scholarly journals DOES PERSON-CENTERED CARE CONTRIBUTE TO QUALITY OF LIFE?: GERMAN SHARED-HOUSING ARRANGEMENT RESULTS

2017 ◽  
Vol 1 (suppl_1) ◽  
pp. 1012-1013
Author(s):  
K. Wolf-Ostermann ◽  
A. Schmidt ◽  
J. Graske
Keyword(s):  
Quality Of Life ◽  
Person Centered Care ◽  
Centered Care ◽  
Shared Housing

scholarly journals Last Place of Care and End-of-Life Quality of Life in the United States: Evidence From a National Representative Data Set

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 17-17
Author(s):  
Yifan Lou ◽  
Nan Jiang ◽  
Katherine Ornstein
Keyword(s):  
Quality Of Life ◽  
Older Adults ◽  
End Of Life ◽  
End Of Life Care ◽  
The United States ◽  
Life Care ◽  
Person Centered Care ◽  
Centered Care ◽  
The Relationship

Abstract Background: Quality of life (QoL) during last stage of life has raised expanded interests as an important aspect of person-centered care. Last place of care (LPC), refer to the last place decedents received their formal end-of-life care (EOLC), has been identified as a key indicator of older adults’ end-of-life QoL, but the relationship was understudied. This study explores the association between LPC and end-of-life QoL among American older adults. Methods: Data used seven waves of Last Month of Life data with a total sample of 3068 Medicare decedents in NHATS. Outcome is end-of-life QoL assessed by eleven measures on four domains: pain and symptoms management (SP), quality of healthcare encounter (HE), person-centered care (PC), and overall quality of care (QC). LPC was categorized into home, hospital, nursing home, and residential hospice. Multivariate logistic regression analyses were used to examine the relationship with covariates. Results: LPC varied by most demographic characteristics, except immigration status and education. Older adults whose LPC is hospital, compared to those who had home-care, were less likely to have great experiences on HE, PC, and QC. People dying at nursing homes are more likely to receive care meeting their dyspnea and spiritual needs. Residential hospice is negatively related to respected care, clear coordination, and keeping family informed, but are more likely to provide PS and spiritual care. Discussion: Home-based end-of-life care has certain advantages but still has room to improve on SP and religious concerns. Hospitals should keep reforming their service delivery structure to improve patients’ QoL.

scholarly journals Bridging Biomedical and Person-centered Care Approaches via Namaste Care with Family Participation: An Asian Experience in Advanced Dementia Treatment

2020 ◽  
Vol 4 (4) ◽  
Author(s):  
Noorhazlina Ali ◽  
◽  
Cai Ning Tan ◽  
Jasmine Kang ◽  
Aik Phon Chew ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Rating Scale ◽  
Tube Feeding ◽  
Cognitive Status ◽  
Dementia Care ◽  
Family Participation ◽  
Advanced Dementia ◽  
Person Centered Care ◽  
Centered Care

A locally-adapted, multisensory, psychosocial intervention called Namaste Care program was developed to improve the daily life of persons with advanced dementia (PwAD) through arranging meaningful activities and physical interactions by healthcare staff (Namaste Carers). Congruent with Asian values, the families of PwAD were invited to participate in Namaste Care sessions. The study aimed to explore the influence of Namaste Care on cognitive status and quality of life (QOL) of PwAD, and perceptions and attitudes of caregivers and Namaste Carers toward dementia care were determined. A total of 10 individuals, including patient-caregiver dyads (n = 4) and Namaste Carers (n = 6) participated in a program in a tertiary hospital in Singapore. Quality of Life in Late-Stage Dementia (QUALID) scale and Severe Impairment Rating Scale (SIRS) were employed to evaluate QOL and cognition, respectively, in the pre- and post-survey program in patient-caregiver dyads. Namaste Carers’ knowledge and attitudes toward PwAD were assessed using the Questionnaire on Palliative Care for Advanced Dementia (qPAD). Caregivers and Namaste carers were interviewed post-program separately. A concurrent explanatory mixed-method analysis was done. The mean age of PwAD was 84 years, with 75% (n = 3) patients on enteral tube feeding. Namaste carers were nurses with an average experience of 4.1 years in dementia care. On comparison of pre- and post-program scores of PwAD, QUALID scores showed a decrease (indicating an improvement in the QOL), while the SIRS scores were increased (indicating an improved cognitive response). Namaste Carers scored high on qPAD, reflecting the good understanding and a positive attitude toward PwAD. Thematic analysis of 10 interview transcripts from caregivers and Namaste Carers revealed three themes: the polarizing paradigm of care in advanced dementia; pre-eminence of the Asian family values, and theme of “small actions make a big difference”. Namaste Care served as a bridge between the person-centered care approach and the biomedical model of dementia care. Namaste Care with family participation may be the cornerstone of PwAD to receive culturally-appropriate personalized care and serve as a premise for the operationalization of person-centered care in Asian societies, and undeniably across the world.

How Is Quality of Life Assessed in People With Dementia? A Systematic Literature Review and a Primer for Speech-Language Pathologists

2020 ◽  
Vol 29 (3) ◽  
pp. 1702-1715
Author(s):  
Sabine Heuer ◽  
Rebecca Willer
Keyword(s):  
Quality Of Life ◽  
Literature Review ◽  
Systematic Literature Review ◽  
Well Being ◽  
Self Report ◽  
Speech Language Pathologists ◽  
Person Centered Care ◽  
People With Dementia ◽  
Centered Care

Purpose The purpose of this study was to determine how quality of life (QoL) is measured in people with dementia involved in interventions designed to improve well-being and to explore how those measures align with principles of person-centered care. Method A systematic literature review was conducted utilizing PsychInfo, CINAHL, and PubMed and combinations of the search terms: “dementia,” “outcome measure,” “creative engagement,” “creative intervention,” “TimeSlips,” “art,” “quality of life,” and “well-being.” The search was limited to studies published in peer-reviewed journals that reported outcomes for people with dementia in response to a creative intervention. Results Across the 24 reviewed studies, 30 different outcome measures were reported including eight self-reported, nine observational, and 13 proxy-reported measures. Self-report of QoL was elicited 16 times, observational measures were reported 17 times, and proxy-reported measures were used 28 times. All measures were used with participants across the dementia severity spectrum. Conclusion Current clinical practice of QoL evaluation does not align well with person-centered care principles of self-determination based on the low proportion of self-report. The previously reported limitations of proxy-report have been in part confirmed with this study. Implications of the findings for speech-language pathologists are discussed.

Outcome of Person-centered Care at a Dynamic-Psychiatric Hospital in Germany

2014 ◽  
Vol 3 (3) ◽  
pp. 220-227
Author(s):  
Maria Ammon ◽  
Gisela Finke
Keyword(s):  
Quality Of Life ◽  
Psychiatric Treatment ◽  
Psychiatric Inpatient ◽  
Interpersonal Problems ◽  
Assessment Tools ◽  
Self Report ◽  
Personalized Care ◽  
Person Centered Care ◽  
Centered Care

Dynamic psychiatric treatment is a well established therapeutic approach with substantial elements of person-centered care. A study was designed and conducted in order to evaluate the outcome of a person centered dynamic psychiatric inpatient treatment program in Munich, Germany. It was conducted  with 792 patients, for whom mean duration of therapy was 65 days. Assessment tools included the Inventory of Interpersonal Problems ( IIP) (a self-report measure of maladaptive relationship behavior), the Ammon Ego Structure Test (ISTA ), the WHO Quality of Life Instrument-Bref, indices of social network extent and depth, and satisfaction with personal communication and care and with concerted treatment planning. The results at discharge and follow up showed that patients had significantly improved concerning all dynamic personality dimensions, interpersonal problems, quality of life, and satisfaction with personalized care. This study offers a measure of validation of  person-centered dynamic psychiatric care in terms of relevant outcome measures.

Nurse–Patient Connectedness and Nurses’ Professional Quality of Life: Experiences of Volunteering at a Pediatric Oncology Camp

2019 ◽  
Vol 37 (2) ◽  
pp. 136-147 ◽  
Author(s):  
Brooke Cherven ◽  
Dorothy Jordan ◽  
Sally Hale ◽  
Martha Wetzel ◽  
Curtis Travers ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Pediatric Oncology ◽  
Odds Ratio ◽  
Oncology Nurses ◽  
Professional Quality Of Life ◽  
Person Centered Care ◽  
Professional Quality ◽  
Centered Care ◽  
The Impact

Objective: Pediatric oncology nurses can experience burnout, vicarious traumatization, and compassion fatigue related to the unique stressors of their profession. Opportunities to enhance nurses’ professional commitment and nurse–patient connectedness may mitigate these stressors. This study explored the impact of volunteering at a local oncology camp on pediatric oncology nurses’ professional quality of life and connectedness with their oncology patients. Method and Sample: Pediatric oncology nurses from a single institution were invited to participate in this mixed methods study. Participants completed a survey assessing professional quality of life, professional commitment, and patient connectedness. Nurses who had oncology camp volunteer experience were invited to participate in a qualitative interview. Results: Compared with noncamp nurses ( n = 23), camp nurses ( n = 25) had increased odds of a low burnout score (odds ratio = 6.74, 95% confidence interval [1.10, 41.43], p = .039) and increased odds of a high compassion satisfaction score (odds ratio = 4.69, 95% confidence interval [1.14, 19.32], p = .033). Qualitative interviews supported the impact of volunteering at camp on nurses’ personal and professional perspective, nursing practice, and delivery of person-centered care. Conclusion: Volunteering at a pediatric oncology camp provided nurses the opportunity to engage with patients, share experiences, and view patients as individuals while still maintaining professional boundaries. Nurses who volunteer at camp described a perspective moving beyond patient-centered to person-centered care, and for some pediatric oncology nurses, camp volunteering may be a novel way to mitigate burnout and an important tool to enhance resiliency.

Gender Comparisons on Quality-of-Life and Comorbid Alcohol Dependence and Major Depression

2015 ◽  
Vol 5 (1) ◽  
pp. 34-37
Author(s):  
Scott M Hyman ◽  
Ladan Khazai ◽  
Mousa Botros ◽  
Yadira I. Torres ◽  
Jack R. Cornelius ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Major Depression ◽  
Alcohol Dependence ◽  
Treatment Seeking ◽  
Depression Severity ◽  
Men And Women ◽  
Addiction Severity ◽  
Person Centered Care ◽  
Centered Care

Introduction and Objectives: Compared to men, substance-addicted women have greater social vulnerabilities that may impact their symptom presentation and overall quality-of-life (QOL). The latter is gaining prominence as an outcome measure and key element of person-centered care. We aimed to compare in this study treatment-seeking men and women with co-morbid alcohol dependence and major depression on measures of depression severity, addiction severity, and quality-of-life and to examine associations between addiction/depression severity and quality-of-life separately in men and women. Methods: Men (n = 34) and women (n = 33) participating in a psychopharmacology trial for co-morbid alcohol dependence and major depression were administered the Addiction Severity Index (ASI), the 25-item Hamilton Rating Scale for Depression (HAM-D), and the Multicultural Quality of Life Index at baseline as part of a large assessment battery. Results: Women reported greater global QOL impairment than men despite being similar on measures of depression and addiction severity. Depression severity, but not addiction severity, was significantly associated with QOL impairment in both men and women. Discussion and Conclusions: Treatment-seeking women with co-morbid major depression and alcoholism report lower QOL (i.e., happiness and life satisfaction) than their male counterparts. Depressive symptoms, but not addiction-related problems, may contribute to global QOL impairment. Alternatively, QOL impairment may increase depressed mood. Overall, QOL assessments may identify areas of impairment and opportunities for health promotion not assessed through traditional measures used in addiction treatment programs, and these measures may be more sensitive to the specific needs of women. Consideration of all these factors is likely to enhance person-centered care.

scholarly journals EFFECTS OF A PERSON-CENTERED CARE INTERVENTION ON RESIDENT QUALITY OF LIFE AND QUALITY OF CARE

2017 ◽  
Vol 1 (suppl_1) ◽  
pp. 1355-1355
Author(s):  
H. Wijk ◽  
K.N. Corazzini ◽  
E. Alexiou ◽  
I. Lindström ◽  
K. Swedberg
Keyword(s):  
Quality Of Life ◽  
Quality Of Care ◽  
Person Centered Care ◽  
Care Intervention ◽  
Centered Care
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