Commentary on “A family’s battle to understand ‘challenging behaviour’”

2017 ◽  
Vol 22 (2) ◽  
pp. 105-108
Author(s):  
Joann Kiernan
Keyword(s):  
Intellectual Disabilities ◽  
Design Methodology ◽  
Local Communities ◽  
Challenging Behaviour ◽  
Content Type ◽  
People With Intellectual Disabilities ◽  
Individuals With Intellectual Disabilities

Purpose The purpose of this paper is to provide a commentary on issues raised in the paper “A family’s battle to understand ‘challenging behaviour’”. Design/methodology/approach Drawing on literature associated with issues identified in the paper this commentary will reflect on the evidence associated with providing specialist support to people with intellectual disabilities and challenging behaviour. Findings Families, individuals and services are unable to access timely and appropriate specialist support for individuals with intellectual disabilities and challenging behaviour. As individuals go on to develop behaviours associated with a lack of intervention their levels of vulnerability increase due to their exclusion from services and their local communities. Originality/value The commentary provides a discussion on the issues faced by individuals and their families in relation to intellectual disabilities and challenging behaviour.

scholarly journals The Ealing Intensive Therapeutic and Short Breaks Service: an update five years on

2019 ◽  
Vol 24 (2) ◽  
pp. 56-63 ◽  
Author(s):  
Heather Dilks-Hopper ◽  
Chloe Jacobs ◽  
Catherine Sholl ◽  
Caroline Falconer ◽  
Nick Gore
Keyword(s):  
Young People ◽  
Intellectual Disabilities ◽  
Design Methodology ◽  
Best Practice ◽  
Challenging Behaviour ◽  
Practice Model ◽  
Content Type ◽  
Service Models ◽  
People With Intellectual Disabilities ◽  
Over Time

Purpose The purpose of this paper is to present an update on the Ealing Intensive Therapeutic and Short Breaks Service (ITSBS). Design/methodology/approach The challenges the service has faced are reviewed, including the service’s response to those challenges. Also provided is a more detailed analysis of the outcomes of the service. Findings The ITSBS continues to succeed in supporting young people with intellectual disabilities and challenging behaviour to stay at home with their families. Originality/value Despite considerable challenges and adaptations to the model, the ITSBS is still achieving successful outcomes for vulnerable young people and is considered nationally to be a best-practice model. Few prior articles have provided an account of how innovative service models are maintained and evolve over time.

It can still happen here: systemic risk factors that may contribute to the continued abuse of people with intellectual disabilities

2015 ◽  
Vol 20 (3) ◽  
pp. 134-146 ◽  
Author(s):  
Dave Marsland ◽  
Peter Oakes ◽  
Naomi Bright
Keyword(s):  
Intellectual Disabilities ◽  
Systemic Risk ◽  
Design Methodology ◽  
Critical Reflection ◽  
Research Evidence ◽  
Evidence Based ◽  
Review Of Literature ◽  
Content Type ◽  
People With Intellectual Disabilities ◽  
Future Harm

Purpose – The purpose of this paper is to reflect on the response to the scandal of abuse in services for people with intellectual disabilities in the light of research evidence and analysis. Design/methodology/approach – Critical reflection and review of literature. In particular, recent research into possible indicators that a service is at risk of becoming abusive is used to test the hypotheses and implied solutions that are currently being adopted. Findings – That some of the responses to recent scandals are necessary but not sufficient to prevent future harm. Furthermore, some of the proposed solutions may actually increase the likelihood of further abuse. Prevention of abuse requires a broader and more evidence-based response. Originality/value – The synthesis of research and analysis presented here has not been presented previously in the published literature.

Commentary on “An audit of an Intensive Interaction service”

2015 ◽  
Vol 20 (3) ◽  
pp. 117-120
Author(s):  
Peter Baker
Keyword(s):  
At Risk ◽  
Intellectual Disabilities ◽  
Design Methodology ◽  
Service Innovation ◽  
Multiple Disabilities ◽  
Research Experience ◽  
Content Type ◽  
Service Models ◽  
People With Intellectual Disabilities

Purpose – The purpose of this paper is to provide a commentary on “An audit of an Intensive Interaction service”. Design/methodology/approach – Drawing on the literature regarding other related person-centred approaches and clinical and research experience, an argument is made that people with profound intellectual and multiple disabilities are particularly at risk when service innovation does not account for their unique needs. Findings – Practice and service models need to specifically account for the needs of people with profound intellectual and multiple disabilities. Originality/value – The commentary draws attention to the importance of implementation and seeks to draw lessons from well established, service wide approaches for people with intellectual disabilities.

Oxleas “Can you understand it?” group

2014 ◽  
Vol 8 (4) ◽  
pp. 268-270 ◽  
Author(s):  
Can you understand it group
Keyword(s):  
Intellectual Disabilities ◽  
Design Methodology ◽  
Positive Experience ◽  
Content Type ◽  
Accessible Information ◽  
Group Members ◽  
People With Intellectual Disabilities

Purpose – The purpose of this paper is to describe the development and work of the “Can you understand it?” group, which supports services in developing accessible information for people with intellectual disabilities. Design/methodology/approach – Members describe their experiences of working with the “Can you understand it?” group. Findings – Group members found the group to be a positive experience. They report that they have supported a range of services in making information easier for people with intellectual disabilities to understand. Originality/value – This paper will reinforce the importance of making information accessible to people with intellectual disabilities and that people with intellectual disabilities themselves should be involved in the process to assure quality.

Commentary on “The experiences of Covid-19 ‘lockdown’ for people with a learning disability: results from surveys in Jersey and Guernsey”

2021 ◽  
Vol ahead-of-print (ahead-of-print) ◽  
Author(s):  
Gemma Rogers
Keyword(s):  
Mental Health ◽  
Intellectual Disabilities ◽  
Design Methodology ◽  
Well Being ◽  
Content Type ◽  
People With Intellectual Disabilities ◽  
Long Term Consequences ◽  
Health And Well Being ◽  
Over Time

Purpose This paper aims to consider the experiences of people with intellectual disabilities in relation to the COVID-19 pandemic and subsequent lockdown restrictions. Design/methodology/approach This commentary reflects on the issues raised by Morris et al., and in the wider literature. Findings Although there have been some benefits to lockdown for people with intellectual disabilities, mainly they have experienced isolation, increased mental health and well-being challenges, difficulty in accessing services, support and adequate adapted information. Originality/value This commentary argues that it is important to continue to capture the experiences of people with intellectual disabilities now and over time to assess the long-term consequences of the pandemic and to design services which are respondent to their needs.

A comparison of dementia assessment services for people with intellectual disabilities

2021 ◽  
Vol 26 (3) ◽  
pp. 134-141
Author(s):  
Emile Gardner ◽  
Sean Slater
Keyword(s):  
Intellectual Disabilities ◽  
Service Provision ◽  
Design Methodology ◽  
Assessment Instruments ◽  
Systematic Screening ◽  
Content Type ◽  
People With Intellectual Disabilities ◽  
Assessment Frequency ◽  
Insight Into

Purpose This paper aims to describe three dementia assessment services for people with intellectual disabilities to provide professionals with insight into planning this type of service. Design/methodology/approach Three services in England were contacted via email and telephone to collect data on their service provision. They were asked about the average age of individuals when receiving a baseline assessment, frequency of follow-up assessment, assessment instruments used and descriptive aspects of their services. Findings All three services offered proactive dementia assessment services to people with Down's syndrome (DS), with one service providing systematic screening via the GP. None offered proactive screening to people with intellectual disabilities who did not have a diagnosis of DS. All offered reactive assessment to this population if they experienced a decline in function. Services differed in terms of age at which baseline assessments were offered, frequency of follow-up and instruments used. Originality/value To the best of the authors’ knowledge, this is the first paper to compare dementia assessment provision between different services in England.

Evaluating neuropsychologically informed rehabilitation training for staff within a high secure intellectual disability service

2020 ◽  
Vol 11 (2) ◽  
pp. 61-73
Author(s):  
Phyllis Annesley ◽  
Zoe Hamilton ◽  
Roisin Galway ◽  
Samantha Akiens ◽  
Rachel Hicks ◽  
...  
Keyword(s):  
Intellectual Disabilities ◽  
Thematic Analysis ◽  
Challenging Behaviour ◽  
Content Type ◽  
Staff Members ◽  
Training Post ◽  
People With Intellectual Disabilities ◽  
Day Services ◽  
One Year

Purpose Neuropsychologically informed rehabilitation (NIR) is one approach to supporting people with intellectual disabilities, cognitive impairment and challenging behaviour. This study aims to evaluate a five-day training course in NIR for staff working with adult male offenders with intellectual disabilities in a high secure hospital. The impacts on both the staff who undertook the training and the patients with challenging behaviour were explored. Design/methodology/approach Participants were psychology, nursing and day services staff and male patients. The staff completed a post-training questionnaire and three measures at pre-NIR training, post-NIR training and one-year follow-up. Patients completed four questionnaire measures within the same periods. Findings NIR training was positively evaluated by staff. Staff members’ perceived efficacy in working with challenging behaviour significantly increased post-training which was maintained at follow-up. Thematic analysis showed that the training staff members built their confidence, knowledge and skills. Because of these being high to start with, the study could not evidence statistically significant changes in these. Thematic analysis yielded two main themes, namely, benefits and quality of training, each with their own subthemes. The impacts of the training on patients were difficult to assess related to various factors. Research limitations/implications The knowledge and confidence measures used were limited in scope with an experienced staff group and required development. Practical implications NIR training could assist staff in other secure and community settings in working with people with intellectual disabilities and challenging behaviours. Originality/value This study positively contributes to an area that requires more research.

Commentary on “Online risk for people with intellectual disabilities”

2019 ◽  
Vol 24 (4) ◽  
pp. 188-191
Author(s):  
Warren James Oldreive ◽  
Mary Waight
Keyword(s):  
Clinical Practice ◽  
Intellectual Disabilities ◽  
Design Methodology ◽  
Research Study ◽  
Information Provision ◽  
Content Type ◽  
Online Risk ◽  
People With Intellectual Disabilities ◽  
Practical Implications

Purpose The purpose of this paper is to provide a commentary on the article regarding online risk for people with intellectual disabilities (ID). Design/methodology/approach This commentary is a reflection based on clinical practice and a recent pilot research study. Findings How we provide information is important both online and in training to keep people safe. Practical implications Information provision needs to consider content and medium alongside the needs of the recipient. Originality/value This paper reinforces the importance of how information is provided for people with ID.

Assessing firesetters with intellectual disabilities

2019 ◽  
Vol 10 (4) ◽  
pp. 102-118
Author(s):  
John L. Taylor ◽  
Ian Thorne
Keyword(s):  
Risk Assessment ◽  
Intellectual Disabilities ◽  
Design Methodology ◽  
Forensic Mental Health ◽  
Content Type ◽  
Assessment Measure ◽  
Correctional Settings ◽  
People With Intellectual Disabilities ◽  
First Time ◽  
Practical Implications

Purpose People with intellectual disabilities who set fires are a heterogeneous and clinically complex group who present significant challenges to the wider community and to forensic practitioners working in forensic mental health and correctional settings. There is little available in the literature to support professionals when considering assessment and formulation for clients exhibiting these perturbing behaviours. The paper aims to discuss this issue. Design/methodology/approach In this paper the materials available to assist forensic practitioners in considering assessment and formulation of people with intellectual disabilities who set fires are described and outlined. Findings An assessment scheme is proposed for organising information from a variety of sources to assist professionals in understanding the nature of risks and clinical needs of firesetters with intellectual disabilities. A newly revised risk assessment measure designed for this population is provided. Practical implications Forensic practitioners are provided with a framework and tools to assist with their assessment and formulation of firesetters with intellectual disabilities. Originality/value This is the first time a newly revised risk assessment for firesetting behaviour by people with intellectual disabilities has been presented.

Avoiding delays in diagnosis: the importance of proactive liaison and education of staff in the general hospital

2014 ◽  
Vol 8 (6) ◽  
pp. 399-402 ◽  
Author(s):  
Anna Walder ◽  
Robert Green ◽  
Sujata Soni
Keyword(s):  
Intellectual Disabilities ◽  
Learning Disability ◽  
General Hospital ◽  
Design Methodology ◽  
Healthcare Professionals ◽  
Mental Health Problems ◽  
Subsequent Treatment ◽  
Content Type ◽  
People With Intellectual Disabilities ◽  
Delays In Diagnosis

Purpose – The purpose of this paper is to illustrate the difficulties patients with intellectual disabilities face when they present to a general hospital with ambiguous symptoms and highlights the importance of adequate training for general staff in caring for people with learning disabilities. Design/methodology/approach – The authors describe the pathway of a person with a learning disability and mental health problems from A&E, through a general hospital, to discharge and the problems encountered in terms of diagnostic clarity and subsequent treatment. Findings – Delay in recognising a psychiatric cause for his symptoms and wrongly attributing his symptoms to his learning disability may have led to a protracted admission and invasive tests. Originality/value – Education of healthcare professionals and proactive liaison work can help improve outcomes for people with intellectual disabilities when they are admitted to generic services.

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