Attitudes Toward Family-Centered Care and Clinical Decision Making in Early Intervention Among Physical Therapists

Today, healthcare has become a progressive industry with novel techniques, approaches and findings in this field quickly being evaluated and improved. One of these approaches is patient-centered care (PCC), which is defined essentially as an approach that respects and responds to individual patient’s preferences, needs and values. As such, PCC concept focuses not only on the disease, but also on leveraging specific information of a patient. PCC approach is therefore going to enlarge the role of patients and families in the process of clinical decision making. Still, the authors are observing the lack of innovation in this particular domain. In this paper, the authors develop the concept of patient knowledge management (PKM) based on customer knowledge management and PCC approaches. PKM creates many values such as decreasing opportunity costs and treatment costs, aiding patient decision making to be efficient and effective, as well as creating new knowledge and developing new treatment methods.

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Family-Centered Care: An Early Intervention Resource Manual. The American Occupational Therapy Association, Inc., Rockville, MD. Member, $48.00; Nonmember, $64.00

Journal of Early Intervention ◽

10.1177/105381519101500311 ◽

1991 ◽

Vol 15 (3) ◽

pp. 306-307

Author(s):

Migdalia Garcia ◽

Patricia Bricklin ◽

Barry Bricklin

Keyword(s):

Early Intervention ◽

Occupational Therapy ◽

Family Centered Care ◽

Resource Manual ◽

Centered Care ◽

Family Centered

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Involvement of information professionals in patient- and family-centered care initiatives: a scoping review

Journal of the Medical Library Association JMLA ◽

10.5195/jmla.2019.652 ◽

2019 ◽

Vol 107 (3) ◽

Cited By ~ 1

Author(s):

Antonio P. DeRosa ◽

Becky Baltich Nelson ◽

Diana Delgado ◽

Keith C. Mages ◽

Lily Martin ◽

...

Keyword(s):

Decision Making ◽

Patient Education ◽

Information Sharing ◽

Scoping Review ◽

Family Centered Care ◽

Information Professional ◽

Centered Care ◽

Information Professionals ◽

Data Elements ◽

Family Centered

Objective: The goal of this scoping review was to collect data on patient- and family-centered care (PFCC) programs and initiatives that have included the direct involvement of librarians and information professionals to determine how librarians are involved in PFCC and highlight opportunities for librarians to support PFCC programs.Methods: Systematic literature searches were conducted in seven scholarly databases in the information, medical, and social sciences. Studies were included if they (1) described initiatives presented explicitly as PFCC programs and (2) involved an information professional or librarian in the PFCC initiative or program. Based on the definition of PFCC provided by the Institute for Patient- and Family-Centered Care, the authors developed a custom code sheet to organize data elements into PFCC categories or initiatives and outcomes. Other extracted data elements included how the information professional became involved in the program and a narrative description of the initiatives or programs.Results: All included studies (n=12) identified patient education or information-sharing as an integral component of their PFCC initiatives. Librarians were noted to contribute to shared decision-making through direct patient consultation, provision of health literacy education, and information delivery to both provider and patient with the goal of fostering collaborative communication.Conclusions: The synthesis of available evidence to date suggests that librarians and information professionals should focus on patient education and information-sharing to support both patients or caregivers and clinical staff. The burgeoning efforts in participatory care and inclusion of patients in the decision-making process pose a unique opportunity for librarians and information professionals to offer more personalized information services.

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Parents' Views of Family-Centered Care at a Pediatric Intensive Care Unit—A Qualitative Study

Frontiers in Pediatrics ◽

10.3389/fped.2021.725040 ◽

2021 ◽

Vol 9 ◽

Author(s):

Karina Terp ◽

Janne Weis ◽

Pia Lundqvist

Keyword(s):

Intensive Care Unit ◽

Decision Making ◽

Intensive Care ◽

Pediatric Intensive Care Unit ◽

Pediatric Intensive Care ◽

Family Centered Care ◽

Centered Care ◽

Care And Treatment ◽

Family Centered ◽

Parents Experiences

Purpose: To describe parents' views of family-centered care at a pediatric intensive care unit.Design and Methods: A qualitative descriptive study with a deductive and inductive approach was conducted based on the principles of family-centered care. Inclusion criteria were parents of children cared for at a pediatric intensive care unit for at least 48 h. Parents of children who died during the hospital stay were excluded. The sample consisted of spontaneous responses from 70 parents to five open questions in the EMpowerment of PArents in THe Intensive Care questionnaire, which was completed at discharge. The spontaneous responses were analyzed using thematic analysis.Results: The analysis of the parents' statement illuminated that partnership, the essence of family-centered care, appeared incomplete. Partnership was particularly evident regarding parents' experiences of being treated with empathy and respect. It also seemed prominent in situations where the professional team provided support to the child, parents, and family. Based on the parents' statements there was potential for development of the family-centered care approach in aspects such as decision-making concerning care and treatment, as well as improving person-centered communication on order to capture parents' experiences and needs in the highly technological pediatric intensive care unit environment.Conclusions: Although in general parents were satisfied with the care, areas for improvement were identified such as participation in decision-making about care and treatment as well as person-centered communication. The results can contribute to future quality improvement interventions focusing family centered care at pediatric intensive care units.

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Strategies to Promote Evidence-Based Practice in Pediatric Physical Therapy: A Formative Evaluation Pilot Project

Physical Therapy ◽

10.2522/ptj.20080260 ◽

2009 ◽

Vol 89 (9) ◽

pp. 918-933 ◽

Cited By ~ 32

Author(s):

Joe Schreiber ◽

Perri Stern ◽

Gregory Marchetti ◽

Ingrid Provident

Keyword(s):

Decision Making ◽

Formative Evaluation ◽

Research Evidence ◽

Clinical Decision Making ◽

Evidence Based Practice ◽

Physical Therapists ◽

Pilot Project ◽

Clinical Decision ◽

Evidence Based ◽

Practice Behaviors

BackgroundThe physical therapy profession has been perceived as one that bases its practice largely on anecdotal evidence and that uses treatment techniques for which there is little scientific support. Physical therapists have been urged to increase evidence-based practice behaviors as a means to address this perception and to enhance the translation of knowledge from research evidence into clinical practice. However, little attention has been paid to the best ways in which to support clinicians’ efforts toward improving evidence-based practice.ObjectivesThe purpose of this study was to identify, implement, and evaluate the effectiveness of strategies aimed at enhancing the ability of 5 pediatric physical therapists to integrate scientific research evidence into clinical decision making.DesignThis study was a formative evaluation pilot project.MethodsThe participants in this study collaborated with the first author to identify and implement strategies and outcomes aimed at enhancing their ability to use research evidence during clinical decision making. Outcome data were analyzed with qualitative methods.ResultsThe participants were able to implement several, but not all, of the strategies and made modest self-reported improvements in evidence-based practice behaviors, such as reading journal articles and completing database searches. They identified several barriers, including a lack of time, other influences on clinical decision making, and a lack of incentives for evidence-based practice activities.ConclusionsThe pediatric physical therapists who took part in this project had positive attitudes toward evidence-based practice and made modest improvements in this area. It is critical for the profession to continue to investigate optimal strategies to aid practicing clinicians in applying research evidence to clinical decision making.

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