Bereaved Parents: Insights for the Antenatal Consultation

2021 ◽  
Author(s):  
Marlyse F. Haward ◽  
John M. Lorenz ◽  
Annie Janvier ◽  
Baruch Fischhoff
Keyword(s):  
Personal Narratives ◽  
Well Being ◽  
Institutional Practices ◽  
Caregiver Relationship ◽  
Bereaved Parents ◽  
Antenatal Consultation ◽  
Key Points ◽  
Extremely Preterm ◽  
Infant Loss

Objective The study aimed to explore experiences of extremely preterm infant loss in the delivery room and perspectives about antenatal consultation. Study Design Bereaved participants were interviewed, following a semi-structured protocol. Personal narratives were analyzed with a mixed-methods approach. Results In total, 13 participants, reflecting on 17 pregnancies, shared positive, healing and negative, harmful interactions with clinicians and institutions: feeling cared for or abandoned, doubted or believed, being treated rigidly or flexibly, and feeling that infant's life was valued or not. Participants stressed their need for personalized information, individualized approaches, and affective support. Their decision processes varied; some wanted different things for themselves than what they recommended for others. These interactions shaped their immediate experiences, long-term well-being, healing, and regrets. All had successful subsequent pregnancies; few returned to institutions where they felt poorly treated. Conclusion Antenatal consultations can be strengthened by personalizing them, within a strong caregiver relationship and supportive institutional practices. Key Points

Improving Feeding Outcomes in the NICU: Moving From Volume-Driven to Infant-Driven Feeding

2010 ◽  
Vol 19 (3) ◽  
pp. 68-74 ◽  
Author(s):  
Catherine S. Shaker
Keyword(s):  
Intensive Care Unit ◽  
Dynamic Systems ◽  
Neonatal Intensive Care ◽  
Well Being ◽  
Dynamic Systems Theory ◽  
Feeding Problems ◽  
Care Giving ◽  
Extremely Preterm ◽  
Extremely Preterm Infants

Current research on feeding outcomes after discharge from the neonatal intensive care unit (NICU) suggests a need to critically look at the early underpinnings of persistent feeding problems in extremely preterm infants. Concepts of dynamic systems theory and sensitive care-giving are used to describe the specialized needs of this fragile population related to the emergence of safe and successful feeding and swallowing. Focusing on the infant as a co-regulatory partner and embracing a framework of an infant-driven, versus volume-driven, feeding approach are highlighted as best supporting the preterm infant's developmental strivings and long-term well-being.

Grief as a normative phenomenon: The diffuse and ambivalent normativity of infant loss and parental grieving in contemporary Western culture

2017 ◽  
Vol 23 (4) ◽  
pp. 519-533 ◽  
Author(s):  
Ester Holte Kofod ◽  
Svend Brinkmann
Keyword(s):  
Well Being ◽  
Qualitative Interview ◽  
Cultural Norms ◽  
Personal Health ◽  
Small Child ◽  
Moral Framework ◽  
Bereaved Parents ◽  
Medical Terms ◽  
Qualitative Interview Study ◽  
Infant Loss

Grief is often conceived in causal or reactive terms, as something that simply strikes people after a loss. But, on closer scrutiny, there are good reasons to think of grief as a normative phenomenon, which is done or enacted by people, relative to cultural norms. To substantiate the claim that grief should be thought of as normative, we draw upon empirical examples from a qualitative interview study with bereaved parents following infant loss, and analyze how grieving the loss of a small child in our culture is experienced, interpreted, and enacted within a diffuse and ambivalent, yet inescapable, moral framework. Further, we discuss some of the possible consequences for bereaved individuals when navigating the normative landscape of grieving in contemporary Western cultures: A landscape in which suffering is increasingly dealt with in psychiatric and medical terms and understood as an adverse and unnecessary condition to be overcome in order to maximize personal health, happiness, and well-being.

Professional views of supporting relatives of mental health clients with severe mental illness

2017 ◽  
Vol 63 (1) ◽  
pp. 63-69 ◽  
Author(s):  
Fredrik Hjärthag ◽  
Karin Persson ◽  
Karin Ingvarsdotter ◽  
Margareta Östman
Keyword(s):  
Mental Health ◽  
Mental Illness ◽  
Severe Mental Illness ◽  
Personal Narratives ◽  
Well Being ◽  
Individual Interviews ◽  
Working Together ◽  
Group Interviews ◽  
Mental Health Clients

Background: Supporting families where one person suffers from long-term severe mental illness (SMI) is essential, but seems hard to reach. The aim of this study was to examine professionals’ views of supporting relatives of persons with SMI. Material: Individual interviews mirroring personal narratives and group interviews reflecting group-processed answers were conducted among 23 professionals and analyzed thematically. Results: Three themes emerged: (a) information and group interaction reduces stigma and increases well-being, (b) professionals need to feel secure and confident about how the support structure works and (c) collaboration is difficult but required on several levels. Conclusion: Trusting relationships with families were considered important, although seldom achieved; professionals wished to feel secure in their role toward relatives of a person with SMI; and professionals wanted to feel confident when working together with other services to support families.

The Rationale for a Well-Being Approach

2020 ◽  
pp. 13-24
Keyword(s):  
Decision Making ◽  
Resource Allocation ◽  
Environmental Sustainability ◽  
Well Being ◽  
Local Context ◽  
Structural Barriers ◽  
Truth Telling ◽  
Key Points ◽  
Social Narrative

This chapter presents the rationale for a well-being approach. A well-being approach—that is, establishing well-being as the goal and measure of what matters in order to create a future in which people, communities, and the planet can all thrive—provides a new compass for decision-making, resource allocation, social narrative, and even consciousness. The chapter highlights the benefits, positive outcomes, and potential for transformation via a well-being approach. Some of the key points include the ability of a well-being approach to: shift the focus to things that matter most to people and communities; create more urgency to address inequities and shift power; break down structural barriers and “silos” to encourage cross-sector collaboration; link human well-being and environmental sustainability; create a new expectation, demand, and accountability for a well-being agenda; and focus on the future through long-term agendas and inter-generational leadership. Meanwhile, key among the enabling conditions for well-being in the local context are truth telling about history and experiences, and ensuring that benefits are equitably shared.

Anxiety is contagious-symptoms of anxiety in the terminally ill child affect long-term psychological well-being in bereaved parents

2010 ◽  
Vol 54 (5) ◽  
pp. 751-757 ◽  
Author(s):  
Li Jalmsell ◽  
Ulrika Kreicbergs ◽  
Erik Onelöv ◽  
Gunnar Steineck ◽  
Jan-Inge Henter
Keyword(s):  
Terminally Ill ◽  
Well Being ◽  
Psychological Well Being ◽  
Bereaved Parents

scholarly journals Many Faces of Sleep: Diverse Sleep Characteristics and Their Joint Associations With Stress on Health in Adulthood

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 113-113
Author(s):  
Hye Won Chai ◽  
Soomi Lee ◽  
Nancy Sin
Keyword(s):  
Sleep Quality ◽  
Health Outcomes ◽  
Sleep Duration ◽  
Cognitive Abilities ◽  
Well Being ◽  
Key Points ◽  
Bidirectional Associations ◽  
Stress And Health ◽  
Joint Associations

Abstract Two separate bodies of literature point to the significant roles of sleep and stress and their associations with health outcomes in adulthood. To further extend the field’s knowledge on sleep, stress, and health, it is essential to consider the multi-dimensional aspects of sleep and diverse stress contexts and identify ways in which the three factors are interrelated to each other. Different sleep characteristics may have varying implications for stress processes that, in turn, shape health outcomes. Therefore, this symposium integrates diverse characteristics of sleep (duration, quality, and pileup) in conjunction with various stress processes and experiences (bereavement, stressor exposure and appraisals, rumination), and examines their associations with cognitive, emotional, and physiological health outcomes. The first paper by Vigoureux and colleagues investigates the interaction between daily sleep and stressor frequency and severity on daily rumination. The second paper by Slavish and colleagues examines the bidirectional associations between daily stress and sleep duration and efficiency. The third paper by Mu and colleagues explores the mediated associations of sleep quality and sufficiency with work impairment through perceived cognitive abilities and rumination. The fourth paper by Lee uses the stress concept of pileup and tests how pileup of insufficient sleep is associated with day-to-day trajectories of affective and physical well-being. The final paper by Chai and colleagues examines whether sleep quality moderates the association between family bereavement and heart rate variability. The discussant, Dr. Nancy Sin, will integrate key points and discuss considerations for mechanisms and long-term implications of sleep, stress, and health.

Intraindividual Variability and Stability of Affect and Well-Being

GeroPsych ◽  
2013 ◽  
Vol 26 (3) ◽  
pp. 185-199 ◽  
Author(s):  
Christina Röcke ◽  
Annette Brose
Keyword(s):  
Age Differences ◽  
Well Being ◽  
Subjective Well Being ◽  
Emotional Experiences ◽  
Short Term ◽  
Regulatory Processes ◽  
Functional Implications ◽  
Methodological Approaches ◽  
Underlying Processes

Whereas subjective well-being remains relatively stable across adulthood, emotional experiences show remarkable short-term variability, with younger and older adults differing in both amount and correlates. Repeatedly assessed affect data captures both the dynamics and stability as well as stabilization that may indicate emotion-regulatory processes. The article reviews (1) research approaches to intraindividual affect variability, (2) functional implications of affect variability, and (3) age differences in affect variability. Based on this review, we discuss how the broader literature on emotional aging can be better integrated with theories and concepts of intraindividual affect variability by using appropriate methodological approaches. Finally, we show how a better understanding of affect variability and its underlying processes could contribute to the long-term stabilization of well-being in old age.

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