Nursing care and quality of life among Jordanian patients with cancer

Introduction: The contribution of nurses in improving the quality of life of patients with cancer has caused them to have needs of getting knowledge and skills to provide services on psychosexual health care. Training on psychosexual health care has been developed, implemented and given to oncology nurses in Indonesia in order to fulfill the needs so that the nurses are able to provide psychosexual health care to cancer survivors and their spouse. Method: The training utilized a method of pre- and post-test evaluation to identify outcomes including changes of evaluation scores of knowledge, belief, practice, and self-efficacy of trainees before and after receiving psychosexual health care training. Result: The training has been implemented on 46 oncology nurses in Indonesia so that they can have knowledge, practice, belief and self-efficacy in providing psychosexual health care to patients with cancer and their spouse. After training and mentorship had been provided, there were significant changes on knowledge, belief and self-efficacy in providing psychosexual health care services to patients with cancer and their spouse; however, there were no significant changes on practices. Discussion: The training has become a standard nursing care for cancer in Indonesia and has provided scientific evidences that nurses have contribution in improving quality of life of patients with cancer by providing a comprehensive nursing care through implementation of psychosexual health care in their daily nursing care for patients with cancer and their spouse. Keywords: Psychosexual health care, training, nursing, cancer

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Changes in physical functioning and quality of life in patients with cancer: Response shift and relative evaluation of one's condition

PsycEXTRA Dataset ◽

10.1037/e536932011-053 ◽

2002 ◽

Cited By ~ 1

Author(s):

M. Hagedoorn ◽

K. C. A. Sneeuw ◽

N. K. Aaronson

Keyword(s):

Quality Of Life ◽

Physical Functioning ◽

Response Shift ◽

Patients With Cancer ◽

Relative Evaluation

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The Caregivers Quality of Life Cancer-Index (CQOL-C) in Spain: An Exploratory and Confirmatory Factor Analysis for Caregivers of Ambulatory and Hospitalized Patients With Cancer

SSRN Electronic Journal ◽

10.2139/ssrn.3397866 ◽

2019 ◽

Author(s):

Pablo Brice Lambert de Diesbach ◽

Maria Cornide Santos ◽

Margaret F. Clayton

Keyword(s):

Quality Of Life ◽

Factor Analysis ◽

Confirmatory Factor Analysis ◽

Hospitalized Patients ◽

Patients With Cancer ◽

Confirmatory Factor

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Virtual reality-based relaxation for enhancement of perioperative well-being and quality of life: protocol for a randomised pilot trial

BMJ Open ◽

10.1136/bmjopen-2020-044193 ◽

2021 ◽

Vol 11 (4) ◽

pp. e044193

Author(s):

Matthias Christian Schrempf ◽

Julian Quirin Petzold ◽

Hugo Vachon ◽

Morten Aagaard Petersen ◽

Johanna Gutschon ◽

...

Keyword(s):

Quality Of Life ◽

Virtual Reality ◽

Sample Size ◽

Stress Reduction ◽

Pilot Trial ◽

Well Being ◽

Coping Resources ◽

Patients With Cancer ◽

Sample Size Calculations

IntroductionPatients with cancer undergoing surgery often suffer from reduced quality of life and various forms of distress. Untreated distress can negatively affect coping resources as well as surgical and oncological outcomes. A virtual reality-based stress reduction intervention may increase quality of life and well-being and reduce distress in the perioperative phase for patients with cancer. This pilot trial aims to explore the feasibility of the proposed intervention, assess patient acceptability and obtain estimates of effect to provide data for sample size calculations.Methods and analysisPatients with colorectal cancer and liver metastasis undergoing elective surgery will be recruited for this single-centre, randomised pilot trial with a three-arm design. A total of 54 participants will be randomised at 1:1:1 ratio to one of two intervention groups or a control receiving standard treatment. Those randomised to an intervention group will either receive perioperative virtual reality-based stress reduction exercises twice daily or listen to classical music twice daily. Primary feasibility outcomes are number and proportions of participants recruited, screened, consented and randomised. Furthermore, adherence to the intervention, compliance with the completion of the quality of life questionnaires and feasibility of implementing the trial procedures will be assessed. Secondary clinical outcomes are measurements of the effectiveness of the interventions to inform sample size calculations.Ethics and disseminationThe study protocol, the patient information and the informed consent form have been approved by the ethics committee of the Ludwigs-Maximilians-University, Munich, Germany (Reference Number: 19–915). Study findings will be submitted for publication in peer-reviewed journals.Trial registration numberDRKS00020909.

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Correction to: The relationship between comorbidity medication adherence and health related quality of life among patients with cancer

Journal of Patient-Reported Outcomes ◽

10.1186/s41687-021-00300-6 ◽

2021 ◽

Vol 5 (1) ◽

Author(s):

Dana Drzayich Antol ◽

Adrianne Waldman Casebeer ◽

Raya Khoury ◽

Todd Michael ◽

Andrew Renda ◽

...

Keyword(s):

Quality Of Life ◽

Medication Adherence ◽

Health Related Quality ◽

Patients With Cancer ◽

Related Quality ◽

Health Related ◽

The Relationship

An amendment to this paper has been published and can be accessed via the original article.

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Guideline for the management of long tunnelled external ventricular drains in chronic hydrocephalus

British Journal of Nursing ◽

10.12968/bjon.2021.30.7.416 ◽

2021 ◽

Vol 30 (7) ◽

pp. 416-421

Author(s):

Phillip Correia Copley ◽

John Emelifeonwu ◽

Pasquale Gallo ◽

Drahoslav Sokol ◽

Jothy Kandasamy ◽

...

Keyword(s):

Quality Of Life ◽

Nursing Care ◽

Pilocytic Astrocytoma ◽

Parental Education ◽

Chronic Hydrocephalus ◽

Treatment Protocols ◽

New Approach ◽

Viable Treatment

This article reports on the journey of a child with an inoperable hypothalamic-origin pilocytic astrocytoma causing hydrocephalus, which was refractory to treatment with shunts, and required a new approach. With multidisciplinary support, excellent nursing care and parental education, the child's hydrocephalus was managed long term in the community with bilateral long-tunnelled external ventricular drains (LTEVDs). This article describes the patient's journey and highlights the treatment protocols that were created to achieve this feat. Despite the difficulties in initially setting up these protocols, they proved successful and thus the team managing the patient proposed that LTEVDs are a viable treatment option for children with hydrocephalus in the context of inoperable tumours to help maximise quality of life.

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Observational non-randomised controlled evaluation of the effectiveness of cancer counselling centres: a study protocol

BMJ Open ◽

10.1136/bmjopen-2019-032889 ◽

2019 ◽

Vol 9 (12) ◽

pp. e032889

Author(s):

Solveigh Paola Lingens ◽

Georgia Schilling ◽

Julia Harms ◽

Holger Schulz ◽

Christiane Bleich

Keyword(s):

Quality Of Life ◽

Short Form ◽

Control Group ◽

Life Questionnaire ◽

Psychosocial Variables ◽

European Organization ◽

Psychological Burden ◽

Patients With Cancer ◽

Small Effect Size

IntroductionIn recent years, medical treatment for cancer has improved, thereby increasing the life expectancy of patients with cancer. Hence, the focus in healthcare shifted towards analysing treatments that offer to decrease distress and improve the quality of life of patients with cancer. The psychological burden of patients with cancer originates from all kinds of psychosocial challenges related to diagnosis and treatment. Cancer counselling centres (CCounCs) try to address these concerns. However, the current literature lacks research on the effectiveness of CCounCs. This study aims to assess the effectiveness of CCounCs with regard to distress and other relevant psychosocial variables (quality of life, anxietyand so on).Methods and analysisThis prospective observational study with a non-randomised control group has three measurement points: before the first counselling session (baseline, t0) and at 2 weeks and 3 months after baseline (t1, t2). Patients and their relatives who seek counselling between December 2018 and November 2020 and have sufficient German language skills will be included. The control group will be recruited at clinics and oncological outpatient centres in Hamburg. Propensity scoring will be applied to adjust for differences between the control and intervention groups at baseline. Sociodemographic data, medical data and counselling concerns are measured at baseline. Distress (distress thermometer), quality of life (Short Form-8 Health Survey, European Organization for Research and Treatment of Cancer Core Quality of Life Questionnaire-Core 30), anxiety (Generalized AnxietyDisorder-7), depression (Patient HealthQuestionnaire-9) and further psychosocial variables are assessed at all time points. With a total of 787 participants, differences between the intervention and control groups of a small effect size (f=0.10) can be detected with a power of 80%.Ethics and disseminationThe study was registered prior to data collection with the German Registration of Clinical Trials in September 2018. Ethical approval was received by the local psychological ethical committee of the Center for Psychosocial Medicine at the University Medical Centre Hamburg-Eppendorf in August 2018. The results will be published in peer-reviewed journals.Trial registration numberDRKS00015516; Pre-results.

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Fears, beliefs, and quality of life of patients with cancer vs the general population during the coronavirus disease 2019 (COVID-19) pandemic in Lombardy

Tumori Journal ◽

10.1177/03008916211022848 ◽

2021 ◽

pp. 030089162110228

Author(s):

Carla Ida Ripamonti ◽

Giacomo Massa ◽

Daniela Insolvibile ◽

Mauro Guglielmo ◽

Guido Miccinesi ◽

...

Keyword(s):

Quality Of Life ◽

General Population ◽

Perceived Risk ◽

Well Being ◽

Comprehensive Cancer Center ◽

Cancer Center ◽

Psychological Consequences ◽

Patients With Cancer ◽

Fear Of Cancer

Aim: To understand how patients with cancer reacted to the coronavirus disease 2019 (COVID-19) pandemic and whether their quality of life (QoL) was affected. Methods: In June 2020, 111 patients with cancer treated in the supportive care unit of a Comprehensive Cancer Center in Milan and 201 healthy controls from the general population were enrolled and assessed both quantitatively and qualitatively for fears and COVID-19–related beliefs as well as for QoL. Results: Fear of COVID-19 was significantly lower among patients (41% vs 57.6%; p = 0.007), as was fear of cancer (61.5% vs 85.6%; p < 0.001) and other diseases. The perceived risk of getting COVID-19 was lower among patients (25.2% vs 52.7%; p < 0.001), as was the belief of having been exposed to severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2) (18.1% vs 40.8%; p < 0.001). The physical component of QoL was better among the population (54.5 vs 43.8; p < 0.001); the reverse was true for patients’ psychological well-being (44.6 vs 39.6; p < 0.001). The qualitative data supported such results, showing a reduced psychological effect on the patients with cancer compared to the controls. Various reasons explain this result, including the awareness of being treated for cancer and nevertheless protected against getting infected in a cancer center of public health reorganized to continue treating patients by protecting them and personnel from the risk of infection. Conclusions: The experience of a cancer diagnosis, together with proper hospital reorganization, may act as protective factors from fears and psychological consequences of the COVID-19 outbreak.

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