned by social media platforms, reducing the costs of social media creation and management, and finally the necessity for the commitment of social media companies to apply artificial intelligence techniques to maintain user privacy.

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