scholarly journals Safety or Autonomy in Dementia Care at Home, a Qualitative Study on Family Caregivers’ Experiences

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 435-435
Author(s):  
Vincent Moermans ◽  
Michel Bleijlevens ◽  
Hilde Verbeek ◽  
Koen Milisen ◽  
Bernadette Dierckx de Casterlé ◽  
...  

Abstract Persons with Dementia (PwD) living in their own home become increasingly dependent on support from especially family caregivers who often are confronted with dilemmas. Family caregivers feel responsible for PwD and predominantly want to ensure their safety, whereas PwD wants to engage in meaningful activity and make decisions autonomously. This study aims to identify how family caregivers caring for PwD at home deal with these dilemmas. Using a grounded theory approach, this study conducted in-depth interviews with 8 family caregivers. Results show that dealing with the dilemma of safety versus autonomy is considered as a calculated risk. By timely entering into dialogue with their loved one, family caregivers try to create a safe environment taking into account the needs and preferences of PwD. However, when situations evolve to such an extent that family caregivers think unsafety will occur, they take over control and overrule the autonomy of the PwD. This often results in resistance to care in PwD. Dealing with the dilemma is a continuous and exhausting learning process due to the ever-changing behaviour of PwD. Family caregivers said that they are in need of support of professional caregivers, but that this need is met insufficiently. As a result, family caregivers have to rely mostly on their own intuition and earlier experiences. The conclusion is that family caregivers experience serious dilemmas in the care of PwD living at home. Professional support in making adequate decisions related to safety and autonomy is warranted.

2021 ◽  
Vol ahead-of-print (ahead-of-print) ◽  
Author(s):  
Suman Choudhary ◽  
Kirti Mishra

Purpose This paper aims to explore the implications of virtual work arrangements on employee knowledge hiding (KH) behaviour and the different strategies of KH used by employees in these arrangements. Design/methodology/approach Following a grounded theory approach to understanding KH, 21 semi-structured in-depth interviews were conducted with employees engaged in virtual working setups. The data collected from these informants were then analysed using qualitative methods. Findings The study revealed that virtual work arrangements increase employee KH behaviour because of three reasons: ease of hiding, digital burnout and loss of control. Further, the study found that rationalized hiding is the most commonly adopted strategy by employees engaged in virtual work arrangements, while inclinations towards evasive hiding strategy decrease in this arrangement. Originality/value This is the first study in knowledge management literature that seeks to explain KH in the virtual work context.


2007 ◽  
Vol 22 (4) ◽  
pp. 140-146 ◽  
Author(s):  
Shannon McCready ◽  
Denise Reid

Student musicians frequently need to take breaks from playing their instruments because of physical playing-related injuries, yet little is known about their experiences with these occupational disruptions. We conducted a qualitative study that explored student musicians' lived experiences with unplanned disruptions stemming from engagement in their major occupation of playing an instrument. In-depth interviews with seven student musicians who attended either a special arts high school or a university were conducted. Consistent with a grounded theory approach to qualitative research, the constant comparative method of qualitative data analysis was implemented. A major finding related to the theme of “being and becoming,” where student musicians expressed a strong sense of belonging to a group of other like musicians who they learned from, relied on for support, and created music with. Another theme was motivation to excel, where students expressed a strong desire and motivation to improve and master their instrument. Occupational tensions and pressures emerged as another theme. Students were aware of the need to practice and the need to care for their bodies. A constant negotiation was required in which students struggled to find a good balance between the need to practice and to respect their bodies while maintaining an identity of a musician. These findings are discussed in relation to how health care providers and educators need to understand the demands and stresses associated with playing an instrument so that they can better support these young musicians.


2014 ◽  
Vol 11 (1) ◽  
pp. 7
Author(s):  
Traci Rose Rider

This paper aims to investigate the current state and potential opportunity of strategic environmental discourses and rhetoric in architectural education. Because there is limited research completed on this specific focus, a grounded theory approach was used. In-depth interviews were held with twelve purposefully selected participants, each of whom are prevalently perceived as leaders in incorporating sustainability topics into architectural education. Through a cyclical coding process, larger themes about integrating environmental topics in formal architectural education emerged, with the importance of discourse and rhetoric as one of the primary sub-themes. Different discourses, emphasis on specific terminology, and the implications of each in the conceptual space of architectural educational are explored in the context of both program- and university-level structures. Breaking down the current environmental discourses in these specific contexts offers insight into opportunities to streamline the inclusion of sustainability themes in architectural education. This study concludes with possible avenues for further research regarding environmental discourse and rhetoric in architectural education, and suggestions for application in programs.


2014 ◽  
Vol 41 (2) ◽  
pp. 190
Author(s):  
Sartana ◽  
Avin Fadilla Helmi

The aim of the study was to formulate a theory about Javanese adolescent self-concept in relation with friends. The subjects of this research were three Javanese adolescents, two girls and one boy. Data were collected through in-depth interviews and observation and were analyzed with the so-called grounded theory approach. The results of this study indicated that Javanese adolescents interprets himself as plural selves, hierarchical interdependent and altered. Individuals have a lot of selves that represent their relationships with others. The selves are composed with each other in a hierarchical relationship. In a particular time, an individual activates one only of their selves. The self-activation process goes with the principle of "if ..., then ...". After recognizing their friends and situations, individuals will compare and evaluate themselves then choosing and activating one particular self to adjust with a particular friend and situation. When Javanese adolescents are with their friends, they do not think much about physical aspect, they become themselves and feel equal, accepted, understood and trusted as a good person. Such self-viewing makes an individual tend to go through positive feelings and comfort being around friends. Keywords: self-concept, self-adjustment, adolescents, Javanese, friends


2018 ◽  
Vol 21 (4) ◽  
pp. 491-512 ◽  
Author(s):  
Yoo Jin Kwon ◽  
Kyoung-Nan Kwon

Purpose The purpose of this study is to understand the values consumers pursue and roles consumers partake in selfie practice. Design/methodology/approach A qualitative research method was adopted. In-depth interviews were conducted with selfie enthusiasts. Data were analyzed with grounded theory approach. Findings Diverse activities and reflections pertaining to selfies were analyzed, which uncovered three consumer roles departmentalized and the nine values that selfie practice generates for consumers. The three roles are subject, photographer and user of selfies, and the roles are orchestrated together or selectively performed if necessary. In consequence of the interplay of performances and expectations of the roles, consumers pursue and gain four collaboratively created values and five individually created values. Originality/value Findings of the study expand the understanding of values of selfie practice and consumer roles in Web 2.0.


2019 ◽  
Vol 33 (6) ◽  
pp. 676-684 ◽  
Author(s):  
Martina Sinta Kristanti ◽  
Christantie Effendy ◽  
Adi Utarini ◽  
Myrra Vernooij-Dassen ◽  
Yvonne Engels

Background: Strong family bonds are part of the Indonesian culture. Family members of patients with cancer are intensively involved in caring, also in hospitals. This is considered “normal”: a societal and religious obligation. The values underpinning this might influence families’ perception of it. Aim: To explore and model experiences of family caregivers of patients with cancer in Indonesia in performing caregiving tasks. Design: A grounded theory approach was applied. The constant comparative method was used for data analysis and a paradigm scheme was employed for developing a theoretical model. Setting/participants: The study was conducted in three hospitals in Indonesia. The participants were family caregivers of patients with cancer. Results: A total of 24 family caregivers participated. “Belief in caregiving” appeared to be the core phenomenon. This reflects the caregivers’ conviction that providing care is an important value, which becomes the will power and source of their strength. It is a combination of spiritual and religious, value and motivation to care, and is influenced by contextual factors. It influences actions: coping mechanisms, sharing tasks, and making sacrifices. Social support influences the process of the core phenomenon and the actions of the caregivers. Both positive and negative experiences were identified. Conclusion: We developed a model of family caregivers’ experiences from a country where caregiving is deeply rooted in religion and culture. The model might also be useful in other cultural contexts. Our model shows that the spiritual domain, not only for the patient but also for the family caregivers, should be structurally addressed by professional caregivers.


2017 ◽  
Vol 42 (5) ◽  
Author(s):  
Natalie Doyle Oldfield ◽  
Alla Kushniryk

Background  Building and protecting trust has always been challenging, yet critical for organizational success.Analysis  This article examines how Canadian organizations recognized as being successful generate trust with their external publics. Using a grounded theory approach, the authors interviewed 10 senior executives from publicly recognized successful Canadian companies.Conclusion and implications  Based on their findings, the authors propose eight principles for organizations to follow to build and protect organizational trust with their external publics.Keywords  Organizational trust; In-depth interviews; Grounded theory; External publicsContexte  La construction et la protection de la confiance ont toujours été difficiles, mais essentielles pour le succès de l’organisation.Analyse Cet article examine comment les organisations canadiennes qui sont reconnues comme réussies instaurent la confiance avec leurs publics externes. En utilisant une approche de la théorie ancrée, dix cadres supérieurs d’entreprises réussies publiquement reconnues ont été interviewés au Canada.Conclusions et implications S’inspirant de leurs découvertes, les auteurs proposent huit principes pour les organisations à suivre afin de construire et de protéger la confiance organisationnelle avec leurs publics externes.Mots clés  Confiance organisationnelle: Entretiens approfondis; Théorie ancrée; Public externe


2010 ◽  
Vol 31 (2) ◽  
pp. 215-238 ◽  
Author(s):  
Nan Sook Park ◽  
Sheryl Zimmerman ◽  
Kathleen Kinslow ◽  
Hae Jung Shin ◽  
Lucinda Lee Roff

While it is known that social engagement is important for the well-being of older people, its role among residents in assisted living (AL) residences has not been well explored. The purposes of this study were to explore the experiences of social engagement among AL residents and explain its components and processes as unique to this setting. Qualitative data were collected via semistructured, in-depth interviews with 29 residents in four AL residences in a Southern state. Salient themes were derived using the grounded theory approach. Findings revealed the complexity of social engagement and were organized around five themes related to characteristics of desired social relationships, the perspective of time and loss, barriers to and resources for social engagement, and strategies to develop or modify relationships. AL providers could make concerted efforts to develop practices to provide residents with more social and emotional resources and help them engage in meaningful social interactions.


2000 ◽  
Vol 17 (5) ◽  
pp. 403-426 ◽  
Author(s):  
Angela Hausman

This study used both qualitative and quantitative data to test hypotheses related to consumers’ motivations to engage in impulse buying. A grounded theory approach was used to develop hypotheses from in‐depth interviews. These hypotheses were tested by the collection and analysis of survey data. Data support the theory that impulse buying is a common method of product selection, in part, because the shopping act and impulsive product selection provide hedonic rewards. Further information‐processing overload confounds product selection, reinforcing the rewards to be obtained from alternative section heuristics, like impulse buying.


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