scholarly journals Caregiver Perspectives of Pre-Transplant Evaluation in Children

2021 ◽  
Author(s):  
Eloise C. Salmon ◽  
Laura G Barr ◽  
Douglas L Hill ◽  
Judy A. Shea ◽  
Sandra Amaral
Keyword(s):  
Qualitative Study ◽  
Healthcare Systems ◽  
Transplant Recipients ◽  
Family Experience ◽  
Transplant Center ◽  
The Family ◽  
Concrete Barriers ◽  
Transplant Evaluation ◽  
Institutional Variation ◽  
Prior Experiences

Pre-transplant evaluation is mandated by Centers for Medicare and Medicaid Services, but there is wide institutional variation in implementation, and the family experience of the process is incompletely understood. Current literature largely focuses on adult transplant recipients. This qualitative study begins to fill the knowledge gap about family experience of the pre-transplant evaluation for children through interviews with caregivers at a large pediatric transplant center. Prominent themes heard from caregivers include (1) the pre-transplant evaluation is overwhelming and emotional, (2) prior experiences and background knowledge frame the evaluation experience, and (3) frustration with communication among teams is common. These findings are relevant to efforts by transplant centers to optimize information delivery, minimize concrete barriers, and address healthcare systems issues.

scholarly journals Muslim transplant recipients’ family experiences following organ transplantation

2019 ◽  
Vol 24 (5) ◽  
pp. 291-302
Author(s):  
Zahra Sheikhalipour ◽  
Vahid Zamanzadeh ◽  
Leili Borimnejad ◽  
Sarah E Newton ◽  
Leila Valizadeh
Keyword(s):  
Transplant Recipient ◽  
Organ Transplantation ◽  
Family Relationships ◽  
Organ Transplant ◽  
Phenomenological Approach ◽  
Transplant Recipients ◽  
Structured Interviews ◽  
Family Experience ◽  
Family Experiences ◽  
The Family

Background Despite the importance of family and its relationship to positive transplant outcomes, little is known about family experiences following organ transplantation from the perspective of the transplant recipients. The literature is also devoid of information that describes the family experiences of Muslim transplant recipients. Aims The purpose of this study was to describe Muslim transplant recipients’ family experiences following organ transplantation. Methods A hermeneutical phenomenological approach was employed to determine the emergent themes present in the data. The sample was composed of 12 Muslim organ transplant recipients (heart, kidney and liver) living in Iran. Semi-structured interviews were conducted with each participant. Results The primary constitutive pattern that emerged from the interview data was ‘Altered Family Relationships’ and three themes: fear in relationships, abnormal relationships, and the family at the centre of organ transplant issues. Conclusions There are several important findings in this study, notably that Muslim transplant recipients describe their family experiences following organ transplantation as ‘altered’ and not as they were pre-transplant. More research is needed that focuses on the family experience post-transplant, and how Muslim transplant recipient families are impacted by the transplant experience.

A Qualitative Study on Traumatic Experiences of Suicide Survivors

2021 ◽  
pp. 003022282110244
Author(s):  
Júlia Camargo Contessa ◽  
Carolina Stopinski Padoan ◽  
Jéssica Leandra Gonçalves da Silva ◽  
Pedro V. S. Magalhães
Keyword(s):  
Qualitative Study ◽  
Family Member ◽  
Traumatic Experience ◽  
Traumatic Experiences ◽  
Suicide Survivors ◽  
Loved One ◽  
The Family

The suicide of a loved one can be a traumatic experience. The objective of this study was to investigate trauma-related experiences of suicide survivors. This is a qualitative study with people who had recently lost a family member or a close one to suicide, conducted at least two months after the event. Forty-one participants agreed to take part in the study and were interviewed. The interviewees' perception was that suicide brought harm, symptoms, and suffering. Traumatic experiences can begin immediately after the event, with many reporting symptoms lasting many months and persistent impact, both personal and to the family. Postvention models after suicide should incorporate such findings, and investigate trauma consistently.

scholarly journals Patients' roles in governance of learning: Results from a qualitative study of 16 learning healthcare systems

2021 ◽  
Author(s):  
Rachel Grob ◽  
Katharine Gleason ◽  
Paul McLean ◽  
Sarah McGraw ◽  
Mildred Solomon ◽  
...  
Keyword(s):  
Qualitative Study ◽  
Healthcare Systems

scholarly journals Use of symptom checkers for COVID-19-related symptoms among university students: a qualitative study

2021 ◽  
pp. bmjinnov-2020-000498
Author(s):  
Stephanie Aboueid ◽  
Samantha B Meyer ◽  
James R Wallace ◽  
Shreya Mahajan ◽  
Teeyaa Nur ◽  
...  
Keyword(s):  
Young Adults ◽  
Qualitative Study ◽  
Thematic Analysis ◽  
Health Professionals ◽  
Qualitative Interviews ◽  
Healthcare Services ◽  
Healthcare Systems ◽  
Positive Experience ◽  
Perceived Credibility ◽  
Inductive Thematic Analysis

ObjectiveSymptom checkers are potentially beneficial tools during pandemics. To increase the use of the platform, perspectives of end users must be gathered. Our objectives were to understand the perspectives and experiences of young adults related to the use of symptom checkers for assessing COVID-19-related symptoms and to identify areas for improvement.MethodsWe conducted semistructured qualitative interviews with 22 young adults (18–34 years of age) at a university in Ontario, Canada. Interviews were audio-recorded, transcribed, and analysed using inductive thematic analysis.ResultsWe identified six main themes related to the decision of using a symptom checker for COVID-19 symptoms: (1) presence of symptoms or a combination of symptoms, (2) knowledge about COVID-19 symptoms, (3) fear of seeking in-person healthcare services, (4) awareness about symptom checkers, (5) paranoia and (6) curiosity. Participants who used symptom checkers shared by governmental entities reported an overall positive experience. Individuals who used non-credible sources reported suboptimal experiences due to lack of perceived credibility. Five main areas for improvement were identified: (1) information about the creators of the platform, (2) explanation of symptoms, (3) personalised experience, (4) language options, and (5) option to get tested.ConclusionsThis study suggests an increased acceptance of symptom checkers due to the perceived risks of infection associated with seeking in-person healthcare services. Symptom checkers have the potential to reduce the burden on healthcare systems and health professionals, especially during pandemics; however, these platforms could be improved to increase use.

‘We're all carrying a burden that we're not sharing’: a qualitative study of the impact of cutaneous T-cell lymphoma on the family

2015 ◽  
Vol 172 (6) ◽  
pp. 1581-1592 ◽  
Author(s):  
L.E. Selman ◽  
T. Beynon ◽  
E. Radcliffe ◽  
S. Whittaker ◽  
D. Orlowska ◽  
...  
Keyword(s):  
T Cell ◽  
Qualitative Study ◽  
Cell Lymphoma ◽  
T Cell Lymphoma ◽  
Cutaneous T Cell Lymphoma ◽  
The Family ◽  
The Impact

scholarly journals Beleweniswêreld van die straatkind in Hillbrow

Curationis ◽  
1998 ◽  
Vol 21 (1) ◽  
Author(s):  
R. Hatting ◽  
M. Poggenpoel ◽  
C.P.H. Myburgh
Keyword(s):  
Qualitative Study ◽  
Living Environment ◽  
Point Of View ◽  
Child Life ◽  
Street Child ◽  
Negative Effects ◽  
Educational Psychologist ◽  
The Family ◽  
Developmental Opportunities ◽  
Gaining Insight

The street child that is driven by circumstances to live outside the supportive structure of the family, is on his own. He doesn’t have the educational developmental opportunities that children who grow up in families and societies do. He finds himself in a unique educational and living environment. From an educational psychologist’s point of view, this environment is abnormal. It is therefore a great challenge for the educational psychologist to try and avoid or resolve negative effects of the child's living environment. An exploratory-, descriptive-, contextual- and qualitative study was done, with the aim of gaining insight and understanding into the life of the street child in Hillbrow as well as his experiences of his situation. The results obtained from the interviews were placed in four categories. These categories are: The street child’s continuous struggle to survive, his need for a “normal child life” , his inability to accept responsibility and the presence of a normative awareness within the street child. In conclusion it is clear that the experiential world of the street child is multi-facetted. In general it appears that the street child has many limitations and difficulties which he experiences, and that input by an educational psychologist can have meaningful influence in his life.

Sign in / Sign up

Export Citation Format

Share Document