scholarly journals Exploring the Relationship of Patient and Informal Caregiver Characteristics with Heart Failure Self-Care Using the Actor-Partner Interdependence Model: Implications for Outpatient Palliative Care

2015 ◽  
Vol 18 (12) ◽  
pp. 1026-1032 ◽  
Author(s):  
Harleah G. Buck ◽  
Jacqueline Mogle ◽  
Barbara Riegel ◽  
Susan McMillan ◽  
Marie Bakitas
Keyword(s):  
Heart Failure ◽  
Palliative Care ◽  
Informal Caregiver ◽  
Self Care ◽  
Actor Partner Interdependence Model ◽  
Relationship Of ◽  
The Relationship

scholarly journals The types of comorbidities are associated with self-care of heart failure, but not the number of comorbidities

2021 ◽  
Vol 20 (Supplement_1) ◽  
Author(s):  
KS Lee ◽  
DK Moser ◽  
K Dracup
Keyword(s):  
Heart Failure ◽  
Self Care ◽  
Comorbid Conditions ◽  
Funding Sources ◽  
Patients With Heart Failure ◽  
Comorbidity Index ◽  
Relationship Of ◽  
The Relationship ◽  
Rural Patients ◽  
Care Behavior

Abstract Funding Acknowledgements Type of funding sources: Other. Main funding source(s): RO1HL083176 Improving Self-Care Behavior and Outcomes in Rural Patients with Heart Failure Background/Introduction: Patients with heart failure (HF) experience cardiac and non-cardiac related comorbid conditions. Such comorbidities create challenges to successful engagement in self-care of HF because patients are asked to simultaneously perform a variety of recommended self-care activities for HF and their comorbid conditions. It is possible that patients with a greater number of comorbid conditions experience more difficulty performing activities of HF self-care compared to those with a smaller number of comorbid conditions. However, it is also possible that types of comorbid conditions are more important factors influencing self-care of HF. Purpose To explore whether self-care of HF is associated with the number of comorbid conditions or types of comorbid conditions. Methods A total of 589 patients with HF (66 years, 41% female, 65% NYHA III/IV) were included in this study. The number of comorbid conditions was measured using the list of the conditions in the Charlson Comorbidity Index. Types of comorbidities were defined as follows: concordant conditions, sharing overall pathophysiologic risk profiles with HF, and discordant conditions, not being directly related to HF. Patients were categorized into 4 groups: HF patients without comorbidities; those with concordant conditions; those with discordant conditions; and those with both concordant and discordant conditions. Self-care was measured with the European HF self-care behavior scale. A multivariate linear regression was performed to explore the relationship of HF self-care with the number and types of comorbid conditions after adjusting for relevant covariates. Results The number of comorbid conditions was not associated with self-care of HF. However, the types of comorbid conditions were related to self-care of HF after controlling for covariates. Compared to HF patients without comorbidities, patients with both concordant and discordant conditions were more likely to have poorer self-care (β=0.155, 95% CI 0.29-4.09). However, levels of self-care in patients having either concordant or discordant conditions were not different from levels in patients having no comorbid conditions. Conclusion: Patients’ adherence to HF self-care was associated with the types of comorbidities, but not the simple count of comorbidities. Patients who had both concordant and discordant conditions were more likely to perform poor self-care of HF compared to those who had either concordant or discordant conditions or no comorbid conditions. It appears that HF patients with both concordant and discordant conditions experience difficulty integrating HF self-care in relation to a variety of conditions.

scholarly journals SYMPERHEART: an intervention to support symptom perception in persons with heart failure and their informal caregiver: a feasibility quasi-experimental study protocol

BMJ Open ◽  
2021 ◽  
Vol 11 (7) ◽  
pp. e052208
Author(s):  
Gabrielle Cécile Santos ◽  
Maria Liljeroos ◽  
Roger Hullin ◽  
Kris Denhaerynck ◽  
Justine Wicht ◽  
...  
Keyword(s):  
Heart Failure ◽  
Clinical Outcomes ◽  
Informal Caregiver ◽  
Informal Caregivers ◽  
Self Care ◽  
Symptom Perception ◽  
Convenience Sample ◽  
Failure Index ◽  
Patient Reported ◽  
Quasi Experimental

IntroductionSymptom perception in heart failure (HF) has been identified as crucial for effective self-care, and is related to patient and health system outcomes. There is uncertainty regarding the feasibility and acceptability of symptom perception support and doubts regarding how to include informal caregivers. This study aims to test the feasibility, acceptability and outcome responsiveness of an intervention supporting symptom perception in persons with HF and their informal caregiver.Methods and analysisA feasibility study with a quasi-experimental pretest and post-test single group design is conducted. The convenience sample consists of 30 persons with HF, their informal caregivers and six nurses. SYMPERHEART is an evidence-informed intervention that targets symptom perception by educational and support components. Feasibility is measured by time-to-recruit; time-to-deliver; eligibility rate; intervention delivery fidelity rate. Acceptability is measured by rate of consent, retention rate, treatment acceptability and the engagement in the intervention components. Outcome responsiveness includes: HF self-care (via the Self-care of Heart Failure Index V.7.2); perception of HF symptom burden (via the Heart Failure Somatic Perception Scale V.3); health status (via the Kansas City Cardiomyopathy Questionnaire-12); caregivers’ contribution to HF self-care (via the Caregiver Contribution to Self-Care of Heart Failure Index 2); caregivers’ burden (via the Zarit Burden Interview). Clinical outcomes include HF events, hospitalisation reason and length of hospital stay. Descriptive statistics will be used to report feasibility, acceptability, patient-reported outcomes (PRO) and clinical outcomes. PRO and caregiver-reported outcome responsiveness will be reported with mean absolute change and effect sizes.Ethics and disseminationThe study is conducted according to the Declaration of Helsinki. The Human Research Ethics Committee of the Canton of Vaud, Switzerland, has approved the study. Written informed consent from persons with HF and informal caregivers are obtained. Results will be published via peer reviewed and professional journals, and further disseminated via congresses.Trial registration numberISRCTN18151041.

Relationship between self-care and comprehensive understanding of heart failure and its signs and symptoms

2017 ◽  
Vol 17 (6) ◽  
pp. 496-504 ◽  
Author(s):  
Kyoung Suk Lee ◽  
Debra K Moser ◽  
Kathleen Dracup
Keyword(s):  
Heart Failure ◽  
Confidence Interval ◽  
Self Care ◽  
Signs And Symptoms ◽  
Comprehensive Understanding ◽  
Behavior Scale ◽  
Heart Failure Exacerbation ◽  
The Relationship ◽  
Different Levels ◽  
Care Behavior

Background: Although incomplete understanding of heart failure and its signs and symptoms appears to be a barrier to successful self-care, there are few studies examining the relationship between self-care and levels of comprehensive understanding of heart failure and its signs and symptoms. Aim: To determine whether incomplete understanding of heart failure and its signs and symptoms is associated with self-care in heart failure patients who were recently discharged from the hospital due to heart failure exacerbation. Methods: Patients completed the nine-item European Heart Failure Self-care Behavior scale and questionnaire to assess knowledge of heart failure and its signs and symptoms. Three groups were formed by their different levels of understanding of heart failure and its signs and symptoms. Multivariable linear regression was used to determine whether these three levels of understanding groups predicted self-care after controlling for demographic and clinical variables. Results: Of 571 patients 22.1%, 40.1% and 37.8% had poor, moderate, and complete understanding, respectively. Compared with patients in the poor understanding group, patients in complete and moderate understanding groups were more likely to have better adherence to self-care activities (standardized β = −0.14, 95% confidence interval −3.41, −0.47; standardized β = −0.19, 95% confidence interval −4.26, −1.23, respectively). Conclusions: Fewer than half of the patients had a comprehensive understanding of heart failure and its signs and symptoms, which was associated with poor self-care. Our study suggests that patient education should include contents to promote comprehensive understanding of heart failure and its symptoms, as well as the importance of self-care behaviors.

The relationship between health literacy and self-care in patients with heart failure

2021 ◽  
pp. 1-10
Author(s):  
Katie Nesbitt ◽  
Huiyun Du ◽  
Paul Nolan ◽  
Susie Cartledge ◽  
Parichat Wonggom ◽  
...  
Keyword(s):  
Heart Failure ◽  
Health Literacy ◽  
Patient Group ◽  
Care Management ◽  
Self Care ◽  
Randomised Control Trial ◽  
Adequate Health Literacy ◽  
Patients With Heart Failure ◽  
Literacy Knowledge ◽  
The Relationship

Background/Aims Research has shown that health literacy can influence an individual's ability to practise self-care, particularly for patients with heart failure. This study aimed to assess health literacy and its relationship with heart failure knowledge and self-care practices in this patient group. Methods An observational sub-study was conducted with the data from a large randomised control trial that evaluated the relationship between patients' health literacy, general literacy, knowledge of heart failure and self-care. Results A total of 36 participants were recruited, of which 33 (89.9%) had adequate levels of health literacy. Health literacy was positively associated with heart failure knowledge. However, 67.7% of participants with adequate health literacy were found to have inadequate levels of self-care management. Conclusions Health literacy may facilitate better heart failure knowledge, but it does not necessarily lead to improved self-care management in patients with heart failure. This suggest that clinicians need to put more emphasis on translating knowledge into behavioural changes for self-care in this patient group.

The Influence of Mutuality on Self-Care in Heart Failure Patients and Caregivers: A Dyadic Analysis

2018 ◽  
Vol 24 (4) ◽  
pp. 563-584 ◽  
Author(s):  
Ercole Vellone ◽  
Misook L. Chung ◽  
Rosaria Alvaro ◽  
Marco Paturzo ◽  
Federica Dellafiore
Keyword(s):  
Heart Failure ◽  
Care Management ◽  
Self Care ◽  
Dyadic Analysis ◽  
Heart Failure Patients ◽  
Actor Partner Interdependence Model ◽  
Partner Effect

Mutuality in patient–caregiver dyad may improve heart failure (HF) patient self-care and caregiver contribution to self-care, but literature is scarce. We evaluated the influence of mutuality and its dimensions on patient–caregiver dyad self-care. A sample of 366 HF patient–caregiver dyads was enrolled. The Actor–Partner Interdependence Model was used to identify the influence of individual patient and caregiver mutuality on their own self-care (actor effect) and on partner self-care (partner effect). The total mutuality score had an actor effect on patient self-care maintenance (i.e., behaviors aimed at maintaining HF stability) and on patient and caregiver self-care confidence. Total score of patient mutuality also had a partner effect on caregiver self-care management (i.e., responses to symptoms of HF exacerbation). Specific mutuality dimensions had different actor and partner effects on patient and caregiver self-care. Interventions to improve mutuality in HF patient–caregiver dyads may influence patient self-care and caregiver contribution to self-care.

scholarly journals Race Moderates the Relationship Between Perceived Social Support and Self-care Confidence in Patients With Heart Failure

2021 ◽  
Vol Publish Ahead of Print ◽  
Author(s):  
Lakeshia Cousin ◽  
Andrew Bugajski ◽  
Harleah Buck ◽  
Terry Lennie ◽  
Misook Lee Chung ◽  
...  
Keyword(s):  
Heart Failure ◽  
Social Support ◽  
Perceived Social Support ◽  
Self Care ◽  
Patients With Heart Failure ◽  
The Relationship

The Most and the Least Performed Self-Care Behaviors Among Patients With Heart Failure in Jordan

2018 ◽  
Vol 29 (2) ◽  
pp. 108-116 ◽  
Author(s):  
Loai Issa Tawalbeh ◽  
Ahmed Mohammad Al-Smadi ◽  
Mohammed AlBashtawy ◽  
Maen AlJezawi ◽  
Mohamad Jarrah ◽  
...  
Keyword(s):  
Heart Failure ◽  
Low Income ◽  
Self Care ◽  
Cross Sectional ◽  
Convenience Sample ◽  
Traditional Treatment ◽  
Patients With Heart Failure ◽  
Low Salt ◽  
Cross Sectional Design ◽  
The Relationship

Assessing self-care is important aspects among patients with heart failure. However, few studies were conducted to assess self-care among patients with heart failure in Jordan. Therefore, this study aimed to assess the most and the least performed maintenance self-care behaviors and to examine the relationship between maintenance self-care behaviors and selected sociodemographics. A cross-sectional design utilizing a convenience sample of 226 patients with heart failure was used. The maintenance self-care mean was 53.89 and considered below the clinical target level (≥70). Asking for low salt item and performing physical exercises were the most performed self-care behaviors, while “trying to avoid getting sick” and “checking ankles for swelling” were the least performed self-care behaviors. Limited self-care behaviors indicated the need to implement cardiac education that may improve self-care behaviors. Cardiac education should target mainly patients with low income, low educational level, elderly, living alone, unemployed, and who are using traditional treatment.

From John Stuart Mill to the Medical Humanities

2019 ◽  
pp. 65-95
Author(s):  
Brittany Pladek
Keyword(s):  
Palliative Care ◽  
Samuel Taylor Coleridge ◽  
John Stuart Mill ◽  
German Romanticism ◽  
New Criticism ◽  
Cultural Education ◽  
Health Humanities ◽  
Whole Person ◽  
Relationship Of ◽  
The Relationship

This chapter traces therapeutic holism from German Romanticism through Victorian proponents of cultural education, represented by John Stuart Mill, down to its contemporary manifestation in the work of major literary health humanists like Rita Charon, Cheryl Mattingly, and Kathryn Montgomery Hunter. It also explains the relationship of therapeutic holism to its sibling discourses, New Criticism and Millian liberalism. The former’s holistic, unified work of art parallels the latter’s proper citizen—a whole person whose wholeness is created and restored by cultural education. These linked discourses helped secure therapeutic holism’s place in interdisciplinary conversations about why medicine needs literature. The final section of the chapter critiques therapeutic holism and explains why palliative poetics offer a necessary corrective, using the work of Samuel Taylor Coleridge to illustrate the heterogeneity of Romantic literary therapies. It also surveys complementary recent work within the health humanities. Health humanists working in fields like nursing, chronic pain, and palliative care have begun to develop palliative poetics that do not expect literature to cure.

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