Feminist Research Ethics and First Nations Women’s Life Narratives: A Conversation

2021 ◽  
pp. 1-16
Author(s):  
Kath Apma Penangke Travis ◽  
Victoria Haskins
Keyword(s):  
Research Ethics ◽  
First Nations ◽  
Feminist Research ◽  
Life Narratives

scholarly journals Bringing Ethics Review Home to Cowichan: Indigenizing Ethics Review in British Columbia, Canada

2021 ◽  
Vol 16 (2) ◽  
Author(s):  
Cowichan Tribes
Keyword(s):  
British Columbia ◽  
Research Ethics ◽  
First Nations ◽  
Indigenous Peoples ◽  
Preterm Births ◽  
High Rate ◽  
Community Members ◽  
Ethics Review ◽  
Research Ethics Review ◽  
United Nations Declaration

Cowichan Tribes’ territory, located in the Cowichan Valley on Vancouver Island, British Columbia, Canada, is experiencing an alarmingly high rate of preterm births compared to the national average of Indigenous Peoples in Canada. In response, and in partnership with the First Nations Health Authority (FNHA), Cowichan Tribes is in the first year of a 3-year study to investigate causes. Cowichan Tribes’ Elders and community members are guiding the study to ensure it follows Cowichan Tribes’ research processes and to support self- determination in research. Furthermore, as a way to enhance reconciliation, Elders and community members guided an on-site ethics review on Cowichan Tribes territory. This article outlines the collaborative, in-person research ethics review process that Cowichan Tribes, Island Health, and FNHA completed on August 21, 2019. The purpose of this article is to provide suggestions other First Nations could use when conducting a research ethics review, and to explain how this process aligns with the principles of ownership, control, access, and possession (OCAP®), the United Nations Declaration on the Rights of Indigenous Peoples, the Truth and Reconciliation Commission of Canada, and above all, the Cowichan snuw’uy’ulh (teachings from Elders).

scholarly journals Implementing the Tri-Council Policy on Ethical Research Involving Indigenous Peoples in Canada: So, How’s That Going in Mi’kma’ki?

2017 ◽  
Vol 8 (2) ◽  
Author(s):  
Carla Moore ◽  
Heather E Castleden ◽  
Susan Tirone ◽  
Debbie Martin
Keyword(s):  
Nova Scotia ◽  
Community Health ◽  
Research Ethics ◽  
First Nations ◽  
Indigenous Peoples ◽  
Financial Services ◽  
Qualitative Data ◽  
Policy Statement ◽  
Political Will ◽  
Research Ethics Board

The 2010 edition of the Tri-Council Policy Statement on Ethical Conduct for Research Involving Humans introduced a new chapter, titled "Research Involving the First Nations, Inuit and Métis Peoples of Canada." The goal of our study was to explore how this chapter is being implemented in research involving Mi’kmaw communities in Nova Scotia. Qualitative data from four groups—health researchers, research ethics board representatives, financial services administrators, and Mi’kmaw community health directors—revealed that while the chapter is useful in navigating this ethical space, there is room for improvement. The challenges they encountered were not insurmountable; with political will from the academy and with guidance from Indigenous community health and research leaders solutions to these barriers can be achieved.

scholarly journals A New Era of Indigenous Research: Community-based Indigenous Research Ethics Protocols in Canada

2021 ◽  
pp. 155626462110237
Author(s):  
Ashley Hayward ◽  
Erynne Sjoblom ◽  
Stephanie Sinclair ◽  
Jaime Cidro
Keyword(s):  
Research Ethics ◽  
First Nations ◽  
Indigenous Communities ◽  
Ethical Principles ◽  
Indigenous Research ◽  
Ethical Guidelines ◽  
Community Based ◽  
New Era ◽  
Research Findings ◽  
Research Ethics Boards

Indigenous communities across Canada have established principles to guide ethical research within their respective communities. Thorough cataloging and description of these would inform university research ethics boards, researchers, and scholars and facilitate meaningful research that respects Indigenous-defined ethical values. A scoping study was conducted of all relevant peer-reviewed literature and public-facing Indigenous research ethical guidelines from First Nations, Metis, and Inuit communities and organizations in Canada. A total of 20 different Indigenous research ethics boards, frameworks, and protocols were identified. Analysis resulted in three key themes: (1) balancing individual and collective rights; (2) upholding culturally-grounded ethical principles; and (3) ensuring community-driven/self-determined research. Findings demonstrate how employment of Indigenous ethical principles in research positively contributes to research outcomes.

Interviewing elite women professors: Methodological reflections with feminist research ethics

2020 ◽  
pp. 146879412096536
Author(s):  
Nian Ruan
Keyword(s):  
Research Ethics ◽  
Qualitative Method ◽  
Research Process ◽  
Feminist Research ◽  
Women Scholars ◽  
Multiple Challenges ◽  
Elite Interviews ◽  
Leadership Research ◽  
Women Professors ◽  
Gain Access

Interviewing senior professors in universities is a common qualitative method of conducting leadership research on higher education. Like other types of elite interviews, researching established scholars can create multiple challenges for emerging researchers because of power differences. Feminist research ethics offer principles to tackle these issues by focusing on power, boundaries and relationships in the research process. This study is based on the methodological reflections of my doctoral project: investigating intellectual leadership of 22 women full professors in Hong Kong. I argue that feminist research ethics benefit new researchers by addressing some dilemmas of elite interviews, including how to define elite participants, how to gain access, how to prepare for interviews and how to interact effectively. This empirical study sheds light on feasible practices of interviewing elite women scholars from the perspective of feminist approaches.

scholarly journals Diagnostic testing and vaccination for COVID-19 among First Nations, Metis and Inuit in Manitoba, Canada: protocol for a nations-based cohort study using linked administrative data

BMJ Open ◽  
2021 ◽  
Vol 11 (9) ◽  
pp. e052936
Author(s):  
Nathan C Nickel ◽  
Wayne Clark ◽  
Wanda Phillips-Beck ◽  
Julianne Sanguins ◽  
Jennifer Emily Enns ◽  
...  
Keyword(s):  
Public Health ◽  
Research Ethics ◽  
First Nations ◽  
Administrative Data ◽  
Diagnostic Testing ◽  
System Level ◽  
Potential Health ◽  
Individual Level ◽  
Open Access Journals ◽  
New Information

IntroductionDecades of research demonstrate that First Nations, Metis and Inuit (FN/M/I) populations have differential access to diagnostic and therapeutic healthcare. Emerging evidence shows that this continues to be the case during the SARS-CoV-2 pandemic. In an effort to rectify these differences in access to care, our team, which is co-led by FN/M/I partners, will generate and distribute evidence on COVID-19 diagnostic testing and vaccination in high-priority FN/M/I populations in Manitoba, with the goal of identifying system-level and individual-level factors that act as barriers to equitable care and thereby informing Indigenous-led public health responses.Methods and analysisOur nations-based approach focuses on FN/M/I populations with separate study arms for each group. Linked administrative health data on COVID-19 diagnostic testing and vaccinations are available on a weekly basis. We will conduct surveillance to monitor trends in testing and vaccination among each FN/M/I population and all other Manitobans, map the geographic distribution of these outcomes by health region and tribal council, and identify barriers to testing and vaccination to inform public health strategies. We will follow the course of the pandemic starting from January 2020 and report findings quarterly.Ethics and disseminationEthics approvals have been granted by the University of Manitoba Research Ethics Board and from each of our FN/M/I partners’ organisations. Our team is committed to engaging in authentic relationship-based research that follows First Nations, Metis and Inuit research ethics principles. Our FN/M/I partners will direct the dissemination of new information to leadership in their communities (health directors, community health organisations) and to decision-makers in the provincial Ministry of Health. We will also publish in open-access journals. The study will create ongoing capacity to monitor Manitoba’s pandemic response and ensure potential health inequities are minimised, with learnings applicable to other jurisdictions where detailed administrative data may not be available.

scholarly journals Early detection of Australian Aboriginal and Torres Strait Islander infants at high risk of adverse neurodevelopmental outcomes at 12 months corrected age: LEAP-CP prospective cohort study protocol

BMJ Open ◽  
2022 ◽  
Vol 12 (1) ◽  
pp. e053646
Author(s):  
Carly R Luke ◽  
Katherine Benfer ◽  
Leeann Mick-Ramsamy ◽  
Robert S Ware ◽  
Natasha Reid ◽  
...  
Keyword(s):  
At Risk ◽  
Early Detection ◽  
Research Ethics ◽  
First Nations ◽  
Torres Strait Islander ◽  
Ethics Committee ◽  
Neurodevelopmental Outcomes ◽  
Research Ethics Committee ◽  
Human Research Ethics ◽  
Torres Strait

IntroductionNeurodevelopmental disorders (NDD), including cerebral palsy (CP), autism spectrum disorder (ASD) and foetal alcohol spectrum disorder (FASD), are characterised by impaired development of the early central nervous system, impacting cognitive and/or physical function. Early detection of NDD enables infants to be fast-tracked to early intervention services, optimising outcomes. Aboriginal and Torres Strait Islander infants may experience early life factors increasing their risk of neurodevelopmental vulnerability, which persist into later childhood, further compounding the health inequities experienced by First Nations peoples in Australia. The LEAP-CP prospective cohort study will investigate the efficacy of early screening programmes, implemented in Queensland, Australia to earlier identify Aboriginal and Torres Strait Islander infants who are ‘at risk’ of adverse neurodevelopmental outcomes (NDO) or NDD. Diagnostic accuracy and feasibility of early detection tools for identifying infants ‘at risk’ of a later diagnosis of adverse NDO or NDD will be determined.Methods and analysisAboriginal and/or Torres Strait Islander infants born in Queensland, Australia (birth years 2020–2022) will be invited to participate. Infants aged <9 months corrected age (CA) will undergo screening using the (1) General Movements Assessment (GMA); (2) Hammersmith Infant Neurological Examination (HINE); (3) Rapid Neurodevelopmental Assessment (RNDA) and (4) Ages and Stages Questionnaire-Aboriginal adaptation (ASQ-TRAK). Developmental outcomes at 12 months CA will be determined for: (1) neurological (HINE); (2) motor (Peabody Developmental Motor Scales 2); (3) cognitive and communication (Bayley Scales of Infant Development III); (4) functional capabilities (Paediatric Evaluation of Disability Inventory-Computer Adaptive Test) and (5) behaviour (Infant Toddler Social and Emotional Assessment). Infants will be classified as typically developing or ‘at risk’ of an adverse NDO and/or specific NDD based on symptomology using developmental and diagnostic outcomes for (1) CP (2) ASD and (3) FASD. The effects of perinatal, social and environmental factors, caregiver mental health and clinical neuroimaging on NDOs will be investigated.Ethics and disseminationEthics approval has been granted by appropriate Queensland ethics committees; Far North Queensland Health Research Ethics Committee (HREC/2019/QCH/50533 (Sep ver 2)-1370), the Townsville HHS Human Research Ethics Committee (HREC/QTHS/56008), the University of Queensland Medical Research Ethics Committee (2020000185/HREC/2019/QCH/50533) and the Children’s Health Queensland HHS Human Research Ethics Committee (HREC/20/QCHQ/63906) with governance and support from local First Nations communities. Findings from this study will be disseminated via peer-reviewed publications and conference presentations.Trial registration numberACTRN12619000969167.

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