Altered Appearance from Cancer

2018 ◽  
Author(s):  
Nicole Paraskeva ◽  
Alex Clarke ◽  
Diana Harcourt
Keyword(s):  
Cognitive Processes ◽  
Large Scale ◽  
Research Collaboration ◽  
Predisposing Factors ◽  
Future Research ◽  
Related Factors ◽  
The Impact ◽  
Appearance Changes ◽  
Research Studies

Abstract: This chapter delineates various appearance alterations that can result from cancer and its treatment. It focuses on describing the impact of appearance changes involving weight, scarring from surgery, alopecia, ascites, and lymphedema. It also examines the influence of patient-related factors (i.e., gender, age) and treatment-related factors on appearance-related distress. Various models of adjustment to alterations in appearance are presented with particular attention to predisposing factors, intervening cognitive processes, and measurable outcomes identified by large-scale research studies conducted by the Appearance Research Collaboration. Finally, the chapter identifies gaps in knowledge and directions for future research needed to advance the understanding of an individual’s experiences of living with an altered appearance due to cancer.

scholarly journals Mapping domain characteristics influencing Analytics initiatives: The example of Supply Chain Analytics

2020 ◽  
Vol 13 (1) ◽  
pp. 56
Author(s):  
Tino Herden
Keyword(s):  
Supply Chain ◽  
Supply Chain Management ◽  
Success Factors ◽  
Research Collaboration ◽  
Future Research ◽  
Structured Interviews ◽  
Chain Management ◽  
Domain Specific ◽  
The Status ◽  
The Impact

Purpose: Analytics research is increasingly divided by the domains Analytics is applied to. Literature offers little understanding whether aspects such as success factors, barriers and management of Analytics must be investigated domain-specific, while the execution of Analytics initiatives is similar across domains and similar issues occur. This article investigates characteristics of the execution of Analytics initiatives that are distinct in domains and can guide future research collaboration and focus. The research was conducted on the example of Logistics and Supply Chain Management and the respective domain-specific Analytics subfield of Supply Chain Analytics. The field of Logistics and Supply Chain Management has been recognized as early adopter of Analytics but has retracted to a midfield position comparing different domains.Design/methodology/approach: This research uses Grounded Theory based on 12 semi-structured Interviews creating a map of domain characteristics based of the paradigm scheme of Strauss and Corbin.Findings: A total of 34 characteristics of Analytics initiatives that distinguish domains in the execution of initiatives were identified, which are mapped and explained. As a blueprint for further research, the domain-specifics of Logistics and Supply Chain Management are presented and discussed.Originality/value: The results of this research stimulates cross domain research on Analytics issues and prompt research on the identified characteristics with broader understanding of the impact on Analytics initiatives. The also describe the status-quo of Analytics. Further, results help managers control the environment of initiatives and design more successful initiatives.

scholarly journals THU0528 NAILFOLD VIDEOCAPILLAROSCOPY REPORTING IN CLINICAL RESEARCH: INTERNATIONAL DELPHI BASED CONSENSUS

2020 ◽  
Vol 79 (Suppl 1) ◽  
pp. 503.1-504
Author(s):  
F. Ingegnoli ◽  
T. Schioppo ◽  
A. Herrick ◽  
A. Sulli ◽  
F. Bartoli ◽  
...  
Keyword(s):  
Systematic Review ◽  
Clinical Research ◽  
Rheumatic Diseases ◽  
Unmet Need ◽  
Future Research ◽  
Invasive Technique ◽  
Delphi Consensus ◽  
Research Support ◽  
The Impact ◽  
Research Studies

Background:Nailfold capillaroscopy (NVC), a non-invasive technique to assess microcirculation, is increasingly being incorporated into rheumatology routine clinical practice. Currently, the degree of description of NVC methods varies amongst research studies, making interpretation and comparison between studies challenging. In this field, an unmet need is the standardization of items to be reported in research studies using NVC.Objectives:To perform a Delphi consensus on minimum reporting standards in methodology for clinical research, based on the items derived from a systematic review focused on this topic.Methods:The systematic review of the literature on NVC methodology relating to rheumatic diseases was performed according to PRISMA guidelines (PROSPERO CRD42018104660) to July 22nd2018 using MEDLINE, Embase, Scopus. Then, a three-step web-based Delphi consensus was performed in between members of the EULAR study group on microcirculation in rheumatic diseases and the Scleroderma Clinical Trials Consortium. Participants were asked to rate each item from 1 (not appropriate) to 9 (completely appropriate).Results:In total, 3491 references were retrieved in the initial search strategy, 2862 were excluded as duplicates or after title/abstract screening. 632 articles were retrieved for full paper review of which 319 fulfilled the inclusion criteria. Regarding patient preparation before the exam, data were scarce: 38% reported acclimatization, 5% to avoid caffeine and smoking, 3% to wash hands and 2% to avoid manicure. Concerning the device description: 90% reported type of instrument, 77% brand/model, 72% magnification, 46% oil use, 40% room temperature and 35% software for image analysis. As regards to examination details: 76% which fingers examined, 75% number of fingers examined, 15% operator experience, 13% reason for finger exclusion, 9% number of images, 8% quality check of the images and 3% time spent for the exam. Then, a three-round Delphi consensus on the selected items was completed by 80 participants internationally, from 31 countries located in Australia, Asia, Europe, North and South America. Some items reached the agreement at the second round (85 participants), and other items were suggested as important to consider in a future research agenda (e.g. temperature for acclimatization, the impact of smoking, allergies at the application of the oil to the nailbed, significance of pericapillary edema, methods of reporting hemorrhages, ramified and giant capillaries). The final agreement results are reported below:Conclusion:On the basis of the available literature the description of NVC methods was highly heterogeneous and individual published studies differed markedly. These practical suggestions developed using a Delphi process among international participants provide a guidance to improve and to standardize the NVC methodology in future clinical research studies.Disclosure of Interests:Francesca Ingegnoli: None declared, Tommaso Schioppo: None declared, Ariane Herrick: None declared, Alberto Sulli Grant/research support from: Laboratori Baldacci, Francesca Bartoli: None declared, Nicola Ughi: None declared, John Pauling: None declared, Maurizio Cutolo Grant/research support from: Bristol-Myers Squibb, Actelion, Celgene, Consultant of: Bristol-Myers Squibb, Speakers bureau: Sigma-Alpha, Vanessa Smith Grant/research support from: The affiliated company received grants from Research Foundation - Flanders (FWO), Belgian Fund for Scientific Research in Rheumatic diseases (FWRO), Boehringer Ingelheim Pharma GmbH & Co and Janssen-Cilag NV, Consultant of: Boehringer-Ingelheim Pharma GmbH & Co, Speakers bureau: Actelion Pharmaceuticals Ltd, Boehringer-Ingelheim Pharma GmbH & Co and UCB Biopharma Sprl

Toward a Model of Brand Creation for International Large-Scale Sporting Events: The Impact of Leadership, Context, and Nature of the Event

2008 ◽  
Vol 22 (5) ◽  
pp. 526-549 ◽  
Author(s):  
Milena M. Parent ◽  
Benoit Séguin
Keyword(s):  
Large Scale ◽  
Sporting Events ◽  
Related Factors ◽  
Initial Event ◽  
Leadership Group ◽  
Leadership Context ◽  
The Impact ◽  
Communication Paths ◽  
Brand Creation

The purpose of this study was to develop a model of brand creation for one-off large-scale sporting events. A case study of the 2005 Montreal FINA (Fédération Internationale de Natation) World Championships highlighted the importance of the leadership group (which must include individuals with political/networking, business/management, and sport/event skills), the context, and the nature of the event for creating the event’s brand. The importance of each aspect is suggested to vary depending on the situation. For example, the lack of an initial event brand will result in the leadership group having the greatest impact on the event’s brand creation process. Findings also highlighted differing communication paths for internal and external stakeholders. Thus, this study contributes to the literature by focusing on brand creation and its related factors instead of the management and outcomes of a brand.

scholarly journals Co-creating a large-scale adolescent health survey integrated with access to digital health interventions

2020 ◽  
Author(s):  
Roshini Peiris-John ◽  
Lovely Dizon ◽  
Kylie Sutcliffe ◽  
Kristy Kang ◽  
Theresa Fleming
Keyword(s):  
Adolescent Health ◽  
Health Survey ◽  
Large Scale ◽  
Service Providers ◽  
Digital Health ◽  
Health Interventions ◽  
Future Research ◽  
Health Providers ◽  
Health And Wellbeing ◽  
The Impact

Aim This paper describes how we engaged with adolescents and health providers to integrate access to digital health interventions as part of a large-scale secondary school health and wellbeing survey in New Zealand. Methods We conducted nine participatory, iterative co-design sessions involving 29 adolescents, and two workshops with young people (n = 11), digital and health service providers (n = 11) and researchers (n = 9) to gain insights into end-user perspectives on the concept and how best to integrate digital interventions in to the survey. Results Students’ perceived integrating access to digital health interventions into a large-scale youth health survey as acceptable and highly beneficial. They did not want personalized/normative feedback, but thought that every student should be offered all the help options. Participants identified key principles: assurance of confidentiality, usability, participant choice and control, and language. They highlighted wording as important for ease and comfort, and emphasised the importance of user control. Participants expressed that it would be useful and acceptable for survey respondents to receive information about digital help options addressing a range of health and wellbeing topics. Conclusion The methodology of adolescent-practitioner-researcher collaboration and partnership was central to this research and provided useful insights for the development and delivery of adolescent health surveys integrated with digital help options. The results from the ongoing study will provide useful data on the impact of digital health interventions integrated in large-scale surveys, as a novel methodology. Future research on engaging with adolescents once interventions are delivered will be useful to explore benefits over time.

scholarly journals BODIES DON'T JUST TELL STORIES, THEY TELL HISTORIES

2011 ◽  
Vol 8 (1) ◽  
pp. 179-189 ◽  
Author(s):  
Karina L. Walters ◽  
Selina A. Mohammed ◽  
Teresa Evans-Campbell ◽  
Ramona E. Beltrán ◽  
David H. Chae ◽  
...  
Keyword(s):  
Native American ◽  
Traumatic Events ◽  
Historical Trauma ◽  
Health Inequities ◽  
Future Research ◽  
Related Factors ◽  
Native Communities ◽  
Historical Processes ◽  
Etiological Agents ◽  
The Impact

AbstractIncreasingly, understanding how the role of historical events and context affect present-day health inequities has become a dominant narrative among Native American communities. Historical trauma, which consists of traumatic events targeting a community (e.g., forced relocation) that cause catastrophic upheaval, has been posited by Native communities and some researchers to have pernicious effects that persist across generations through a myriad of mechanisms from biological to behavioral. Consistent with contemporary societal determinants of health approaches, the impact of historical trauma calls upon researchers to explicitly examine theoretically and empirically how historical processes and contexts become embodied. Scholarship that theoretically engages how historically traumatic events become embodied and affect the magnitude and distribution of health inequities is clearly needed. However, the scholarship on historical trauma is limited. Some scholars have focused on these events as etiological agents to social and psychological distress; others have focused on events as an outcome (e.g., historical trauma response); others still have focused on these events as mechanisms or pathways by which historical trauma is transmitted; and others have focused on historical trauma-related factors (e.g., collective loss) that interact with proximal stressors. These varied conceptualizations of historical trauma have hindered the ability to cogently theorize it and its impact on Native health. The purpose of this article is to explicate the link between historical trauma and the concept of embodiment. After an interdisciplinary review of the “state of the discipline,” we utilize ecosocial theory and the indigenist stress-coping model to argue that contemporary physical health reflects, in part, the embodiment of historical trauma. Future research directions are discussed.

FL Instructor Beliefs About Machine Translation

2021 ◽  
Vol 11 (4) ◽  
pp. 1-18
Author(s):  
Emily Hellmich ◽  
Kimberly Vinall
Keyword(s):  
Language Learning ◽  
Machine Translation ◽  
Large Scale ◽  
Language Education ◽  
Past Research ◽  
Pedagogical Practices ◽  
Future Research ◽  
Potential Threat ◽  
Instructor Beliefs ◽  
The Impact

Machine translation (MT) platforms have gained increasing attention in the educational linguistics community. The current article extends past research on instructor beliefs about MT by way of an ecological theoretical framework. The study reports on a large-scale survey (n=165) of FL university-level instructors in the U.S. Findings indicate strong lines being drawn around acceptable MT use (e.g., in relation to text length and skill, policies), an acknowledgement of widespread student use driven by diverse motivations, and the Janus-faced nature of MT's potential threat to the profession. These findings reveal several salient tensions in how MT mediates relationships in language education (e.g., constructions of students, the nature of language and language learning, goals of the profession) that shed new light on the impact of MT technologies on the field. Implications for future research and the development of pedagogical practices anchored in digital literacies conclude the piece.

scholarly journals The Efficacy of Ethnic Stacking: Military Defection during Uprisings in Africa

2019 ◽  
Vol 5 (4) ◽  
pp. 695-702 ◽  
Author(s):  
Julien Morency-Laflamme ◽  
Theodore McLauchlin
Keyword(s):  
Large Scale ◽  
Armed Forces ◽  
Future Research ◽  
Group Loyalty ◽  
Limited Support ◽  
History Of ◽  
Group Members ◽  
Using Data ◽  
The Cost ◽  
The Impact

Abstract Does ethnic stacking in the armed forces help prevent military defection? Recent research, particularly in Africa and the Middle East, suggests so; by favoring in-groups, regimes can keep in-group soldiers loyal. In-group loyalty comes at the cost of antagonizing members of out-groups, but many regimes gladly run that risk. In this research note, we provide the first large-scale evidence on the impact of ethnic stacking on the incidence of military defection during uprisings from below, using data on fifty-seven popular uprisings in Africa since formal independence. We find clear evidence for the downside: ethnic stacking is associated with more frequent defection if out-group members are still dominant in the armed forces. We find more limited support for the hypothesized payoff. Ethnic stacking may reduce the risk of defection, but only in regimes without a recent history of coup attempts. Future research should therefore trace the solidification of ethnic stacking over time.

Impact of Privacy Issues on Successful Implementation of Personalized Medicare System

2019 ◽  
Vol 10 (3) ◽  
pp. 96-115
Author(s):  
Sandip Bisui ◽  
Subhas C. Misra
Keyword(s):  
Large Scale ◽  
Healthcare Management ◽  
Genomic Variation ◽  
Successful Implementation ◽  
Related Factors ◽  
Privacy Concerns ◽  
Novel Approach ◽  
Impact Of Technology ◽  
The Impact ◽  
Privacy Issues

Personalized medicare systems is an emerging field of research, which bears the potential to significantly reduce healthcare expenditures and treatment errors and thereby to revolutionize the entire treatment procedure. In this novel approach, genomic variation in different individuals is duly taken into consideration. However, there exist several serious issues (e.g. privacy concerns) that provide hindrance to large-scale adoption of this medicare system. The main objective of this study has been to identify the privacy issues and to evaluate their impact on successful implementation of this novel medical treatment. The methodology used is empirical and is based on a survey-based post facto procedure. The data collected from the survey are analyzed by using the method of structural modelling analysis. This is an original study in the realm of healthcare management, which reveals that the technology related factors and privacy concerns have considerable impact on the successful implementation of personalized medicare system on a large scale. But the privacy concerns have no significant moderating effect on the impact of technology related factors, so far, the success of implementation of personalized medicine is concerned.

Human Influences on Wildfire in Alaska from 1988 through 2005: An Analysis of the Spatial Patterns of Human Impacts

2008 ◽  
Vol 12 (1) ◽  
pp. 1-17 ◽  
Author(s):  
M. P. Calef ◽  
A. D. McGuire ◽  
F. S. Chapin
Keyword(s):  
Prediction Model ◽  
Boreal Forest ◽  
Large Scale ◽  
Fire Regime ◽  
Human Impacts ◽  
Future Research ◽  
Human Presence ◽  
Area Burned ◽  
Interior Alaska ◽  
The Impact

Abstract Boreal ecosystems in Alaska are responding to climate change in many ways, including changes in the fire regime. While large-scale wildfires are an essential part of the boreal forest ecosystem, humans are changing fire regimes through ignition and suppression. The authors analyzed the impact humans have on fire ignitions and relative area burned with distance into the forest from human access points such as settlements, highways, and major rivers in Alaska from 1988 to 2005. Additionally, a fire prediction model was created to identify drivers for lightning fires in the boreal forest. Human presence increases the number of ignitions near settlements, roads, and rivers and appears to reduce the area burned within 30–40 km of villages and rivers. In contrast to fires near roads and rivers, human presence may somewhat increase the area burned within 30–40 km of highways. The fire prediction model indicated that the probability of fire increases as distance from human settlements increases. In contrast, the model indicated that the probability of fire decreases as distance from roads increases and that the probability of fire in relation to distance from rivers depends on the year of analysis. While the ecological consequences of these human impacts are still unclear, this research shows that human influences on fire regime clearly affect the pattern of fire within 40 km of settlements, which is an area that represents 31% of interior Alaska. Future research should focus on more completely understanding the role of human presence in the suppression of wildfires in interior Alaska.

scholarly journals Exploring the impact of ineligibility on individuals expressing interest in a trial aimed at improving daily functioning regarding perceptions of self, research and likelihood of future participation

2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Christopher P. Dwyer ◽  
Helen McAneney ◽  
Fionnuala M. Rogers ◽  
Robert Joyce ◽  
Sinéad M. Hynes
Keyword(s):  
Daily Functioning ◽  
Future Research ◽  
Telephone Interviews ◽  
Self Perceptions ◽  
Change Perceptions ◽  
Emotional Outcomes ◽  
Perceptions And Attitudes ◽  
Helping Others ◽  
The Impact ◽  
Research Studies

Abstract Background Eligibility guidelines in research trials are necessary to minimise confounds and reduce bias in the interpretation of potential treatment effects. There is limited extant research investigating how being deemed ineligible for such trials might impact patients’ perceptions of themselves and of research. Better understanding of the impact of patient ineligibility could enhance design and implementation of future research studies. Methods Eight semi-structured telephone interviews were conducted to explore the impact of ineligibility on self-perceptions; perceptions regarding the nature of research; and the likelihood of expressing interest in future research. Data were collected and analysed thematically through inductive, interpretive phenomenological analysis (IPA). Results Five themes emerged regarding the experience of being deemed ineligible: (1) Being deemed ineligible is emotion and reaction evoking; (2) ‘Doing your bit’: Helping others and increasing the value of research; (3) Communication of ineligibility; (4) Appreciation for those who express interest; and (5) Subsequent perceptions and attitudes towards research. Conclusions The results suggest that being deemed ineligible can elicit negative emotional outcomes but is not likely to change perceptions of or attitudes towards research, possibly due to a desire to help similar others. Ineligibility can impact future participation in some cases, thus reducing the recruitment pool for subsequent research studies. Recommendations are provided to help minimise this risk. Advising of ineligibility in a personal way is recommended: with enhanced clarity regarding the reasoning behind the decision; providing opportunities to ask questions; and ensuring that appreciation for the patient’s time and interest are communicated.

Sign in / Sign up

Export Citation Format

Share Document