Translation, cross-cultural adaptation and validation of the Quality of Life Evaluation in Epidermolysis Bullosa instrument in Brazilian Portuguese

2015 ◽  
Vol 55 (2) ◽  
pp. e94-e99 ◽  
Author(s):  
Tania Cestari ◽  
Clarissa Prati ◽  
Doris B. Menegon ◽  
Zilda N. Prado Oliveira ◽  
Maria Cecília R. Machado ◽  
...  
2011 ◽  
Vol 2011 ◽  
pp. 1-5 ◽  
Author(s):  
Marcos Campos ◽  
Carlos Henrique A. de Rezende ◽  
Virgilio da C. Farnese ◽  
Carlos Henrique M. da Silva ◽  
Nívea Macedo de O. Morales ◽  
...  

Translate, culturally adapt, and validate the “Parkinson's Disease Quality of Life” (PDQL) BR, into Brazilian Portuguese. Fifty-two patients answered the PDQL-BR. Twenty-one patients answered the PDQL-BR again 14 days later. The UPDRS and HY scale was applied. Validation was evaluated using psychometric properties, checking the quality of the data, reliability, and validity. Quality of the data was evaluated based on occurrence of ceiling and floor effects. Reliability was evaluated based on: internal consistency of an item, homogeneity, and reproducibility. Validation was checked through the evaluation of convergent and discriminatory validation. There was no ceiling and floor effect. When evaluating reliability, items 20, 30, and 37 showed correlation of 0.34, 0.26, and 0.37, respectively, to your scale; the other items was higher than 0.4. The alpha Cronbach coefficient was higher than 0.7 for most domains. There was good reproducibility. There were no meaningful changes in the PDQL-BR translation and cross-cultural adaptation.


PeerJ ◽  
2020 ◽  
Vol 8 ◽  
pp. e9039
Author(s):  
Caroline S. Silva ◽  
Katia S. Freitas ◽  
Anna Paloma R. Ribeiro ◽  
Cristiano M. Gomes ◽  
Jose Bessa Junior

Lower urinary tract symptoms (LUTS) are common complaints in the adult male population and have a negative affect in the quality of life and represent an economic burden for the healthcare system worldwide. The International Prostatism Symptom Score (IPSS) is a validated tool for assessing these symptoms, but patients with low literacy may have difficulties comprehending and completing it accurately. The Urgency, Weak Stream, Incomplete Emptying, and Nocturia (UWIN) questionnaire was developed as a shorter tool in the assessment of LUTS to improve accuracy and minimize error. This study aimed at performing cross-cultural adaptation to Brazilian Portuguese and validation of UWIN questionnaire for patients with LUTS. The cross-cultural adaptation followed the steps of conceptual, item, semantic, operational, and pre-test equivalence to obtain the UWIN-Br version. The IPSS (gold standard) and UWIN-Br were coadministered, and information regarding the uroflowmetry examination was also recorded. We evaluated 306 men, median age 59 [52-66] years. There was a positive correlation r = 0.804 (p < 0.001) between the total IPSS score and the total UWIN-Br score, as well as the quality of life question (r = 0.761) (p < 0.001). The Bland-Altman plot showed good agreement between. Also, we observed that the maximum flow values decreased with the severity of the LUTS. UWIN-Br demonstrated excellent diagnostic accuracy in detecting the most severe cases. The area under the ROC curve was 89% [81–97%] 95% CI. 280 (91.5%) subjects completed the questionnaires without help, while 26 (8.5%) did so through an interview. The response time was 1.2 [1.0–1.5] min for UWIN-Br and 2.8 [2.2–3.4] min for IPSS (p < 0.001). UWIN-Br presents satisfactory and similar psychometric properties to the IPSS in the evaluation of LUTS and quality of life and is suitable for use in both clinical practice and research in our country.


2016 ◽  
Vol 82 (6) ◽  
pp. 636-642 ◽  
Author(s):  
Priscila Regina Candido Espinola Uchoa ◽  
Thiago Freire Pinto Bezerra ◽  
Élcio Duarte Lima ◽  
Marco Aurélio Fornazieri ◽  
Fabio de Rezende Pinna ◽  
...  

2021 ◽  
Vol 122 ◽  
pp. 108169
Author(s):  
Carmen Olbrich Guzmán ◽  
Luis Alvarado Paiva ◽  
Alejandra Fuentes-García ◽  
Mauricio Fuentes Alburquenque

2021 ◽  
Vol 31 (Supplement_2) ◽  
Author(s):  
Elisabete Pacheco ◽  
Luiz Miguel Santiago

Abstract Background Quality of life must be studied as a determinant of health. Depressive state must be measured with culturally adapted and population-validated instruments specially in times of COVID19 pandemics in undergraduate health students to avoid future health damages. The European Quality of Life 5 Dimensions (EQ5-D-3L) is validated but the ‘9-Item Patient Health Questionaire’ (PHQ-9) still needed validation for university population, which this study intended to do. Methods With original authors authorization and after cross-cultural adaptation, a cross sectional, observational study, applying the PHQ-9 and EQ-5D-3L to Faculty of Medicine and Faculty Pharmacy of the University of Coimbra (FMUC and FFUC) students, along with an epidemiological survey in a convenience sample using student’s social networks in november 2020. Descriptive, inferential and correlational statistics were performed. Results A size representative sample of 126 participants was studied, of which 72 from FMUC (57.1%) and 54 from FFUC (42.9%). For PHQ-9 (reliability cronbach’s alfa of 0.815, and F test = 38 786, P &lt; 0.001) were found and global score FFUC students and females was higher, P = 0.014 and P = 0.034, respectively. Females also scored worse for item 5 of EQ5D, P &lt; 0.001. PHQ9 and EQ5D correlation of ρ = -0.588, P &lt; 0.001 and PHQ9 and question 5 of EQ5D-3L with PHQ9 of ρ = +0.484, P &lt; 0.001 were found. Conclusions The cultural adaptation and validation of the ‘9-Item Patient Health Questionaire’ (PHQ9) with the European Quality of Life 5 Dimensions (EQ5D-3L) scale, in FMUC and FFUC students population, verified that the PHQ-9 allows to adequately assess the existence of depressive symptoms and that male individuals were in better mental health.


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