scholarly journals 32.K. Skills building seminar: Using participatory health research to optimise psycho-oncological patient information material

2020 ◽  
Vol 30 (Supplement_5) ◽  
Author(s):  
◽  
Keyword(s):  
Patient Information ◽  
Health Research ◽  
Service Providers ◽  
Complex Interventions ◽  
User Participation ◽  
End Users ◽  
Vulnerable Groups ◽  
Participatory Health Research ◽  
Practical Instrument

Abstract Patient information material (PIM) is omnipresent in healthcare. It is used to convey information or to familiarize potential end-users to offers of support. PIM recaps or elaborates on relevant information and offers recommendation for action. However, the quality of available PIM varies. When the formal and content-related quality of PIM is suboptimal, it not only fails to be effective but can also lead to uncertainty, misunderstandings, resistance or ignorance (e.g. of a support offer). Highly complex information requires much attention on the quality of the PIM, especially with respect to end-users (e.g. vulnerable groups). Excellent communication through the use of PIM is thus essential within complex interventions. Checklists, such as 'Discern' or 'PEMAT', as well as criteria catalogues or evidence-based patient information standards, may assist in the development, quality assessment and optimization of PIM. The inclusion of the end-users is recommended but for various reasons does not often take place. The innovative “integrated, cross-sectional Psycho-Oncology” (isPO) programme, offers needs-driven, professional support to all adult, newly diagnosed cancer patients early in their sickness trajectory. IsPO was developed in 2018. It was implemented and a formative evaluated in 2019. When developing this programme, different PIM were created top-down by the programme designers. During implementation, it became evident that these PIM materials required further improvement. A testing and optimization process started using the participatory health research (PHR) approach and was completed in a five-month period. A PIM-optimisation team was founded, which included the project partners involved in the network support, self-help organisations and the external evaluation institute. A practical instrument (PIM-checklist) for optimising the isPO-PIM was designed, piloted and used for testing by end-users, isPO service providers, and experts. Based on the recommendations in the checklist, the material was revised accordingly. Additionally, the PIM was completed with the design of two new components. Four optimisation rounds were conducted. The optimized PIM was tested on its comprehensibility (for end-users) and its usability (for service providers). During the presentations, the audience is invited to comment on critical questions that may appear during optimization (e.g. timing). Afterwards, there will be a skill building part with a focus on collaborative learning (45 minutes). First, we will focus on the requirements for a practical instrument that is handy for end-users, service providers and experts (mind mapping exercise). Finally, participants will be able to explore the following topics “World Café” discussion: (1) how to plan, conduct and communicate the development of optimization of PIM in a CI program, (2) what needs to be considered for the optimization (e.g. team composition, resources), and (3) how to continuously achieve end-userś participation. Key messages Excellent PIM are essential for a complex interventiońs success in practice and must include information and foster actionability. the iterative PIM design processes benefits from high user participation.

scholarly journals Optimizing the patient information material for cancer patients using the participatory health research approach

2020 ◽  
Vol 30 (Supplement_5) ◽  
Author(s):  
S Salm
Keyword(s):  
Cancer Patients ◽  
Service Providers ◽  
Uniform Design ◽  
Group Discussion ◽  
End Users ◽  
Rating System ◽  
Research Approach ◽  
Traffic Light ◽  
Participatory Health Research ◽  
External Evaluators

Abstract By applying the PHR, a literature-based assessment catalogue was designed and piloted (PIM-check list) with the PIM optimization team (experts, network supporters and experienced end-users). It contains altogether 31 criteria that are clustered into: (1) correctness & validity, (2) 'content-related readability', (3) 'structural readability' and (4) 'graphic-/formatting-related readability'. The PIM is assessable through a traffic light rating system. This simple rating system enables not only experts, but also the end-users (cancer patients) to easily evaluate the PIM without initial and complex training. Moreover, for each criterion, an open text field is provided to write in suggestions for improvement. The available isPO PIM were assessed with this instrument by three groups: (1) experts (network supporters & external evaluators), (2) self-help representatives, and (3) isPO programme service providers. Several feedback loops encouraged all participants to provide critical feedback. In addition to the improvement suggestions from the completed PIM-check lists, a hierarchical overview of the PIM was developed by the PIM-optimization team. It highlights the moment of being in contact with the PIM, the specification of the target group and the depth of information in the specific PIM. These aspects were also considered when creating two new PIM (poster & one-pager document concerning the study consent form). In addition, a uniform design for the 'door-opener' PIM (poster & flyer) was aimed to be a “recognition factor”. Both the optimized and newly designed PIM were presented to and assessed by experienced cancer patients that do not participate in isPO. Suggestions for further improvements were integrated by the PIM-team. The PIM were presented to the isPO service providers for further optimization proposals. A final test for its comprehensibility was conducted using experienced patients in a focus group discussion, and the new PIM were implemented in the field.

scholarly journals THE DEVELOPMENT OF AN INTERVENTION TO IMPROVE SHARED DECISION MAKING IN GERIATRIC OUTPATIENTS

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S297-S297
Author(s):  
Ruth E Pel-Littel ◽  
Julia van Weert ◽  
Mirella Minkman ◽  
Wilma Scholte op Reimer ◽  
Marjolein van de Pol ◽  
...  
Keyword(s):  
Older Adults ◽  
Decision Making ◽  
Shared Decision Making ◽  
Informal Caregivers ◽  
Complex Interventions ◽  
End Users ◽  
Multiple Chronic Conditions ◽  
Shared Decision ◽  
Share Information

Abstract Shared decision making (SDM) contributes to personalised decisions that fit the personal preferences of patients. However, older adults frequently face multiple chronic conditions (MCC). Therefore, implementing SDM requires special features. The aim of this paper is to describe the development of an intervention to improve SDM in older adults with MCC. Following the Medical Research Council framework for developing complex interventions, the SDMMCC intervention was developed step-wise. Based on a literature review and empirical research we developed in a co-creation process with the end-users a training for geriatricians and a preparatory tool for older patients with MCC and informal caregivers. After assessing feasibility the intervention was implemented at two outpatient geriatric clinics in a pilot study (N=108). Key elements of the training for geriatricians include: developing skills how to involve older adults with MCC and informal caregivers in SDM and learning how to explore personal goals related to quality of life. Key elements of the preparatory tool for patients include: an explicit invitation to participate in SDM, nomination that the patient’s own knowledge is valuable, invitation to form a partnership with the geriatrician, encouragement to share information about daily and social functioning and exploration of possible goals. Furthermore, invitation of informal caregivers to share their concerns. Through a process of co-creation both a training for geriatricians and a preparatory tool for older adults and their informal caregivers were developed, tailored to the needs of the end-users and based on the ‘Dynamic model of SDM with frail older adults’.

scholarly journals Modeling the Level of User Frustration for the Impaired Telemeeting Service Using User Frustration Susceptibility Index (UFSI)

Electronics ◽  
2021 ◽  
Vol 10 (18) ◽  
pp. 2202
Author(s):  
Štefica Mrvelj ◽  
Marko Matulin
Keyword(s):  
User Study ◽  
Service Providers ◽  
End Users ◽  
User Perception ◽  
Customer Churn ◽  
Susceptibility Index ◽  
Video And Audio ◽  
User Frustration ◽  
The Impact

Modern users are accustomed to always-accessible networks ready to serve all of their communication, entertainment, information, and other needs, at the touch of their devices. Spoiled with choices provided on the competitive markets, the risk of customer churn makes network and service providers sensitive to user Quality of Experience (QoE). Services that enable people to work and industries to function in these pandemic times, such as the telemeeting service, are becoming ever more critical, not just for the end-users but also for the providers. Nevertheless, the heterogeneity of end-users network environments and the uniqueness of the service (bidirectional video and audio transmissions and interactivity between the meeting peers) imposes specific QoE requirements. Hence, this paper focuses on understanding how different service quality degradations affect user perception and frustration with such impaired service. The impact of eight quality degradations was analyzed. Based on the conducted user study, we used the multiple regression analysis and developed three models capable of predicting user Level of Frustration (LoF) for the specific degradations that we have analyzed. The models work with the User Frustration Susceptibility Index (UFSI), which categorizes users into groups based on their tendency to become frustrated with the impaired service.

A GAP ANALYSIS IN SERVICE QUALITY OF THAI LOGISTICS SERVICE PROVIDERS

2013 ◽  
Author(s):  
Chatwadee Tansakul ◽  
◽  
Jirachai Buddhakulsomsiri ◽  
Thananya Wasusri ◽  
Papusson Chaiwat ◽  
...  
Keyword(s):  
Service Quality ◽  
Gap Analysis ◽  
Service Providers ◽  
Logistics Service ◽  
Logistics Service Providers

The role of clinical pharmacist in enhancing the health-related quality of life in patients with pulmonary tuberculosis

2020 ◽  
Vol 10 (4) ◽  
Author(s):  
Eldhose Varghese ◽  
Irrin Poulose ◽  
Chaitanya Sagar G ◽  
Jennifer Ann Jose ◽  
Mintu Mathew Ms
Keyword(s):  
Quality Of Life ◽  
Pulmonary Tuberculosis ◽  
Patient Information ◽  
Patient Information Leaflet ◽  
Information Leaflet ◽  
Patient Counselling ◽  
Sf 36 ◽  
Related Quality ◽  
Health Related

Tuberculosis (TB) is potentially airborne severe infectious disease which requires long term treatment. It considerably affects the physical and mental health quality of the patient’s life. Appropriate patient counselling with the help of Patient Information Leaflet will help to improve the patient’s quality of life and overall treatment outcome. To enhance the health related quality of life in pulmonary tuberculosis patients by providing patient counselling with the aid of patient information leaflet. An interventional study was carried out for six months in 80 patients diagnosed with pulmonary tuberculosis from the OP & IP of Tuberculosis and Chest Department of a medical college hospital. The HRQoL was assessed using the SF-36 questionnaire. Appropriate patient counselling was provided with the help of Patient Information Leaflet. In our study, a total of 80 patients were enrolled, out of which 49[61%] were Out-patients, and 31[39%] were In-patients. All the 8 sub domains of the SF-36 survey show statistical significance with improvement in 2nd Visit (after counselling) when compared with the baseline visit. The demographic variables like smoking, low socioeconomic status, allergies, family history show statistically significant association with overall HRQoL. The HRQOL of the pulmonary tuberculosis patients were initially low before the start of Anti-TB therapy, after providing proper patient counselling using patient information leaflet the HRQoL scores were found to be increased on the subsequent re-visits, which implies the need of proper patient counselling and follow-up in PTB for the better quality of life.

PUBLIC SECTOR SERVICE INNOVATION COMPARISON

2020 ◽  
Vol 4 (2) ◽  
pp. 826-844
Author(s):  
Ellyza Octaleny
Keyword(s):  
Public Sector ◽  
Service Providers ◽  
Employee Performance ◽  
Work Load ◽  
Employee Welfare ◽  
Low Education ◽  
And Function ◽  
Public Sector Service ◽  
Sector Service

Abstrak Inovasi merupakan suatu hal penting yang harus dimiliki oleh sebuah organisasi pemberi layanan sektor publik. Instansi pemerintah sebagai pemberi layanan dituntut memiliki inovasi untuk meningkatkan kualitas pelayanan kepada masyarakat. Penelitian ini bertujuan untuk membandingkan inovasi pelayanan sektor publik di RSUD Prof. Margono dan Lembaga Permasyarakatan Nusakambangan Cilacap. Metode penelitian yang digunakan adalah metode deskriptif kualitatif. Teknik pengumpulan data melalui wawancara, observasi, dan dokumentasi. Temuan dalam penelitian ini adalah: 1). Kurangnya personil pegawai yang sesuai dengan tugas dan fungsinya; 2). Kuangnya kesejahteraan pegawai sehingga kinerja pegawai rendah dan tidak berkualitas; 3). Pegawai berpendidikan rendah sehingga tidak sesuai dengan beban tugas dan fungsinya. Rekomendasi untuk kedua Lembaga sector public tersebut dalam penelitian ini adalah: 1). Penambahan personel pegawai sesuai dengan tugas dan fungsinya sehingga cakupan kewenangannya luas; 2) Lebih memperhatikan kesejahteraan pegawai sehingga pegawai termotivasi untuk bekerja dengan baik dan berkualitas; 3) Memberikan Kemudahan kepada pegawai yang ingin melanjutkan pendidikannya kejenjang yang lebih tinggi sehingga kualitas Pendidikan personel lebih seimbang dengan beban kerja. Kata Kunci: Inovasi, Pelayanan, SektorPublik   Abstract Innovation is an important thing that must be owned by an organization that provides public sector services. Government agencies as service providers are required to have innovations to improve the quality of services to the community. This study aims to compare public sector service innovations in hospitals. Prof. Margono and the Nusa kambangan Penitentiary. The research method used is descriptive qualitative method. Data collection techniques through interviews, observation, and documentation. The findings in this study are: 1). Lack of employee personnel in accordance with their duties and functions; 2). The lack of employee welfare so that employee performance is low and not qualified; 3). Employees have low education so that it is not suitable with their work load and function. The recommendations for the two public sector institutions in this study are: 1). The addition of employee personnel in accordance with their duties and functions so that the scope of their authority is broad; 2) Pay more attention to employee welfare so that employees are motivated to work well and quality; 3) Providing convenience to employees who want to continue their education to a higher level so that the quality of personnel education is more balanced with the workload. Keywords: Innovation, Service, Public Sector  

Tracing or Tracking? A Preliminary Analysis of COVID-19 Outbreak Tracker Apps on Android and User Privacy (Preprint)

2020 ◽  
Author(s):  
Alex Akinbi ◽  
Ehizojie Ojie
Keyword(s):  
Preliminary Analysis ◽  
Service Providers ◽  
User Participation ◽  
Memory Storage ◽  
Phone Call ◽  
Contact Tracing ◽  
Privacy Rights ◽  
User Privacy ◽  
Android Apps ◽  
User Data

BACKGROUND Technology using digital contact tracing apps has the potential to slow the spread of COVID-19 outbreaks by recording proximity events between individuals and alerting people who have been exposed. However, there are concerns about the abuse of user privacy rights as such apps can be repurposed to collect private user data by service providers and governments who like to gather their citizens’ private data. OBJECTIVE The objective of our study was to conduct a preliminary analysis of 34 COVID-19 trackers Android apps used in 29 individual countries to track COVID-19 symptoms, cases, and provide public health information. METHODS We identified each app’s AndroidManifest.xml resource file and examined the dangerous permissions requested by each app. RESULTS The results in this study show 70.5% of the apps request access to user location data, 47% request access to phone activities including the phone number, cellular network information, and the status of any ongoing calls. 44% of the apps request access to read from external memory storage and 2.9% request permission to download files without notification. 17.6% of the apps initiate a phone call without giving the user option to confirm the call. CONCLUSIONS The contributions of this study include a description of these dangerous permissions requested by each app and its effects on user privacy. We discuss principles that must be adopted in the development of future tracking and contact tracing apps to preserve the privacy of users and show transparency which in turn will encourage user participation.

Software suite for determining the tilts of tower-type structures according to terrestrial laser scanning

2020 ◽  
Vol 961 (7) ◽  
pp. 2-7
Author(s):  
A.V. Zubov ◽  
N.N. Eliseeva
Keyword(s):  
Laser Scanning ◽  
Optimization Problems ◽  
Optimization Methods ◽  
User Participation ◽  
Software Suite ◽  
Current State ◽  
Visual Basic For Applications ◽  
Operational Data ◽  
Theoretical Developments

The authors describe a software suite for determining tilt degrees of tower-type structures according to ground laser scanning indication. Defining the tilt of the pipe is carried out with a set of measured data through approximating the sections by circumferences. They are constructed using one of the simplest search engine optimization methods (evolutionary algorithm). Automatic filtering the scan of the current section from distorting data is performed by the method of assessing the quality of models constructed with that of least squares. The software was designed using Visual Basic for Applications. It contains several blocks (subprograms), with each of them performing a specific task. The developed complex enables obtaining operational data on the current state of the object with minimal user participation in the calculation process. The software suite is the result of practical implementing theoretical developments on the possibilities of using search methods at solving optimization problems in geodetic practice.

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