Exploring the public stigma of substance use disorder through community-based participatory research

2017 ◽  
Vol 26 (4) ◽  
pp. 323-329 ◽  
Author(s):  
Katherine Nieweglowski ◽  
Patrick W. Corrigan ◽  
Tri Tyas ◽  
Anastasia Tooley ◽  
Rachel Dubke ◽  
...  
Keyword(s):  
Substance Use ◽  
Participatory Research ◽  
Substance Use Disorder ◽  
Community Based Participatory Research ◽  
Public Stigma ◽  
Community Based ◽  
The Public

scholarly journals Understanding Neighborhoods’ Impact on Youth Substance Use and Mental Health Outcomes in Paterson, New Jersey: Protocol for a Community-Based Participatory Research Study

10.2196/29427 ◽  
2021 ◽  
Vol 10 (5) ◽  
pp. e29427
Author(s):  
Ijeoma Opara ◽  
Noelle R Leonard ◽  
Daneele Thorpe ◽  
Trace Kershaw
Keyword(s):  
Mental Health ◽  
Substance Use ◽  
New Jersey ◽  
Health Outcomes ◽  
Participatory Research ◽  
Quantitative Methods ◽  
Urban Community ◽  
Community Based Participatory Research ◽  
Mental Health Outcomes ◽  
Community Based

Background Substance use among youth is a major public health concern. Of note, substance use among youth is increasing in prevalence, and the incidence of substance use at earlier ages is rising. Given the long-term consequences of early substance use, it is important to identify factors that increase youth vulnerability to drug use, as they may be important targets for future interventions. Objective This study aims to use innovative methods, such as venue-based sampling, to recruit youth who are disconnected from school and use community-based participatory research to gain a better understanding of the prevalence of substance use and important correlates among youth aged between 13 and 21 years in Paterson, New Jersey, a low-income, urban community. The study will use a convergent, mixed methods design involving multiple data collection components and the analysis of a ministrative data source, designed with the strengths of complex intervention frameworks in mind. The overall aims of the study are to identify the prevalence of substance use among youth who are engaged in school and not engaged in school; to understand important antecedents and correlates of substance use; and to use this information to inform social, environmental, and culturally appropriate interventions to address substance use and its correlates among youths in a lower-resourced urban community. Methods This study will use both qualitative and quantitative methods to address important questions. Specifically, semistructured interviews using focus group and interview methodologies will be used to assess youths’ lived experiences and will account for specific details that quantitative methods may not be able to attain. In addition, quantitative methods will be used to examine direct and multilevel associations between neighborhood factors and youth substance use and mental health outcomes. Results A previous analysis from a substance use initiative in Paterson, New Jersey found that youth who use substances such as marijuana and alcohol are more likely to have higher rates of depression and anxiety. On the basis of the research questions, this study will examine the association between neighborhood characteristics, substance use, and mental health symptoms among youth in Paterson by using quantitative and qualitative methods and will use these findings to inform the adaptation of a community- and evidence-based substance use prevention intervention for these youths. Conclusions The findings of this study will provide an important contribution to understanding the role of socioecological factors in predicting substance use and mental health outcomes among youth in a lower-resourced, urban community. Furthermore, these findings will serve as evidence for the development of a culturally informed, community-based prevention program to address substance use disparities for youth, including those who are truant in Paterson, New Jersey. International Registered Report Identifier (IRRID) PRR1-10.2196/29427

scholarly journals Engaging the Public in Policy Research: Are Community Researchers the Answer?

2014 ◽  
Vol 2 (1) ◽  
pp. 32-44 ◽  
Author(s):  
Liz Richardson
Keyword(s):  
Public Policy ◽  
Citizen Science ◽  
Participatory Research ◽  
Policy Research ◽  
Community Based Participatory Research ◽  
Scientific Policy ◽  
Community Based ◽  
Fully Integrated ◽  
The Public ◽  
Public Policy Research

A case has been made for engaging the public in scientific research as co-producers of knowledge. These arguments challenge elite models of policy research and suggest the need for an ambitious expansion of more inclusive scientific public policy research. Enabling the public to be meaningfully involved in complex policy research remains a challenge. This paper explores a range of attempts to involving the public in public policy research. It uses a binary framing to typify some key debates and differences in approaches between community-based participatory research, and citizen science. Approaches to community-based participatory research in the social sciences offer a set of engagement principles which are an alternative to an elite model of policy research. Citizen science offers a focus on the use of scientific methods by lay people, but this approach is currently under-utilized in public policy research and could be expanded. How could the strengths of each be more fully integrated and harnessed? A case study of community policy research is presented, in which an attempt was made to use a more fully integrated approach in a local policy context, identifying the potential and challenges. Based on a framework of three features of democratic and scientific policy research, it argues that more public participation in public policy research would be helped by more attention to the strengths of the democratic potential emphasised by participatory community-based research, alongside the potential of scientific robustness em-phasised by citizen science. One conclusion drawn is that a professional and scientific orientation to public policy re-search can be retained without necessarily being professionally dominated. Research methods and skills are tools to which more people outside the profession could have access, if academics facilitate the process of democratization of policy research.

scholarly journals Feasibility of a Parenting Program to Prevent Substance Use among Latino Youth: A Community-Based Participatory Research Study

2013 ◽  
Vol 27 (4) ◽  
pp. 240-244 ◽  
Author(s):  
Michele L. Allen ◽  
Ghaffar A. Hurtado ◽  
Kyu Jin Yon ◽  
Kola S. Okuyemi ◽  
Cynthia S. Davey ◽  
...  
Keyword(s):  
Substance Use ◽  
Participatory Research ◽  
Research Study ◽  
Community Based Participatory Research ◽  
Latino Youth ◽  
Parenting Program ◽  
Community Based

Supporting Children and Kinship Caregivers in the Context of Substance Use Disorder: Perspectives of Key Professionals

2021 ◽  
pp. 0192513X2110380
Author(s):  
Jessica E. Tye ◽  
Sonja J. Meiers ◽  
Gayle Olsen ◽  
Mitchell J. Moore ◽  
Martha J. Aleman ◽  
...  
Keyword(s):  
Substance Use ◽  
Substance Use Disorder ◽  
Community Based Participatory Research ◽  
The United States ◽  
Future Research ◽  
Research Approach ◽  
Community Based ◽  
Kinship Caregivers ◽  
Participatory Research Approach ◽  
Care Support

One in eight children in the United States grows up in a household with parental substance use disorder (SUD). The purpose of this study was to explore the needs of children and kinship caregivers affected by SUD, as perceived by 23 professionals who interact with these families. A community-based participatory research approach with exploratory and descriptive qualitative methods was utilized. Results indicated that (a) children need relationships and connections, stability, emotional and health care support, and protection from risks associated with SUD; (b) caregivers need community resource and navigation supports, skills development, and understanding of the caregiver’s role; and (c) there is a lack of existing comprehensive resources and services to support families affected by SUD. This study adds to existing literature by identifying key professionals’ perceptions and examining various types of kin relationships. Future research and practice implications are discussed.

Understanding the factor structure of the public stigma of substance use disorder

2018 ◽  
Vol 27 (2) ◽  
pp. 156-161 ◽  
Author(s):  
Katherine Nieweglowski ◽  
Rachel Dubke ◽  
Nadine Mulfinger ◽  
Lindsay Sheehan ◽  
Patrick W. Corrigan
Keyword(s):  
Substance Use ◽  
Factor Structure ◽  
Substance Use Disorder ◽  
Public Stigma ◽  
The Public

scholarly journals Community-based participatory research in population-based health surveys - a case example from East Friesland (Germany)

2020 ◽  
Vol 30 (Supplement_5) ◽  
Author(s):  
F S Sisenop ◽  
M N Natan ◽  
J L Lindert
Keyword(s):  
Public Health ◽  
Participatory Research ◽  
General Public ◽  
Community Based Participatory Research ◽  
Well Being ◽  
Population Based ◽  
Health Science ◽  
Basic Knowledge ◽  
Community Based ◽  
The Public

Abstract Background The ongoing community-based participatory research (CBPR) project is based on a representative cross-sectional study on health and well-being in a rural region of Germany (n = 655). Methods We use a wide array of participatory methods to involve the general public, politicians and experts such as conferences open to the public including the use of the Mentimeter app, e-participation via an online-forum, working groups on topics identified by the public, a Delphi survey elicit expert opinions and focus groups to get deeper knowledge on key aspects. Results The results confirm the interest the public has in understanding better scientific research in the field of public health. The diversity of people (most notably age, social background) is a challenge in reaching out to people. Presenting statistical data to non-experts requires the researchers to re-think ways of presenting data, therefore basic knowledge on data research has to be taught. Usage of the tools such as the Mentimeter app offers a low-threshold for empowering people to take part in participatory conferences. Conclusions Sustainability is of utmost importance for participatory research. The population not only has the need but deserves timely information on results. Key challenges are communication, building trust and implementing sustainable CBPR projects. CBPR helps in building mutual trust, knowledge and science - public co-operations. Conferences open to the public that are tailored to the public`s needs and competences show the great interest people have in scientific knowledge generated through population-based surveys. By participatory research, Public Health Science can contribute to society, empower the general public. Key messages There is an existing interest in CBPR by the general public. It can be assumed that promoting CBPR in a sustainable manner will increase that interest. The diversity of participants is a challenge as well as communicating scientific data to non-experts.

scholarly journals Understanding Neighborhoods’ Impact on Youth Substance Use and Mental Health Outcomes in Paterson, New Jersey: Protocol for a Community-Based Participatory Research Study (Preprint)

2021 ◽  
Author(s):  
Ijeoma Opara ◽  
Noelle R Leonard ◽  
Daneele Thorpe ◽  
Trace Kershaw
Keyword(s):  
Mental Health ◽  
Substance Use ◽  
New Jersey ◽  
Health Outcomes ◽  
Participatory Research ◽  
Quantitative Methods ◽  
Urban Community ◽  
Community Based Participatory Research ◽  
Mental Health Outcomes ◽  
Community Based

BACKGROUND Substance use among youth is a major public health concern. Of note, substance use among youth is increasing in prevalence, and the incidence of substance use at earlier ages is rising. Given the long-term consequences of early substance use, it is important to identify factors that increase youth vulnerability to drug use, as they may be important targets for future interventions. OBJECTIVE This study aims to use innovative methods, such as venue-based sampling, to recruit youth who are disconnected from school and use community-based participatory research to gain a better understanding of the prevalence of substance use and important correlates among youth aged between 13 and 21 years in Paterson, New Jersey, a low-income, urban community. The study will use a convergent, mixed methods design involving multiple data collection components and the analysis of a ministrative data source, designed with the strengths of complex intervention frameworks in mind. The overall aims of the study are to identify the prevalence of substance use among youth who are engaged in school and not engaged in school; to understand important antecedents and correlates of substance use; and to use this information to inform social, environmental, and culturally appropriate interventions to address substance use and its correlates among youths in a lower-resourced urban community. METHODS This study will use both qualitative and quantitative methods to address important questions. Specifically, semistructured interviews using focus group and interview methodologies will be used to assess youths’ lived experiences and will account for specific details that quantitative methods may not be able to attain. In addition, quantitative methods will be used to examine direct and multilevel associations between neighborhood factors and youth substance use and mental health outcomes. RESULTS A previous analysis from a substance use initiative in Paterson, New Jersey found that youth who use substances such as marijuana and alcohol are more likely to have higher rates of depression and anxiety. On the basis of the research questions, this study will examine the association between neighborhood characteristics, substance use, and mental health symptoms among youth in Paterson by using quantitative and qualitative methods and will use these findings to inform the adaptation of a community- and evidence-based substance use prevention intervention for these youths. CONCLUSIONS The findings of this study will provide an important contribution to understanding the role of socioecological factors in predicting substance use and mental health outcomes among youth in a lower-resourced, urban community. Furthermore, these findings will serve as evidence for the development of a culturally informed, community-based prevention program to address substance use disparities for youth, including those who are truant in Paterson, New Jersey. INTERNATIONAL REGISTERED REPORT PRR1-10.2196/29427

Stakeholder Perspectives on the Stigma of Suicide Attempt Survivors

Crisis ◽  
2017 ◽  
Vol 38 (2) ◽  
pp. 73-81 ◽  
Author(s):  
Lindsay L. Sheehan ◽  
Patrick W. Corrigan ◽  
Maya A. Al-Khouja ◽  
Keyword(s):  
Suicide Attempt ◽  
Health Professionals ◽  
Attempted Suicide ◽  
Community Based Participatory Research ◽  
Public Stigma ◽  
Suicide Method ◽  
Community Based ◽  
Stakeholder Perspectives ◽  
Personal Experiences ◽  
Prejudice And Discrimination

Abstract. Background: Past scholarly efforts to describe and measure the stigma surrounding suicide have largely viewed suicide stigma from the perspective of the general public. Aims: In the spirit of community-based participatory research (CBPR), the current study brought together a diverse stakeholder team to qualitatively investigate the suicide stigma as experienced by those most intimately affected by suicide. Method: Seven focus groups (n = 62) were conducted with suicide attempt survivors, family members of those who died by suicide, and suicide loss therapists. Results: Themes were derived for stereotypes (n = 30), prejudice (n = 3), and discrimination (n = 4). People who attempted suicide were seen as attention-seeking, selfish, incompetent, emotionally weak, and immoral. Participants described personal experiences of prejudice and discrimination, including those with health professionals. Conclusion: Participants experienced public stigma, self-stigma, and label avoidance. Analyses reveal that the stigma of suicide shares similarities with stereotypes of mental illness, but also includes some important differences. Attempt survivors may be subject to double stigma, which impedes recovery and access to care.

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