Alzheimer’s Disease: The Subjective Experience

Author(s):  
Steven R. Sabat

The biomedical approach to Alzheimer’s disease (AD) and dementia in general during most of the 20th century limited the general public’s knowledge about AD primarily to what was wrong with people, and those diagnosed were often described in the mass media as “empty shells.” Thus,...

2019 ◽  
Vol 42 ◽  
Author(s):  
Dimitrios Kapogiannis ◽  
Mohamad El Haj

Abstract Although the integrative memory model proposed by Bastin et al. is interesting, particularly for Alzheimer's disease, it may benefit from incorporating the subjective experience of recollection. We therefore offer complementary lines of interpretation to explain how recollection and familiarity in Alzheimer's disease can be dissociated based not only on accounts of their neural correlates but, critically, on the subjective experience of memory in patients.


Author(s):  
Pamela J. Shoemaker

One of the oldest social science theories applied to the study of communication, the gatekeeping approach emphasizes the movement of bits of information through channels, with an emphasis on decision points (gates) and decision-makers (gatekeepers). Forces on both sides of a gate can either help or hinder the information’s passage through a channel. The gatekeeping process shapes and produces various images of reality, not only because some bits of information are selected and others rejected, but because communication agents put information together in different ways. In addition, the timing and repetition of information can affect the prominence of events or topics and can influence the probability of future information diffusion. Gatekeeping was originally modeled as a series of linear processes within the mass media, but in the late 20th century the flow of information through the mass and social media began to interact. Information is now understood to flow among journalists, among social media users, and among agents of both types of media. All such communication agents are gatekeepers. In addition, we can study these networked interconnections as one level of analysis, with the supra-gatekeepers (such as Facebook or Twitter) adding their own gatekeeping processes over and beyond those of their own clients of the mass media. In addition to looking at various pairwise relationships between gatekeepers, gatekeeping theory should go beyond to instead consider the entire web of gatekeepers as a whole or system. A system is composed of elements (gatekeepers), interactions (relationships among them), and a goal or function. Multiple functions have been proposed by 20th-century scholars (such as socialization, entertainment, or surveillance) for the mass media, but scholars should now consider the function(s) of the gatekeeping system (mass and social media, as well as supra-gatekeepers) as a whole. Although each type of medium can be analyzed as its own system, such analysis would not facilitate new thinking about the various ways in which these partial systems affect one another and how the whole system functions beyond the simple addition of its parts.


2016 ◽  
Vol 1 (2) ◽  
pp. 117-121
Author(s):  
Sameer Ashaie ◽  
Marta Korytkowska

Alzheimer's disease (AD) is a progressive neurodegenerative disease that impacts memory, language, and other cognitive processes, with the prevalence of AD in the United States projected to increase to approximately 13.8 million by 2050. With the anticipated increase in AD cases and medical scientific advances, there was a need to update clinical diagnostic criteria that were established in the 20th century. The purpose of this article is to review the updated diagnostic standards to provide a framework for SLP's working with this population.


Author(s):  
Violetta V. Nazarova

We analyze the influence of the official ideology on the content of the local press. We show exactly how the influence of propaganda was reflected. Actually, it could not be otherwise, as the mass media were financed by the state. We provide examples of how the newspaper agitated, encouraged to act and dictated the only correct interpretation of certain events. At the same time, it is reflected how “Tambovskaya Pravda” became the last instance for ordinary Soviet citizens. In addition to the issues of the main regional newspaper of the 20th century, we use publications devoted to such topics as official propaganda. We note what significance the press had in the first post-war five-year plan. In addition, the impact of the Cold War on the articles content in the newspaper “Tambovskaya Pravda” was analyzed. It is noted that the mass media had influence on the formation of the enemy image in the Soviet citizens minds. Characteristic words, formulaic slogans speak about the similarity of publications. It is worth noting how the newspaper pages note labor feats and vice versa, berated for the failure of the plan and laziness. On the basis of all this, we come to the conclusion that the print media contributed to the mythologization of authorities and the growth of faith in its infallibility.


Dementia ◽  
2018 ◽  
Vol 19 (5) ◽  
pp. 1474-1491
Author(s):  
Maritza García-Toro ◽  
María Cruz Sánchez-Gómez ◽  
Lucía Madrigal Zapata ◽  
Francisco Javier Lopera

In the growing body of literature dealing with the consequences of family caregiving amongst people with dementia, there are few studies examining the impact of Early-onset Familial Alzheimer’s Disease on caregivers. This study exposes the subjective experience of a group of family caregivers who themselves possess a genetic susceptibility to develop this form of dementia. We interviewed and analyzed the accounts of 27 caregivers belonging to family lineages carrying the E280A mutation for Early-onset Alzheimer’s Disease. We utilized a phenomenological method to analyze these accounts, initially tracking seven theoretical categories (Anxiety, Depression, Burden, Resilience, Self-efficacy, Social Support, and Coping Strategies) and then subsequently two additional categories which emerged (Conceptions about the Disease and Other Vital Experiences Interfering with Caregiving). The results show that caring for a loved one while simultaneously running the risk of developing the same form of Alzheimer’s Disease permeates the caregivers’ experience both in a negative and a positive way. The continuous exposition to emotional stress in these caregivers should be seriously considered as they may be at risk of accelerating the onset of symptoms of Alzheimer’s Disease, while simultaneously, early psychological symptoms of dementia may be masked by the emotional sequelae of caregiving, interfering with early diagnosis. Certainly, support services for the entire family group are suggested.


2017 ◽  
Vol 4 (2) ◽  
pp. 149
Author(s):  
Alberto Ruiz Colmenar

<p>Architecture critique has historically used specialised publications as a dissemination channel. These publications, written by and for architects, have been of seminal importance in the creation of architectural culture in Spain. Nevertheless, this type of publication leaves out the non-specialised public, mistakenly considering them alien to these matters. In this case, the mass media has filled this space, carrying out a very important educational role. Its task has not been that of a mere dissemination of contents, but it has also provided a platform for criticism and analysis of some of the main events in Spanish architecture over the course of the 20th Century. In this study we analyse the years preceding and following the Spanish Civil War. A review of the issues that the main papers addressed—ABC and La Vanguardia—allows us to grasp what the general reader perceived during a key period in our history of architecture.</p>


2012 ◽  
Vol 27 (6) ◽  
pp. 397-405 ◽  
Author(s):  
Fang Yu ◽  
Ruth M. Swartwood

Background: The subjective experience of participating in aerobic exercise is unknown in Alzheimer’s disease (AD). Objective: The purpose of this study was to understand the subjective perceptions of the feasibility and impact of a 6-month, moderate-intensity aerobic exercise intervention by older adults with AD and their family caregivers. Methods: Ten older adults with AD who completed the intervention and their family caregivers participated in four focus group interviews. Results: Four converging themes were identified: “There was no perceived positive change in cognitive symptoms,” “The 6-month exercise program was socially rewarding,” “The 6-month exercise program increased physical strength,” and “Participation in aerobic exercise was a positive experience.” Family caregivers further identified two additional themes: “The exercise program led to improved attitude in older adults with AD” and “The exercise program reduced caregiver stress.” Discussion: Aerobic exercise is a feasible and well-perceived intervention for older adults with AD and their family caregivers.


Author(s):  
Steven R. Sabat

Alzheimer’s is swiftly on the rise: it is estimated that every 67 seconds, someone develops the disease. For many, the words ‘Alzheimer’s disease’ or ‘dementia’ immediately denote severe mental loss and, perhaps, madness. Indeed, the vast majority of media coverage of Alzheimer’s disease (AD) and other types of dementia focuses primarily on the losses experienced by people diagnosed and the terrible burden felt by care partners yearning for a "magic bullet" drug cure. Providing an accessible, question-and-answer-format primer on what touches so many lives, and yet so few of us understand, Alzheimer’s Disease and Dementia: What Everyone Needs to Know® contributes what is urgently missing from public knowledge: unsparing investigation of their causes and manifestations, and focus on the strengths possessed by people diagnosed. Steven R. Sabat mines a large body of research to convey the genetic and biological aspects of Alzheimer’s disease, its clinical history, and, most significantly, to reveal the subjective experience of those with Alzheimer’s or dementia. By clarifying the terms surrounding dementia and Alzheimer’s, which are two distinct conditions, Sabat corrects dangerous misconceptions that plague our understanding of memory dysfunction. People diagnosed with AD retain awareness, thinking ability, and sense of self; crucially, Sabat demonstrates that there are ways to facilitate communication even when the person with AD has great difficulty finding the words he or she wants to use. From years spent exploring and observing the points of view and experiences of people diagnosed, Sabat strives to inform as well as to remind readers of the respect and empathy owed to those diagnosed and living with dementia. Alzheimer’s Disease and Dementia conveys this type of information and more, which, when applied by family and professional caregivers, will help improve the quality of life of those diagnosed as well as of those who provide support and care.


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