scholarly journals What Effect Does Transition Have on Health and Well-Being in Young People with Intellectual Disabilities? A Systematic Review

2016 ◽  
Vol 30 (5) ◽  
pp. 805-823 ◽  
Author(s):  
Genevieve Young-Southward ◽  
Christopher Philo ◽  
Sally-Ann Cooper
Author(s):  
Jaycee D. Pownall ◽  
Andrew Jahoda ◽  
Richard Hastings ◽  
Linda Kerr

Abstract The sexual development of young people with intellectual disabilities is a marker of their transition to adulthood and affects their sense of well being and identity. Cognitive impairments and a socially marginalized position increase dependence on their families to assist with sexual matters. In this study, the authors adopted a novel interpretive phenomenological analysis approach, asking 8 mothers to contrast their experience of supporting similarly aged siblings with and without intellectual disabilities. Acknowledgment of their nondisabled offspring's sexuality was demanded by increasing autonomy, whereas continuing dependence of the offspring with intellectual disabilities hindered mothers who were addressing this intensely private and sensitive issue with them. The topic of sexuality brought to the forefront mothers' fears about their offspring's ability to cope with the challenges of adulthood.


2021 ◽  
Vol ahead-of-print (ahead-of-print) ◽  
Author(s):  
Gemma Rogers

Purpose This paper aims to consider the experiences of people with intellectual disabilities in relation to the COVID-19 pandemic and subsequent lockdown restrictions. Design/methodology/approach This commentary reflects on the issues raised by Morris et al., and in the wider literature. Findings Although there have been some benefits to lockdown for people with intellectual disabilities, mainly they have experienced isolation, increased mental health and well-being challenges, difficulty in accessing services, support and adequate adapted information. Originality/value This commentary argues that it is important to continue to capture the experiences of people with intellectual disabilities now and over time to assess the long-term consequences of the pandemic and to design services which are respondent to their needs.


Author(s):  
Owen Barr ◽  
Bob Gates

This chapter explores in detail aspects of health in children, adults, and older people with severe intellectual disabilities. It reviews why they have higher health needs when compared with the general population. It also identifies the different pattern of physical health needs and the high comorbidity in this group of people, as well as explores how many health needs can remain untreated. It demonstrates that the health profile of people with mild intellectual disabilities is similar to the wider population, once socio-economic factors are taken into account, although importantly they may experience more difficulty in accessing health promotion and primary and secondary care services. As a result of these factors, which include unmet health needs, many people die unnecessarily and at a premature age. This chapter uniquely provides comprehensive coverage of the very many factors compromising health and well-being, along with providing a range of strategies that registered nurses for people with intellectual disabilities can adopt in order to support health and well-being.


2021 ◽  
Author(s):  
Lianne Bakkum ◽  
Carlo Schuengel ◽  
Paula Sterkenburg ◽  
Noud Frielink ◽  
Petri Embregts ◽  
...  

During the initial phase of the COVID-19 pandemic, many people with disabilities living in care facilities could not receive visitors. The use of virtual social contact has been recommended by health authorities such as the World Health Organization. This systematic review examined the scientific evidence of the use and feasibility of information and communication technology (ICT) for social contact by people with intellectual disabilities living in care facilities, and potential effects on well-being.


2018 ◽  
Vol 29 (7) ◽  
pp. 931-943 ◽  
Author(s):  
Alexandra Kaley ◽  
Chris Hatton ◽  
Christine Milligan

There is a tendency to exclude people with intellectual disabilities from participating in research about their own lives. While the use of participatory research approaches is increasing, the methods used for engaging people with intellectual disabilities in research are generally limited to interviews and focus groups. Yet a focus on the spoken or written word can present a challenge for those who may prefer to use alternative forms of communication. The purpose of this article is to share the methodological insights gained from a visual ethnographic study that sought to explore the experiences of people with intellectual disabilities engaged in nature based (or “green care”) therapeutic interventions for health and well-being. If used within carefully negotiated relationships, we suggest that video can be an empowering visual medium for doing research that can help to elicit the experiences of people with intellectual disabilities firsthand, without having to rely on the views and perspectives of other people.


Author(s):  
Owen Barr ◽  
Bob Gates

This chapter outlines a variety of therapeutic interventions that are more commonly used with people with intellectual disabilities to help them address challenges to their health and well-being. Typically, some of these interventions are used by specialist therapists, but increasingly nurses for people with intellectual disabilities are developing specialist and advanced areas of practice. Each section, where appropriate, not only describes the intervention in detail, but also identifies the evidence base supporting it. Nurses for people with intellectual disabilities and students of nursing will find this chapter a useful resource in their everyday practice.


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