The chronic disease Self‐Management Programme: A phenomenological study for empowering vulnerable patients with chronic diseases included in the EFFICHRONIC project

ObjectivesThe objective of this review was to assess the benefit of using electronic, mobile and telehealth tools for vulnerable patients with chronic disease and explore the mechanisms by which these impact patient self-efficacy and self-management.DesignWe searched MEDLINE, all evidence-based medicine, CINAHL, Embase and PsychINFO covering the period 2009 to 2018 for electronic, mobile or telehealth interventions. Quality was assessed according to rigour and relevance. Those studies providing a richer description (‘thick’) were synthesised using a realist matrix.Setting and participantsStudies of any design conducted in community-based primary care involving adults with one or more diagnosed chronic health condition and vulnerability due to demographic, geographic, economic and/or cultural characteristics.ResultsEighteen trials were identified targeting a range of chronic conditions and vulnerabilities. The data provided limited insight into the mechanisms underpinning these interventions, most of which sought to persuade vulnerable patients into believing they could self-manage their conditions through improved symptom monitoring, education and support and goal setting. Patients were relatively passive in the interaction, and the level of patient response attributed to their intrinsic level of motivation. Health literacy, which may be confounded with motivation, was only measured in one study, and eHealth literacy was not assessed.ConclusionsResearch incorporating these tools with vulnerable groups is not comprehensive. Apart from intrinsic motivation, health literacy may also influence the reaction of vulnerable groups to technology. Social persuasion was the main way interventions sought to achieve better self-management. Efforts to engage patients by healthcare providers were lower than expected. Use of social networks or other eHealth mechanisms to link patients and provide opportunities for vicarious experience could be further explored in relation to vulnerable groups. Future research could also assess health and eHealth literacy and differentiate the specific needs for vulnerable groups when implementing health technologies.

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EFFICHRONIC study protocol: a non-controlled, multicentre European prospective study to measure the efficiency of a chronic disease self-management programme in socioeconomically vulnerable populations

BMJ Open ◽

10.1136/bmjopen-2019-032073 ◽

2019 ◽

Vol 9 (12) ◽

pp. e032073

Author(s):

An L D Boone ◽

Marta M Pisano-Gonzalez ◽

Verushka Valsecchi ◽

Siok Swan Tan ◽

Yves-Marie Pers ◽

...

Keyword(s):

Chronic Disease ◽

Vulnerable Populations ◽

Chronic Conditions ◽

Healthcare Services ◽

Management Programme ◽

Self Management ◽

The European Union ◽

Scientific Publications ◽

General Data Protection Regulation ◽

The Uk

IntroductionMore than 70% of world mortality is due to chronic conditions. Furthermore, it has been proven that social determinants have an enormous impact on both health-related behaviour and on the received attention from healthcare services. These determinants cause health inequalities. The objective of this study is to reduce the burden of chronic diseases in five European regions, hereby focusing on vulnerable populations, and to increase the sustainability of health systems by implementing a chronic disease self-management programme (CDSMP).Methods and analysis2000 people with chronic conditions or informal caregivers belonging to vulnerable populations, will be enrolled in the CDSMP in Spain, Italy, the UK, France and the Netherlands. Inclusion of patients will be based on geographical, socioeconomic and clinical stratification processes. The programme will be evaluated in terms of self-efficacy, quality of life and cost-effectiveness using a combination of validated questionnaires at baseline and 6 months from baseline.Ethics and disseminationThis study will follow the directives of the Helsinki Declaration and will adhere to the European Union General Data Protection Regulation. The project’s activities, progress and outcomes will be disseminated via promotional materials, the use of mass media, online activities, presentations at events and scientific publications.Trial registration numberISRCTN70517103; Pre-results.

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Evaluation Design of EFFICHRONIC: The Chronic Disease Self-Management Programme (CDSMP) Intervention for Citizens with a Low Socioeconomic Position

International Journal of Environmental Research and Public Health ◽

10.3390/ijerph16111883 ◽

2019 ◽

Vol 16 (11) ◽

pp. 1883 ◽

Cited By ~ 4

Author(s):

Siok Swan Tan ◽

Marta M Pisano ◽

An LD Boone ◽

Graham Baker ◽

Yves-Marie Pers ◽

...

Keyword(s):

Chronic Disease ◽

Socioeconomic Position ◽

Chronic Condition ◽

Healthy Lifestyle ◽

Target Population ◽

Management Programme ◽

Self Management ◽

Design Data ◽

Study Objective ◽

Low Socioeconomic

Background/rationale: The Chronic Disease Self-Management Programme (CDSMP) intervention is an evidence-based program that aims to encourage citizens with a chronic condition, as well as their caregivers, to better manage and maintain their own health. CDSMP intervention is expected to achieve greater health gains in citizens with a low socioeconomic position (SEP), because citizens with a low SEP have fewer opportunities to adhere to a healthy lifestyle, more adverse chronic conditions and a poorer overall health compared to citizens with a higher SEP. In the EFFICHRONIC project, CDSMP intervention is offered specifically to adults with a chronic condition and a low SEP, as well as to their caregivers (target population). Study objective: The objective of our study is to evaluate the benefits of offering CDSMP intervention to the target population. Methods: A total of 2500 participants (500 in each study site) are recruited to receive the CDSMP intervention. The evaluation study has a pre-post design. Data will be collected from participants before the start of the intervention (baseline) and six months later (follow up). Benefits of the intervention include self-management in healthy lifestyle, depression, sleep and fatigue, medication adherence and health-related quality of life, health literacy, communication with healthcare professionals, prevalence of perceived medical errors and satisfaction with the intervention. The study further includes a preliminary cost-effectiveness analysis with a time horizon of six months. Conclusion: The EFFICHRONIC project will measure the effects of the CDSMP intervention on the target population and the societal cost savings in five European settings.

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N005 Examination of the efficacy of Chronic Disease Self-management Programme (CDSMP) for patients with inflammatory bowel disease (IBD): a pilot study

Journal of Crohn s and Colitis ◽

10.1016/s1873-9946(13)60734-5 ◽

2013 ◽

Vol 7 ◽

pp. S298

Author(s):

M. Forry ◽

E. McDonnell ◽

J. Wilson-O'Raghallaigh ◽

O. Kelly ◽

A. O'Toole ◽

...

Keyword(s):

Inflammatory Bowel Disease ◽

Chronic Disease ◽

Pilot Study ◽

Bowel Disease ◽

Management Programme ◽

Self Management ◽

Inflammatory Bowel

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Using intervention mapping (IM) to develop a self-management programme for employees with a chronic disease in the Netherlands

BMC Public Health ◽

10.1186/1471-2458-10-353 ◽

2010 ◽

Vol 10 (1) ◽

Cited By ~ 29

Author(s):

Sarah I Detaille ◽

Joost WJ van der Gulden ◽

Josephine A Engels ◽

Yvonne F Heerkens ◽

Frank JH van Dijk

Keyword(s):

Chronic Disease ◽

The Netherlands ◽

Intervention Mapping ◽

Management Programme ◽

Self Management

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Determination of the Problems Experienced by Patients with Chronic Diseases and Their Caregivers During Home Care Process From Nursing Students’ Perspectives: A Phenomenological Study

Eurasian Journal of Family Medicine ◽

10.33880/ejfm.2021100305 ◽

2021 ◽

Vol 10 (3) ◽

pp. 141-150

Author(s):

Erdal Ceylan ◽

Reyhan Eskiyurt ◽

Aysegul Koc

Keyword(s):

Chronic Disease ◽

Nursing Students ◽

Home Care ◽

Chronic Diseases ◽

Phenomenological Study ◽

Family Health ◽

Home Care Services ◽

Study Data ◽

Care Process ◽

Treatment Related Problems

Aim: This qualitative study was conducted to determine the problems experienced by patients with chronic diseases and their caregivers during the home care process from nursing students' perspectives. Methods: Phenomenological method of qualitative research was used in the study. Data was gathered via in-depth interviews with seven nursing students who had a family member with chronic disease. Students were asked about the problems they and their family members experienced during the home care process with a semi-structured questionnaire. Data obtained from the interviews were analyzed using content analysis. Results: As a result of thematic analysis, problems experienced by the patients with chronic diseases and their caregivers during the home care process are grouped under five main themes. These problems were physical problems, social problems, financial problems, psychological problems, and treatment-related problems. Conclusion: This research revealed that the home care process of patients with chronic diseases causes various problems for both patients and their caregivers. Therefore, it is necessary to be aware of these problems, increase the quality of home care services and ensure the continuity of home care. In this way, physiological, psychological, financial, social, and treatment-related problems can be prevented. Keywords: caregivers, chronic disease, family health, home care, nursing students

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