The Significant Interest View

2021 ◽  
pp. 55-80
Author(s):  
Daniel Groll
Keyword(s):  
Well Being ◽  
Genetic Knowledge ◽  
Significant Interest

This chapter presents the Significant Interest view, which aims to show that people who intend to conceive a child with donated gametes have a weighty reason to use an open donor. According to the Significant Interest view, the fact that a donor-conceived person is likely to be very interested in acquiring genetic knowledge gives intended parents a weighty reason to use an open donor. This is because parents ought to promote their children’s well-being by helping satisfy their child’s worthwhile significant interests, and a donor-conceived person’s interest in genetic knowledge is one such interest. This chapter explains what it means for an interest to be significant and worthwhile, the role that parents can legitimately play in shaping a child’s significant interests, and what the connection is between a person’s well-being and the satisfaction of their significant interests.

The Bionormative Prejudice

2021 ◽  
pp. 119-149
Author(s):  
Daniel Groll
Keyword(s):  
Genetic Knowledge ◽  
Ideal Family ◽  
Significant Interest ◽  
The Ideal

This chapter presents, and responds to, an objection to the Significant Interest view which claims that people’s interest in acquiring genetic knowledge is not worthwhile because it is insidiously morally problematic. What makes it insidiously morally problematic, according to this objection, is that the interest in genetic knowledge both reflects and further entrenches bionormative prejudice, i.e. a form of prejudice which maintains that the ideal family is one where parents are genetically related to their children. The author responds by showing that even though bionormative prejudice is prevalent in society, it does not undermine the value of people’s interest in genetic knowledge.

The Strange Coincidence of Gregor Mendel and Louis Pasteur: Both Scientific Geniuses Were Born in 1822

1995 ◽  
Vol 44 (2) ◽  
pp. 57-61
Author(s):  
Luigi Gedda
Keyword(s):  
Nineteenth Century ◽  
Twentieth Century ◽  
Life Span ◽  
Well Being ◽  
Scientific Understanding ◽  
Human Reproduction ◽  
Genetic Knowledge ◽  
Gregor Mendel ◽  
The Way

This year, the French are commemorating the centenary of the death of their distinguished countryman Louis Pasteur, chemist and bacteriologist. Yet few people in France or elsewhere will be aware of a fact which I recently discovered: Louis Pasteur and the Czech geneticist Gregor Mendel were born in the same year - 1822. That Pasteur and Mendel are exact contemporaries is a most significant coincidence, for their respective careers symbolize the parallel and contiguous development of medical and genetic knowledge in the nineteenth century. This in turn paved the way for man to discuss, investigate, increase and spread understanding of human reproduction, disease and life-span, and to utilize scientific understanding of these subjects to increase the well-being of mankind in the twentieth century. Indeed, the human relevance of these biomedical discoveries caused them to eclipse those of other branches of knowledge in this century.

Conceiving People

2021 ◽  
Author(s):  
Daniel Groll
Keyword(s):  
United States ◽  
The United States ◽  
Genetic Knowledge ◽  
Gamete Donation ◽  
The World ◽  
Significant Interest

Each year, tens of thousands of children are conceived with donated sperm or eggs, aka donated gametes. By some estimates, there are over 1 million donor-conceived people in the United States and, of course, many more the world over. Some know they are donor-conceived. Some don’t. Some know the identity of their donors. Others never will. Conceiving People: Identity, Genetics and Gamete Donation argues that people who plan to create a child with donated gametes should choose a donor whose identity will be made available to the resulting child. This is not because having genetic knowledge is fundamentally important. Rather, it is because donor-conceived people are likely to develop a significant interest in having genetic knowledge and parents must help satisfy their children’s significant interests. In other words: because a donor-conceived person is likely to care about having genetic knowledge, their parents should care too. Questions about what the donor-conceived should know about their genetic progenitors are hugely significant for literally millions of people, including donor-conceived people, their parents, and donors. But the practice of gamete donation also provides a vivid occasion for thinking about questions that matter to everyone. What value, if any, is there in knowing who your genetic progenitors are? To what extent are our identities bound up with knowing where we come from? What obligations do parents have to their children? And what makes someone a parent—the person responsible for lovingly raising a child—in the first place?

The Relationship Between Hearing Loss Self-Management and Hearing Aid Benefit and Satisfaction

2019 ◽  
Vol 28 (2) ◽  
pp. 274-284 ◽  
Author(s):  
Elizabeth Convery ◽  
Gitte Keidser ◽  
Louise Hickson ◽  
Carly Meyer
Keyword(s):  
Decision Making ◽  
Hearing Loss ◽  
Hearing Aids ◽  
Clinical Decision Making ◽  
Hearing Aid ◽  
Well Being ◽  
Self Report ◽  
Self Management ◽  
Hearing Aid Benefit ◽  
The Relationship

Purpose Hearing loss self-management refers to the knowledge and skills people use to manage the effects of hearing loss on all aspects of their daily lives. The purpose of this study was to investigate the relationship between self-reported hearing loss self-management and hearing aid benefit and satisfaction. Method Thirty-seven adults with hearing loss, all of whom were current users of bilateral hearing aids, participated in this observational study. The participants completed self-report inventories probing their hearing loss self-management and hearing aid benefit and satisfaction. Correlation analysis was used to investigate the relationship between individual domains of hearing loss self-management and hearing aid benefit and satisfaction. Results Participants who reported better self-management of the effects of their hearing loss on their emotional well-being and social participation were more likely to report less aided listening difficulty in noisy and reverberant environments and greater satisfaction with the effect of their hearing aids on their self-image. Participants who reported better self-management in the areas of adhering to treatment, participating in shared decision making, accessing services and resources, attending appointments, and monitoring for changes in their hearing and functional status were more likely to report greater satisfaction with the sound quality and performance of their hearing aids. Conclusion Study findings highlight the potential for using information about a patient's hearing loss self-management in different domains as part of clinical decision making and management planning.

Inclusion of Transgender Voice and Communication Training in a University Clinic

2017 ◽  
Vol 2 (10) ◽  
pp. 109-115 ◽  
Author(s):  
Jennifer Oates ◽  
Georgia Dacakis
Keyword(s):  
Training Program ◽  
Clinical Education ◽  
Well Being ◽  
Evidence Base ◽  
Communication Training ◽  
Speech Language Pathology ◽  
Transgender People ◽  
Language Pathology ◽  
Effectiveness Of Training ◽  
Negative Impacts

Because of the increasing number of transgender people requesting speech-language pathology services, because having gender-incongruent voice and communication has major negative impacts on an individual's social participation and well-being, and because voice and communication training is supported by an improving evidence-base, it is becoming more common for universities to include transgender-specific theoretical and clinical components in their speech-language pathology programs. This paper describes the theoretical and clinical education provided to speech-language pathology students at La Trobe University in Australia, with a particular focus on the voice and communication training program offered by the La Trobe Communication Clinic. Further research is required to determine the outcomes of the clinic's training program in terms of student confidence and competence as well as the effectiveness of training for transgender clients.

Improving Feeding Outcomes in the NICU: Moving From Volume-Driven to Infant-Driven Feeding

2010 ◽  
Vol 19 (3) ◽  
pp. 68-74 ◽  
Author(s):  
Catherine S. Shaker
Keyword(s):  
Intensive Care Unit ◽  
Dynamic Systems ◽  
Neonatal Intensive Care ◽  
Well Being ◽  
Dynamic Systems Theory ◽  
Feeding Problems ◽  
Care Giving ◽  
Extremely Preterm ◽  
Extremely Preterm Infants

Current research on feeding outcomes after discharge from the neonatal intensive care unit (NICU) suggests a need to critically look at the early underpinnings of persistent feeding problems in extremely preterm infants. Concepts of dynamic systems theory and sensitive care-giving are used to describe the specialized needs of this fragile population related to the emergence of safe and successful feeding and swallowing. Focusing on the infant as a co-regulatory partner and embracing a framework of an infant-driven, versus volume-driven, feeding approach are highlighted as best supporting the preterm infant's developmental strivings and long-term well-being.

Sign in / Sign up

Export Citation Format

Share Document