942Global Indigenous and Tribal Peoples Data Governance in Health Research: A systematic review

Abstract Background Despite a broad range of research using Indigenous specific data, there is limited research to describe what constitutes data governance. To identify priorities and monitor progress in health, data is critical. Accurate collection and appropriate analysis of population level data is necessary in understanding population distributions of health and wellbeing. The aim of this review is to provide a comprehensive understanding of the current literature describing Indigenous Data Governance (IDG) processes in health research. Methods A comprehensive a-priori search strategy has been developed and submitted for registration through PROSPERO(APP170033). Literature will be sourced from bibliographic databases, review articles, key journals, conference proceedings, grey literature and referrals by key experts up until 01/2020 and synthesised (through meta-study and meta-aggregation approaches) in accordance with PRISMA guidelines. Results Once completed, a descriptive overview along with discussion on IDG processes in decision making specific to health research will be synthesized. IDG 'interventions' may include, but are not limited to, community advisory committees, Indigenous leadership, or institutional and/or project policies pertaining to decision making processes in the use of data in health research. Conclusions This review will provide evidence of definitions and procedures specific to IDG in the literature and how IDG, as a process, is operationalised in Indigenous health research across the globe. Key messages Preliminary Key messages include the lack of IDG processes described in the literature and the need for the development of guidelines to support researchers in operationalising Indigenous Data Sovereignty.

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Indigenous and Tribal Peoples Data Governance in Health Research: A Systematic Review

International Journal of Environmental Research and Public Health ◽

10.3390/ijerph181910318 ◽

2021 ◽

Vol 18 (19) ◽

pp. 10318

Author(s):

Kalinda E. Griffiths ◽

Jessica Blain ◽

Claire M. Vajdic ◽

Louisa Jorm

Keyword(s):

Systematic Review ◽

Health Research ◽

A Priori ◽

Population Level ◽

Research Literature ◽

Data Governance ◽

Institutional Ethics ◽

Level Data ◽

Governance Strategies ◽

Data Stewardship

There is increasing potential to improve the research and reporting on the health and wellbeing of Indigenous and Tribal peoples through the collection and (re)use of population-level data. As the data economy grows and the value of data increases, the optimization of data pertaining to Indigenous peoples requires governance that defines who makes decisions on behalf of whom and how these data can and should be used. An international a priori PROSPERO (#CRD42020170033) systematic review was undertaken to examine the health research literature to (1) identify, describe, and synthesize definitions and principles; (2) identify and describe data governance frameworks; and (3) identify, describe, and synthesize processes, policies and practices used in Indigenous Data Governance (ID-GOV). Sixty-eight articles were included in the review that found five components that require consideration in the governance of health research data pertaining to Indigenous people. This included (1) Indigenous governance; (2) institutional ethics; (3) socio-political dynamics; (4) data management and data stewardship; and (5) overarching influences. This review provides the first systematic international review of ID-GOV that could potentially be used in a range of governance strategies moving forward in health research.

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Quality of patient, family, caregiver and public engagement in decision-making in healthcare systems: a scoping review protocol

BMJ Open ◽

10.1136/bmjopen-2019-032788 ◽

2019 ◽

Vol 9 (11) ◽

pp. e032788

Author(s):

Clayon Hamilton ◽

M Elizabeth Snow ◽

Nancy Clark ◽

Shannon Gibson ◽

Maryam Dehnadi ◽

...

Keyword(s):

Decision Making ◽

Scoping Review ◽

Family Caregiver ◽

Research Question ◽

Grey Literature ◽

Healthcare Systems ◽

Evaluation Framework ◽

Bibliographic Databases ◽

Scientific Article

IntroductionTo advance person- and family-centred healthcare, government initiatives have supported the engagement of patients and family caregivers in decision-making in healthcare systems. There is, however, no consensus on how to define success for such initiatives. This scoping review aims to identify the key elements for defining the quality of patient and family caregiver engagement in decision-making across the engagement domains (individual, community/organisation, system) of British Columbia’s healthcare system. We will use those elements to develop a conceptual evaluation framework.Methods and analysisThis scoping review follows Arskey and O’Malley’s methodology. (1) The research question was identified through team discussions. (2) Articles for data source will be identified using a librarian-informed search strategy for seven bibliographic databases as well as grey literature sources. (3) Selected articles will be relevant to the evaluation of patient and family caregiver engagement in healthcare systems. (4) Two researchers will independently extract data into predefined and emerging categories. (5) The researchers will reconcile and organise the identified elements. The research team’s collective perspective will then refine the elements, and select, interpret and summarise the results. (6) Persons from key stakeholder groups will be consulted to refine the emergent conceptual framework.Ethics and disseminationWe will seek ethics approval for the stakeholder consultation. This study follows an integrated knowledge translation approach. The results will inform evaluation of the Patients as Partners Initiative of the British Columbia Ministry of Health, and will be disseminated as a scientific article, a research brief, and presentations at conferences and stakeholder meetings.

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Existing evidence on the outcomes of wildlife translocations in protected areas: a systematic map

Environmental Evidence ◽

10.1186/s13750-021-00236-w ◽

2021 ◽

Vol 10 (1) ◽

Author(s):

Joseph Langridge ◽

Romain Sordello ◽

Yorick Reyjol

Keyword(s):

Decision Making ◽

Protected Areas ◽

National Parks ◽

Grey Literature ◽

Evidence Base ◽

Global Scale ◽

Global Network ◽

Bibliographic Databases ◽

Systematic Map ◽

Natural Habitats

Abstract Background Ecosystem degradation, mainly through overexploitation and destruction of natural habitats, is a well-known threat to the viability and persistence of many species’ populations worldwide. The use of translocations as a viable conservation tool in conjunction with protected areas has been rapidly increasing over the last few decades. Protected areas such as strict nature reserves, national parks, and species management areas continue to be central tools for biodiversity conservation as they provide vital habitats set aside from various human pressures. Because action consistently runs ahead of policy, the need for a clearer evidence base on the outcomes of wildlife translocations undertaken at a global scale is becoming increasingly urgent for scientific and decision-making communities, in order to build clear strategy frameworks around conservation translocations. We therefore conducted a systematic mapping exercise to provide an overview of the existing evidence on the outcomes of wildlife translocations in protected areas. Methods We searched two bibliographic databases, four web-based search engines with search-by-key-words capacity, 5 specialist websites, and conducted a grey literature call through two project stakeholders. We screened articles by title, abstract, and full text using pre-defined inclusion criteria all the while assessing the consistency of the reviewers. All relevant translocations were coded from retained publications. Key variables of interest were extracted and coded for each translocation event. The quantity and characteristics of the available evidence and knowledge gaps/clusters are summarised. The distribution and frequency of translocations are presented in heat- and geographical maps. Review findings A total of 613 articles were considered eligible for coding bibliometric data. Metapopulation management and review articles were not coded for quantitative and qualitative variables. Linked data (duplicated translocations) were also excluded. Finally, 841 studies of different translocation events were fully coded from 498 articles. Most of these translocations were carried out in North America and Oceania. The most commonly undertaken intervention types were one-off supplementations and “supplemented reintroductions”. Mammals were by far the most transferred group among animals. Magnoliopsida was the most translocated plant group. Survival, space use, and demography metrics were the most studied outcomes on translocated species. Conclusions This systematic map provides an up-to-date global catalogue of the available evidence on wildlife translocations to, from, or within protected areas. It should enable protected area managers to better understand their role in the global network of protected areas, regarding translocation practice, both as suppliers or recipients of translocated species. It may help managers and practitioners make their own choices by comparing previous experiences, regarding both the species concerned and the precise translocation modalities (number of individuals, etc.). Finally, it constitutes a decision-making tool for managers as well as for policy makers for future translocations.

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Prophetic Leadership Model: Conceptualizing a Prophet’s Leadership Behaviour, Leader-Follower Mutuality and Altruism to Decision Making Quality

European Journal of Interdisciplinary Studies ◽

10.26417/ejis.v3i1.p93-106 ◽

2015 ◽

Vol 3 (1) ◽

pp. 93

Author(s):

Nik Maheran Nik Muhammad

Keyword(s):

Decision Making ◽

Social Network ◽

A Priori ◽

Complex Function ◽

Spiritual Leadership ◽

Leadership Theory ◽

Future Research ◽

Leadership Model ◽

Leadership Behaviour ◽

Current Leadership

This article advocates that research is lacking on the connection between leadership theory and social network theory. To date, little empirical research has been conducted on leadership and social networks. Thus, the proposition of this article goes beyond traditional leadership models to advocate for a fuller and more integrative focus that is multilevel, multi-component and interdisciplinary, while recognizing that leadership is a complex function of both the organisational leaders and the followers who perform tasks, all of which subsequently leads to decision making qualities. Indeed, the current leadership model focuses on leadership behaviour and the ability to gain followers mutuality, to achieve decision making quality involving the integration of leadership and social network theories. Given the apparent mutable palette of contemporary leadership theory, this emergent construct of the leadership paradigm can expand the poles of the leadership continuum and contribute to a richer and deeper understanding of the relationships and responsibilities of leaders and followers as they relate to decision making qualities. This new construct, which is termed prophetic leadership, explores the literature of the life experiences of the prophet in the ‘Abrahamic Faith’ religion. Drawing on a priori links between the personality trait and spiritual leadership that has recently garnered the interest of scholars, the present study asserts a normative leadership theory that links the personal quality of a leader, posture and principal (based on the Prophet’s leadership behaviour) to synergy and decision making quality. Altruism is proposed to enhance relationships between leadership behaviour and decision making quality. For future research, much work needs to be done specifically aiming to (a) achieve greater clarity of construct definitions, (b) address measurement issues, and (c) avoid construct redundancy.

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Prophetic Leadership Model: Conceptualizing a Prophet’s Leadership Behaviour, Leader-Follower Mutuality and Altruism to Decision Making Quality

European Journal of Interdisciplinary Studies ◽

10.26417/ejis.v1i3.p93-106 ◽

2015 ◽

Vol 1 (3) ◽

pp. 93

Author(s):

Nik Maheran Nik Muhammad

Keyword(s):

Decision Making ◽

Social Network ◽

A Priori ◽

Complex Function ◽

Spiritual Leadership ◽

Leadership Theory ◽

Future Research ◽

Leadership Model ◽

Leadership Behaviour ◽

Current Leadership

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Research and analysis of business management processes implemented under conditions of incomplete certainty

CPT2020 The 8th International Scientific Conference on Computing in Physics and Technology Proceedings ◽

10.30987/conferencearticle_5fd755bf97ae27.51187786 ◽

2020 ◽

Author(s):

Igor Klimenko ◽

A. Ivlev

Keyword(s):

Decision Making ◽

A Priori ◽

Business Management ◽

Statistical Uncertainty ◽

Management Processes ◽

Classical Decision ◽

Decision Making Criteria

The study carried out in this work made it possible to expand the rank scale for a priori assessment of the chosen strategy in terms of increasing the sensitivity of assessing the caution / negligence ratio using risky, as well as classical decision-making criteria under conditions of statistical uncertainty.

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Big Tech Platforms in Health Research: Re-purposing Big Data Governance in Light of the GDPR’s Research Exemption

SSRN Electronic Journal ◽

10.2139/ssrn.3712168 ◽

2020 ◽

Author(s):

Luca Marelli ◽

Giuseppe Testa ◽

Ine Van Hoyweghen

Keyword(s):

Big Data ◽

Health Research ◽

Data Governance

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An Exploratory Study of Research Data Governance in the U.S.

Open Information Science ◽

10.1515/opis-2020-0010 ◽

2020 ◽

Vol 4 (1) ◽

pp. 122-142

Author(s):

Inna Kouper ◽

Anjanette H Raymond ◽

Stacey Giroux

Keyword(s):

Decision Making ◽

Exploratory Study ◽

Research Data ◽

Science And Society ◽

Data Governance ◽

Knowledge Commons ◽

Multiple Voices ◽

The Us ◽

The Commons ◽

The U.S

AbstractMaking decisions regarding data and the overall credibility of research constitutes research data governance. In this paper, we present results of an exploratory study of the stakeholders of research data governance. The study was conducted among individuals who work in academic and research institutions in the US, with the goal of understanding what entities are perceived as making decisions regarding data and who researchers believe should be responsible for governing research data. Our results show that there is considerable diversity and complexity across stakeholders, both in terms of who they are and their ideas about data governance. To account for this diversity, we propose to frame research data governance in the context of polycentric governance of a knowledge commons. We argue that approaching research data from the commons perspective will allow for a governance framework that can balance the goals of science and society, allow us to shift the discussion toward protection from enclosure and knowledge resilience, and help to ensure that multiple voices are included in all levels of decision-making.

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