Coping with illness digitally By Stephen A.RainsCambridge, MA: MIT Press. 2020. 240 pp. Hardcover US$35.00, ISBN 9780262038287.

2021 ◽  
Author(s):  
Tanya Zilberstein
Keyword(s):  
Coping With Illness

Resilience of Military Metaphors

2021 ◽  
pp. 95-106
Author(s):  
Abraham Fuks
Keyword(s):  
Sense Of Control ◽  
Self Reliance ◽  
The Face ◽  
Coping With Illness ◽  
Loss Of Dignity

Military metaphors have been ubiquitous in medicine for centuries. This indicates that tropes of battle may be helpful to some persons in coping with illness. This chapter examines pathographies, that is, stories of illness written by patients, and the words that describe their experiences. A powerful example of a war correspondent and historian of battles of WWII illustrates how military language offers a sense of control and self-reliance for a person who values action and engagement. Thus, for some, figures of war and victory are especially resonant and may counter the loss of dignity and fear that accompany illness. However, this demands bravado, stoicism, and even denial. Further, the words may shift to heroism in the face of defeat as the illness worsens. This chapter notes the particular responsibilities of the physician caring for the “warrior” patient and the imperative for an adaptable and nuanced stance as the illness evolves.

Coping with Illness and Psychotherapy of the Medically Ill

2010 ◽  
pp. 425-432
Author(s):  
Steven C. Schlozman ◽  
James E. Groves ◽  
Anne F. Gross ◽  
Avery D. Weisman
Keyword(s):  
Medically Ill ◽  
Coping With Illness

Growing up with a pacemaker

2020 ◽  
Vol 41 (Supplement_2) ◽  
Author(s):  
P Poels ◽  
J Vermeulen ◽  
M Gewillig ◽  
B Meyns ◽  
R Willems
Keyword(s):  
Sinus Node ◽  
Young Patients ◽  
Structural Heart Disease ◽  
Older Children ◽  
University Hospitals ◽  
School Sports ◽  
Sports Club ◽  
Node Disease ◽  
Strongly Agree ◽  
Coping With Illness

Abstract   Indications for pacemakers in young children are rare. In our university hospitals, on average 8 patients/year received a pacemaker in this age group between 2001 and 2015 for a drainage area of 4 million people. In 28% this is for congenital heart block and in 69% for bradycardia after surgical repair of congenital structural heart disease. Despite the extensive range of patient information about pacemakers, we felt a need for targeted material for young patients, who have an indication for a pacemaker, and their family. We wanted to provide this information to this specific group in a creative, accessible and clear way, taking into account their way of thinking. In addition, we also wanted to involve the near and wider environment of the child (family, school, sports club, etc.), and to provide them with tools to better deal with the medical situation. For the little children we created a stop-motion story in which sinus node disease (SND) and AV block (AVB) are represented by a character: Bob Sparkle (Bob Prikkel in Dutch for SND) and Boris Sparkle (Boris Prikkel for AVB). Bob and Boris get into trouble and are rescued by Pacemaker, the third character in the films. This story is preceded by an informative part for parents and older children in which the normal functioning and conduction system of the heart is explained. Based on the films, we designed customized information brochures for +12 and −12 year-old children. The brochure for +12 includes the same information as the adult version, but in more comprehensible language. The figures Bob and Boris were added throughout this brochure as a sort of common thread. For the −12 group we designed 2 reading books in which the story of Bob / Boris is told. The −12 booklets can be included in a cover along with the +12 brochure, so that the parents can estimate for themselves what is most suitable for their child. We conducted a survey on how this information was received by patients and their relatives.61 families were contacted by e-mail to fill in a questionnaire using a 5-point Likert Scale. The survey assessed the following three items: graphic design, intelligibility and aid in coping with illness. Currently we have received answers from 12 patients or their relatives. Overall, there was a positive reception of the different informative tools (agree or strongly agree: booklets: 92.6%; brochure: 77.2%; films: 81.3%). Funding Acknowledgement Type of funding source: None

“I Don’t Claim to Be the World’s Foremost Expert, But . . . ”: How Individuals “Know” Family Members Are Not Experiencing Health Issues as Severely as They Claim

2019 ◽  
Vol 29 (10) ◽  
pp. 1433-1446 ◽  
Author(s):  
Charee M. Thompson ◽  
Sarah Parsloe
Keyword(s):  
Family Member ◽  
Knowledge Construction ◽  
Medical Information ◽  
Family Members ◽  
Health Condition ◽  
Health Issues ◽  
Internal Coherence ◽  
Coping With Illness ◽  
Evidentiary Standards

To understand how individuals come to “know” that their family members are not experiencing their health issues as severely as they claim, we interviewed 32 individuals (nine men and 23 women, M age = 35.28 years, SD = 9.91 years) about a family member who they believe falsifies or exaggerates his or her health condition(s). Our analyses illuminate two interlinked processes of knowledge construction: (a) developing evidentiary standards and (b) gathering evidence. In engaging these processes, participants sought two types of consistency: correspondence with external “facts” (e.g., medical information, cultural [mis]conceptions), and internal coherence (i.e., complaints were highly self-contradictory and unpredictable or were overly predictable). When initial inconsistencies made participants doubt their family member, participants gathered additional evidence, including experiential, behavioral, and interactional evidence, to test and revise their initial suspicions. We discuss the implications of this research for theory and for families coping with illness.

Beyond Autonomy to the Person Coping With Illness

1995 ◽  
Vol 4 (1) ◽  
pp. 12-22 ◽  
Author(s):  
David C. Thomasma
Keyword(s):  
Medical School ◽  
Georgetown University ◽  
Coping With Illness

Let us look at autonomy in a new way. Autonomy has a richly deserved place of honor in bioethlcs. It has led the set of principles that formed the basis of the discipline since the beginning. It is the leading principle In what is now regularly called “the Georgetown Mantra,” a phrase suggested by one of the first philosophers ever to be hired In a medical school, K. Danner Clouser. The phrase applies to the principled approach of autonomy, beneficence, nonmaleficence, and justice. This kind of bioethics was developed by scholars like Beauchamp and Childress, Veatch, and Engelhardt, during their association with Georgetown University.

scholarly journals Self‐esteem: a behavioural genetic perspective

2002 ◽  
Vol 16 (5) ◽  
pp. 351-367 ◽  
Author(s):  
Michelle B. Neiss ◽  
Constantine Sedikides ◽  
Jim Stevenson
Keyword(s):  
Psychological Health ◽  
Environmental Influences ◽  
Family Relationship ◽  
Well Being ◽  
Self Esteem ◽  
Genetic Influences ◽  
Subjective Well Being ◽  
Relationship Patterns ◽  
Domain Specific ◽  
Coping With Illness

Self‐esteem, the affective or evaluative appraisal of one's self, is linked with adaptive personality functioning: high self‐esteem is associated with psychological health benefits (e.g. subjective well‐being, absence of depression and anxiety), effective coping with illness, and satisfactory social relationships. Although several pathways have been hypothesized to effect within‐family transmission of self‐esteem (e.g. parenting style, family relationship patterns), we focus in this article on genetic influences. Genetic studies on both global and domain‐specific self‐esteem and on both level and stability of self‐esteem converge in showing that (i) genetic influences on self‐esteem are substantial, (ii) shared environmental influences are minimal, and (iii) non‐shared environmental influences explain the largest amount of variance in self‐esteem. We advocate that understanding of current issues in self‐esteem research will be enriched by including behavioural genetic approaches. Copyright © 2002 John Wiley & Sons, Ltd.

Rheumatoid Arthritis, Personality, Stress Response Style, and Coping with Illness: A Preliminary Survey

1999 ◽  
Vol 876 (1 NEUROENDOCRIN) ◽  
pp. 419-425 ◽  
Author(s):  
MAURIZIO MARCENARO ◽  
CAMILLA PRETE ◽  
ANNA BADINI ◽  
LBERTO SULLI ◽  
ERMANNO MAGI ◽  
...  
Keyword(s):  
Rheumatoid Arthritis ◽  
Stress Response ◽  
Response Style ◽  
Preliminary Survey ◽  
And Coping ◽  
Coping With Illness

Coping with illness and subjective theories of illness in adult patients with haematological malignancies: Systematic review

2009 ◽  
Vol 69 (3) ◽  
pp. 237-257 ◽  
Author(s):  
Michael Koehler ◽  
Michael Koenigsmann ◽  
Joerg Frommer
Keyword(s):  
Systematic Review ◽  
Adult Patients ◽  
Haematological Malignancies ◽  
Coping With Illness
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