scholarly journals Perceptions of Alerts Issued by Social Media Platforms in Response to Self-injury Posts Among Latinx Adolescents: Qualitative Analysis

10.2196/28931 ◽  
2021 ◽  
Vol 23 (8) ◽  
pp. e28931
Author(s):  
Linnea I Laestadius ◽  
Katherine A Craig ◽  
Celeste Campos-Castillo
Keyword(s):  
Social Media ◽  
Health Informatics ◽  
Emergency Services ◽  
Personal Information ◽  
Qualitative Interviews ◽  
Framework Analysis ◽  
Ethical Concerns ◽  
Self Injury ◽  
Social Media Platforms ◽  
Latinx Adolescents

Background There is growing interest in using social media data to detect and address nonsuicidal self-injury (NSSI) among adolescents. Adolescents often do not seek clinical help for NSSI and may adopt strategies to obscure detection; therefore, social media platforms may be able to facilitate early detection and treatment by using machine learning models to screen posts for harmful content and subsequently alert adults. However, such efforts have raised privacy and ethical concerns among health researchers. Little is currently known about how adolescents perceive these efforts. Objective The aim of this study is to examine perceptions of automated alerts for NSSI posts on social media among Latinx adolescents, who are at risk for NSSI yet are underrepresented in both NSSI and health informatics research. In addition, we considered their perspectives on preferred recipients of automated alerts. Methods We conducted semistructured, qualitative interviews with 42 Latinx adolescents between the ages of 13 and 17 years who were recruited from a nonprofit organization serving the Latinx community in Milwaukee, Wisconsin. The Latinx population in Milwaukee is largely of Mexican descent. All interviews were conducted between June and July 2019. Transcripts were analyzed using framework analysis to discern their perceptions of automated alerts sent by social media platforms and potential alert recipients. Results Participants felt that automated alerts would make adolescents safer and expedite aid before the situation escalated. However, some worried that hyperbolic statements would generate false alerts and instigate conflicts. Interviews revealed strong opinions about ideal alert recipients. Parents were most commonly endorsed, but support was conditional on perceptions that the parent would respond appropriately. Emergency services were judged as safer but inappropriate for situations considered lower risk. Alerts sent to school staff generated the strongest privacy concerns. Altogether, the preferred alert recipients varied by individual adolescents and perceived risks in the situation. None raised ethical concerns about the collection, analysis, or storage of personal information regarding their mental health status. Conclusions Overall, Latinx adolescents expressed broad support for automated alerts for NSSI on social media, which indicates opportunities to address NSSI. However, these efforts should be co-constructed with adolescents to ensure that preferences and needs are met, as well as embedded within broader approaches for addressing structural and cultural barriers to care.

scholarly journals Perceptions of Alerts Issued by Social Media Platforms in Response to Self-injury Posts Among Latinx Adolescents: Qualitative Analysis (Preprint)

2021 ◽  
Author(s):  
Linnea I Laestadius ◽  
Katherine A Craig ◽  
Celeste Campos-Castillo
Keyword(s):  
Social Media ◽  
Health Informatics ◽  
Emergency Services ◽  
Personal Information ◽  
Qualitative Interviews ◽  
Framework Analysis ◽  
Ethical Concerns ◽  
Self Injury ◽  
Social Media Platforms ◽  
Latinx Adolescents

BACKGROUND There is growing interest in using social media data to detect and address nonsuicidal self-injury (NSSI) among adolescents. Adolescents often do not seek clinical help for NSSI and may adopt strategies to obscure detection; therefore, social media platforms may be able to facilitate early detection and treatment by using machine learning models to screen posts for harmful content and subsequently alert adults. However, such efforts have raised privacy and ethical concerns among health researchers. Little is currently known about how adolescents perceive these efforts. OBJECTIVE The aim of this study is to examine perceptions of automated alerts for NSSI posts on social media among Latinx adolescents, who are at risk for NSSI yet are underrepresented in both NSSI and health informatics research. In addition, we considered their perspectives on preferred recipients of automated alerts. METHODS We conducted semistructured, qualitative interviews with 42 Latinx adolescents between the ages of 13 and 17 years who were recruited from a nonprofit organization serving the Latinx community in Milwaukee, Wisconsin. The Latinx population in Milwaukee is largely of Mexican descent. All interviews were conducted between June and July 2019. Transcripts were analyzed using framework analysis to discern their perceptions of automated alerts sent by social media platforms and potential alert recipients. RESULTS Participants felt that automated alerts would make adolescents safer and expedite aid before the situation escalated. However, some worried that hyperbolic statements would generate false alerts and instigate conflicts. Interviews revealed strong opinions about ideal alert recipients. Parents were most commonly endorsed, but support was conditional on perceptions that the parent would respond appropriately. Emergency services were judged as safer but inappropriate for situations considered lower risk. Alerts sent to school staff generated the strongest privacy concerns. Altogether, the preferred alert recipients varied by individual adolescents and perceived risks in the situation. None raised ethical concerns about the collection, analysis, or storage of personal information regarding their mental health status. CONCLUSIONS Overall, Latinx adolescents expressed broad support for automated alerts for NSSI on social media, which indicates opportunities to address NSSI. However, these efforts should be co-constructed with adolescents to ensure that preferences and needs are met, as well as embedded within broader approaches for addressing structural and cultural barriers to care. CLINICALTRIAL

scholarly journals Social Media, Research, and Ethics: Does Participant Willingness Matter?

2020 ◽  
Vol 29 (01) ◽  
pp. 176-183
Author(s):  
Annie Y. S. Lau ◽  
Pascal Staccini ◽  
Keyword(s):  
Social Media ◽  
Clinical Research ◽  
Social Networking Sites ◽  
Health Informatics ◽  
Ethical Issues ◽  
Online Data ◽  
Ethical Concerns ◽  
Participant Engagement ◽  
Social Media Platforms ◽  
The Impact

Objective: To summarise the state of the art published in 2019 in consumer health informatics and education, with a special emphasis on “Ethics and Health Informatics”. Methods: We conducted a systematic search of articles published in PubMed using a predefined set of queries, which identified 368 potential articles for review. These articles were screened according to topic relevance and 15 were selected for consideration of best paper candidates, which were then presented to a panel of international experts for full paper review and scoring. The top five papers according to the external reviewers’ ranking were discussed in a consensus meeting. Finally, the paper that received the highest score from four of the five experts was selected as the best paper on social media and ethics for patients and consumers of the year 2019. Results: Despite using the terms “ethics” and “ethical” in the search query, we retrieved very few articles. The bibliometric analysis identified three major clusters centred on “social”, “health”, and “study”. Among the top five papers, one was a review where the authors identified ethical issues across four areas at the intersection of social media and health: 1) the impact of social networking sites on the doctor-patient relationship; 2) the development of e-health platforms to deliver care; 3) the use of online data and algorithms to inform health research; and 4) the broader public health consequences of widespread social media use. The other papers highlighted ethical concerns in using social media to interact with patients at different phases of a clinical research protocol, such as recruitment phase, participant engagement, data linkage, and detection and monitoring of adverse events. Conclusions: Findings suggest that most users do not think that using social media for patient monitoring in clinical research, for example using Twitter for clinical trial recruitment, constitutes inappropriate surveillance or a violation of privacy. However, further research is needed to identify whether and how views on ethical concerns differed between social media platforms and across populations.

scholarly journals Quantified Nostalgia: Social Media, Metrics, and Memory

2021 ◽  
Vol 7 (2) ◽  
pp. 205630512110088
Author(s):  
Benjamin N. Jacobsen ◽  
David Beer
Keyword(s):  
Social Media ◽  
Focus Group ◽  
Qualitative Interviews ◽  
The Past ◽  
Group Data ◽  
Focus Group Data ◽  
Social Media Platforms ◽  
Memory Practices ◽  
The Relationship

As social media platforms have developed over the past decade, they are no longer simply sites for interactions and networked sociality; they also now facilitate backwards glances to previous times, moments, and events. Users’ past content is turned into definable objects that can be scored, rated, and resurfaced as “memories.” There is, then, a need to understand how metrics have come to shape digital and social media memory practices, and how the relationship between memory, data, and metrics can be further understood. This article seeks to outline some of the relations between social media, metrics, and memory. It examines how metrics shape remembrance of the past within social media. Drawing on qualitative interviews as well as focus group data, the article examines the ways in which metrics are implicated in memory making and memory practices. This article explores the effect of social media “likes” on people’s memory attachments and emotional associations with the past. The article then examines how memory features incentivize users to keep remembering through accumulation. It also examines how numerating engagements leads to a sense of competition in how the digital past is approached and experienced. Finally, the article explores the tensions that arise in quantifying people’s engagements with their memories. This article proposes the notion of quantified nostalgia in order to examine how metrics are variously performative in memory making, and how regimes of ordinary measures can figure in the engagement and reconstruction of the digital past in multiple ways.

Understanding the Experiences of Anger in the Onset and Progression of Psoriasis: A Qualitative Study Using Social Media (Preprint)

2021 ◽  
Author(s):  
Olivia Hughes ◽  
Rachael Hunter
Keyword(s):  
Social Media ◽  
Qualitative Interviews ◽  
Psychosocial Interventions ◽  
Skin Condition ◽  
Future Research ◽  
Social Media Platforms ◽  
Chronic Skin ◽  
Skin Conditions ◽  
The Impact

BACKGROUND Psoriasis is a chronic inflammatory skin condition, which can be affected by stress. Living with psoriasis can trigger negative emotions, which may influence quality of life. OBJECTIVE This study explored the experiences of people with psoriasis with attention to the potential role of anger in the onset and progression of the chronic skin condition. METHODS Semi-structured qualitative interviews were conducted with twelve participants (n=5 females, n=7 males) recruited online from an advert on a patient charity’s social media platforms. Data were transcribed and analysed using thematic analysis. RESULTS Four key themes were identified: (1) ‘I get really angry with the whole situation:’ anger at the self and others, (2) the impact of anger on psoriasis: angry skin, (3) shared experiences of distress, and (4) moving past anger to affirmation. CONCLUSIONS Findings suggest that anger can have a perceived impact on psoriasis through contributing to sensory symptoms and unhelpful coping cycles and point to a need for enhanced treatment with more psychological support. The findings also highlight the continued stigma which exists for people living with skin conditions and how this may contribute to, and sustain, anger for those individuals. Future research could usefully focus on developing targeted psychosocial interventions to promote healthy emotional coping with psoriasis.

A Survey and a Case-Study Regarding Social Media Security and Privacy on Greek Future IT Professionals

2019 ◽  
Vol 10 (1) ◽  
pp. 22-37 ◽  
Author(s):  
Venetis Kanakaris ◽  
Georgios Lampropoulos ◽  
Kerstin Siakas
Keyword(s):  
Social Media ◽  
Negative Impact ◽  
Personal Information ◽  
Personal Data ◽  
Security And Privacy ◽  
It Professionals ◽  
Online Questionnaire ◽  
Social Media Platforms ◽  
Use Of Social Media

Nowadays, social media and social networks are increasingly used in business as they have drastically changed the way the community works, communicates, collaborates, socialises, creates content and shares knowledge and ideas. However, in particular, IT professionals and practitioners need to be aware of online security and privacy issues and the potential negative impact that they may cause on different aspects of business, such as online breaches or information theft. The use of social media inevitably leads to disclosure of personal information, with the use of open-source intelligence (OSINT) and other similar techniques. Hence, the aim of this article is twofold, namely first to show results of a survey towards future Greek IT practitioners regarding awareness and viewpoints of social media users concerning security and privacy on social media. More specifically the study was based on responses and viewpoints of 178 Greek electrical engineering and IT students to an online questionnaire. Secondly, the aim is also to show how easily a potential malicious user can anonymously track and retrieve sensitive personal information in an automated and undetectable way from popular social media platforms by using publicly available information, resources, and tools. The results of the survey show that most of the respondents are aware of the privacy settings of the social media platforms they use. However, they consider that they should be more careful concerning personal data and whom they add as friends or followers and they do not feel comfortable with the fact that a stranger might be able to access their personal information through their publications on social media platforms.The case study indicates that it is possible for malicious users to acquire sensitive personal data (e.g. user's location via tweets and instas from smartphones). In addition, the ability to map activity could allow malicious users to track the activities of unsuspected users and predict their future locations.

Social Media to Social Media Analytics

2019 ◽  
Vol 10 (2) ◽  
pp. 57-70 ◽  
Author(s):  
Vikas Kumar ◽  
Pooja Nanda
Keyword(s):  
Social Media ◽  
Social Media Analytics ◽  
Social Media Data ◽  
Ethical Concerns ◽  
Ethical Implications ◽  
The Social ◽  
Social Media Platforms ◽  
The Individual ◽  
The Impact ◽  
Media Data

With the amplification of social media platforms, the importance of social media analytics has exponentially increased for many brands and organizations across the world. Tracking and analyzing the social media data has been contributing as a success parameter for such organizations, however, the data is being poorly harnessed. Therefore, the ethical implications of social media analytics need to be identified and explored for both the organizations and targeted users of social media data. The present work is an exploratory study to identify the various techno-ethical concerns of social media engagement, as well as social media analytics. The impact of these concerns on the individuals, organizations, and society as a whole are discussed. Ethical engagement for the most common social media platforms has been outlined with a number of specific examples to understand the prominent techno-ethical concerns. Both the individual and organizational perspectives have been taken into account to identify the implications of social media analytics.

What’s a Threat on Social Media? How Black and Latino Chicago Young Men Define and Navigate Threats Online

2017 ◽  
Vol 51 (6) ◽  
pp. 756-772 ◽  
Author(s):  
Desmond Upton Patton ◽  
Patrick Leonard ◽  
Caitlin Elaesser ◽  
Robert D. Eschmann ◽  
Sadiq Patel ◽  
...  
Keyword(s):  
Social Media ◽  
Violence Prevention ◽  
Youth Violence ◽  
Qualitative Interviews ◽  
Young Men ◽  
Urban Neighborhoods ◽  
Urban Street ◽  
Or Groups ◽  
Social Media Platforms ◽  
Black And Latino

Youth living in violent urban neighborhoods increasingly post messages online from urban street corners. The decline of the digital divide and the proliferation of social media platforms connect youth to peer communities who may share experiences with neighborhood stress and trauma. Social media can also be used for targeted retribution when threats and insults are directed at individuals or groups. Recent research suggests that gang-involved youth may use social media to brag, post fight videos, insult, and threaten—a phenomenon termed Internet banging. In this article, we leverage “code of the digital street” to understand how and in what ways social media facilitates urban-based youth violence. We utilize qualitative interviews from 33 Black and Latino young men who frequent violence prevention programs and live in violent neighborhoods in Chicago. Emerging themes describe how and why online threats are conceptualized on social media. Implications for violence prevention and criminal investigations are discussed.

scholarly journals The Footy Girls of Tumblr: How Women Found Their Niche in the Online Football Fandom

2019 ◽  
pp. 216747951986007 ◽  
Author(s):  
Jessica Kunert
Keyword(s):  
Social Media ◽  
Qualitative Interviews ◽  
Safe Space ◽  
Social Media Platform ◽  
Sports Fandom ◽  
The Social ◽  
Social Media Platforms ◽  
Media Platform ◽  
Soccer Fans ◽  
Communication Culture

This study examines how female football (soccer) fans use the social media platform Tumblr to interact and talk about their fandom, what purposes Tumblr serves for them, and why they prefer it to other social media platforms. As women are often marginalised in offline and online sports discourse, Tumblr’s football fandom was chosen to investigate how women experience their fandom on a platform with a mostly female and young user population. The results of 14 in-depth qualitative interviews with heavily invested female Tumblr users show that the fandom’s communication culture allows fans to interact in a variety of creative ways that involve the use of a specialist vocabulary. This Tumblr fandom is overwhelmingly female, which makes the interviewees feel that they can talk freely about football. Thus, Tumblr has the potential to serve as a safe space for female fans. Yet, its highly opinionated discussions and rivalries mirror those in the traditional football fandom. This study contributes to the literature that explores how women express their sports fandom online and demonstrates how they have found a niche in which to discuss their favourite sport on their own terms.

It’s Time to Stop Telling Patients to “Stop It”: Response to Müller-Vahl et al.’s “Stop That! It’s not Tourette’s but a New Type of Mass Sociogenic Illness”

2021 ◽  
Author(s):  
Christine Conelea ◽  
Jo Bervoets ◽  
Bethan Davies ◽  
Karolin Varner ◽  
Melina Malli ◽  
...  
Keyword(s):  
Social Media ◽  
North America ◽  
Tourette Syndrome ◽  
Young Patients ◽  
Current Response ◽  
Ethical Concerns ◽  
Current State ◽  
Social Media Platforms ◽  
New Type ◽  
Person Centered Approach

Recent reports from Tourette Syndrome (TS) multiple clinical researcher groups in North America and Europe describe a recent increase in young patients presenting to TS clinics. Reported commonalities include a female preponderance, older age of first detected symptoms, complex behaviors, significant functional impairment, and similarities to behaviors recorded in popular videos on social media platforms, notably TikTok. Müller-Vahl, Pisarenko, Jakubovski, and Fremer (2021) jumped to the conclusion that this phenomenon is a “Mass Sociogenic Illness,” which we contend is not just premature but contrary to the current state of the evidence. This is a pressing matter of concern as their position is potentially harmful to patients and may hinder scientific and therapeutic progress. In the current response, we articulate scientific and ethical concerns about the Müller-Vahl et al. paper and advocate for a person-centered approach to supporting patients and studying this phenomenon.

Education on the Digital Terrain: A Case Study Exploring College Athletes’ Perceptions of Social-Media Training

2015 ◽  
Vol 8 (1) ◽  
pp. 103-124 ◽  
Author(s):  
Jimmy Sanderson ◽  
Blair Browning ◽  
Annelie Schmittel
Keyword(s):  
Social Media ◽  
Social Cognitive ◽  
College Athletes ◽  
Cognitive Theory ◽  
Media Education ◽  
Structured Interviews ◽  
Framework Analysis ◽  
Athletic Departments ◽  
Social Media Platforms

College athletes are active on a variety of social-media platforms. As a result, most athletic departments require them to participate in social-media education. Although this practice is becoming more prominent, little research has explored how college athletes perceive such training. This case study explored college athletes’ social-media use and their perceptions about social-media education. Semi structured interviews of 20 college athletes at a Division I university were conducted. Using social-cognitive theory as a framework, analysis revealed that while participants expressed a desire for social-media education, they indicated that most of the messages they receive about social media tend to be forgettable. Consequently, athletic departments need to take a more refexive approach to social-media education that incorporates college athletes’ feedback to optimize this instruction.

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