P1854SOCIAL NETWORK AS A SOURCE OF HEALTH EDUCATION IN NEPHROLOGY: THE CASE OF RENAL HEALTH INSTAGRAM

Abstract Background and Aims Chronic kidney disease (CKD) have been affecting a large number of patients worldwide and presents increasing numbers. Beyond professional intervention, it is extremely necessary to have patients’ involvement in treatment. One useful way to disseminate CKD knowledge is the social network, through which we can not only reach a large public interested on the posts, but also influence the routine quality of a CKD patient. The aim of this study is to present the creation of an Instagram profile named “Renal Health”, which focuses on providing specific information for patients with CKD to help them improve the quality of treatment results and maintain a healthy lifestyle, as well as to analyze the spontaneous comments and feedbacks received from its followers. Method The Renal Health project started in 2015, in Fortaleza, Brazil, aiming to create technological tools to help CKD patients cope with the disease and increase adherence to treatment. The research team has a multi-professional background, from Health, Information Technology, Computer Science and Communication fields, and also aims to create educational tools to increase health literacy focusing on kidney disease and its prevention. An Instagram profile (https://www.youtube.com/channel/UC3-GHeHAndcrRmbE4I_qE_w) have been created to provide people with access to these specialized contents. Within that context, we collected spontaneous comments and feedbacks from 4,229 followers from the Renal Health Instagram posts from June 2018 (when the profile was created) to December 2019. Results We have reached a total of 4,229 followers. There were 505 posts, 16 (3.16%) about medication, 65 (12.87%) about nutrition, 12 (2.3%) about physical exercise, 132 (26.13%) about kidney disease and comorbidities, 82 (16.23%) about CKD treatment, 61 (12.07%) about kidney transplant and organ donation, and 137 (27.12 %) about other subjects, including motivational messages. Of a total of 1,560 comments, we have identified 543 profiles, of these 88 (16.2%) were men, and 412 (75.8%) women, noting the prevalence of women among the comments made. Among those comments, 223 were regarding congratulations on the profile. We have identified 99 patients with kidney diseases, mainly CKD; 81 (81.81%) spontaneously reported their illnesses in their comments, being 46 (56.8%) on dialysis, 13 (16.4%) transplanted patients, 5 (6.7%) glomerulonephritis, 4 (4.9%) kidney stones and 4 (4.9%) renal cysts. In the group of 46 patients on dialysis, we have identified 105 comments, of which 14 were regarding the value of the information on the posts, followed by 71 comments on personal experiences on the subject and 20 comments containing questions about the topic, which we had prompt answered. Among the group of 13 renal transplanted patients, 12 comments demonstrated their happiness after the transplant and their experiences on the subject, and 1 comment containing a question about kidney transplant. We have also identified other health professionals interacting with the profile, declaring that it was helpful to guide their patients. Furthermore, this platform had crossed the borders, being identified comments by people from around the world, such as other South American countries, the Middle East and Europe. The most recent posts can be seen in Figure 1. Conclusion Through the analysis of the comments we noticed the possibility of better knowing the followers of the project, enabling the development of personalized information for each patient. Social networks, such as the Instagram, seem to be great tools for health education and interaction between health care team and patients. In addition, the use of digital platforms to share trusted health information can reach a broad audience.

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Oxford Desk Reference Nephrology

10.1093/med/9780198777182.001.0001 ◽

2021 ◽

Keyword(s):

Chronic Kidney Disease ◽

Kidney Disease ◽

Kidney Transplant ◽

Kidney Diseases ◽

Medical Problems ◽

Adult Kidney ◽

Number Of Patients ◽

The World ◽

Patients Experience ◽

Desk Reference

Written for the busy nephrologist and internist who need easy to access information on the diagnosis, investigation, and treatment of patients with kidney disease, the Oxford Desk Reference Nephrology is presented in a way that is not only easy to read and digest but also is detailed enough to allow an in depth understanding of the complex mix of metabolic, immunological, and genetic causes of both acute and chronic kidney disease. The kidneys are rarely affected by disease in isolation; the book comprehensively covers the multisystem disorders that require a multidisciplinary approach, including the cardiological, rheumatological, haematological, infectious, oncological, and urological aspects of kidney disease. In parallel, it extensively describes the myriad multisystem complications of progressive chronic kidney disease with practical advice on how these should be investigated and managed. The importance of understanding the evolution of kidney disease in children and young adults is covered, as in many parts of the world there is no distinction between adult and paediatric nephrology. Therefore, it is important that nephrologists have a sound grasp of both paediatric and adult kidney diseases. The number of patients with advanced kidney disease treated with a kidney transplant or receiving dialysis is increasing in all parts of the world. All nephrologists will manage patients on dialysis or who have a kidney transplant and all internists will encounter these patients. Thus, it is imperative that they have an understanding of these treatments and the commonly encountered medical problems such patients experience.

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MUSCULOSKELETAL ULTRASOUND ABNORMALITIES IN PATIENTS ON DIALYSIS, COMPARED TO PATIENTS WITH PRE-DIALYSIS STAGE CHRONIC KIDNEY DISEASE

Romanian Journal of Rheumatology ◽

10.37897/rjr.2017.4.6 ◽

2017 ◽

Vol 26 (4) ◽

pp. 169-172

Author(s):

Raluca-Daniela Decianu ◽

◽

Mihai Bojinca ◽

Cristina Capusa ◽

Violeta-Claudia Bojinca ◽

...

Keyword(s):

Chronic Kidney Disease ◽

Kidney Disease ◽

Control Group ◽

Study Group ◽

Joint Function ◽

Number Of Patients ◽

The Subject ◽

Few Data ◽

A Prospective Study

Background. The musculoskeletal system is deeply involved in patients with CKD on dialysis. The studies that were done by now with regarding this subject mostly aimed the bone metabolism.So far, there is few data on the subject concerning the articular and abarticular abnormalities in dialysed patients(1). Objectives. To indentify the musculoskeletal soft tissue abnormities associated to dialysis and to evaluate whether or not they are more frequent. Also, we set ourselves to point out the importance of detecting these anomalies early in the evolution, in order to preserve the joint function and the quality of life, in a category of patients already severely affected. Materials and methods. This is a prospective study, ran on a period of 4 months. We included 55 patients ( 32 in the study group – on dialysis, 23 in the control group – late stage pre-dialysis chronic kidney disease). For each patient, we evaluated 68 joints using ultrasonography. Also, a visual analogue scale for pain was applied for each patient. Results. The findings vary from median nerve entrapment and tendon calcifications, to usual degenerative abnormalities, synovitis and tenosynovitis. The type of abnormalities does not vary between the two groups, but the percent of the affected patients was much higher in the study group. Conclusions. A great number of patients from the study group presented important articular and mostly abarticular abnormalities, sometimes with no correlation with the algofunctional symptoms.

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Quality of life and spirituality of patients with chronic kidney disease: pre- and post-transplant analysis

Revista Brasileira de Enfermagem ◽

10.1590/0034-7167-2019-0408 ◽

2020 ◽

Vol 73 (suppl 5) ◽

Author(s):

Letícia Meazzini de Olivera ◽

Meiry Fernanda Pinto Okuno ◽

Dulce Aparecida Barbosa ◽

Ricardo de Castro Cintra Sesso ◽

Gerson Scherrer Júnior ◽

...

Keyword(s):

Quality Of Life ◽

Chronic Kidney Disease ◽

Peritoneal Dialysis ◽

Kidney Disease ◽

Kidney Transplant ◽

Disease Burden ◽

Four Dimensions ◽

Post Transplant ◽

Transplant Patients

ABSTRACT Objective: to compare the quality of life (QoL) of patients under dialysis and after kidney transplant; correlate the QoL of transplant patients to sociodemographic, morbid and spirituality/religiosity variables. Method: prospective study with a quantitative approach, with a sample of 27 patients who underwent peritoneal dialysis or dialysis undergoing kidney transplant. QoL and spirituality were assessed by the KDQOL-SF and WHOQOL-SRPB tools, being correlated with sociodemographic and economic variables. Results: the dimensions of total mental component, kidney disease effects and kidney disease burden showed significant improvement in the post-transplant period, with p <0.0004. There was a significant correlation between four dimensions of spirituality and seven dimensions of QoL; p ranged from 0.04 to 0.006. Conclusion: there was a significant improvement in QoL in the post-transplant period. The dimensions of spirituality: wholeness and integration, spiritual connection, wonder and inner peace were positively correlated with seven dimensions of QoL.

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Impact of First Dialysis Modality on Outcome of Patients Contraindicated for Kidney Transplant

Peritoneal Dialysis International ◽

10.1177/089686080602600220 ◽

2006 ◽

Vol 26 (2) ◽

pp. 231-239 ◽

Cited By ~ 29

Author(s):

Luc Frimat ◽

Pierre-Yves Durand ◽

Carole Loos–Ayav ◽

Emmanuel Villar ◽

Victor Panescu ◽

...

Keyword(s):

Quality Of Life ◽

Kidney Disease ◽

Renal Disease ◽

Kidney Transplant ◽

End Stage Renal Disease ◽

Role Limitation ◽

Stage Renal Disease ◽

End Stage ◽

Incident Cases

Background We compared, in patients contraindicated for kidney transplant, outcomes between those patients who were only on hemodialysis (HD) and those who were given peritoneal dialysis (PD) as first renal replacement therapy (RRT). Design Prospective, population-based cohort study of incident cases of end-stage renal disease between June 1997 and June 1999. Setting A network of dialysis care: NEPHROLOR, that is, all the renal units in Lorraine, one of the 22 French administrative regions (population over 2.3 million people). Participants 387 patients were contraindicated for kidney transplant during the first 2 years of RRT: 284 were on HD, 103 on PD. Mean age was 67.6 ± 11.3 years for HD patients and 70.8 ± 11.4 years for PD patients ( p = 0.015). Main Outcome Measures Mortality until June 2003, hospitalization over the 2 first years of RRT, and Kidney Disease and Quality of Life Short Form (KDQOL-SF) 6 and 12 months after initiation of RRT. Results HD patients were more likely to die from cardiac or cerebrovascular causes, PD from cachexia or withdrawal from dialysis. Whatever mode of RRT, the unadjusted 2-year and 5-year survival rates were similar ( p = 0.98). The rate of total duration of hospital stay per month of RRT was similar in HD and PD groups: 2.7 ± 4.5 and 2.9 ± 4.2 days respectively ( p = 0.7). PD was associated with better quality of life than HD. The dimensions Role limitation due to emotional function, Burden of kidney disease, and Role limitation due to physical function ranked first, second, and third for PD. Conclusion In Lorraine, end-stage renal disease patients who were given PD as first-line RRT had no excess of death risk or hospitalizations, and better quality of life the first year of RRT.

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QUALIDADE DE VIDA DE RENAIS CRÔNICOS SUBMETIDOS À HEMODIÁLISE*

Revista de Enfermagem UFPE on line ◽

10.5205/1981-8963.2021.246184 ◽

2021 ◽

Vol 15 (1) ◽

Author(s):

Jarinna Lalleska da Costa Souza Costa BARBOSA ◽

Ryanne Carolynne Marques Gomes Marques Mendes ◽

Marta Nunes Lira Nunes Lira ◽

Mariana Boulitreau Siqueira Campos Siqueira Barros ◽

Solange Queiroga Serrano Queiroga Serrano

Keyword(s):

Quality Of Life ◽

Kidney Disease ◽

Renal Insufficiency ◽

Kidney Diseases ◽

Short Form ◽

Calidad De Vida ◽

Sf 36

Objetivo: avaliar a qualidade de vida dos pacientes renais crônicos submetidos à hemodiálise e caracterizar os aspectos demográficos. Método: trata-se de um estudo quantitativo, descritivo, transversal, realizado com 137 pacientes renais crônicos em tratamento hemodialítico. Coletaram-se os dados por meio de um questionário semiestruturado e do instrumento de avaliação de qualidade de vida para pacientes renais crônicos Kidney Disease and Quality of Life Short Form (KDQOL SF-36). Analisaram-se os dados no software EpiInfo, versão 7.2, recorrendo-se à análise estatística descritiva para a caracterização dos sujeitos. Compararam-se o escore de qualidade de vida e a escolaridade dos pacientes por meio do teste Kruskall-Wallis. Resultados: mostrou-se a qualidade de vida comprometida nos domínios Situação Profissional, Função Física, Função Emocional, Sobrecarga da Doença Renal e Funcionamento Físico. Conclusão: observou-se que os pacientes renais crônicos em tratamento hemodialítico apresentaram a redução da qualidade de vida em alguns domínios. Torna-se relevante referenciar a necessidade de uma equipe multidisciplinar para se intervir nos fatores físicos e psicológicos desses pacientes para se melhorar a qualidade de vida deles.Descritores: Enfermagem; Insuficiência Renal Crônica; Nefrologia; Nefropatia; Qualidade de Vida; Diálise Renal.Descriptors: Nursing; Renal Insufficiency Chronic; Nephrology; Kidney Diseases; Quality of Life; Renal Dialysis.Descriptores: Enfermería; Insuficiencia Renal Crónica; Nefroligía; Enfermedades Renales; Calidad de Vida; Diálisis Renal.

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Relationship between xerosis and pruritus in patients with chronic kidney disease

Postępy Higieny i Medycyny Doświadczalnej ◽

10.5604/01.3001.0010.7614 ◽

2017 ◽

Vol 71 (0) ◽

pp. 0-0

Author(s):

Katarzyna Kiliś-Pstrusińska ◽

Elżbieta Wojtowicz-Prus ◽

Jacek Szepietowski

Keyword(s):

Chronic Kidney Disease ◽

Kidney Disease ◽

Kidney Diseases ◽

Treatment Options ◽

Skin Lesions ◽

Chronic Kidney Diseases ◽

Skin Changes ◽

Uremic Pruritus ◽

Common Skin

Xerosis and pruritus are the most common skin disorders in patients with chronic kidney diseases (CKD). The prevalence and intensity of those skin changes are higher in patients undergoing dialysis, independent of its type, compared to patients treated conservatively. However, they can occur even in the early stages of CKD and be very bothersome for the sufferers. The problem of dry skin in CKD patients, its characteristics, reasons and relationship between xerosis and pruritus have been described. The current views on the pathogenesis of chronic kidney disease-associated pruritus (CKD-P), formerly known as uremic pruritus, have been discussed. This article summarizes the available treatment options for CKD-P, including both topical and systemic therapies. The authors direct attention to the need for skin lesions treatment in order to prevent their progression and to improve the quality of patients’ life.

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Health Education Through a Campaign and mHealth to Enhance Knowledge and Quality of Life Among Patients With Chronic Kidney Disease in Bangladesh: Protocol for a Randomized Controlled Trial (Preprint)

10.2196/preprints.30191 ◽

2021 ◽

Author(s):

Mohammad Habibur Rahman Sarker ◽

Michiko Moriyama ◽

Harun Ur Rashid ◽

Md Moshiur Rahman ◽

Mohammod Jobayer Chisti ◽

...

Keyword(s):

Quality Of Life ◽

Chronic Kidney Disease ◽

Randomized Controlled Trial ◽

Kidney Disease ◽

Health Education ◽

Controlled Trial ◽

Intervention Group ◽

Control Group ◽

Randomized Controlled

BACKGROUND Despite the growing burden of chronic kidney disease (CKD), disease knowledge and understanding are still lacking, especially in Bangladesh. OBJECTIVE The aim of this study was to evaluate the outcome of a health education intervention in order to enhance knowledge, health-related quality of life (QOL), and motivation regarding healthy lifestyles among rural and periurban adults suffering from CKD. METHODS A parallel-group (1:1) randomized controlled trial is ongoing in the Mirzapur subdistrict, Bangladesh, where two groups of patients with CKD are being compared. Patients aged 18 years and over with CKD (stages 1-3) were enrolled in November 2020. Patients were randomly allocated into either the intervention group (n=63) or the control group (n=63). The control group received usual treatment, while the intervention group received health education through a CKD campaign facilitated by a nephrologist and via mHealth (ie, periodic mobile phone calls) from community health workers. Both groups were followed up for a period of 6 months. The primary endpoint is patients’ increased knowledge measured using the Chronic Kidney Disease Knowledge Questionnaire. The secondary endpoints are improved QOL measured using the standardized EuroQol 5-Dimension 5-Level (EQ-5D-5L) questionnaire as well as improvements in the levels of blood pressure, BMI, serum creatinine, fasting blood sugar, hemoglobin, cholesterol, high-density lipoprotein cholesterol, triglyceride, serum uric acid, blood urea nitrogen, and albumin to creatinine ratio. RESULTS Enrollment of participants began in November 2020; the intervention and follow-up were completed in May 2021. We enrolled 126 patients in the study. Patients’ mean ages were 57.97 (SD 15.03) years in the control group and 57.32 (SD 14.37) years in the intervention group. There were 45 out of 63 (71%) females in the control group and 38 out of 63 (60%) females in the intervention group. In addition, there were 38 out of 63 (60%) literate patients in the control group and 33 out of 63 (52%) literate patients in the intervention group. CONCLUSIONS It is expected that a combined approach, incorporating both a CKD campaign and mHealth, for health education may be an effective tool for increasing knowledge and improving QOL among patients with CKD. CLINICALTRIAL ClinicalTrials.gov NCT04094831; https://clinicaltrials.gov/ct2/show/NCT04094831 INTERNATIONAL REGISTERED REPORT DERR1-10.2196/30191

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MO809DOES LISTENING TO LIVE MUSIC DURING HEMODIALYSIS SESIONS AFFECT THE QUALITY OF LIFE?*

Nephrology Dialysis Transplantation ◽

10.1093/ndt/gfab098.001 ◽

2021 ◽

Vol 36 (Supplement_1) ◽

Author(s):

Miriam Serrano ◽

Alicia Garcia-Testal ◽

Inmaculada Rico-Salvador ◽

Conrado Carrrascosa López ◽

Rafael Ortiz Ramón ◽

...

Keyword(s):

Quality Of Life ◽

Chronic Kidney Disease ◽

Kidney Disease ◽

Classical Music ◽

Scale Effects ◽

Kidney Diseases ◽

Well Being ◽

Control Group ◽

Mean Time

Abstract Background and Aims Patients with chronic kidney disease on hemodialysis (HD) treatment have a health-related quality of life (HRQoL) lower than the reference values of the Spanish population. Previous studies have shown through music therapy reduce levels of pain, anxiety and depression in chronic kidney disease patients on hemodialysis. This study presents an intervention with classical music performed live during HD sessions. It is the first time to study the effect of classical music heard live on HRQL. Method Randomized clinical trial by groups. 90 patients agreed to participate. They were randomized into an intervention group (IG) and a control group (CG). The IG listened to 30/45 minutes of live classical music in two of the three weekly HD sessions for 1 month. The CG followed his usual treatment. Different individual scales of the quality of life test in kidney diseases (KDQOL-SF) were analyzed, in two times, baseline (Start) and after (End) the musical intervention in both groups. The analysis was performed using a mixed linear regression model for repeated measures with independent variables (age, sex, months in HD, Kt/v, Hemoglobin (Hb)) and dependent variables (individual KDQOL-SF scale scores). Results The CG sample included 43 patients with a mean age of 75.8 years; 22 women (51%); mean Kt/v 1.53; mean Hb 11.5 and mean time on HD 60.46 months. The GI sample included 47 patients with a mean age of 73.53 years; 18 women (38%); mean Kt/v 1.47; mean Hb 11.3 and mean time on HD 63.34 months. The results show that after the intervention, IG vs CG increased the mean score (pm) in all the scales significantly. The End time and GI interaction showed a mean score increase of 15.78 (p <0.001) for the Symptoms/problems scale; 14.96 (p <0.001) scale Effects of kidney disease; 16.36 (p <0.001) on the Kidney disease burden scale; 14.78 (p <0.001) on the Sleep scale; 25.46 (p <0.001) on the Vitality scale; 29.57 (p <0.001) on the Emotional well-being scale; 41.92 (p <0.001) on the Pain scale and 23.39 (p <0.001) on the General Health scale. Conclusion Live classical music intervention during hemodialysis sessions improves self-perceived HRQL in patients with chronic kidney disease on HD

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Health education for disease prevention: a review of the literature

Panorama brasileiro de tungstênio (w) entre os anos de 2008 e 2014 ◽

10.32749/nucleodoconhecimento.com.br/health/education-for-disease ◽

2021 ◽

pp. 134-147

Author(s):

José Valdeci Almeida Gitirana ◽

Rosa Maria Batista Pinheiro da Fonseca ◽

Fábio Marmentini Piloneto ◽

Luis Felipe Gaia Bevilaqua ◽

Ingrid de Assis ◽

...

Keyword(s):

Health Education ◽

Disease Prevention ◽

Preventive Measures ◽

School Curriculum ◽

Health Centers ◽

Main Question ◽

Government Programs ◽

The Subject ◽

Self Knowledge

Currently public policies, government actions and different programs involving Health Education (HE) are carried out in favor of population health. With regard to the theme of HE, this is a multifaceted theme, convergent to various personal conceptions, whether in the area of education or health, which may result in divergent understandings. Due to the complexity of the theme, the problem occurs due to the lack of understanding of what is really population-facing HE, dissolving the importance of HE for preventive measures against different diseases, which generates a high budgetary cost in public health. In view of this context, this article has as its main question: How can health education contribute to the prevention of diseases in the population? The study aimed to present the HE for Disease Prevention (DP), branching out in addressing its concepts, as well as highlighting the legal bases that ensure the HE to the population. To this end, the study was conducted through a literature review by the search sites "Google Scholar", "Scielo" and "PubMed". Through the descriptors: Health Education; Health education as disease prevention; Health Education for the population, where studies were chosen that presented the HE focused on DP. It is concluded that The HE is the education for self-knowledge and reflection on their own health, as well as the full awareness that something goes wrong, attributing the critical reflection of the subject regarding their habits and preventive measures. It is applied through the school curriculum from primary school as well as by government programs in health centers, in order to educate society to raise awareness about preventive measures and promote a better quality of life, thus preventing the spread of diseases.

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