Dementia and financial incapacity: a caregiver study

2016 ◽  
Vol 20 (2) ◽  
pp. 66-75 ◽  
Author(s):  
Olivia DaDalt ◽  
Arielle Burstein ◽  
Birgit Kramer ◽  
Lisa A. D'Ambrosio ◽  
Joseph F. Coughlin
Keyword(s):  
Elder Care ◽  
Financial Advisors ◽  
Dementia Caregivers ◽  
Content Type ◽  
Manage Care ◽  
People With Dementia ◽  
Mixed Feelings ◽  
Financial Arrangements ◽  
Industry Professionals ◽  
Financial Aspect

Purpose – The purpose of this paper is to identify strategies that caregivers of people with dementia use for financial and estate planning and what advice they would give to others in their position. Design/methodology/approach – Data were gathered via in-depth in-person interviews with 34 caregivers of individuals with dementia. Participants were asked questions about: how they financed care; the resources and people they used to help manage care and finances; and advice they would give to other caregivers. Findings – Caregivers wished that they had done more in-depth planning regarding dementia care and financial arrangements. Participants also wished they had saved more money for care expenses or a “nest-egg.” Participants had mixed feelings about the usefulness and trustworthiness of financial advisors, but those who had elder care lawyers recommended them highly. Research limitations/implications – It would be beneficial to reproduce this study with a larger, gender-balanced sample with a wider variety of socio-economic backgrounds. Social implications – The advice and insight provided in this paper are useful both to dementia caregivers, who can learn from the experiences of those interviewed, and to industry professionals such as financial advisors and elder care lawyers, who may recognize from these interviews the areas in which caregivers need assistance and the services they can provide to help them navigate this disease. Originality/value – This paper provides insights from actual caregivers about their experiences dealing with the financial aspect of dementia, an aspect of the disease that is not widely discussed.

Mentalizing Imagery Therapy mobile application for family dementia caregivers: feasibility and effects on mood and caregiving

2018 ◽  
Author(s):  
Abu Sikder ◽  
Francis Yang ◽  
Rhiana Schafer ◽  
Glenna A. Dowling ◽  
Lara Traeger ◽  
...  
Keyword(s):  
Family Caregivers ◽  
Mobile Application ◽  
Self Regulation ◽  
Pilot Trial ◽  
Depression Symptom ◽  
Structured Interviews ◽  
Physical Strain ◽  
Dementia Caregivers ◽  
Loved One ◽  
People With Dementia

Objectives: Due to psychological and physical strain, family caregivers of patients with Alzheimer’s disease and related dementias are at high risk for depression and stress related disorders. We investigated the feasibility of a mobile application (App) intervention delivering Mentalizing Imagery Therapy (MIT), which incorporates guided imagery and mindfulness, to facilitate self-regulation and increase perspective on the mental life of self and others. Method: A 4-week pilot trial of an MIT App for family caregivers of people with dementia was conducted to assess feasibility of use, mood and depression symptom benefit, and relationship changes. Semi-structured interviews were conducted at the study’s conclusion to characterize participants’ perceived benefits. Results: 80% of 21 consented participants downloaded the App, utilized it at least once, and were further analyzed. Of these participants, average usage of audio recordings was 14 ± 10 (SD) days out of 28 possible, and 29 ± 28 individual sessions. Acute improvement in mood from before to after completion of exercises was uniformly observed (p < .001), and after four weeks there was a significant increase in positive affect and a reduction in negative affect. Participants with severe levels of depression (n=3) at baseline exhibited an improvement in symptoms at 4 weeks averaging 30% (p < .05). Semi-structured interviews revealed an increase in the ability to remain “centered" despite caregiving challenges, take the perspective of the loved one, and positively reframe the caregiver experience.Conclusion: App delivery of MIT is feasible for family dementia caregivers. Results showed moderate to high usage of the app for a majority of the users, and promising improvements in mood and depression. These data provide justification for larger, controlled trials.

scholarly journals Impact of Social Isolation on People with Dementia and Their Family Caregivers

2021 ◽  
pp. 1-11
Author(s):  
Lílian Viana dos Santos Azevedo ◽  
Ismael Luis Calandri ◽  
Andrea Slachevsky ◽  
Héctor Gastón Graviotto ◽  
Maria Carolina Santos Vieira ◽  
...  
Keyword(s):  
Family Caregivers ◽  
Social Isolation ◽  
Clinical Symptoms ◽  
Memory Function ◽  
South American ◽  
Severe Dementia ◽  
Dementia Caregivers ◽  
People With Dementia ◽  
Moderate Dementia ◽  
Severity Of Dementia

Background: People with dementia and their family caregivers may face a great burden through social isolation due to the COVID-19 pandemic, which can be manifested as various behavioral and clinical symptoms. Objective: To investigate the impacts of social isolation due to the COVID-19 pandemic on individuals with dementia and their family caregivers. Methods: Two semi-structured questionnaires were applied via telephone to family caregivers of people diagnosed with dementia in three cities in Argentina, Brazil, and Chile, in order to assess clinical and behavioral changes in people with dementia and in their caregivers. Results: In general, 321 interviews were conducted. A significant decline in memory function has been reported among 53.0%of people with dementia. In addition, 31.2%of individuals with dementia felt sadder and 37.4%had increased anxiety symptoms. These symptoms of anxiety were greater in individuals with mild to moderate dementia, while symptoms of agitation were greater in individuals with severe dementia. Moreover, compulsive-obsessive behavior, hallucinations, increased forgetfulness, altered appetite, and increased difficulty in activities of daily living were reported more frequently among individuals with moderate to severe dementia. Caregivers reported feeling more tired and overwhelmed during this period and these symptoms were also influenced by the severity of dementia. Conclusion: Social isolation during the COVID-19 pandemic triggered a series of negative behavioral repercussions, both for people with dementia and for their family caregivers in these three South American countries.

scholarly journals “We Are Doing These Things So That People Will Not Laugh at Us”: Caregivers’ Attitudes About Dementia and Caregiving in Nigeria

2021 ◽  
pp. 104973232110041
Author(s):  
Candidus C. Nwakasi ◽  
Kate de Medeiros ◽  
Foluke S. Bosun-Arije
Keyword(s):  
The United States ◽  
Structured Interviews ◽  
Dementia Caregivers ◽  
Term Care ◽  
Awareness Campaigns ◽  
Knowledge Deficit ◽  
People With Dementia ◽  
Qualitative Descriptive ◽  
The Impact

Some Nigerians, in their effort to make sense of dementia symptoms, use descriptions that may stigmatize people with dementia and their families. This qualitative descriptive study focused on the everyday understanding of dementia and the impact of stigma on the caregiving experiences of informal female Nigerian dementia caregivers. Semi-structured interviews were conducted with a purposive sample of 12 adult informal female caregivers in Nigeria and analyzed for themes. Afterward, results were presented to focus groups of 21 adult Nigerians residing in the United States for more contextual insight on the findings. The three major themes were misconceptions about dementia symptoms, caregiving protects against stigmatization, and stigma affects caregiving support. Overall, we argue that knowledge deficit, poor awareness, and traditional spiritual beliefs combine to drive dementia-related stigmatization in Nigeria. Strategies such as culturally appropriate dementia awareness campaigns and formal long-term care policies are urgently needed to help strengthen informal dementia caregiving in Nigeria.

Risks of financial abuse of older people with dementia: findings from a survey of UK voluntary sector dementia community services staff

2014 ◽  
Vol 16 (3) ◽  
pp. 180-192 ◽  
Author(s):  
Kritika Samsi ◽  
Jill Manthorpe ◽  
Karishma Chandaria
Keyword(s):  
Online Survey ◽  
Local Community ◽  
Community Support ◽  
Voluntary Sector ◽  
Community Services ◽  
Warning Signs ◽  
Money Management ◽  
Content Type ◽  
Financial Abuse ◽  
People With Dementia

Purpose – Financial abuse of people with dementia is of rising concern to family carers, the voluntary sector and professionals. Little is known about preventative and early response practice among community services staff. The purpose of this paper is to investigate voluntary sector staff's views of the risks of managing money when a person has a dementia and explore ways that individuals may be protected from the risks of financial abuse. Design/methodology/approach – An online survey of staff of local Alzheimer's Society groups across England was conducted in 2011 and was completed by 86 respondents. Open-ended responses supplemented survey questions. Statistical analysis and content analysis identified emergent findings. Findings – Most respondents said their people with dementia experienced problems with money management, with almost half the respondents reporting encountering cases of financial abuse over the past year. Most were alert to warning signs and vulnerabilities and offered suggestions relevant to practice and policy about prevention and risk minimization. Research limitations/implications – Adult safeguarding practitioners are likely to encounter money management uncertainties and concerns about exploitation of people with dementia. They may be contacted by community-based support staff from the voluntary sector about individual queries but could ensure that such practitioners are engaged in local training and networking activities to promote their skills and confidence. Practical implications – As with other forms of elder abuse, professionals need to be aware of risks of financial abuse and be able to suggest effective yet acceptable preventive measures and ways to reduce risks of harm and loss. Further publicity about adult safeguarding services may be needed among local community support services. Originality/value – There have been few studies investigating the views of people working with people with dementia in the community about adult safeguarding.

Sensor e-textiles: person centered co-design for people with late stage dementia

2016 ◽  
Vol 20 (2) ◽  
pp. 76-85 ◽  
Author(s):  
Cathy Treadaway ◽  
Gail Kenning
Keyword(s):  
Design Process ◽  
Late Stage ◽  
Design Methodology ◽  
Design Research ◽  
Family Members ◽  
Sensory Properties ◽  
Content Type ◽  
People With Dementia ◽  
Grounded Practical Theory ◽  
The Moment

Purpose – The purpose of this paper is to present design research investigating the development of sensory textiles with embedded electronics to support the wellbeing of people with late stage dementia in residential care. Design/methodology/approach – The research presented is qualitative and uses a mixed method approach informed by grounded practical theory and positive design methodologies. It uses an inclusive and participatory co-design process involving people with dementia and their families with an interdisciplinary team of experts. Findings – Both the co-design process and the artefacts developed have been beneficial in supporting wellbeing. The textile artefacts have been found to soothe, distract and comfort people with dementia. They have also been shown to facilitate in the moment conversational bridges between family members and carers with persons with dementia. Research limitations/implications – The findings are based on a small cohort of participants, observational reports and descriptive accounts from family members and carers. Practical implications – The paper proposes ways in which simple hand-crafted textiles can be used beneficially to support the wellbeing of people with late stage dementia. It provides examples of how technology can be used to personalise and extend the sensory properties of the artefacts created. Social implications – It promotes an inclusive co-design methodology involving care professionals, carers and people with dementia with designers and technologists. Originality/value – The paper describes new ways of extending sensory properties of textiles through the integration of technology.

Demobilisation will be a long-term challenge in Libya

2021 ◽  
Keyword(s):  
Oil And Gas ◽  
Armed Forces ◽  
Armed Groups ◽  
Content Type ◽  
Near Term ◽  
The Many ◽  
Financial Arrangements

Significance Although a ceasefire has been in place since October 2020, very little has been done during that time to integrate or demobilise the many armed forces and groups that exist across the country. The obstacles are formidable. Impacts Significant demobilisation and reintegration will not happen in the near term. Local security will continue to rest on fragile political and financial arrangements between armed groups and governing authorities. The current high levels of oil and gas revenue will tend to discourage unrest.

scholarly journals Personalisation, customisation and bricolage: how people with dementia and their families make assistive technology work for them

2018 ◽  
Vol 39 (11) ◽  
pp. 2502-2519 ◽  
Author(s):  
Grant Gibson ◽  
Claire Dickinson ◽  
Katie Brittain ◽  
Louise Robinson
Keyword(s):  
Technology Use ◽  
Dementia Care ◽  
Assistive Technologies ◽  
Everyday Practice ◽  
Structured Interviews ◽  
Manage Care ◽  
Age In Place ◽  
Care Services ◽  
People With Dementia ◽  
The Everyday

AbstractAssistive technologies (ATs) are being ‘mainstreamed’ within dementia care, where they are promoted as enabling people with dementia to age in place alongside delivering greater efficiencies in care. AT provision focuses upon standardised solutions, with little known about how ATs are used by people with dementia and their carers within everyday practice. This paper explores how people with dementia and carers use technologies in order to manage care. Findings are reported from qualitative semi-structured interviews with 13 people with dementia and 26 family carers. Readily available household technologies were used in conjunction with and instead of AT to address diverse needs, replicating AT functions when doing so. Successful technology use was characterised by ‘bricolage’ or the non-conventional use of tools or methods to address local needs. Carers drove AT use by engaging creatively with both assistive and everyday technologies, however, carers were not routinely supported in their creative engagements with technology by statutory health or social care services, making bricolage a potentially frustrating and wasteful process. Bricolage provides a useful framework to understand how technologies are used in the everyday practice of dementia care, and how technology use can be supported within care. Rather than implementing standardised AT solutions, AT services and AT design in future should focus on how technologies can support more personalised, adaptive forms of care.

Capital budgeting practices: evidence from Korea

2020 ◽  
Vol ahead-of-print (ahead-of-print) ◽  
Author(s):  
Taeyeon Kim ◽  
Hongbok Lee ◽  
Kwangwoo Park ◽  
Doug Waggle
Keyword(s):  
Best Practices ◽  
Capital Budgeting ◽  
Developed Countries ◽  
Financial Advisors ◽  
Cost Of Equity ◽  
Content Type ◽  
Capital Costs ◽  
Developed Markets ◽  
The Us ◽  
Ceo Age

PurposeThe authors present the results of a survey on how Korean firms evaluate new projects and estimate their capital costs. The authors report how Korean firms’ capital budgeting practices compare to other developed countries and to best practices in the field of finance.Design/methodology/approachThe authors survey CFOs of major Korean firms on their capital budgeting practices. The authors then compare the results against the US and European firms and best practices of leading firms and financial advisors.FindingsThe authors find that the capital budgeting practices of Korean firms are as strong as or stronger than firms in developed markets. A majority of Korean firms use best practices techniques such as NPV, IRR and the CAPM for project evaluation and cost of equity estimation. Chaebol affiliation results in somewhat stronger capital budgeting practices. The authors also find that other factors, such as company size, leverage, CEO age and CEO education, impact capital budgeting practices.Originality/valueThis paper is the first article that comprehensively examines Korean firms' capital budgeting practices.

scholarly journals Research on the health of and interventions for family caregivers of people with dementia: a bibliometric analysis of research output during 1988–2018

2019 ◽  
Author(s):  
Hui Shi ◽  
Chen Mao ◽  
Jinling Tang ◽  
Huiying Liang
Keyword(s):  
Bibliometric Analysis ◽  
Research Output ◽  
Online Communication ◽  
Annual Number ◽  
Dementia Patient ◽  
Dementia Caregivers ◽  
People With Dementia ◽  
The Usa ◽  
Performance Statistics ◽  
The Uk

Abstract Background: Dementia is a large and growing health problem, and since the majority of dementia patients live at home, caring responsibilities generally fall to family members. Caregivers are often inadequately supported by formal health services and have poorer psychological and physical health. Our study aimed to compare the contributions of publications from different countries, institutions and authors and present a bibliometric analysis to determine the future hotspots and trends in research on the health of and interventions for family dementia caregivers. Methods: Studies published during 1988-2018 were extracted from the Science Citation Index Expanded of the Web of Science. Each publication was evaluated to obtain the basic information. Bibliometric analysis was used to evaluate the number or cooperation networks of publications, countries, institutions, journals, citations, authors, references, and keywords. The resulting articles were analyzed descriptively, and data were produced for VOSviewer. Results: Five hundred forty-two articles were identified.The annual number of relevant publications has increased steadily since approximately 2006. The USA has the highest number of publications (36.2%), followed by the UK (12.9%). China entered late, but research there has developed rapidly. The most productive institution, journal, and author in this field are University College London, the Journal of the American Geriatrics Society, and Orrell M from the UK, respectively. A co-occurrence analysis of keywords reveals a mainstream research focus on burden, depression, quality of life, and corresponding interventions for dementia patient caregivers. The keywords “psychosocial intervention”, “long-term”, “e-learning/online”, “communication”, and “qualitative research” reflect the latest hotspots, appearing in approximately 2017-2018. Conclusion: Our study details the performance statistics of and the main topics and trends in the research on the health of and interventions for dementia caregivers from 1988 to 2018 and provides a comprehensive analysis.

scholarly journals Improving emotional well-being for hospital-based patients with dementia

2020 ◽  
Vol ahead-of-print (ahead-of-print) ◽  
Author(s):  
Stephanie Petty ◽  
Amanda Griffiths ◽  
Donna Maria Coleston ◽  
Tom Dening
Keyword(s):  
Nursing Staff ◽  
Hospital Care ◽  
Personal Information ◽  
Hospital Setting ◽  
Well Being ◽  
Hospital Staff ◽  
Content Type ◽  
Hospital Nursing ◽  
People With Dementia ◽  
Hospital Resources

Purpose Improving hospital care for people with dementia is a well-established priority. There is limited research evidence to guide nursing staff in delivering person-centred care, particularly under conditions where patients are emotionally distressed. Misunderstood distress has negative implications for patient well-being and hospital resources. The purpose of this study is to use the expertise of nurses to recommend ways to care for the emotional well-being of patients with dementia that are achievable within the current hospital setting. Design/methodology/approach A qualitative study was conducted in two long-stay wards providing dementia care in a UK hospital. Nursing staff (n = 12) were asked about facilitators and barriers to providing emotion-focused care. Data were analysed using thematic analysis. Findings Nursing staff said that resources existed within the ward team, including ways to gather and present personal information about patients, share multidisciplinary and personal approaches, work around routine hospital tasks and agree an ethos of being connected with patients in their experience. Staff said these did not incur financial cost and did not depend upon staffing numbers but did take an emotional toll. Examples are given within each of these broader themes. Research limitations/implications The outcome is a short-list of recommended staff actions that hospital staff say could improve the emotional well-being of people with dementia when in hospital. These support and develop previous research. Originality/value In this paper, frontline nurses describe ways to improve person-centred hospital care for people with dementia.

Sign in / Sign up

Export Citation Format

Share Document