Evaluating Caregiver Needs and the Feasibility of an Occupational Therapy Consultation Service to Caregivers of People With Dementia in a Geriatric Ambulatory Clinic

2021 ◽  
Vol 36 (3) ◽  
pp. 203
Author(s):  
Gillian Love ◽  
Stefani Samuels ◽  
Tracey Vause Earland ◽  
Brooke Salzman
Author(s):  
Claudia Guillen-Betancort ◽  
Guillermo Da Silva-Domingo ◽  
Josefa González Santos ◽  
Raquel De la Fuente-Anuncibay ◽  
Álvaro Da Silva González ◽  
...  

Abstract.Objective: To implement an Occupational Therapy treatment in elderly people with dementia and frailtyMethod: A longitudinal study of a sample of 23 users, 14 women and 9 men aged between 71 and 92 is performed, the average age 84.66 years, users of a residence, presenting frailty and dementia. Carried out an initial assessment and final tests with Short Physical Performance Battery (SPPB) and Dementia Apathy Interview and Rating (DAIR), participants attend occupational therapy sessions.Statistical analysis: it was performed nonparametric Wilcoxon, Spearman correlation and Mann Whitney U test.Results: We observed that the levels of fragility do not improve, there is no relationship of age with frailty, the level of apathy does not decrease with the intervention, there is no difference in the score of apathy or fragility by sex.Conclusions: the results indicate a maintenance of vital functions on both scales, which can be considered beneficial when dealing with degenerative processes.Keywords: fragility, apathy, dementia of Alzheimer’s disease type, psychomotor activities.Resumen.Objetivo: Implementar un tratamiento de Terapia Ocupacional en personas mayores con demencia y fragilidadMétodo: Se realiza un estudio longitudinal sobre una muestra de 23 usuarios, 14 mujeres y 9 hombres con edades comprendidas entre 71 y 92, siendo la edad media 84.66 años, usuarios de una residencia, que presentan fragilidad y demencia. Se lleva a cabo una evaluación inicial y otra final con las pruebas Batería Corta del Desempeño Físico (SPPB) y Dementia Apathy Interview and Rating (DAIR), los participantes asisten a sesiones de Terapia Ocupacional.Análisis estadístico: se llevan a cabo pruebas no paramétricas de Wilcoxon, Correlación de Spearman y U de Mann Whitney.Resultados: se observa que los niveles de fragilidad no mejoran, que no hay relación de la edad con la fragilidad, el nivel de apatía no disminuye con la intervención, no existen diferencias en la puntuación de apatía ni fragilidad según el sexo.Conclusiones. los resultados indican un mantenimiento de las funciones vitales en ambas escalas, lo que se puede considerar beneficioso al tratarse de procesos degenerativos.Palabras clave: fragilidad, apatía, demencia tipo Alzhéimer, actividades psicomotrices.


2013 ◽  
pp. 1606-1625
Author(s):  
Clifton Phua ◽  
Patrice Claude Roy ◽  
Hamdi Aloulou ◽  
Jit Biswas ◽  
Andrei Tolstikov ◽  
...  

The work is motivated by the expanding demand and limited supply of long-term personal care for People with Dementia (PwD), and assistive technology as an alternative. Telecare allows PwD to live in the comfort of their homes for a longer time. It is challenging to have remote care in smart homes with ambient intelligence, using devices, networks, and activity and plan recognition. Our scope is limited to mostly related work on existing execution environments in smart homes, and activity and plan recognition algorithms which can be applied to PwD living in smart homes. PwD and caregiver needs are addressed in a more holistic healthcare approach, domain challenges include doctor validation and erroneous behaviour, and technical challenges include high maintenance and low accuracy. State-of-the-art devices, networks, activity and plan recognition for physical health are presented; ideas for developing mental training for mental health and social networking for social health are explored. There are two implications of this work: more needs to be done for assistive technology to improve PwD’s mental and social health, and assistive software is not highly accurate and persuasive yet. Our work applies not only to PwD, but also the elderly without dementia and people with intellectual disabilities.


BMJ Open ◽  
2019 ◽  
Vol 9 (11) ◽  
pp. e026308 ◽  
Author(s):  
Sally Bennett ◽  
Kate Laver ◽  
Sebastian Voigt-Radloff ◽  
Lori Letts ◽  
Lindy Clemson ◽  
...  

ObjectiveTo determine the effect of occupational therapy provided at home on activities of daily living, behavioural and psychological symptoms of dementia (BPSD) and quality of life (QOL) for people with dementia, and the effect on family carer burden, depression and QOL.DesignSystematic review and meta-analysis.MethodsEight databases were searched to February 2018. Randomised controlled trials of occupational therapy delivered at home for people with dementia and their family carers that measured ADL, and/or BPSD were included. Two independent reviewers determined eligibility, risk of bias and extracted data.ResultsFifteen trials were included (n=2063). Occupational therapy comprised multiple components (median=8 sessions). Compared with usual care or attention control occupational therapy resulted in improvements in the following outcomes for people with dementia: overall ADL after intervention (standardised means difference (SMD) 0.61, 95% CI 0.16 to 1.05); instrumental ADL alone (SMD 0.22, 95% CI 0.07 to 0.37; moderate quality); number of behavioural and psychological symptoms (SMD −0.32, 95% CI −0.57 to −0.08; moderate quality); and QOL (SMD 0.76, 95% CI 0.28 to 1.24) after the intervention and at follow-up (SMD 1.07, 95% CI 0.58 to 1.55). Carers reported less hours assisting the person with dementia (SMD −0.33, 95% CI −0.58 to −0.07); had less distress with behaviours (SMD −0.23, 95% CI −0.42 to −0.05; moderate quality) and improved QOL (SMD 0.99, 95% CI 0.66 to 1.33; moderate quality). Two studies compared occupational therapy with a comparison intervention and found no statistically significant results. GRADE ratings indicated evidence was very low to moderate quality.ConclusionsFindings suggest that occupational therapy provided at home may improve a range of important outcomes for people with dementia and their family carers. Health professionals could consider referring them for occupational therapy.PROSPERO registration numberCRD42011001166.


2006 ◽  
Vol 73 (4) ◽  
pp. 215-224 ◽  
Author(s):  
Denise Reid ◽  
Teresa Chiu ◽  
Gerry Sinclair ◽  
Susan Wehrmann ◽  
Zahid Naseer

2017 ◽  
Vol 38 (9) ◽  
pp. 1304-1318 ◽  
Author(s):  
Lauren R. Bangerter ◽  
Joan M. Griffin ◽  
Steven H. Zarit ◽  
Rachel Havyer

While dementia caregivers are regarded as a population with high unmet needs, there is little consensus as to how caregivers’ needs should be conceptualized and measured. This article describes how dementia caregivers’ needs are currently assessed in the scientific literature with the goal of suggesting guidelines for the enhancement of future measurement of caregiver needs. A review of 26 articles identified overarching themes within measurement approaches including variation in methodological rigor, proxy indicators of need, dual needs assessment of caregiver and person with dementia (PWD), and third-party needs assessment. We recommend future research dedicate theoretical attention to the conceptualization and classification of caregivers’ needs to build a stronger foundation for measurement. The measurement development process should capitalize on mixed-methodology and follow instrument development and validation guidelines set forth by measurement theory. Reliable and valid instruments are essential to developing services and policies that address dementia caregivers’ needs.


2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 148-149
Author(s):  
Kelly Boyd ◽  
Kate Doyle ◽  
Soo Borson ◽  
Elbert Huang ◽  
Stacy Lindau ◽  
...  

Abstract The National Alzheimer’s Project Act (PL-111-375) calls for connecting dementia caregivers to community resources, but few caregiver interventions have focused on this component of support. CRx-D is a theory-driven, scalable intervention that addresses common caregiver needs through: (1) education to normalize needs, (2) coaching on resource activation and (3) tools to promote access, including a printed list of nearby resources (“HealtheRx-D”), an online resource finder, proactive and ongoing text message support. We pretested the intervention arm of CRx-D among 10 caregivers of PWD to assess appropriateness, feasibility and fidelity. Patients presenting for care at 3 outpatient clinics were screened for eligibility, enrolled and given the intervention (12/19-01/20). Of 1,038 patients approached, 12 were caregivers of PWD; 10/12 met all eligibility criteria. All 10 eligible caregivers were enrolled in the study. Caregivers were, on average, 49 years old (range, 29-65), primarily female (n=8), Black/African American (n=9), and half were children of PWD (n=5). At baseline, several caregivers indicated unmet caregiving or health needs (caregiving education [n=7], free/affordable meals [n=5] and financial assistance [n=5]) indicating the intervention’s appropriateness. Intervention components were delivered as intended to all caregivers, although one caregiver provided a landline so could not receive texts. A scalable resource referral intervention for caregivers is appropriate. Delivery is feasible with high fidelity. Identifying caregivers at the point of their own healthcare requires high volume screening. These findings will inform a randomized controlled trial of 344 caregivers of PWD to evaluate the impact of CRx-D on caregiver self-efficacy and satisfaction with care.


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