Web‐based Resources for Health Care Providers and Women Following Pregnancy Loss

2006 ◽  
Vol 35 (4) ◽  
pp. 523-532 ◽  
Author(s):  
Pamela A. Geller ◽  
Christina Psaros ◽  
Danielle Kerns
10.2196/10193 ◽  
2018 ◽  
Vol 7 (9) ◽  
pp. e10193 ◽  
Author(s):  
Maria MT Vreugdenhil ◽  
Rudolf B Kool ◽  
Kees van Boven ◽  
Willem JJ Assendelft ◽  
Jan AM Kremer

Background In the Dutch health care system, general practitioners hold a central position. They store information from all health care providers who are involved with their patients in their electronic health records. Web-based access to the summary record in general practice through a personal health record (PHR) may increase patients’ insight into their medical conditions and help them to be involved in their care. Objective We describe the protocol that we will use to investigate the utilization of patients’ digital access to the summary of their medical records in general practice through a PHR and its effects on the involvement of patients in their care. Methods We will conduct a multilevel mixed-methods study in which the PHR and Web-based access to the summary record will be offered for 6 months to a random sample of 500 polypharmacy patients, 500 parents of children aged <4 years, and 500 adults who do not belong to the former two groups. At the patient level, a controlled before-after study will be conducted using surveys, and concurrently, qualitative data will be collected from focus group discussions, think-aloud observations, and semistructured interviews. At the general practice staff (GP staff) level, focus group discussions will be conducted at baseline and Q-methodology inquiries at the end of the study period. The primary outcomes at the patient level are barriers and facilitators for using the PHR and summary records and changes in taking an active role in decision making and care management and medication adherence. Outcomes at the GP staff level are attitudes before and opinions after the implementation of the intervention. Patient characteristics and changes in outcomes related to patient involvement during the study period will be compared between the users and nonusers of the intervention using chi-square tests and t tests. A thematic content analysis of the qualitative data will be performed, and the results will be used to interpret quantitative findings. Results Enrollment was completed in May 2017 and the possibility to view GP records through the PHR was implemented in December 2017. Data analysis is currently underway and the first results are expected to be submitted for publication in autumn 2019. Conclusions We expect that the findings of this study will be useful to health care providers and health care organizations that consider introducing the use of PHR and Web-based access to records and to those who have recently started using these. Trial Registration Netherlands Trial Registry NTR6395; http://www.trialregister.nl/trialreg/admin/rctview.asp?TC=6395 (Archived by WebCite at http://www.webcitation.org/71nc8jzwM) Registered Report Identifier RR1-10.2196/10193


2017 ◽  
Vol 75 (1) ◽  
pp. 50-56 ◽  
Author(s):  
Octávio Marques Pontes-Neto ◽  
Pedro Cougo ◽  
Sheila Cristina Ouriques Martins ◽  
Daniel G. Abud ◽  
Raul G. Nogueira ◽  
...  

ABSTRACT These guidelines are the result of a joint effort from writing groups of the Brazilian Stroke Society, the Scientific Department of Cerebrovascular Diseases of the Brazilian Academy of Neurology, the Brazilian Stroke Network and the Brazilian Society of Diagnostic and Therapeutic Neuroradiology. Members from these groups participated in web-based discussion forums with predefined themes, followed by videoconference meetings in which controversies and position statements were discussed, leading to a consensus. This guidelines focuses on the implications of the recent clinical trials on endovascular therapy for acute ischemic stroke due to proximal arterial occlusions, and the final text aims to guide health care providers, health care managers and public health authorities in managing patients with this condition in Brazil.


10.2196/18555 ◽  
2020 ◽  
Vol 4 (11) ◽  
pp. e18555
Author(s):  
Evangelia Kalaitzoglou ◽  
Edna Majaliwa ◽  
Margaret Zacharin ◽  
Carine de Beaufort ◽  
Jean-Pierre Chanoine ◽  
...  

Background Electronic learning (e-learning) is a widely accessible, low-cost option for learning remotely in various settings that allows interaction between an instructor and a learner. Objective We describe the development of a free and globally accessible multilingual e-learning module that provides education material on topics in pediatric endocrinology and diabetes and that is intended for first-line physicians and health workers but also trainees or medical specialists in resource-limited countries. Methods As complements to concise chapters, interactive vignettes were constructed, exemplifying clinical issues and pitfalls, with specific attention to the 3 levels of medical health care in resource-limited countries. The module is part of a large e-learning portal, ESPE e-learning, which is based on ILIAS (Integriertes Lern-, Informations- und Arbeitskooperations-System), an open-source web-based learning management system. Following a review by global experts, the content was translated by native French, Spanish, Swahili, and Chinese–speaking colleagues into their respective languages using a commercial web-based translation tool (SDL Trados Studio). Results Preliminary data suggest that the module is well received, particularly in targeted parts of the world and that active promotion to inform target users is warranted. Conclusions The e-learning module is a free globally accessible multilingual up-to-date tool for use in resource-limited countries that has been utilized thus far with success. Widespread use will require dissemination of the tool on a global scale.


PLoS ONE ◽  
2021 ◽  
Vol 16 (1) ◽  
pp. e0245783
Author(s):  
Amelia S. Knopf ◽  
Peter Krombach ◽  
Amy J. Katz ◽  
Rebecca Baker ◽  
Gregory Zimet

Mistrust of health care providers among persons of color is a significant barrier to engaging them in research studies. Underrepresentation of persons of color is particularly problematic when the health problem under study disproportionately affects minoritized communities. The purpose of this study was to test the validity and reliability of an abbreviated and adapted version of the Group Based Medical Mistrust Scale. The GBMMS is a 12-item scale with three subscales that assess suspicion, experiences of discrimination, and lack of support in the health care setting. To adapt for use in the research setting, we shortened the scale to six items, and replaced “health care workers” and “health care” with “medical researchers” and “medical research,” respectively. Using panelists from a market research firm, we recruited and enrolled a racially and ethnically diverse sample of American adults (N = 365) and adolescents aged 14–17 (N = 250). We administered the adapted scale in a web-based survey. We used Cronbach’s alpha to evaluate measure internal reliability of the scale and external factor analysis to evaluate the relationships between the revised scale items. Five of the six items loaded onto a single factor, with (α = 0.917) for adolescents and (α = 0.912) for adults. Mean scores for each item ranged from 2.5–2.9, and the mean summary score (range 6–25) was 13.3 for adults and 13.1 for adolescents. Among adults, Black respondents had significantly higher mean summary scores compared to whites and those in other racia/ethnic groups (p<0.001). There was a trend toward significance for Black adolescents as compared to white respondents and those in other racial/ethnic groups (p = 0.09). This five-item modified version of the GBMMS is reliable and valid for measuring research mistrust with American adults and adolescents of diverse racial and ethnic identities.


2009 ◽  
Vol 73 (6) ◽  
pp. 718-729 ◽  
Author(s):  
Rita D. DeBate ◽  
Herbert Severson ◽  
Marissa L. Zwald ◽  
Tracy Shaw ◽  
Steve Christiansen ◽  
...  

2014 ◽  
Vol 8 (2) ◽  
pp. 62-69
Author(s):  
Yati Afiyanti

AbstrakKehamilan seringkali dianggap sebagai periode transisi dalam kehidupan seorang wanita. Suatu studi kualitatif secara hermeneutic fenomenologi telah dilakukan untuk mengeksplorasi berbagai pengalaman wanita di daerah pedesaan dengan kehamilan pertamanya termasuk pengalaman mereka menerima pelayanan kesehatan dari para praktisi kesehatan Data studi ini diperoleh dari 9 ibu muda, dikumpulkan melalui wawancara formal tidak berstruktur yang mendalam sebanyak dua kali di rumah partisipan masing-masing. Wawancara direkam kemudian dibuat dalam bentuk transkrip wawancara. Hasil penelitian mengungkapkan berbagai pengalaman wanita yang bervariasi. Kebanyakan ibu muda dalam studi ini mengalami kesulitan mengatasi berbagai ketidaknyamanan fisik dan psikologis akibat kehamilan dan mengalami kecemasan menghadapi proses kelahiran bayi mereka. Mereka membutuhkan dukungan dan bantuan, baik dari para praktisi kesehatan maupun anggota keluarga. Dengan hasil studi ini, diharapkan para praktisi kesehatan akan lebih memahami harapan-harapan seorang ibu hamil untuk dapat menjalani masa kehamilannya dengan sehat dan sejahtera. AbstractPregnancy often assumed as transition period in the woman’s life. A Qualitative studi, using fenomenology hermeunetic was carried out to explore women’s experiences in rural area of their first pregnancy, included their experiences received from the health care provider. Data were obtained from 9 women whose unstructured formal interviews were tape-recorded dan transcribed. Interviews were conducted in the women’s homes on two occasions during pregnancy. The findings reported the women’s experiences were varied and diverse. Most had difficulty coping with the physical and emotional symptoms of pregnancy. Loss of control caused anxiety toward with their childbirth The need for support emerged as important from their family and the health care providers. The findings of this study will provide the health care providers deeper understanding about the expectances of new expectant mothers with their first pregnancy, healthy dan wellness.


2017 ◽  
Vol 13 (2) ◽  
pp. 72-77 ◽  
Author(s):  
Stephen R. Baldassarri ◽  
Geoffrey L. Chupp ◽  
Frank T. Leone ◽  
Graham W. Warren ◽  
Benjamin A. Toll

Introduction: The emergence of electronic cigarettes (ECs) has become a growing phenomenon that has sharply split opinion among the public health community, physicians, and lawmakers.Aims: We sought to determine chest physician perceptions regarding ECs.Methods: We conducted a web-based survey of 18,000 American College of Chest Physician (CHEST) members to determine health care provider experiences with EC users and to characterise provider perceptions regarding ECs.Results/Findings: There were 994 respondents. Eighty-eight per cent reported that patients had asked their opinion of ECs, and 31% reported EC use among at least 10% of their patients. More disagreed than agreed (41% vs. 21%) that patients could improve their health by switching from tobacco smoking to daily EC use. Respondents were split on whether ECs promote tobacco cessation (32% agree vs. 33% disagree).Conclusions: Current perceptions of ECs are variable among providers. More than 1/3 of respondents felt that EC's could be used for smoking cessation for smokers who failed prior quit attempts with approved therapies. However, many respondents were not convinced that ECs will reduce harms from tobacco use. There is an urgent need to generate additional high quality scientific data regarding ECs to inform chest physicians, health professionals, and the general public.


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